메뉴 건너뛰기




Volumn 30, Issue 3, 2016, Pages 313-322

Patients' experiences of a new integrated breathlessness support service for patients with refractory breathlessness: Results of a postal survey

Author keywords

breathlessness; breathlessness support service; cancer; chronic obstructive; Palliative care; pulmonary disease

Indexed keywords

ADULT; AGED; ARTICLE; BREATHLESSNESS SUPPORT SERVICE; CLINICAL EFFECTIVENESS; CONTROLLED STUDY; DYSPNEA; EMPOWERMENT; EXERCISE; EXPERIENCE; FEMALE; HEALTH CARE QUALITY; HEALTH PERSONNEL ATTITUDE; HEALTH PROMOTION; HEALTH SERVICE; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL RESEARCH; MOOD; OCCUPATIONAL THERAPY; PALLIATIVE THERAPY; PATIENT CARE; PATIENT EDUCATION; PATIENT EXPERIENCE; PATIENT MOBILITY; PATIENT PARTICIPATION; PATIENT SATISFACTION; PERSONALISED CARE; PHYSIOTHERAPY; POSTAL MAIL; POSTAL QUESTIONNAIRE; QUESTIONNAIRE; REFRACTORY BREATHLESSNESS; SELF CARE; SELF HELP; STATISTICS; SYMPTOMATOLOGY; THEMATIC ANALYSIS; TREATMENT DURATION; VERY ELDERLY; EMPATHY; HUMAN RELATION; INTEGRATED HEALTH CARE SYSTEM; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; STANDARDS;

EID: 84958038188     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216315600103     Document Type: Article
Times cited : (23)

References (33)
  • 1
    • 84893047491 scopus 로고    scopus 로고
    • Opioids for chronic refractory breathlessness: Right patient, right route?
    • Currow DC, Ekstrom M, Abernethy AP., Opioids for chronic refractory breathlessness: right patient, right route? Drugs 2014; 74: 1-6.
    • (2014) Drugs , vol.74 , pp. 1-6
    • Currow, D.C.1    Ekstrom, M.2    Abernethy, A.P.3
  • 2
    • 70349682905 scopus 로고    scopus 로고
    • Palliation of dyspnoea in advanced COPD: Revisiting a role for opioids
    • Rocker G, Horton R, Currow D, et al. Palliation of dyspnoea in advanced COPD: revisiting a role for opioids. Thorax 2009; 64: 910-915.
    • (2009) Thorax , vol.64 , pp. 910-915
    • Rocker, G.1    Horton, R.2    Currow, D.3
  • 3
    • 43049134755 scopus 로고    scopus 로고
    • Health care utilization of patients with chronic obstructive pulmonary disease and lung cancer in the last 12 months of life
    • Goodridge D, Lawson J, Duggleby W, et al. Health care utilization of patients with chronic obstructive pulmonary disease and lung cancer in the last 12 months of life. Respir Med 2008; 102: 885-891.
    • (2008) Respir Med , vol.102 , pp. 885-891
    • Goodridge, D.1    Lawson, J.2    Duggleby, W.3
  • 4
    • 77956993981 scopus 로고    scopus 로고
    • Results of a pilot investigation into a complex intervention for breathlessness in advanced chronic obstructive pulmonary disease (COPD): Brief report
    • Farquhar M, Higginson IJ, Fagan P, et al. Results of a pilot investigation into a complex intervention for breathlessness in advanced chronic obstructive pulmonary disease (COPD): brief report. Palliat Support Care 2010; 8: 143-149.
    • (2010) Palliat Support Care , vol.8 , pp. 143-149
    • Farquhar, M.1    Higginson, I.J.2    Fagan, P.3
  • 5
    • 84920843678 scopus 로고    scopus 로고
    • Is a specialist breathlessness service more effective and cost-effective for patients with advanced cancer and their carers than standard care? Findings of a mixed-method randomised controlled trial
    • Farquhar MC, Prevost A, McCrone P, et al. Is a specialist breathlessness service more effective and cost-effective for patients with advanced cancer and their carers than standard care? Findings of a mixed-method randomised controlled trial. BMC Med 2014; 12: 194.
    • (2014) BMC Med , vol.12 , pp. 194
    • Farquhar, M.C.1    Prevost, A.2    McCrone, P.3
  • 6
    • 0029861306 scopus 로고    scopus 로고
    • Non-pharmacological intervention for breathlessness in lung cancer
    • Corner J, Plant H, A'Hern R, et al. Non-pharmacological intervention for breathlessness in lung cancer. Palliat Med 1996; 10: 299-305.
    • (1996) Palliat Med , vol.10 , pp. 299-305
    • Corner, J.1    Plant, H.2    A'Hern, R.3
  • 7
    • 34447628877 scopus 로고    scopus 로고
    • An evaluation of a physiotherapy led non-pharmacological breathlessness programme for patients with intrathoracic malignancy
    • Connors S, Graham S, Peel T., An evaluation of a physiotherapy led non-pharmacological breathlessness programme for patients with intrathoracic malignancy. Palliat Med 2007; 21: 285-287.
    • (2007) Palliat Med , vol.21 , pp. 285-287
    • Connors, S.1    Graham, S.2    Peel, T.3
  • 8
    • 34347380689 scopus 로고    scopus 로고
    • The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: A qualitative phase 1 study
    • Booth S, Farquhar M, Gysels M, et al. The impact of a breathlessness intervention service (BIS) on the lives of patients with intractable dyspnea: a qualitative phase 1 study. Palliat Support Care 2006; 4: 287-293.
    • (2006) Palliat Support Care , vol.4 , pp. 287-293
    • Booth, S.1    Farquhar, M.2    Gysels, M.3
  • 9
    • 84919673906 scopus 로고    scopus 로고
    • An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: A randomised controlled trial
    • Higginson IJ, Bausewein C, Reilly CC, et al. An integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness: a randomised controlled trial. Lancet Respir Med 2014; 2: 979-987.
    • (2014) Lancet Respir Med , vol.2 , pp. 979-987
    • Higginson, I.J.1    Bausewein, C.2    Reilly, C.C.3
  • 10
    • 85044701014 scopus 로고    scopus 로고
    • The measurement of satisfaction with healthcare: Implications for practice from a systematic review of the literature
    • Crow R, Gage H, Hampson S, et al. The measurement of satisfaction with healthcare: implications for practice from a systematic review of the literature. Health Technol Assess 2002; 6: 1-244.
    • (2002) Health Technol Assess , vol.6 , pp. 1-244
    • Crow, R.1    Gage, H.2    Hampson, S.3
  • 11
    • 0033519071 scopus 로고    scopus 로고
    • Multicentre randomised controlled trial of nursing intervention for breathlessness in patients with lung cancer
    • Bredin M, corner J, Krishnasamy M, et al. Multicentre randomised controlled trial of nursing intervention for breathlessness in patients with lung cancer. BMJ 1999; 318: 901-904.
    • (1999) BMJ , vol.318 , pp. 901-904
    • Bredin, M.1    Corner, J.2    Krishnasamy, M.3
  • 12
    • 84866304133 scopus 로고    scopus 로고
    • Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: Study protocol of a phase III fast-track randomised controlled trial
    • Bausewein C, Jolley C, Reilly C, et al. Development, effectiveness and cost-effectiveness of a new out-patient Breathlessness Support Service: study protocol of a phase III fast-track randomised controlled trial. BMC Pulm Med 2012; 12: 58.
    • (2012) BMC Pulm Med , vol.12 , pp. 58
    • Bausewein, C.1    Jolley, C.2    Reilly, C.3
  • 13
    • 84919673906 scopus 로고    scopus 로고
    • Integrated palliative and respiratory care for patients with advanced disease and refractory breathlessness: A randomised controlled trial
    • Higginson IJ, Bausewein C, Reilly C, et al. Integrated palliative and respiratory care for patients with advanced disease and refractory breathlessness: a randomised controlled trial. Lancet Respir Med 2014; 2: 979-987.
    • (2014) Lancet Respir Med , vol.2 , pp. 979-987
    • Higginson, I.J.1    Bausewein, C.2    Reilly, C.3
  • 14
    • 0032958081 scopus 로고    scopus 로고
    • Left in limbo: Patients' views on care across the primary/secondary interface
    • Preston C, Cheater F, Baker R, et al. Left in limbo: patients' views on care across the primary/secondary interface. Qual Health Care 1999; 8: 16-21.
    • (1999) Qual Health Care , vol.8 , pp. 16-21
    • Preston, C.1    Cheater, F.2    Baker, R.3
  • 15
    • 78149359065 scopus 로고    scopus 로고
    • Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: Results from a longitudinal study
    • Bausewein C, Booth S, Gysels M, et al. Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: results from a longitudinal study. Palliat Med 2010; 24: 777-786.
    • (2010) Palliat Med , vol.24 , pp. 777-786
    • Bausewein, C.1    Booth, S.2    Gysels, M.3
  • 16
    • 80054067967 scopus 로고    scopus 로고
    • The lived experience of breathlessness and its implications for care: A qualitative comparison in cancer, COPD, heart failure and MND
    • Gysels MH, Higginson IJ., The lived experience of breathlessness and its implications for care: a qualitative comparison in cancer, COPD, heart failure and MND. BMC Palliat Care 2011; 10: 15.
    • (2011) BMC Palliat Care , vol.10 , pp. 15
    • Gysels, M.H.1    Higginson, I.J.2
  • 17
    • 84928584372 scopus 로고    scopus 로고
    • Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients
    • Dunger C, Higginson IJ, Gysels M, et al. Breathlessness and crises in the context of advanced illness: a comparison between COPD and lung cancer patients. Palliat Support Care 2015; 13: 229-237.
    • (2015) Palliat Support Care , vol.13 , pp. 229-237
    • Dunger, C.1    Higginson, I.J.2    Gysels, M.3
  • 18
    • 84863928797 scopus 로고    scopus 로고
    • Negative beliefs about breathlessness increases panic for patients with chronic respiratory disease
    • Hallas CN, Howard C, Theadom A, et al. Negative beliefs about breathlessness increases panic for patients with chronic respiratory disease. Psychol Health Med 2012; 17: 467-477.
    • (2012) Psychol Health Med , vol.17 , pp. 467-477
    • Hallas, C.N.1    Howard, C.2    Theadom, A.3
  • 19
    • 0037639092 scopus 로고    scopus 로고
    • Non-pharmacological management of breathlessness: A collaborative nurse-physiotherapist approach
    • Syrett E, Taylor J., Non-pharmacological management of breathlessness: a collaborative nurse-physiotherapist approach. Int J Palliat Nurs 2003; 9: 150-156.
    • (2003) Int J Palliat Nurs , vol.9 , pp. 150-156
    • Syrett, E.1    Taylor, J.2
  • 20
    • 9244255243 scopus 로고    scopus 로고
    • Community pulmonary rehabilitation after hospitalisation for acute exacerbations of chronic obstructive pulmonary disease: Randomised controlled study
    • 1209
    • Man WD, Polkey MI, Donaldson N, et al. Community pulmonary rehabilitation after hospitalisation for acute exacerbations of chronic obstructive pulmonary disease: randomised controlled study. BMJ 2004; 329: 1209.
    • (2004) BMJ , vol.329
    • Man, W.D.1    Polkey, M.I.2    Donaldson, N.3
  • 21
    • 77952006322 scopus 로고    scopus 로고
    • Outpatient pulmonary rehabilitation following acute exacerbations of COPD
    • Seymour JM, Moore L, Jolley CJ, et al. Outpatient pulmonary rehabilitation following acute exacerbations of COPD. Thorax 2010; 65: 423-428.
    • (2010) Thorax , vol.65 , pp. 423-428
    • Seymour, J.M.1    Moore, L.2    Jolley, C.J.3
  • 22
    • 54249129391 scopus 로고    scopus 로고
    • Distance and oxygen desaturation during the 6-min walk test as predictors of long-term mortality in patients with COPD
    • Casanova C, Cote C, Marin JM, et al. Distance and oxygen desaturation during the 6-min walk test as predictors of long-term mortality in patients with COPD. Chest 2008; 134: 746-752.
    • (2008) Chest , vol.134 , pp. 746-752
    • Casanova, C.1    Cote, C.2    Marin, J.M.3
  • 23
    • 33846650650 scopus 로고    scopus 로고
    • Distance and oxygen desaturation in 6-min walk test predict prognosis in COPD patients
    • Takigawa N, Tada A, Soda R, et al. Distance and oxygen desaturation in 6-min walk test predict prognosis in COPD patients. Respir Med 2007; 101: 561-567.
    • (2007) Respir Med , vol.101 , pp. 561-567
    • Takigawa, N.1    Tada, A.2    Soda, R.3
  • 24
    • 84929168477 scopus 로고    scopus 로고
    • Characteristics of episodic breathlessness as reported by patients with advanced chronic obstructive pulmonary disease and lung cancer: Results of a descriptive cohort study
    • Weingartner V, Scheve C, Gerdes V, et al. Characteristics of episodic breathlessness as reported by patients with advanced chronic obstructive pulmonary disease and lung cancer: results of a descriptive cohort study. Palliat Med 2015; 29: 420-428.
    • (2015) Palliat Med , vol.29 , pp. 420-428
    • Weingartner, V.1    Scheve, C.2    Gerdes, V.3
  • 25
    • 84885768020 scopus 로고    scopus 로고
    • Characterizing episodic breathlessness in patients with advanced disease
    • Weingartner V, Bausewein C, Higginson IJ, et al. Characterizing episodic breathlessness in patients with advanced disease. J Palliat Med 2013; 16: 1275-1279.
    • (2013) J Palliat Med , vol.16 , pp. 1275-1279
    • Weingartner, V.1    Bausewein, C.2    Higginson, I.J.3
  • 26
    • 84908093066 scopus 로고    scopus 로고
    • Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: A cohort study
    • Weingartner V, Scheve C, Gerdes V, et al. Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: a cohort study. J Pain Symptom Manage 2014; 48: 569-581.e1.
    • (2014) J Pain Symptom Manage , vol.48 , pp. 569-581e1
    • Weingartner, V.1    Scheve, C.2    Gerdes, V.3
  • 27
    • 84875230715 scopus 로고    scopus 로고
    • Episodic breathlessness in patients with advanced disease: A systematic review
    • Simon ST, Bausewein C, Schildmann E, et al. Episodic breathlessness in patients with advanced disease: a systematic review. J Pain Symptom Manage 2013; 45: 561-578.
    • (2013) J Pain Symptom Manage , vol.45 , pp. 561-578
    • Simon, S.T.1    Bausewein, C.2    Schildmann, E.3
  • 28
    • 39149143031 scopus 로고    scopus 로고
    • Systematic review of peer-support programs for people with cancer
    • Hoey LM, Ieropoli SC, White VM, et al. Systematic review of peer-support programs for people with cancer. Patient Educ Couns 2008; 70: 315-337.
    • (2008) Patient Educ Couns , vol.70 , pp. 315-337
    • Hoey, L.M.1    Ieropoli, S.C.2    White, V.M.3
  • 29
    • 77953271956 scopus 로고    scopus 로고
    • 'Belonging'. 'Patients' experiences of social relationships during pulmonary rehabilitation
    • Halding AG, Wahl A, Heggdal K., 'Belonging'. 'Patients' experiences of social relationships during pulmonary rehabilitation. Disabil Rehabil 2010; 32: 1272-1280.
    • (2010) Disabil Rehabil , vol.32 , pp. 1272-1280
    • Halding, A.G.1    Wahl, A.2    Heggdal, K.3
  • 30
    • 0034169538 scopus 로고    scopus 로고
    • 'All the services were excellent. It is when the human element comes in that things go wrong': Dissatisfaction with hospital care in the last year of life
    • Rogers A, Karlsen S, Addington-Hall J., 'All the services were excellent. It is when the human element comes in that things go wrong': dissatisfaction with hospital care in the last year of life. J Adv Nurs 2000; 31: 768-774.
    • (2000) J Adv Nurs , vol.31 , pp. 768-774
    • Rogers, A.1    Karlsen, S.2    Addington-Hall, J.3
  • 31
    • 33745758952 scopus 로고    scopus 로고
    • World Health Organization (WHO)
    • World Health Organization (WHO). Definition of palliative care., 2014, http://www.who.int/cancer/palliative/definition/en/
    • (2014) Definition of Palliative Care
  • 32
    • 0141590509 scopus 로고    scopus 로고
    • Attitudes of patients and staff to research in a specialist palliative care unit
    • Ross C, Cornbleet M., Attitudes of patients and staff to research in a specialist palliative care unit. Palliat Med 2003; 17: 491-497.
    • (2003) Palliat Med , vol.17 , pp. 491-497
    • Ross, C.1    Cornbleet, M.2
  • 33
    • 33745050443 scopus 로고    scopus 로고
    • Hospice patients' views on research in palliative care
    • Terry W, Olson LG, Ravenscroft P, et al. Hospice patients' views on research in palliative care. Intern Med J 2006; 36: 406-413.
    • (2006) Intern Med J , vol.36 , pp. 406-413
    • Terry, W.1    Olson, L.G.2    Ravenscroft, P.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.