메뉴 건너뛰기




Volumn 19, Issue 8, 2015, Pages 992-1001

"you think it's hard now ... It gets much harder for our children": Youth with autism and their caregiver's perspectives of health care transition services

Author keywords

adolescence youth; autism; caregiving; health care transition

Indexed keywords

ADOLESCENT; ADULT; ADULTHOOD; ANXIETY; ARTICLE; AUTISM; CAREGIVER; CHILD HEALTH CARE; CLINICAL ARTICLE; CONFUSION; CONTROLLED STUDY; FEMALE; HEALTH BELIEF; HEALTH CARE NEED; HUMAN; JUVENILE; LIKERT SCALE; MALE; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; THEMATIC ANALYSIS; TRANSITION TO ADULT CARE; AUTISM SPECTRUM DISORDER; AUTISTIC DISORDER; INDEPENDENT LIVING; INFORMATION PROCESSING; PARENT; PATIENT SATISFACTION; PSYCHOLOGY; YOUNG ADULT;

EID: 84944064069     PISSN: 13623613     EISSN: 14617005     Source Type: Journal    
DOI: 10.1177/1362361314558279     Document Type: Article
Times cited : (77)

References (32)
  • 1
    • 79959924109 scopus 로고    scopus 로고
    • Supporting the health care transition from adolescence to adulthood in the medical home
    • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, et al
    • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, et al. (2011) Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 128: 182-200.
    • (2011) Pediatrics , vol.128 , pp. 182-200
  • 2
    • 84898957499 scopus 로고    scopus 로고
    • Prevalence of autism spectrum disorder among children aged 8 years - Autism and developmental disabilities monitoring network, 11 sites, United States, 2010
    • Autism and Developmental Disabilities Monitoring Network Surveillance Year 2010 Principal Investigators and Centers for Disease Control and Prevention
    • Autism and Developmental Disabilities Monitoring Network Surveillance Year 2010 Principal Investigators and Centers for Disease Control and Prevention (2014) Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2010. MMWR Surveillance Summaries 63: 1-21.
    • (2014) MMWR Surveillance Summaries , vol.63 , pp. 1-21
  • 3
    • 34547229715 scopus 로고    scopus 로고
    • What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida
    • Binks JA, Barden WS, Burke TA, et al. (2007) What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Archives of Physical Medicine and Rehabilitation 88: 1064-1073.
    • (2007) Archives of Physical Medicine and Rehabilitation , vol.88 , pp. 1064-1073
    • Binks, J.A.1    Barden, W.S.2    Burke, T.A.3
  • 4
    • 79955616337 scopus 로고    scopus 로고
    • Epidemiology of autism spectrum disorders in adults in the community in England
    • Brugha TS, McManus S, Bankart J, et al. (2011) Epidemiology of autism spectrum disorders in adults in the community in England. Archives of General Psychiatry 68: 459-465.
    • (2011) Archives of General Psychiatry , vol.68 , pp. 459-465
    • Brugha, T.S.1    McManus, S.2    Bankart, J.3
  • 7
    • 84906315191 scopus 로고    scopus 로고
    • Health care transition services for youth with autism spectrum disorders
    • Cheak-Zamora NC, Farmer JE, Mayfield WA, et al. (2014) Health care transition services for youth with autism spectrum disorders. Rehabilitation Psychology 59 (3): 340-348.
    • (2014) Rehabilitation Psychology , vol.59 , Issue.3 , pp. 340-348
    • Cheak-Zamora, N.C.1    Farmer, J.E.2    Mayfield, W.A.3
  • 8
    • 84944087848 scopus 로고    scopus 로고
    • "transitions are scary for our kids and they're scary for us": Family member and youth perspectives on the challenges of transitioning to adulthood with autism
    • Cheak-Zamora NC, Teti M, First J, (in press) "Transitions are scary for our kids and they're scary for us": family member and youth perspectives on the challenges of transitioning to adulthood with autism. Journal of Applied Research in Intellectual Disabilities.
    • Journal of Applied Research in Intellectual Disabilities
    • Cheak-Zamora, N.C.1    Teti, M.2    First, J.3
  • 9
    • 84874616504 scopus 로고    scopus 로고
    • Disparities in transition planning for youth with autism spectrum disorder
    • Cheak-Zamora NC, Yang X, Farmer J, et al. (2013) Disparities in transition planning for youth with autism spectrum disorder. Pediatrics 131: 447-454.
    • (2013) Pediatrics , vol.131 , pp. 447-454
    • Cheak-Zamora, N.C.1    Yang, X.2    Farmer, J.3
  • 10
    • 74549197565 scopus 로고    scopus 로고
    • Healthcare for children with autism: The Autism Treatment Network
    • Coury D, Jones NE, Klatka K, et al. (2009) Healthcare for children with autism: the Autism Treatment Network. Current Opinion in Pediatrics 21: 828-832.
    • (2009) Current Opinion in Pediatrics , vol.21 , pp. 828-832
    • Coury, D.1    Jones, N.E.2    Klatka, K.3
  • 11
    • 63149109553 scopus 로고    scopus 로고
    • Medical homes for children with autism: A physician survey
    • Golnik A, Ireland J, Borowsky IW, (2009) Medical homes for children with autism: a physician survey. Pediatrics 123: 966-971.
    • (2009) Pediatrics , vol.123 , pp. 966-971
    • Golnik, A.1    Ireland, J.2    Borowsky, I.W.3
  • 12
    • 65149104374 scopus 로고    scopus 로고
    • Transition from school to adulthood for youth with autism spectrum disorders review and recommendations
    • Hendricks DR, Wehman P, (2009) Transition from school to adulthood for youth with autism spectrum disorders review and recommendations. Focus of Autism and Other Developmental Disabilities 24: 77-88.
    • (2009) Focus of Autism and Other Developmental Disabilities , vol.24 , pp. 77-88
    • Hendricks, D.R.1    Wehman, P.2
  • 15
    • 0004162777 scopus 로고
    • Thousand Oaks, CA: SAGE
    • Krueger R, (1994) Focus Groups. Thousand Oaks, CA: SAGE.
    • (1994) Focus Groups
    • Krueger, R.1
  • 16
    • 84924981980 scopus 로고    scopus 로고
    • Pediatric provider's perspectives on the transition to adult health care for youth with autism spectrum disorder: Current strategies and promising new directions
    • Epub ahead of print 4. DOI:
    • Kuhlthau KA, Warfield ME, Hurson J, et al. (2014) Pediatric provider's perspectives on the transition to adult health care for youth with autism spectrum disorder: current strategies and promising new directions. Autism. Epub ahead of print 4. DOI: 10.1177/1362361313518125.
    • (2014) Autism
    • Kuhlthau, K.A.1    Warfield, M.E.2    Hurson, J.3
  • 17
    • 79958063970 scopus 로고    scopus 로고
    • Outcomes in adolescents and adults with autism: A review of the literature
    • Levy A, Perry A, (2011) Outcomes in adolescents and adults with autism: a review of the literature. Research in Autism Spectrum Disorders 5: 1271-1282.
    • (2011) Research in Autism Spectrum Disorders , vol.5 , pp. 1271-1282
    • Levy, A.1    Perry, A.2
  • 19
    • 44949221620 scopus 로고    scopus 로고
    • Access to care for youth with special health care needs in the transition to adulthood
    • Lotstein DS, Inkelas M, Hays RD, et al. (2008) Access to care for youth with special health care needs in the transition to adulthood. Journal of Adolescent Health 43: 23-29.
    • (2008) Journal of Adolescent Health , vol.43 , pp. 23-29
    • Lotstein, D.S.1    Inkelas, M.2    Hays, R.D.3
  • 21
    • 33845564020 scopus 로고    scopus 로고
    • The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis
    • McDonagh JE, Southwood TR, Shaw KL, (2006) The impact of a coordinated transitional care programme on adolescents with juvenile idiopathic arthritis. Rheumatology 46: 161-168.
    • (2006) Rheumatology , vol.46 , pp. 161-168
    • McDonagh, J.E.1    Southwood, T.R.2    Shaw, K.L.3
  • 22
    • 84928168496 scopus 로고    scopus 로고
    • Autism comes to the hospital: The experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals
    • Epub ahead of print 8 (PMID: 24811967). DOI:
    • Muskat B, Burnham Riosa P, Nicholas DB, et al. (2014) Autism comes to the hospital: the experiences of patients with autism spectrum disorder, their parents and health-care providers at two Canadian paediatric hospitals. Autism. Epub ahead of print 8 (PMID: 24811967). DOI: 10.1177/1362361314531341.
    • (2014) Autism
    • Muskat, B.1    Burnham Riosa, P.2    Nicholas, D.B.3
  • 23
    • 36048962688 scopus 로고    scopus 로고
    • Management of children with autism spectrum disorders
    • Myers SM, Johnson CP, (2007) Management of children with autism spectrum disorders. Pediatrics 120: 1162-1182.
    • (2007) Pediatrics , vol.120 , pp. 1162-1182
    • Myers, S.M.1    Johnson, C.P.2
  • 24
    • 61549096872 scopus 로고    scopus 로고
    • Transition from pediatric to adult care: Internists' perspectives
    • Peter NG, Forke CM, Ginsburg KR, et al. (2009) Transition from pediatric to adult care: internists' perspectives. Pediatrics 123: 417-423.
    • (2009) Pediatrics , vol.123 , pp. 417-423
    • Peter, N.G.1    Forke, C.M.2    Ginsburg, K.R.3
  • 25
    • 84864850874 scopus 로고    scopus 로고
    • Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability
    • Rehm RS, Fuentes-Afflick E, Fisher LT, et al. (2012) Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability. Advances in Nursing Science 35: E57-E72.
    • (2012) Advances in Nursing Science , vol.35 , pp. E57-E72
    • Rehm, R.S.1    Fuentes-Afflick, E.2    Fisher, L.T.3
  • 26
    • 16844366227 scopus 로고    scopus 로고
    • Health care transition: Youth, family, and provider perspectives
    • Reiss JG, Gibson RW, Walker LR, (2005) Health care transition: youth, family, and provider perspectives. Pediatrics 115: 112-120.
    • (2005) Pediatrics , vol.115 , pp. 112-120
    • Reiss, J.G.1    Gibson, R.W.2    Walker, L.R.3
  • 27
    • 84860889170 scopus 로고    scopus 로고
    • Parent-reported prevalence of autism spectrum disorders in US-born children: An assessment of changes within birth cohorts from the 2003 to the 2007 National Survey of Children's Health
    • (Suppl. 1)
    • Schieve LA, Rice C, Yeargin-Allsopp M, et al. (2012) Parent-reported prevalence of autism spectrum disorders in US-born children: an assessment of changes within birth cohorts from the 2003 to the 2007 National Survey of Children's Health. Maternal and Child Health Journal 16 (Suppl. 1): S151-S157.
    • (2012) Maternal and Child Health Journal , vol.16 , pp. S151-S157
    • Schieve, L.A.1    Rice, C.2    Yeargin-Allsopp, M.3
  • 30
    • 70049107729 scopus 로고    scopus 로고
    • Transition to adult services for young people with disabilities: Current evidence to guide future research
    • (Suppl. 4)
    • Stewart D, (2009) Transition to adult services for young people with disabilities: current evidence to guide future research. Developmental Medicine and Child Neurology 51 (Suppl. 4): 169-173.
    • (2009) Developmental Medicine and Child Neurology , vol.51 , pp. 169-173
    • Stewart, D.1
  • 31
    • 82755194945 scopus 로고    scopus 로고
    • Changes in the mother-child relationship during the transition to adulthood for youth with autism spectrum disorders
    • Taylor JL, Seltzer MM, (2011) Changes in the mother-child relationship during the transition to adulthood for youth with autism spectrum disorders. Journal of Autism and Developmental Disorders 41: 1397-1410.
    • (2011) Journal of Autism and Developmental Disorders , vol.41 , pp. 1397-1410
    • Taylor, J.L.1    Seltzer, M.M.2
  • 32
    • 66049125971 scopus 로고    scopus 로고
    • U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (ed Services U.S. Department of Health and Human Services). Rockville, MD: U.S. Department of Health and Human Services
    • U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2008) The National Survey of Children with Special Health Care Needs Chartbook 2005-2006 (ed Services U.S. Department of Health and Human Services). Rockville, MD: U.S. Department of Health and Human Services.
    • (2008) The National Survey of Children with Special Health Care Needs Chartbook 2005-2006


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.