Dignity in dementia: Person-centered care in community

Journal of Aging Studies

Volumn 17, Issue 4, 2003, Pages 473-484

  McIntyre, Maura ^a  

^a UNIVERSITY OF TORONTO   (Canada)

Author keywords

Alzheimer's disease; Caregiving; Dementia; Dignity; Person centered care

Indexed keywords

AGED; ARTICLE; CARE AND CARING; CAREGIVER; COMMUNITY CARE; COPING BEHAVIOR; DEMENTIA; ELDERLY CARE; EXPERIENCE; FAMILY; FEMALE; HEALTH CARE ACCESS; HEALTH CARE UTILIZATION; HUMAN; HUMAN RELATION; MALE; MEDICAL ETHICS; MEDICAL RESEARCH; PATIENT CARE; SELF ESTEEM; SOCIAL CARE; THEORY;

EID: 0141886290     PISSN: 08904065     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0890-4065(03)00064-1     Document Type: Article

References (37)

1. Beam I.M. Helping families survive American Journal of Nursing 2 1984 228-232
2. Bowd A. Loos C. Needs, morale and coping strategies of caregivers for persons with Alzheimer's disease in isolated Canadian communities Human Services in the Rural Environment 17 2 1993 4-8
3. Buber M. I and Thou 2nd edn. 1958 Charles Scribner's Sons New York, NY
4. Cole A.L. Knowles J.G. Qualities of inquiry: Process, form, and 'goodness' In Neilsen L. Knowles JG. Cole A. (Eds.), The art of writing inquiry 2001 211-219 Backalong Books Great Tancook Island, Nova Scotia
5. Crisp J. Towards a partnership in maintaining personhood In Adams T. Clarke C. (Eds.), Dementia care. Developing partnerships in practice 1999 95-120 Harcourt Brace Toronto, Canada
6. Dundon, M., Cramer, S., & Nowak, C. (1987, August). Distress and coping among caregivers of victims of Alzheimer's disease. Paper presented at the annual meeting of the American Psychological Association, New York.
7. Eisner E.W. Forms of understanding and the future of educational research Educational Researcher 22 7 1993 5-11
8. Ellis C. Bochner A. Talking over ethnography In Ellis C. Bochner A. (Eds.), Composing ethnography. Alternative forms of qualitative writing 1996 13-45 Sage Walnut Creek, CA
9. Fengler A. Goodrich N. Wives of elderly disabled men: The hidden patients Gerontologist 19 1979 175-183
10. Fuchs E. Making an exit In Woodward K. (Ed.), Figuring age. Women, bodies, generations 1999 340-348 Indiana University Press Bloomington, IN
11. Gates K. The experience of caring for a loved one: A phenomenological study Nursing Science Quarterly 13 1 1999 54-59
12. Gilleard C.J. Living with dementia: Community care of the elderly mentally infirm 1984 Charles Press Publishers Philadelphia
13. Given C.E. Collins C.E. Given B.A. Sources of stress among families caring for relatives with Alzheimer's disease Nursing Clinics of North America 23 1988 253-259
14. Grant G. Nolan M. Informal carers: Sources and concomitants of satisfaction Health & Social Care in the Community 1 1993 147-159
15. Harris P. The misunderstood caregiver? A qualitative study of the male caregiver of Alzheimer's disease victims Gerontologist 33 4 1993 551-556
16. Hart S. Demystifying dementia. A clear and comprehensive primer for family caregivers and professionals alike 2002 Alzheimer Society of York Region Newmarket, ON
17. Ignatieff M. Scar tissue 1994 Penguin Books New York
18. Kitwood T. Concern for others. A new psychology of conscience and morality 1990 Routledge New York
19. Kitwood T. Towards a theory of dementia care: The interpersonal process Ageing and Society 13 1993 51-67
20. Kitwood T. Dementia reconsidered: The person comes first 1997 Open University Press London
21. Kitwood T. Bredin K. Towards a theory of dementia care: Personhood and well being Ageing and Society 12 1992 269-287
22. Kramer, J. (1984, April). Treating families of demented patients: Two group models. Paper presented at the annual meeting of the Western Psychological Association, Los Angeles, CA.
23. Krause A. Grant L. Long B. Sources of stress reported by daughters of nursing home residents Journal of Aging Studies 13 3 1999 349-364
24. Lawrence-Lightfoot S. Hoffman-Davis J. The art and science of portraiture 1997 Jossey-Bass California
25. Lazarus L.W. Stafford B. Cooper K. Cohler B. Dysken M. A pilot study of an Alzheimer patients' relatives discussion group Gerontologist 21 1981 353-357
26. Mace N.L. Rabins P.V. The 36-hour day 1981 Warner Books New York
27. Mann L.M. Community support for families caring for members with Alzheimer's disease Home Healthcare Nurse 3 1 1985 8-10
28. McIntyre, M. (2000). Garden as phenomenon, method and metaphor in the context of health care: An arts informed life history view. Unpublished doctoral dissertation, Ontario Institute for Studies in Education, University of Toronto, Toronto, Canada.
29. Motenko A.K. The frustrations, gratifications, and well-being of dementia caregivers Gerontologist 29 1989 166-172
30. Post S.G. The moral challenge of Alzheimer disease: Ethical issues from diagnosis to dying 2nd ed. 2000 Johns Hopkins University Press Baltimore
31. Pratt C. Schmall V. Wright S. Cleland M. Burden and coping strategies of caregivers to Alzheimer's patients Family Relations 34 1985 27-33
32. Pullman D. The ethics of autonomy and dignity in long-term care Canadian Journal on Aging 18 1 1999 26-46
33. Rabins P.V. Mace N.L. Lucas M.J. The impact of dementia on the family JAMA. Journal of the American Medical Association 248 3 1982 333-335
34. Raphael B. The anatomy of bereavement 1983 Basic Books New York
35. Shenk D. The forgetting. Alzheimer's: Portrait of an epidemic 2001 Doubleday New York
36. Westergard, M.P. (1985, April). A younger Alzheimer's spouse speaks out. Paper presented at a Symposium on Adult Education and Aging, Brigham Young University, Provo, Utah.
37. Zarit, J. (1981, November). Family relationships and burden in long-term care. Paper presented at the Joint Meeting of the Scientific Gerontological Society and the Scientific and Educational Canadian Association on Gerontology, Toronto, Ontario.