Breathlessness and crises in the context of advanced illness: A comparison between COPD and lung cancer patients

Palliative and Supportive Care

Volumn 13, Issue 2, 2015, Pages 229-237

  Dunger, Christine ^a   Higginson, Irene J ^b   Gysels, Marjolein ^c   Booth, Sara ^d   Simon, Steffen T ^b,e,f   Bausewein, Claudia ^b,g  

^a UNIVERSITY OF WITTEN HERDECKE   (Germany)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF AMSTERDAM   (Netherlands)

^d ADDENBROOKE S HOSPITAL   (United Kingdom)

^e UNIVERSITY HOSPITAL OF COLOGNE   (Germany)

^f Institute of Palliative Care   (Germany)

^g LUDWIG MAXIMILIANS UNIVERSITY   (Germany)

Author keywords

Cancer; COPD; Dyspnea; Palliative care; Qualitative; Symptom experience

Indexed keywords

ADAPTATION; ADAPTIVE BEHAVIOR; AGED; ATTITUDE TO DEATH; CHRONIC OBSTRUCTIVE LUNG DISEASE; COMPARATIVE STUDY; DAILY LIFE ACTIVITY; DYSPNEA; FEMALE; HUMAN; INTERVIEW; LONGITUDINAL STUDY; LUNG TUMOR; MALE; MENTAL STRESS; MIDDLE AGED; PATHOPHYSIOLOGY; QUALITATIVE RESEARCH;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PHYSIOLOGICAL; ADAPTATION, PSYCHOLOGICAL; AGED; ATTITUDE TO DEATH; DYSPNEA; FEMALE; HUMANS; INTERVIEWS AS TOPIC; LONGITUDINAL STUDIES; LUNG NEOPLASMS; MALE; MIDDLE AGED; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; QUALITATIVE RESEARCH; STRESS, PSYCHOLOGICAL;

EID: 84928584372     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S147895151300120X     Document Type: Article

References (26)

1. Abernethy, A.P. & Wheeler, J.L. (2008). Total dyspnoea. Current Opinions in Supportive and Palliative Care, 2, 110-113.
2. American Thoracic Society (1999). Dyspnea: Mechanisms, assessment and management. A consensus statement. American Journal of Respiratory and Critical Care Medicine, 159, 321-340.
3. Bausewein, C., Booth, S., Gysels, M., et al. (2010a). Individual breathlessness trajectories do not match summary trajectories in advanced cancer and chronic obstructive pulmonary disease: Results from a longitudinal study. Palliative Medicine, 24(8), 777-786.
4. Bausewein, C., Booth, S., Gysels, M., et al. (2010b). Understanding breathlessness: Cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer. Journal of Palliative Medicine, 13, 1109-1118.
5. Booth, S., Silvester, S. & Todd, C. (2003). Breathlessness in cancer and chronic obstructive pulmonary disease: Using a qualitative approach to describe the experience of patients and carers. Palliative & Supportive Care, 1, 337-344.
6. Booth, S., Bausewein, C., Higginson, I., et al. (2009). Pharmacological treatment of refractory breathlessness. Expert Review of Respiratory Medicine, 3, 21-36.
7. Broberger, E., Tishelman, C., von Essen, E.L., et al. (2007). Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: At present, in retrospect and in comparison with EORTC-QLQ-C30 + LC13. Quality of Life Research, 16, 1635-1645.
8. Cleland, J.A., Lee, A.J.&Hall, S. (2007). Associations of depression and anxiety with gender, age, health-related quality of life and symptoms in primary care COPD patients. Family Practice, 24, 217-223.
9. Exley, C., Field, D., Jones, L., et al. (2005). Palliative care in the community for cancer and end-stage cardiorespiratory disease: The views of patients, lay-carers and healthcare professionals. Palliative Medicine, 19, 76-83.
10. Geraci, J.M., Tsang,W., Valdres, R.V., et al. (2006). Progressive disease in patientswith cancer presenting to anemergency room with acute symptoms predicts short-term mortality. Supportive Care in Cancer, 14, 1038-1045.
11. Gysels, M. & Higginson, I.J. (2008). Access to services for patients with chronic obstructive pulmonary disease: The invisibility of breathlessness. Journal of Pain and Symptom Management, 36, 451-460.
12. Gysels, M.H. & Higginson, I.J. (2009). Caring for a person in advanced illness and suffering from breathlessness at home: Threats and resources. Palliative & Supportive Care, 7, 153-162.
13. Gysels, M. & Higginson, I.J. (2010). The experience of breathlessness: The social course of chronic obstructive pulmonary disease. Journal of Pain and Symptom Management, 39, 555-563.
14. Gysels, M.H. & Higginson, I.J. (2011). The lived experience of breathlessness and its implications for care: A qualitative comparison in cancer, COPD, heart failure and MND. BMC Palliative Care, 10, 15.
15. Gysels, M., Bausewein, C. & Higginson, I.J. (2007). Experiences of breathlessness: A systematic review of the qualitative literature. Palliative & Supportive Care, 5, 281-302.
16. Heinzer, M.M., Bish, C. & Detwiler, R. (2003). Acute dyspnea as perceived by patients with chronic obstructive pulmonary disease. Clinical Nursing Research, 12, 85-101.
17. Lynn, J., Ely, E.W., Zhong, Z., et al. (2000). Living and dying with chronic obstructive pulmonary disease. Journal of the American Geriatrics Society, 48, S91-100.
18. Mays, N. & Pope, C. (2000). Qualitative research in health care: Assessing quality in qualitative research. BMJ, 320, 50-52.
19. Nauck, F. & Alt-Epping, B. (2008). Crises in palliative care: A comprehensive approach. The Lancet Oncology, 9, 1086-1091.
20. Pinnock, H., Kendall, M., Murray, S.A., et al. (2011). Living and dying with severe chronic obstructive pulmonary disease: Multi-perspective longitudinal qualitative study. BMJ, 342, d142.
21. Ramsenthaler, C., Scheve, C., Bausewein, C., et al. (2012). Typische Krisen und Bedürfnisse von Patienten mit COPD oder Lungenkrebs im letzten Lebensjahr-eine Literaturübersicht. Zeitschrift für Palliativmedizin, 13(3), 134-141.
22. Roberts, D.K., Thorne, S.E. & Pearson, C. (1993). The experience of dyspnea in late-stage cancer: Patients? and nurses? perspectives. Cancer Nursing, 16(4), 310-320.
23. Rocker, G.M., Sinuff, T., Horton, R., et al. (2007). Advanced chronic obstructive pulmonary disease: Innovative approaches to palliation. Journal of Palliative Medicine, 10, 783-797.
24. Saunders, C. (1964). Care of patients suffering from terminal illness at St. Joseph?s Hospice, Hackney, London. Nursing Mirror, 14, vii-x.
25. Solano, J.P., Gomes, B.&Higginson, I.J. (2006). A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. Journal of Pain and Symptom Management, 31, 58-69.
26. Spencer, L., Ritchie, J.&O?Connor,W. (2003). Carrying out qualitative analysis. In Qualitative research practice. J. Ritchie & J. Lewis (eds.), pp. 219-262. London: Sage Publications.