Quality of life of family caregivers of children with orofacial clefts in Nigeria: A mixed-method study

Oral Diseases

Volumn 22, Issue 2, 2016, Pages 116-122

  Awoyale, T ^a   Onajole, A T ^b   Ogunnowo, B E ^b   Adeyemo, W L ^b   Wanyonyi, K L ^c   Butali, A ^d  

^a LAGOS UNIVERSITY TEACHING HOSPITAL   (Nigeria)

^b UNIVERSITY OF LAGOS   (Nigeria)

^c KING'S COLLEGE LONDON   (United Kingdom)

^d UNIVERSITY OF IOWA   (United States)

Author keywords

Clefts; Family caregivers; Focus group discussion; Nigeria; Orofacial clefts; Quality of life

Indexed keywords

ACCESS TO INFORMATION; ADOLESCENT; ADULT; ARTICLE; CAREGIVER; CLEFT LIP; CLEFT PALATE; COPING BEHAVIOR; EMOTIONALITY; EMPATHY; FAMILY CENTERED CARE; FEMALE; FINANCIAL MANAGEMENT; HEALTH CARE DELIVERY; HUMAN; INFORMATION PROCESSING; MAJOR CLINICAL STUDY; MALE; NIGERIA; PRIORITY JOURNAL; PROFESSIONAL PRACTICE; QUALITATIVE ANALYSIS; QUALITY OF LIFE; SOCIAL ASPECT; SOCIAL STATUS; STATISTICAL SIGNIFICANCE; HUMAN RELATION; INFANT; INTERPERSONAL COMMUNICATION; NEWBORN; PSYCHOLOGY; QUESTIONNAIRE; YOUNG ADULT;

ACCESS TO INFORMATION; ADOLESCENT; ADULT; CAREGIVERS; CLEFT LIP; CLEFT PALATE; COMMUNICATION; EMPATHY; FEMALE; FOCUS GROUPS; HUMANS; INFANT; INFANT, NEWBORN; MALE; NIGERIA; PROFESSIONAL-FAMILY RELATIONS; QUALITY OF LIFE; SURVEYS AND QUESTIONNAIRES; YOUNG ADULT;

EID: 84958590707     PISSN: 1354523X     EISSN: 16010825     Source Type: Journal    
DOI: 10.1111/odi.12379     Document Type: Article

References (29)

1. Alecxih L, Zeruld S, Olearczyk B (2002). Characteristics of caregivers based on the survey of income and program participation. National Family Caregiver Support Program: Selected Issue briefs. Administration on aging. US Department of Health and Human Services: Washington, DC.
2. Becker MA, Shaw BR, Reib LM (2000). Quality of life assessment manual. University of Wisconsin- Madison, Quality of Life Assessment Team: Madison, WI. Available at: http://www.fmhi.usf.edu/institute/pubs/pdf/mhlp/qol.pdf [accessed on June 2015].
3. Bendo CB, Paiva SM, Viegas CM, Vale MP, Varni JW (2012). The PedsQLTM Oral Health Scale: feasibility, reliability and validity of the Brazilian Portuguese version. Health Qual Life Outcomes 10: 42.
4. Broder HL, Wilson-Genderson M, Sischo L (2012). Health disparities among children with cleft. Am J Public Health 102: 828-830.
5. Christensen K, Juel K, Herskind AM, Murray JC (2004). Long term follow up study of survival associated with cleft lip and palate at birth. BMJ 328: 1405-1408.
6. Covinsky KE, Goldman L, Cook EF (1994). The impact of serious illness on patients' families. SUPPORT Investigators. Study to understand prognoses and preferences for outcomes and risks of treatment. JAMA 272: 1839-1844.
7. Epstein I, Stinson J, Stevens B (2005). The effects of camp on health related quality of life in children with chronic illness: a review of the literature. J Pediatr Oncol Nurs 22: 89-103.
8. Fadden G, Bebbington P, Kuipers L (1987). The burden of care: the impact of functional psychiatric illness on the patient's family. Br J Psychiatry 150: 285-292.
9. Glozman J (2004). Quality of life of caregivers. Neuropsychol Rev 14: 183-197.
10. Haberstroh J, Hampel H, Pantel J (2010). Optimal management of Alzheimer's disease patients: clinical guidelines and family advice. Neuropsychiatr Dis Treat 6: 243-253.
11. Ibrahim A, Ijekeye FO, Asuku ME (2008). Tessier cleft numbers 7 and 30: case report and literature review. Niger J Plast Surg 4: 52-57.
12. Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M (1996). Measuring quality of life in the parents of children with asthma. Qual Life Res 5: 27-34.
13. Kendall-Tackett K, Cong Z, Hale TW (2011). The effect of feeding method on sleep duration, maternal well-being, and postpartum depression. Clin Lact 2: 22-26.
14. Kramer FJ, Baethge C, Sinikovic B, Schliephake H (2007). An analysis of quality of life in 130 families having small children with cleft lip/palate using the impact on family scale. Int J Oral Maxillofac Surg 36: 1146-1152.
15. Kramer FJ, Gruber R, Fialka F, Sinikovic B, Hahn W, Schliephake H (2009). Quality of life in school-age children with Orofacial Clefts and their families. J Craniofac Surg 20: 2061-2066.
16. Locker D, Jokovic A, Tompson B (2005). Health-related quality of life of children aged 11 to 14 years with orofacial conditions. Cleft Palate Craniofac J 42: 260-266.
17. Mash B, Blitz-Lindeque J (2006). How to assess family function. In: South African family practice manual. 2nd edn. Van Schaik: South Africa, pp. 384-385.
18. Nackashi JA, Dedlow RE, Dixon-Wood V (2002). Health care for children with cleft lip and palate: comprehensive services, and infant feeding. Cleft lip and palate from origin to treatment. Oxford University Press: Oxford, UK, pp. 127-158.
19. Northouse LL, Katapodi MC, Song L, Zhang L, Mood DW (2010). Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA Cancer J Clin 60: 317-339.
20. Prahbhjot M, Pratibha S (2005). Correlates of quality of life with epilepsy. Indian J Pediatr 72: 131-135.
21. Rabiee F (2004). Focus-group interview and data analysis. Proc Nutr Soc 63: 655-660.
22. Rodríguez-Sánchez E, Pérez-Peñaranda A, Losada-Baltar A et al (2011). Relationships between quality of life and family function in caregiver. BMC Fam Pract 12: 1-7.
23. Smile Train (2012). Changing the world one smile at a time. Available at: http://www.smiletrain.org [accessed on June 2015].
24. Stein RE, Jessop DJ (2003). The impact on family scale revisited: further psychometric data. J Dev Behav Pediatr 24: 9-16.
25. Van Lierde KM, Dhaeseleer E, Luyten A, Van De Woestijne K, Vermeersch H, Roche N (2012). Parent and child ratings of satisfaction with speech and facial appearance in flemish pre-pubescent boys and girls with unilateral cleft lip and palate. Int J Oral Maxillofac Surg 41: 192-199.
26. Wehby G, Cassell C (2010). The impact of orofacial clefts on quality of life and health care use and cost. Oral Dis 16: 3-10.
27. Yaffe K, Fox P, Newcomer R et al. (2002). Patient and caregiver characteristics and nursing home placement in patients with dementia. JAMA 287: 2090-2097.
28. Ylvén R, Björck-Åkesson E, Granlund M (2006). Literature review of positive functioning in families with children with a disability. J Policy Pract Intellect Disabil 3: 253-270.
29. Zahid MA, Ohaeri JU (2010). Relationship of family caregiver burden with quality of care and psychopathology in a sample of Arab subjects with schizophrenia. BMC Psychiatry 10: 71-75.