Health-related quality of life of children aged 11 to 14 years with orofacial conditions

Cleft Palate-Craniofacial Journal

Volumn 42, Issue 3, 2005, Pages 260-266

  Locker, David ^a   Jokovic, Aleksandra ^a   Tompson, Bryan ^a,b  

^a UNIVERSITY OF TORONTO   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Children; Orofacial conditions; Quality of life

Indexed keywords

ABSENTEEISM; ADOLESCENT; ARTICLE; CLEFT LIP; CLEFT PALATE; CLINICAL ARTICLE; CONTROLLED STUDY; CRANIOFACIAL MALFORMATION; DENTAL CARIES; HUMAN; MOUTH BREATHING; PRIORITY JOURNAL; PSYCHOSOCIAL WITHDRAWAL; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; SOCIAL ISOLATION; SPEECH DISORDER; WELLBEING;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHILD; DENTAL CARIES; FEMALE; HEALTH STATUS; HUMANS; INTERPERSONAL RELATIONS; MALE; MAXILLOFACIAL ABNORMALITIES; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; SELF ASSESSMENT (PSYCHOLOGY);

EID: 18444371195     PISSN: 10556656     EISSN: None     Source Type: Journal    
DOI: 10.1597/03-077.1     Document Type: Article

References (47)

1. Adulyanon S, Vourpapukjaru J, Sheiham S. Oral impacts affecting daily performance in a low dental disease Thai population. Community Dent Oral Epidemiol. 1996;24:385-389.
2. Allen P, McMillan A, Walshaw D, Locker D. A comparison of the validity of generic and disease-specific measures in the assessment of oral health quality of life. Community Dent Oral Epidemiol. 1999;27:344-352.
3. Atchison KA, Dolan TA. Development of the Geriatric Oral Health Assessment Index. J Dent Educ. 1990;54:680-687.
4. Bergner M, Bobbin RA, Cater WB, Gilson BS. The Sickness Impact Profile: development and final revision of a health status measure. Med Care. 1981;19:787-805.
5. Bressman T, Sader R, Ravens-Sieberer U, Zeilhofer HF, Horsch HH. Lebensqualitatsforschung bei patienten mit Lippen-Kiefer-Gaumen-Spalten. Mund Kiefer Gesichtschir. 1999;3:134-139.
6. Broder H. Using psychological assessment and therapeutic strategies to enhance well-being. Cleft Palate Craniofac J. 2001;38:248-254.
7. Broder H, Richman LC, Matheson PB. Learning disability, school achievement and grade retention among children with cleft: a two-center study. Cleft Palate Craniofac J. 1998;35:127-131.
8. Broder H, Strauss R. Self-concept of early primary school age children with visible or invisible defects. Cleft Palate J. 1989;26:114-117.
9. Brunelle JA, Bhat M, Lipton JA. Prevalence and distribution of selected occlusal characteristics in the U.S. population, 1988-1991. J Dent Res. 1996;75(Spec No.):706-713.
10. Cohen J. Statistical Power Analysis for the Behavioural Sciences. Hillside, NJ: Lawrence Erlbaum Associates; 1988.
11. Corson MA, Boyd T, Kind P, Allen PF, Steele JG. Measuring oral health: does your treatment really make a difference? Br Dent J. 1999;9:481-484.
12. Eiserman W. Unique outcomes and positive contribution associated with facial difference: Expanding research and practice. Cleft Palate Craniofac J. 2001;38:236-244.
13. French D, Christie M. Developing outcome measures for children: quality of life: assessment for paediatric asthma. In: Hutchinson E, McColl E, Riccalton C, eds. Health Outcome Measures in Primary and Patient Care. Amsterdam: Academic Publishers; 1996.
14. Gray DB, Hendershot GE. The ICIDH-2: developments for a new era of outcomes research. Arch Phys Med Rehabil. 2000;81:S10-S14.
15. Guyatt GH, Bombardier C, Tugwell P. Measuring disease-specific quality of life in clinical trials. J Can Med Assoc. 1986;134:889-895.
16. Guyatt G, Walter S, Norman G. Measuring change over time: assessing the usefulness of evaluative instruments. J Chron Dis. 1987;2:171-178.
17. Harper A, Kline B, Smith H. An epidemiological description of physical, social and psychological problems in multiple sclerosis. J Chron Dis. 1986;39:305-310.
18. Heller A, Rafman S, Zvagulis I, Pless IB. Birth defects and psychosocial adjustment. Am J Dis Child. 1985;139:257-263.
19. Hunt SM, McKenna SP, McEwen J. A quantitative approach to perceived health. J Epidemiol Community Health. 1980;34:281-285.
20. Jaeschke R, Singer J, Guyatt G. Measurement of health status: ascertaining the minimal clinically important difference. Controlled Clin Trials. 1989;10:407-415.
21. Jokovic A, Locker D, Stephens M, Kenney D, Tompson B, Guyatt G. Validity and reliability of a questionnaire for measuring child oral health-related quality of life. J Dent Res. 2002;81:459-463.
22. Juniper EF, Guyatt GH, Jaeschke R. How to develop and validate a new health-related quality of life instrument. In: Spilker B, ed. Quality of Life and Pharmacoeconomics in Clinical Trials. Philadelphia: Lippincott-Raven Publishers; 1996.
23. Juniper G, Guyatt G, Willan A, Griffith L. Determining a minimal important change in a disease-specific quality of life questionnaire. J Clin Epidemiol. 1994;47:81-87.
24. Kapp-Simon KA, Simon DJ, Kristovich S. Self-perception, social skills, adjustment and inhibition in young adolescents with craniofacial anomalies. Cleft Palate J. 1992;29:352-356.
25. Leonard BJ, Brust JD, Abrahams G, Sielaff B. Self-concept of children and adolescents with cleft lip and/or palate. Cleft Palate J. 1991;28:347-353.
26. Locker D. Concepts of health, disease and quality of life. In: Slade G, ed. Measuring Oral Health and Quality of Life. Chapel Hill, NC: University of North Carolina; 1997.
27. Locker D. Disability and Disadvantage: The Consequences of Chronic Illness. London: Tavistock; 1983.
28. Locker D. Evaluation of Ontario's Targeted Screening Program for School-children. Program Evaluation Report 7. Toronto, Canada: University of Toronto, Community Dental Health Services Research Unit; 2002.
29. Locker D. Living with chronic illness. In: Scambler G, ed. Sociology as Applied to Medicine. London: Bailliere Tindall, Concise Medical Texts; 1997.
30. Marcusson A, Akerlind I, Paulin G. Quality of life in adults with repaired cleft lip and palate. Cleft Palate Craniofac J. 2001;38:379-385.
31. Meyerson MD. Resiliency and success in adults with Moebius syndrome. Cleft Palate Craniofac J. 2001;38:231-235.
32. Mitchell L, Carter NE. An Introduction to Orthodontics. Oxford, UK: Oxford University Press; 1996.
33. Pal DK. Quality of life assessment in children: a review of conceptual and methodological issues in multidimensional health stats measures. J Epidemiol Community Health. 1996;50:391-396.
34. Pope AW, Ward J. Factors associated with peer social competence in preadolescents with craniofacial anomalies. J Pediatr. 1997;22:455-469.
35. Pruzinsky T. Social and psychological challenges for individuals with facial disfigurement. In: Special Faces: Understanding Facial Disfigurement. New York: National Foundation for Facial Reconstruction; 1992.
36. Richman LC. The effects of facial disfigurement on teacher's perception of ability in cleft palate children. Cleft Palate J. 1978;15:155-160.
37. Richman LC, Eliason M. Psychological characteristics of children with cleft lip/palate: intellectual achievement, behavioural and personality variables. Cleft Palate J. 1982;19:249-257.
38. Schneiderman CR, Harding JB. Social ratings of children with cleft lip by peers. Cleft Palate J. 1984;21:224-228.
39. Schulman J, Edmonds LD, McClearn LB, Jensvold N, Shaw GM. Surveillance for and comparison of birth defect prevalences in two geographic areas - Unites States, 1983-1988. MMWR Morb Mortal Wkly Rep. 1993;19:1-7.
40. Slade GD, Spencer AJ. Development and evaluation of the oral health impact profile. Community Dent Health. 1994;11:3-11.
41. Strauss RP. Only skin deep: health, resilience and craniofacial care. Cleft Palate Craniofac J. 2001;38:226-230.
42. Surgeon General's Report. Oral Health in America. Bethesda, MD: U.S. Department of Health and Human Services, National Institute of Dental and Craniofacial Research, National Institutes of Health; 2000.
43. Thomas PT, Turner SR, Rumsey N, Dowell T. Sandy JR. Satisfaction with facial appearance among subjects affected by a cleft. Cleft Palate Craniofac J. 1997;34:226-231.
44. Tobiasen JM, Levy J, Carpenter MA, Hiebert JM. Type of facial cleft, associated congenital malformations and parent ratings of school and conduct problems. Cleft Palate J. 1987;24:209-215.
45. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF36). 1. Conceptual framework and item selection. Med Care. 1992;30:473-483.
46. Williams S, Bury M. Impairment, disability and handicap in chronic respiratory illness. Soc Sci Med. 1989;29:609-616.
47. Wilson IB, Cleary PD. Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA. 1995;273:59-65.