Does Diagnosis Make a Difference? Comparing Hospice Care Satisfaction in Matched Cohorts of Heart Failure and Cancer Caregivers

Journal of Palliative Medicine

Volumn 18, Issue 12, 2015, Pages 1008-1014

  Mackenzie, Meredith A ^a   Meghani, Salimah H ^b   Buck, Harleah G ^c   Riegel, Barbara ^b  

^a VILLANOVA UNIVERSITY   (United States)

^b UNIVERSITY OF PENNSYLVANIA   (United States)

^c PENNSYLVANIA STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ARTICLE; CANCER DIAGNOSIS; CARDIOVASCULAR SYSTEM EXAMINATION; CAREGIVER; FAMILY EVALUATION OF HOSPICE CARE; FEMALE; HEALTH CARE QUALITY; HEART FAILURE; HOSPICE CARE; HUMAN; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MALE; NEOPLASM; PROPENSITY SCORE; QUESTIONNAIRE; AGE DISTRIBUTION; ATTITUDE TO HEALTH; COMPARATIVE STUDY; FAMILY; HEALTH CARE SURVEY; HUMAN RELATION; MIDDLE AGED; PSYCHOLOGY; RETROSPECTIVE STUDY; SATISFACTION; SEX RATIO; STANDARDS; STATISTICS AND NUMERICAL DATA; TIME FACTOR; VERY ELDERLY;

AGE DISTRIBUTION; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; CAREGIVERS; FAMILY; FEMALE; HEALTH CARE SURVEYS; HEART FAILURE; HOSPICE CARE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PERSONAL SATISFACTION; PROFESSIONAL-FAMILY RELATIONS; PROFESSIONAL-PATIENT RELATIONS; PROPENSITY SCORE; RETROSPECTIVE STUDIES; SEX DISTRIBUTION; TIME FACTORS;

EID: 84949543154     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2015.0078     Document Type: Article

References (33)

1. Mozaffarian D, Benjamin EJ, Go AS, et al.: Heart Disease and Stroke Statistics-2015 Update: A Report From the American Heart Association. Circ 2014;131:e329-e322.
2. Christakis NA, Iwashyna TJ: The health impact of health care on families: A matched cohort study of hospice use by decedents and mortality outcomes in surviving, widowed spouses. Soc Sci Med 2003;57:465-475.
3. Garrido MM, Prigerson HG: The end-of-life experience: Modifiable predictors of caregivers' bereavement adjustment. Cancer 2013;120:918-925.
4. Carr D: ''I don't want to die like that.'': The impact of significant others' death quality on advance care planning. Gerontologist 2012;52:770-781.
5. National Hospice & Palliative Care Organization: NHPCO's Facts and Figures: Hospice Care in America, 2013 edition. National Hospice & Palliative Care Organization. www.nhpco.org2013 (last accessed May 1, 2015).
6. National Hospice & Palliative Care Organization: NHPCO's Facts & Figures: Hospice Care in America, 2014 edition. National Hospice & Palliative Care Organization. www.nhpco.org2014 (last accessed May 1, 2015).
7. Addington-Hall JM, O'Callaghan AC: A comparison of the quality of care provided to cancer patients in the UK in the last three months of life in in-patient hospices compared with hospitals, from the perspective of bereaved relatives: Results from a survey using the VOICES questionnaire. Palliat Med 2009;23:190-197.
8. Blecker S, Anderson GF, Herbert R, et al.: Hospice care and resource utilization in Medicare beneficiaries with heart failure. Med Care 2011;49:985-991.
9. Cheung WY, Schaefer K, May CW, et al.: Enrollment and events of hospice patients with heart failure vs. cancer. J Pain Symptom Manage 2013;45:552-560.
10. MacKenzie MA: Abstract 270: Emergency services use in heart failure patients on hospice. Circ Cardiovasc Qual Outcomes 2013;6:A270.
11. Goodlin SJ, Kutner JS, Connor SR, et al.: Hospice care for heart failure patients. J Pain Symptom Manage 2005;29: 525-528.
12. Miller SC, Weitzen S, Kinzbrunner B: Factors associated with the high prevalence of short hospice stays. J Palliat Med 2003;6:725-736.
13. Schockett ER, Teno JM, Miller SC, Stuart B: Late referral to hospice and bereaved family member perception of quality of end-of-life care. J Pain Symptom Manage 2005;30: 400-407.
14. Teno JM, Casarett D, Spence C, Connor S: It is ''too late'' or is it? Bereaved family member perceptions of hospice referral when their family member was on hospice for seven days or less. J Pain Symptom Manage 2012;43: 732-738.
15. Rhodes RL, Mitchell SL, Miller SC, et al.: Bereaved family members' evaluation of hospice care: What factors influence overall satisfaction with services? J Pain Symptom Manage 2008;35:365-371.
16. MacKenzie MA, Buck H, Meghani SH, Riegel B: Abstract: Comparing predictors of heart failure and cancer caregiver satisfaction with hospice care. Circ 2014;130:A16291.
17. Goodlin SJ: Palliative care for end-stage heart failure. Curr Heart Fail Rep 2005;2:155-160.
18. Allison PD: Multiple Regression: A Primer. Thousand Oaks, CA: Pine Forge Press, 1999.
19. Connor SR, Teno J, Spence C, Smith N: Family evaluation of hospice care: Results from voluntary submission of data via website. J Pain Symptom Manage 2005;30: 9-17.
20. Teno JM, Clarridge B, Casey V, et al.: Validation of toolkit after-death bereaved family member interview. J Pain Symptom Manage 2001;22:752-758.
21. Austin PC: A comparison of 12 algorithms for matching on the propensity score. Stat Med 2014;33:1057-1069.
22. Rhodes RL, Teno JM, Connor SR: African American bereaved family members' perceptions of the quality of hospice care: Lessened disparities, but opportunities to improve remain. J Pain Symptom Manage 2007;34: 472-479.
23. Teno JM, Shu JE, Casarett D, et al.: Timing of referral to hospice and quality of care: Length of stay and bereaved family members' perceptions of the timing of hospice referral. J Pain Symptom Manage 2007;34:120-125.
24. Austin PC: An introduction to propensity score methods for reducing the effects of confounding in observational studies. Multivariate Behav Res 2011;46:399-424.
25. Parolari A, Dainese L, Naliato M, et al.: Do women currently receive the same standard of care in coronary artery bypass graft procedures as men? A propensity analysis. Ann Thorac Surg 2008;85:885-890.
26. Austin PC: Optimal caliper widths for propensity-score matching when estimating differences in means and differences in proportions in observational studies. Pharm Stat 2011;10: 150-161.
27. Mitchell SL, Kiely DK, Miller SC, et al.: Hospice care for patients with dementia. J Pain Symptom Manage 2007;34: 7-16.
28. Solano JP, Gomes B, Higginson IJ: A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage 2006;31:58-69.
29. Miceli PJ, Mylod DE: Satisfaction of families using end-oflife care: Current successes and challenges in the hospice industry. Am J Hosp Palliat Care 2003;20:360-370.
30. Csikai EL: Bereaved hospice caregivers' perceptions of the end-of-life care communication process and the involvement of health care professionals. J Palliat Med 2006;9: 1300-1309.
31. Csikai EL,MartinSS:Bereaved hospice caregivers' views of the transition to hospice. Soc Work Health Care 2010;49:387-400.
32. Williams B, Coyle J, Healy D: The meaning of patient satisfaction: An explanation of high reported levels. Soc Sci Med 1998;47:1351-1359.
33. Zifko-Baliga GM, Krampf RF: Managing perceptions of hospital quality. Mark Health Serv 1997;17:28-35.