Theoretical foundations guiding culture change: The work of the Partnerships in Dementia Care Alliance

Dementia

Volumn 15, Issue 1, 2016, Pages 85-105

  Dupuis, Sherry ^a   McAiney, Carrie A ^b   Fortune, Darla ^a   Ploeg, Jenny ^b   Witt, Lorna de ^c  

^a UNIVERSITY OF WATERLOO   (Canada)

^b MCMASTER UNIVERSITY   (Canada)

^c UNIVERSITY OF WINDSOR   (Canada)

Author keywords

Appreciative Inquiry; authentic partnership; culture change; dementia; long term care; participatory action research

Indexed keywords

CANADA; COOPERATION; DEMENTIA; HEALTH CARE DELIVERY; HEALTH SERVICES RESEARCH; HUMAN; LONG TERM CARE; ORGANIZATION; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PROCEDURES; THEORETICAL MODEL;

CANADA; COOPERATIVE BEHAVIOR; DELIVERY OF HEALTH CARE; DEMENTIA; HEALTH SERVICES RESEARCH; HUMANS; LONG-TERM CARE; MODELS, THEORETICAL; ORGANIZATIONAL INNOVATION; PATIENT-CENTERED CARE;

EID: 84949309829     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301213518935     Document Type: Article

References (76)

1. T.AdamsC.Clarke (1999) Dementia care: Developing partnerships in practice, London, UK: Baillière Tindall.
2. Alzheimer Society of Canada (2009) Rising tide: The impact of dementia on Canadian society, Toronto, Canada: Author.
3. R.AndersonM.FunnellP.ButlerM.ArnoldJ.FitzgeraldC.Feste (1995) Patient empowerment. Results of a randomized controlled trial. Diabetes Care18: 943–949.
4. B.Baker (2007) Old age in a new age: The promise of transformative nursing homes, Nashville, TN: Vanderbilt University Press.
5. J.BarnesJ.Guild (2011) Living well with dementia: Creating a regional strategy for the East Midlands. In: J.M.WatkinsB.MohrR.Kelly (eds) Appreciative inquiry: Change at the speed of imagination, San Francisco, CA: Pfeiffer, pp. 50–66.
6. Bowers, B., Nolet, K., Roberts, T., &Esmond, S. (n.d.). Implementing change in long-term care: A practical guide to transformation. Retrieved from http://www.pioneernetwork.net/Data/Documents/Implementation_Manual_ChangeInLongTermCare%5B1%5D.pdf
7. M.L.Branson (2004) Memories, hopes, and conversations: Appreciative inquiry and congregational change, Herndon, VA: The Alban Institute.
8. G.R.Bushe (2011) Appreciative inquiry: Theory and critique. In: D.BojeB.BurnesJ.Hassard (eds) The Routledge companion to organizational change, Oxford, UK: Routledge, pp. 87–103.
9. Canadian Institute for Health Information (CIHI). (2010). Caring for seniors with Alzheimer’s disease and other forms of dementia. Ottawa, ON: Author. Retrieved from https://secure.cihi.ca/free_products/Dementia_AIB_2010_EN.pdf
10. D.L.CooperriderD.Whitney (2005) Appreciative inquiry: A positive revolution in change, San Francisco, CA: Berrett-Koehler.
11. D.DanneferP.SteinR.SidersR.Patterson (2008) Is that all there is? The concept of care and the dialectic of critique. Journal of Aging Studies22: 101–108.
12. S.DavisS.ByersR.NayS.Koch (2009) Guiding design of dementia friendly environments in residential care settings: Considering the living experiences. Dementia8(2): 185–203.
13. R.DeForgeP.van WykJ.HallA.Salmoni (2011) Afraid to care; unable to care: A critical ethnography within a long-term care home. Journal of Aging Studies25(4): 415–426.
14. M.T.Deutschman (2005) An ethnographic study of nursing home culture to define organizational realities of culture change. Journal of Health and Human Services Administration28(1/2): 246–282.
15. T.Diamond (1992) Making gray gold: Narratives of nursing home care, Chicago, IL: The University of Chicago Press.
16. S.L.Dupuis (2010) A planning framework for improving the lives of persons with Alzheimer’s disease and related dementias and their families: Implications for social policy, leisure policy and practice. In: H.MairS.M.AraiD.G.Reid (eds) Decentring work: Critical perspectives on leisure, social policy and human development, Calgary, AB: Calgary University Press, pp. 91–117.
17. S.L.DupuisJ.GilliesJ.CarsonC.WhyteR.GenoeL.LoiselleL.Sadler (2012) Moving beyond ‘patient’ and ‘client’ approaches: Mobilising authentic partnerships in dementia care. Dementia11(4): 428–450.
18. S.L.DupuisJ.GilliesA.MantleL.LoiselleL.Sadler (2008) Creating partnerships in dementia: A changing melody tool-kit, Waterloo, ON: Murray Alzheimer Research and Education Program.
19. S.L.DupuisC.WhyteJ.CarsonR.GenoeL.MeschinoL.Sadler (2012) Just dance with me: An authentic partnership approach in understanding leisure in the dementia context [Special issue on Leisure, Health and Disability]. World Leisure Journal54(3): 240–254.
20. C.Elliott (1999) Locating the energy for change: An introduction to appreciative inquiry, Winnipeg, MB: International Institute for Sustainable Development.
21. R.M.Fagan (2003) Pioneer network: Changing the culture of aging in America. Journal of Social Work in Long-Term Care2(1/2): 125–140.
22. M.FinegoldB.M.HollandT.Lingham (2002) Appreciative inquiry and public dialogue: An approach to community change. Public Organization Review2: 235–252.
23. G.Foley (2001) Radical adult education and learning. International Journal of Lifelong Education20(1/2): 71–88.
24. N.Foner (1995) The caregiving dilemma: Work in an American nursing home, Berkeley, CA: University of California Press.
25. P.Freire (1972) Pedagogy of the oppressed, Harmondsworth, UK: Penguin.
26. W.FrisbyC.ReidS.MillarL.Hoeber (2005) Putting “participatory'' into participatory forms of action research. Journal of Sport Management19(1): 367–396.
27. D.E.GibsonS.G.Barsade (2003) Managing organizational culture change: The case of long-term care. Journal of Social Work in Long-Term Care2(1/2): 11–34.
28. S.GrantM.Humphries (2006) Critical evaluation of appreciative inquiry: Bridging an apparent paradox. Action Research4(4): 401–418.
29. J.F.Gubrium (1975) Living and dying at Murray Manor, New York, NY: St. Martin’s Press.
30. S.A.Hammond (1998) The thin book of appreciative inquiry,, 2nd ed. Bend, OR: Thin Book Publishing.
31. N.L.HillA.M.KolanowskiP.Milone-NuzzoA.Yevchuk (2011) Culture change models and resident health outcomes in long-term care. Journal of Nursing Scholarship43(1): 30–40.
32. M.HolsteinJ.A.ParksM.H.Waymack (2011) Ethics, aging, and society: The critical turn, New York, NY: Springer.
33. L.L.Jervis (2002) Working in and around the ‘chain of command’: Power relations among nursing staff in an urban nursing home. Nursing Inquiry9(1): 12–23.
34. D.JolleyS.Benbow (2000) Stigma and Alzheimer’s disease: Causes, consequences and a constructive approach. International Journal of Clinical Practice54: 117–119.
35. S.KemmisR.McTaggart (1988) The action research planner,, 3rd ed. Victoria, AU: Deakin University.
36. T.Kitwood (1997) Dementia reconsidered: The person comes first, Buckingham, UK: Open University Press.
37. J.KretzmannJ.McKnight (1993) Building communities from the inside out, Chicago, IL: ACTA.
38. M.Lerner (1986) Surplus powerlessness, Oakland, CA: Institute for Labor & Mental Health.
39. C.LindD.Smith (2008) Analyzing the state of community health nursing: Advancing from deficit to strengths-based practice using appreciative inquiry. Advances in Nursing Science31(1): 28–41.
40. Lopez, K. (2012). Expanding understandings: Meanings and experiences of wellness from the perspectives of residents living in Long-Term Care (LTC) homes (Unpublished doctoral dissertation). University of Waterloo, ON
41. J.D.LudemaD.L.CooperiderF.J.Barrett (2006) Appreciative inquiry: The power of the unconditional positive question. In: P.ReasonH.Bradbury (eds) Handbook of action research, London, UK: Sage, pp. 155–165.
42. M.B.LykesE.Coquillon (2006) Participatory and action research and feminisms: Towards transformative praxis. In: S.Hesse-Biber (ed) Handbook of feminist research: Theory and praxis, Thousand Oaks, CA: Sage, pp. 297–326.
43. M.McIntyre (2003) Dignity in dementia: Person-centered care in community. Journal of Aging Studies17: 473–484.
44. R.McTaggart (1991) Principles for participatory action research. Adult Education Quarterly41: 168–187.
45. C.McWilliamS.ColemmC.MelitoD.SweetlandJ.SaidakJ.SmitG.Milak (2003) Building empowering partnerships for interprofessional care. Journal of Interprofessional Care17: 363–376.
46. McWilliam, C., Kothari, A., Ward-Griffin, C., Forbes, D., Leipert, B., & South West Community Care Access Centre Home Care Collaboration. (2009). Evolving the theory and praxis of knowledge translation through social interaction: A social phenomenological study. Implementation Science, 4(26), 1–14
47. C.McWilliamC.Ward-GriffinD.SweetlandC.SutherlandL.O’Halloran (2001) The experience of empowerment in in-home services delivery. Home Health Care Services Quarterly20(4): 49–71.
48. J.MeyerT.Owen (2008) Calling for an international dialogue on quality of life in care homes. International Journal of Older People Nursing3: 291–294.
49. E.A.MillerM.BoothV.Mor (2008) Assessing experts’ views of the future of long-term care. Research on Aging30: 450–473.
50. S.MisiorskiJ.Rader (2010) Selecting and prioritizing changes. Getting started: Pioneering approaches to culture change in long-term care, Retrieved from http://phinational.org/sites/phinational.org/files/training/wp-content/uploads/GettingStartedCh5v3online.pdf on 1/02/14, pp. 5.1–5.13.
51. M.A.MurrayK.A.S.HiguchiN.EdwardsM.GreenoughK.Hoogeveen (2011) Practice change in long-term care facilities in Ontario:. Views of managers and staff. Geriatric Nursing32(6): 418–428.
52. National Advisory Council on Aging. (2004). The NACA position on Alzheimer disease and related dementias. Ottawa, ON: Minister of Public Works and Government Services Canada
53. G.NelsonJ.OchockaK.GriffinJ.Lord (1998) Nothing about me, without me: Participatory action research with self-help/mutual aid organizations for psychiatric consumer/survivors. American Community Psychology Journal26: 881–912.
54. M.R.NolanS.DaviesJ.BrownJ.KeadyJ.Nolan (2004) Beyond ‘person-centered’ care: A new vision for gerontological nursing. International Journal of Older People Nursing13: 45–53.
55. M.R.NolanU.LundhG.GrantJ.Keady (2003) Partnerships in family care, Buckingham, UK: Open University Press.
56. T.OwenJ.MeyerJ.BentleyH.HeathC.Goodman (2008) Better partnership between care homes and the NHS: Findings from the my home life programme. Journal of Care Services Management3(1): 96–106.
57. Pioneer Network. (2013). About us. Retrieved from http://www.pioneernetwork.net/AboutUs/About/
58. Quality Partners of Rhode Island (2005–2006) 8th Scope of work task 1a: Individualized care training curriculum: The Holistic Approach to Transformational Change (HATCh), Providence, RI: Author.
59. A.N.RahmanJ.F.Schnelle (2008) The nursing home culture-change movement: Recent past, present and future directions for research. The Gerontologist48(2): 142–148.
60. P.ReasonH.Bradbury (2006) Introduction: Inquiry and participation in search of a world worthy of human aspiration. In: P.ReasonH.Bradbury (eds) Handbook of action research, Thousand Oaks, CA: Sage, pp. 1–14.
61. J.RistockJ.Pennell (1996) Community research as empowerment: Feminist links, postmodern interruptions, Toronto, Canada: Oxford University Press.
62. J.L.Ronch (2003) Leading culture change in long-term care: A map for the road ahead. Journal of Social Work in Long-Term Care2(1/2): 65–80.
63. J.L.Ronch (2004) Changing institutional culture: Can we re-value the nursing home?Journal of Gerontological Social Work43(1): 61–82.
64. G.A.SachsJ.W.ShegaD.Cox-Hayley (2004) Barriers to excellent end-of-life care for patients with dementia. Journal of Nursing Scholarship32: 251–258.
65. T.ScottR.MannionH.T.O.DaviesM.N.Marshall (2003) Implementing culture change in health care: Theory and practice. International Journal for Quality in Health Care15(2): 111–118.
66. R.ShuraR.A.SidersD.Dannefer (2010) Culture change in long-term care: Participatory action research and the role of the resident. The Gerontologist51(2): 212–225.
67. Smale, B. J. A., & Dupuis, S. L. (2004). In their own voices: A portrait of dementia caregivers in Ontario. Final report prepared for the Ministry of Health and Long-Term Care and the Ontario Senior’s Secretariat as part of Initiative #6 of the Ontario Alzheimer Strategy, Murray Alzheimer Research and Education Program, Waterloo, ON
68. L.S.SommersK.L.MartonJ.C.BarbacciaJ.Randolph (2000) Physician, nurse and social worker collaboration in primary care for chronically ill seniors. Archives of Internal Medicine160: 1825–1833.
69. G.J.Sterin (2002) Essay on a word: A lived experience of Alzheimer’s disease. Dementia1(1): 7–10.
70. C.H.Stevens (2001) A timeless dream. Balance7: 7–18.
71. The Conference Board of Canada. (2011). Elements of an effective innovation strategy for long term care in Ontario. Ottawa, ON: Author
72. J.E.Thomas (1982) Radical adult education: Theory and practice, Nottingham, UK: Department of Continuing Education, University of Nottingham.
73. W.H.Thomas (2003) Evolution of Eden. In: A.S.WeinerJ.L.Ronch (eds) Culture change in long-term care, Binghamton, NY: Haworth Social Work Practice Press, pp. 141–158.
74. E.White-ChuW.J.GravesS.M.GodfreyA.BonnerP.Sloane (2009) Beyond the medical model: The culture change revolution in long-term care. Journal of American Medical Directors Association10: 370–378.
75. S.Wood (2004) Creating a positive future for nursing using appreciative inquiry. AI Practitioner, 13–18.
76. World Health Organization (WHO) (2012) Dementia: A public health priority. Geneva,, Switzerland: WHO Press.