Bereaved Family Members' Evaluation of Hospice Care: What Factors Influence Overall Satisfaction with Services?

Journal of Pain and Symptom Management

Volumn 35, Issue 4, 2008, Pages 365-371

  Rhodes, Ramona L ^a,b   Mitchell, Susan L ^c   Miller, Susan C ^b   Connor, Stephen R ^d   Teno, Joan M ^a,b  

^a BROWN UNIVERSITY   (United States)

^b BROWN UNIVERSITY   (United States)

^c Hebrew Senior Life   (United States)

^d National Hospice and Palliative Care Organization   (United States)

Author keywords

end of life care; family members; Hospice; satisfaction

Indexed keywords

ADULT; AGED; ARTICLE; CLINICAL EVALUATION; CONTROLLED STUDY; ETHNICITY; FAMILY SERVICE; FEMALE; HEALTH SERVICE; HEALTH SURVEY; HOSPICE CARE; HUMAN; MAJOR CLINICAL STUDY; MALE; PAIN ASSESSMENT; PATIENT INFORMATION; PATIENT SATISFACTION; SCORING SYSTEM;

ADULT; AGED; BEREAVEMENT; CONSUMER SATISFACTION; FAMILY; FEMALE; HOSPICES; HUMANS; MALE; MIDDLE AGED; TERMINAL CARE;

EID: 40949157538     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2007.12.004     Document Type: Article

References (26)

1. Kane R.L., Wales J., Bernstein L., Leibowitz A., and Kaplan S. A randomized controlled trial of hospice care. Lancet 1 (1984) 890-894
2. Wu N., Miller S.C., Lapane K., and Gozalo P. The problem of assessment bias when measuring the hospice effect on nursing home residents' pain. J Pain Symptom Manage 26 (2003) 998-1009
3. Munn J.C., Hanson L.C., Zimmerman S., Sloane P.D., and Mitchell C.M. Is hospice associated with improved end-of-life care in nursing homes and assisted living facilities?. J Am Geriatr Soc 54 (2006) 490-495
4. Miller S.C., Mor V., and Teno J.M. Hospice enrollment and pain assessment and management in nursing homes. J Pain Symptom Manage 26 (2003) 791-799
5. Miller S.C., Mor V., Wu N., Gozalo P., and Lapane K. Does receipt of hospice in nursing homes improve the management of pain at the end of life?. J Am Geriatr Soc 50 (2002) 507-515
6. Gozalo P.L., and Miller S.C. Hospice enrollment and evaluation of its causal effect on hospitalization of dying nursing home residents. Health Serv Res 42 (2007) 587-610
7. Hallenback J., Hickey E., Czarnowski E., Lehner L., and Periyakoil V.S. Quality of care in a Veteran's Affairs' nursing home-based hospice unit. J Palliat Med 10 (2007) 127-135
8. Baer W.M., and Hanson L.C. Families' perception of the added value of hospice in the nursing home. J Am Geriatr Soc 48 (2000) 879-882
9. Casarett D.J., Hirschman K.B., Crowley R., Galbraith L.D., and Leo M. Caregivers' satisfaction with hospice care in the last 24 hours of life. Am J Hosp Palliat Care 20 (2003) 205-210
10. Teno J.M., Clarridge B.R., Casey V., et al. Family perspectives of end-of-life care at the last place of care. JAMA 291 (2004) 88-93
11. Miceli P.J., and Wojciechowski S.L. Impacting family satisfaction with hospice care. Caring 22 (2003) 14-18
12. Hanson L.C., Danis M., and Garett J. What is wrong with end-of-life care? Opinions of bereaved family members. J Am Geriatr Soc 45 (1997) 1339-1344
13. McLaughlin D., Sullivan K., and Hasson F. Hospice at home services: the carer's perspective. Support Care Cancer 15 (2007) 163-170
14. Schockett E.R., Teno J.M., Miller S.C., and Stuart B. Late referral to hospice and bereaved family member perception of quality of end-of-life care. J Pain Symptom Manage 30 (2005) 400-407
15. Teno J.M., Shu J.E., Casarett D., et al. Timing of referral to hospice and quality of care: length of stay and bereaved family members' perceptions of the timing of hospice referral. J Pain Symptom Manage 34 2 (2007) 120-125
16. Miceli P.J., and Mylod D.E. Satisfaction of family members using end-of-life care: current success and challenges in the hospice industry. Am J Hosp Palliat Care 20 (2003) 360-370
17. Mitchell S.L., Kiely D.K., Miller S.C., et al. Hospice care for patients with dementia. J Pain Symptom Manage 34 (2007) 7-16
18. Connor S.R., Teno J.M., Spence C., and Smith N. Family evaluation of hospice care: Results from voluntary submission of data via website. J Pain Symptom Manage 30 (2005) 9-17
19. Saunders C. The evolution of palliative care. Patient Educ Couns 41 (2000) 7-13
20. Herbert R.S., Prigerson H.G., Schulz R., and Arnold R.M. Preparing caregivers for the death of a loved one: a theoretical framework and suggestions for future research. J Palliat Med 9 (2006) 1164-1171
21. Barry L.C., Kasl S.V., and Prigerson H.G. Psychiatric disorders among bereaved persons: the role of perceived circumstances of death and preparedness for death. Am J Geriatr Psychiatry 10 (2002) 447-457
22. Herbert R.S., Dang Q., and Schulz R. Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: findings from the REACH study. J Palliat Med 9 (2006) 683-693
23. Hudson P.L. How well do family caregivers cope after caring for a relative with advanced disease and how can health professionals enhance their support?. J Palliat Med 9 (2006) 694-703
24. Higginson I., Priest P., and McCarthy M. Are bereaved family members a valid proxy for a patient's assessment of dying?. Soc Sci Med 38 (1994) 553-557
25. McPherson C.J., and Addington-Hall J.M. Judging the quality of care at the end of life: can proxies provide reliable information?. Soc Sci Med 56 (2003) 95-109
26. McPherson C.J., and Addington-Hall J.M. Evaluating palliative care: bereaved family members' evaluations of patients' pain, anxiety and depression. J Pain Symptom Manage 28 (2004) 104-114