Improving psychosocial outcomes for caregivers of people with poor prognosis gastrointestinal cancers: a randomized controlled trial (Family Connect)

Supportive Care in Cancer

Volumn 24, Issue 2, 2016, Pages 585-595

  Shaw, Joanne M ^b   Young, Jane M ^a,d   Butow, Phyllis N ^b,d   Badgery Parker, Tim ^a,d   Durcinoska, Ivana ^a,d   Harrison, James D ⁱ   Davidson, Patricia M ^j   Martin, David ^e,f   Sandroussi, Charbel ^c,d,e   Hollands, Michael ^g   Joseph, David ^e,f   Das, Amitabha ^h   Lam, Vincent ^c,g   Johnston, Emma ^c,g   Solomon, Michael J ^c,d,e  

^a UNIVERSITY OF SYDNEY   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

^c UNIVERSITY OF SYDNEY   (Australia)

^d Surgical Outcomes Research Centre   (Australia)

^e ROYAL PRINCE ALFRED HOSPITAL   (Australia)

^f ANZAC Research Institute   (Australia)

^g WESTMEAD HOSPITAL   (Australia)

^h BANKSTOWN LIDCOMBE HOSPITAL   (Australia)

ⁱ UNIVERSITY OF CALIFORNIA   (United States)

^j UNIVERSITY OF TECHNOLOGY SYDNEY   (Australia)

more..

Author keywords

Caregivers; Gastrointestinal cancer; Quality of life; Randomized controlled trial

Indexed keywords

ADULT; ARTICLE; CANCER PROGNOSIS; CAREGIVER; CAREGIVER BURDEN; CONTROLLED STUDY; DIGESTIVE SYSTEM CANCER; DISTRESS SYNDROME; EMERGENCY WARD; FEMALE; FINANCE; HEALTH CARE UTILIZATION; HOSPITAL DISCHARGE; HOSPITAL READMISSION; HUMAN; MAJOR CLINICAL STUDY; MALE; MULTICENTER STUDY; PATIENT; PATIENT WORRY; PRIORITY JOURNAL; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT; TELEPHONE; WELLBEING; ADAPTIVE BEHAVIOR; AGED; GASTROINTESTINAL TUMOR; MIDDLE AGED; MORTALITY; PROGNOSIS; PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; AGED; CAREGIVERS; FEMALE; GASTROINTESTINAL NEOPLASMS; HUMANS; MALE; MIDDLE AGED; PATIENT READMISSION; PROGNOSIS; QUALITY OF LIFE; SOCIAL SUPPORT; TELEPHONE;

EID: 84952875289     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-015-2817-3     Document Type: Article

References (40)

1. Thomas C, Morris SM, Harman JC (2002) Companions through cancer: the care given by informal carers in cancer contexts. Soc Sci Med 54:529–544
2. Sharpe L, Butow P, Smith C, McConnell D, Clarke S (2005) The relationship between available support, unmet needs and caregiver burden in patients with advanced cancer and their carers. Psychooncology 14:102–114
3. Given BA, Given CW, Kozachik S (2001) Family support in advanced cancer. CA Cancer J Clin 51:213–231
4. Nijboer C, Tempelaar R, Sanderman R et al (1998) Cancer and caregiving: the impact on the caregiver’s health. Psycho Oncol 7:3–13
5. Soothill K, Morris SM, Harman J et al (2001) Informal carers of cancer patients: what are their unmet psychosocial needs? Health Soc Care Community 9:464–475
6. Pitceathly C, Maguire P (2003) The psychological impact of cancer on patients’ partners and other key relatives: a review. Eur J Cancer 39:1517–1524
7. Weaver FM, Perloff L, Waters T (1999) Patients’ and caregivers’ transition from hospital to home: needs and recommendations. Home Health Care Serv Q 17:27–48
8. Hughes LC, Hodgson NA, Muller P et al (2000) Information needs of elderly postsurgical cancer patients during the transition from hospital to home. J Nurs Sch 32:25–30
9. Shaw J, Harrison J, Young J et al (2013) Coping with newly diagnosed upper gastrointestinal cancer: a longitudinal qualitative study of family caregivers’ role perception and supportive care needs. Support Care Cancer 21:749–756
10. Siegel K, Raveis VH, Houts P, Mor V (1991) Caregiver burden and unmet patient needs. Cancer 68:1131–1140
11. McConigley R, Halkett G, Lobb E, Nowak A (2010) Caring for someone with high-grade glioma: a time of rapid change for caregivers. J Palliat Med 24:473–479
12. Richardson A, Plant H, Moore S et al (2007) Developing supportive care for family members of people with lung cancer: a feasibility study. Support Care Cancer 15:1259–1269
13. Driscoll A (2000) Managing post-discharge care at home: an analysis of patients’ and their carers’ perceptions of information received during their stay in hospital. J Adv Nurs 31:1165–1173
14. Hodges LJ, Humphris GM, Macfarlane G (2005) A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Soc Sci Med 60:1–12
15. Goldstein NE, Concato J, Fried TR et al (2004) Factors associated with caregiver burden among caregivers of terminally ill patients with cancer. J Palliat Care 20:38–43
16. Northouse LL, Katapodi MC, Song L, Zhang L, Mood DW (2010) Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA Cancer J Clin 60:317–339
17. Australian Institute of Health and Welfare & Australasian Association of Cancer Registries Cancer in Australia: an overview, 2012 In Cancer series no. 74. Cat. no. CAN 70.2012, AIHW: Canberra. (accessed 26 April 2014)
18. Bae J-M, Park J-W, Yang H-K, Kim J-P (1998) Nutritional status of gastric cancer patients after total gastrectomy. World J Surg 22:254–261
19. Martin L, Lagergren P (2009) Long-term weight change after oesophageal cancer surgery. Br J Surg 96:1308–1314
20. Maruish ME (ed) (2011) User’s manual for the SF-36v2 health survey, 3rd edn. Quality Metric Incorporated, Lincoln
21. Girgis A, Lambert S, Lecathelinais C (2011) The supportive care needs survey for partners and caregivers of cancer survivors: development and psychometric evaluation. Psychooncology 20:387–393
22. Given CW, Given B, Stommel M et al (1992) The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health 15:271–283
23. McCorkle R, Yost LS, Jepson C et al (1993) A cancer experience: relationship of patient psychosocial response to care-giver burden over time. Psychooncology 2:21–32
24. Gessler S, Low J, Daniells E et al (2008) Screening for distress in cancer patients: is the distress thermometer a valid measure in the UK and does it measure change over time? A prospective validation study. Psychooncology 17:538–547
25. Cella D. Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System. Elmhurst Il. http://www.facit.org/
26. Boyes A, Bonevski B (2004) The supportive care needs survey: a guide to administration, scoring and analysis. Centre for Health Research & Psycho-oncology, Newcastle
27. Young JM, Butow PN, Walsh J et al (2013) Multicenter randomized trial of centralized nurse-led telephone-based care coordination to improve outcomes after surgical resection for colorectal cancer: the CONNECT intervention. J Clin Oncol 31:3585–3591
28. Schulz KF, Altman DG, Mohr D et al (2010) CONSORT 2010 Statement: updated guidelines for reporting parallel group randomised trials. BMC Med 8:18. doi:10.1186/1741-7015-8-18
29. Northouse L, Templin T, Mood D (2001) Couples’ adjustment to breast disease during the first year following diagnosis. J Behav Med 24:115–136
30. Lambert S, Jones B, Girgis A, Lecathelinais C (2012) Distressed partners and caregivers do not recover easily: adjustment trajectories among partners and caregivers of cancer survivors. Ann Behav Med 44:225–235
31. Chen S-C, Tsai M-C, Liu C-L et al (2009) Support needs of patients with oral cancer and burden to their family caregivers. Cancer Nurs 32:473–481
32. Hanratty B, Holland P, Jacoby A, Whitehead M (2007) Financial stress and strain associated with terminal cancer—a review of the evidence. Palliat Med 21(p):595–607
33. Maly RC, Umezawa Y, Leake B, Silliman RA (2005) Mental health outcomes in older women with breast cancer: impact of perceived family support and adjustment. Psychooncology 14:535–545. doi:10.1002/pon.869
34. Dumont S, Turgeon J, Allard P et al (2006) Caring for a loved one with advanced cancer: determinants of psychological distress in family caregivers. J Palliat Med 9:912–921
35. Viklund P, Wengström Y, Lagergren J (2006) Supportive care for patients with oesophageal and other upper gastrointestinal cancers: the role of a specialist nurse in the team. Eur J Oncol Nurs 10:353–363
36. Lambert S, Girgis A, Lecathelinais C, Stacey F (2013) Walking a mile in their shoes: anxiety and depression among partners and caregivers of cancer survivors at 6 and 12 months post-diagnosis. Support Care Cancer 21:75–85
37. Martin RCG, Brown R, Puffer L et al (2011) Readmission rates after abdominal surgery: the role of surgeon, primary caregiver, home health, and subacute rehab. Ann Surg 254:591–597
38. Schofield P, Ugalde A, Carey M et al (2008) Lung cancer: challenges and solutions for supportive care intervention research. Palliat Support Care 6:281–287
39. Ostroff J, Ross S, Steinglass P, Ronis-Tobin V, Singh B (2004) Interest in and barriers to participation in multiple family groups among head and neck cancer survivors and their primary family caregivers. Fam Process 43:195–208
40. Northouse LL, Rosset T, Phillips L, Mood D, Schafenacker A, Kershaw T (2006) Research with families facing cancer: the challenges of accrual and retention. Res Nurs Health 29:199–211