The effects of camp on health-related quality of life in children with chronic illnesses: A review of the literature

Journal of Pediatric Oncology Nursing

Volumn 22, Issue 2, 2005, Pages 89-103

  Epstein, Iris ^a   Stinson, Jennifer ^b   Stevens, Bonnie ^a,b  

^a UNIVERSITY OF TORONTO   (Canada)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

Author keywords

Camp; Child; Chronic illness; Quality of life

Indexed keywords

CHILD HEALTH; HEALTH STATUS; HEALTH SURVEY; HUMAN; MEDICAL LITERATURE; MEDICAL RESEARCH; QUALITY OF LIFE; REVIEW; SOCIAL PSYCHOLOGY;

ADOLESCENT; ADULT; CAMPING; CHILD; CHRONIC DISEASE; DISABLED CHILDREN; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; NURSING RESEARCH; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIALS; SEVERITY OF ILLNESS INDEX; SICKNESS IMPACT PROFILE; STRESS, PSYCHOLOGICAL;

EID: 14644406203     PISSN: 10434542     EISSN: None     Source Type: Journal    
DOI: 10.1177/1043454204273881     Document Type: Review

References (51)

1. Austin, J. K., & Huberty, T. J. (1993). Development of child attitude toward illness scale. Journal of Pediatric Psychology, 18, 467-480.
2. Balen, R. (2000). Listening to children with cancer. Children & Society, 14, 159-167.
3. Barker, J., & Weller, S. (2003). "Never work with children." Qualitative Research, 3, 207-227.
4. Blau, H., Mussaffi-Georgy, H., Fink, G., Kaye, C., Szeinberg, A., & Yahav, J. (2002). Effects of an intensive 4-week summer camp on cystic fibrosis: Pulmonary function, exercise tolerance and nutrition. Chest, 121, 11-22.
5. Bluebond-Langner, M., Perkel, D., & Goertzel, T. (1991). Pediatric cancer patients' peer relationships: The impact of an oncology camp experience. Journal of Psychosocial Oncology, 9, 67-80.
6. Bluebond-Langner, M., Perkel, D., Goertzel, T., Nelson, K., & McGeary, J. (1990). Children's knowledge of cancer and its treatment: Impact of an oncology camp experience. Journal of Pediatrics, 116, 207-213.
7. Briery, B., & Rabian, B. (1999). Psychosocial changes associated with participation in a pediatric summer camp. Journal of Pediatric Psychology, 24, 183-190.
8. Chen, H. (1988). Validity in evaluation research: A critical assessment of current issues. Policy and Politics, 16, 1-16.
9. Eiser, C., & Morse, R. (2001). Can parents rate their children's health-related quality of life? Result of a systemic review. Quality of Life Research, 10, 347-352.
10. Feeny, D., Furlong, W., Mulhern, R. K., Barr, R. D., & Hudson, M. (1999). A framework for assessing health-related quality of life among children with cancer. International Journal of Cancer, 12, 2-9.
11. Guba, E., & Lincoln, Y. (1989). Fourth generation evaluation. Newbury Park, CA: Sage.
12. Guyatt, G. H., Juniper, E. F., Griffith, L. E., Feeny, D. H., & Ferry, P. J. (1997). Children and adult perceptions of childhood asthma. Pediatrics, 99, 165-168.
13. Heiney, S., Wells, L., & Coleman, B. (1990). Lasting impressions: A psychosocial support program for adolescents with cancer and their parents. Cancer Nursing, 13, 13-20.
14. Hjermstad, M. J., & Kaasa, S. (1995). QOL in adult cancer patients treated with bone marrow transplantation: A review of the literature. European Journal of Cancer, 31, 163-173.
15. Hoodin, F., & Weber, S. (2003). A systematic review of psychosocial factors affecting survival after bone marrow transplantation. Psychosomatics, 44, 181-195.
16. Horstman, M., & Bradding, A. (2002). Helping children speak up in the health service. European Journal of Oncology Nursing, 6, 75-84.
17. Houtzager, B. A., Grootenhuis, M. A., & Last, B. (1999). Adjustments of siblings to childhood cancer: A literature review. Supportive Care in Cancer, 7, 302-320.
18. Jamison, R., Lewis, S., & Burish, T. (1986). Psychological impact of cancer on adolescents: Self image, locus of control, perception of illness and knowledge of cancer. Journal of Chronic Disease, 39, 601-611.
19. Kaplan, T., McKey, R., Toraya, N., & Moccia, G. (1992). Impact of CF summer camp. Clinical Pediatrics, 31, 161-167.
20. Kearns, R. A., & Collins, C. (2000). New Zealand children's health camps: Therapeutic landscape meets the contract state. Social Science & Medicine, 51, 1047-1059.
21. Lord, A., Leger, L., Ridge, D., & Elisha, D. (2001). The value of asthma camps for young people in Victoria. Contemporary Nurse, 11, 133-141.
22. Loy, M. J. (1999). A study of the effectiveness of a camp intervention for bereaved adolescents. Unpublished doctoral dissertation, University of Wisconsin-Madison.
23. Meng, A., Tiernan, K., Bernier, M., & Brooks, E. (1998). Lessons from an evaluation of the effectiveness of an asthma day camp. American Journal of Maternal/Child Nursing, 23, 300-306.
24. Milliet, J., Carman, D., & Browne, R. (1996). Summer camp: Effects on function of children with autoimmune disease. Arthritis Care and Research, 9, 309-314.
25. Misuraca, A., Gennaro, M., Lioniello, M., Duval, M., & Aloi, G. (1996). Summer camps for diabetic children: An experience in Campania. Diabetes Research and Clinical Practice, 32, 91-96.
26. Mitchell, W., & Sloper, P. (2001). Quality in services for disabled children and their families: What can theory, policy and research on children and parents' views tell us? Children & Society, 15, 237-252.
27. Moffatt, M., & Pless, I. (1983). Locus of control in juvenile diabetes campers: Changes during camp, and relationship to camp staff assessment. Journal of Pediatrics, 103, 146-150.
28. Nowicki, S., & Stickland, B. R. (1973). A locus of control scale for children. Journal of Consultant Clinical Psychology, 40, 148-150.
29. Olson, D., McCubbin, H., & Barnes, H. (1985). Family inventories (2nd ed.). St Paul: University of Minnesota.
30. Palo, A. (1988). Ways of coping questionnaires. Palo Alto, CA: Consulting Psychology Press.
31. Parcel, G., & Meyer, M. (1978). Development of an instrument to measure children's health locus of control. Health Education Monographs, 6, 149-159.
32. Piers, E. (1969). Manual for the Piers-Harris Children's Self-Concept Scale. Nashville, TN: Counselor Recording and Test.
33. Rew, L. (1987). Children with asthma: The relationship between illness behaviours and health locus of control. Western Journal of Nursing Research, 9, 465-483.
34. Rubin, B., & Geiger, D. (1991). Pulmonary function, nutrition and self concept in cystic fibrosis summer campers. Chest, 100, 647-654.
35. Sawin, K., Lannon, S., & Austin, J. (2001). Camp experience and attitude towards epilepsy. Journal of Neuroscience Nursing, 33, 57-64.
36. Semiz, S., Ozarslan, B., Bundak, R., & Bircan, I. (2000). Summer camp for diabetic children: An experience in Antalya, Turkey. Academic Diabetological, 37, 197-200.
37. Smith, K., Gotlieb, S., Gurwitch, R., & Blotcky, A. D. (1987). Impact of a summer camp experience on daily activity and family interactions among children with cancer. Journal of Pediatric Psychology, 12, 533-543.
38. Smith, K., Schreiner, B., Brouhard, B., & Travis, L. (1991). Impact of camp experience on choice of coping strategies by adolescents with insulin-dependent diabetes mellitus. The Diabetes Educator, 17, 49-53.
39. Smith, K., Schreiner, B., Jackson, C., & Travis, L. (1993). Teaching assertive communication skills to adolescents with diabetes: Evaluation of a camp curriculum. The Diabetes Educator, 19, 136-141.
40. Spielberger, C. (Ed.). (1973). Manual for the State-Trait Anxiety Inventory for Children. Palo Alto, CA: Consulting Psychology Press.
41. Strand, C., & Russell, S. (1997). WHO/ILAR taskforce on QOL. Journal of Rheumatology, 24, 1630-1633.
42. Tennant, M. (1996). Children's health camps in New Zealand: Making of a movement 1919-1940. Social History of Medicine, 9, 69-87.
43. Tittler, B., Friedman, S., Blotcky, A. D., & Stedrak, J. (1982). The influence of family variables on an ecologically-based treatment program for emotionally disturbed children. American Journal of Orthopsychiatry, 52, 123-130.
44. Torshen, K., Kroeker, L., & Peterson, R. (1977). Self concept assessment for young children: Development of a self concept, peer comparison measure. Contemporary Education Psychology, 2, 325-331.
45. Varni, J. W., Katz, E. R., Seid, M., Quiggins, D., Friedman-Bender, A., & Castro, C. (1998). The pediatric cancer quality of life inventory (PCQL): Instrument development, descriptive statistic and cross informant variance. Journal of Behavioral Medicine, 21, 179-357.
46. Waksman, S. (1984). A controlled evaluation of assertion training with adolescents. Adolescents, 19, 195-205.
47. Wallander, J., & Varni, J. W. (1998). Effects of pediatric chronic physical disorder on child and family adjustment. Journal of Child Psychology and Psychiatry, 39, 29-46.
48. Weisberg, S., Olson, D., & Sveum, R. (1995). Effectiveness of asthma camp for inner city families. Unpublished manuscript, Minneapolis, MN.
49. World Health Organization. (1993). Measurement of QOL in children. Geneva, Switzerland: World Health Organization, Division of Mental Health.
50. Young, N., & Wright, J. (1995). Measuring pediatric physical function. Journal of Pediatric Orthopedic, 15, 244-253.
51. Zimmerman, E., Carter, M., Sears, J., Lawson, J., Campbell, P., & Hassanein, R. (1987). Diabetic camping: Effects of knowledge, attitude and self concept. Issues in Comprehensive Pediatric Nursing, 10, 99-111.