메뉴 건너뛰기




Volumn 14, Issue 4, 2016, Pages 411-432

Advance care planning in motor neuron disease: A systematic review

Author keywords

Advance care planning; Amyotrophic lateral sclerosis; Motor neuron disease; Systematic review

Indexed keywords

ADULT; ADVANCE CARE PLANNING; AGED; CAREGIVER; FEMALE; HUMAN; MALE; MIDDLE AGED; MOTOR NEURON DISEASE; ORGANIZATION AND MANAGEMENT; PATIENT PARTICIPATION; PSYCHOLOGY; QUALITATIVE RESEARCH; TERMINAL CARE; VERY ELDERLY;

EID: 84943749768     PISSN: 14789515     EISSN: 14789523     Source Type: Journal    
DOI: 10.1017/S1478951515001066     Document Type: Review
Times cited : (35)

References (33)
  • 1
    • 0032720024 scopus 로고    scopus 로고
    • Prospective study of palliative care in ALS: Choice, timing, outcomes
    • Albert, S. M., Murphy, P. L., del Bene, M. L., et al. (1999). Prospective study of palliative care in ALS: Choice, timing, outcomes. Journal of the Neurological Sciences, 169(1-2), 108-113.
    • (1999) Journal of the Neurological Sciences , vol.169 , Issue.1-2 , pp. 108-113
    • Albert, S.M.1    Murphy, P.L.2    Del Bene, M.L.3
  • 2
    • 56749170659 scopus 로고    scopus 로고
    • Decision-making in patients with advanced cancer compared with amyotrophic lateral sclerosis
    • Astrow, A. B., Sood, J. R., Nolan, M. T., et al. (2008). Decision-making in patients with advanced cancer compared with amyotrophic lateral sclerosis. Journal of Medical Ethics, 34(9), 664-668.
    • (2008) Journal of Medical Ethics , vol.34 , Issue.9 , pp. 664-668
    • Astrow, A.B.1    Sood, J.R.2    Nolan, M.T.3
  • 3
    • 69449094305 scopus 로고    scopus 로고
    • Methods for the synthesis of qualitative research: A critical review
    • Barnett-Page, E. &Thomas, J. (2009). Methods for the synthesis of qualitative research: A critical review. BMC Medical Research Methodology, 9(1), 59.
    • (2009) BMC Medical Research Methodology , vol.9 , Issue.1 , pp. 59
    • Barnett-Page, E.1    Thomas, J.2
  • 4
    • 0035185635 scopus 로고    scopus 로고
    • Empowering the individual with ALS at the end of life: Diseasespecific advance care planning
    • Benditt, J. O., Smith, T. S. & Tonelli, M. R. (2001). Empowering the individual with ALS at the end of life: Diseasespecific advance care planning. Muscle & Nerve, 24(12), 1706-1709.
    • (2001) Muscle & Nerve , vol.24 , Issue.12 , pp. 1706-1709
    • Benditt, J.O.1    Smith, T.S.2    Tonelli, M.R.3
  • 5
    • 0035859775 scopus 로고    scopus 로고
    • Current management of ALS: Comparison of the ALS CARE database and the AAN practice parameter
    • The American Academy of Neurology
    • Bradley, W. G., Anderson, F., Bromberg, M., et al. (2001). Current management of ALS: Comparison of the ALS CARE Database and the AAN Practice Parameter. The American Academy of Neurology. Neurology, 57(3), 500-504.
    • (2001) Neurology , vol.57 , Issue.3 , pp. 500-504
    • Bradley, W.G.1    Anderson, F.2    Bromberg, M.3
  • 6
    • 25644433660 scopus 로고    scopus 로고
    • Discussing living wills: A qualitative study of a German sample of neurologists and ALS patients
    • Burchardi, N., Rauprich, O., Hecht, M., et al. (2005). Discussing living wills: A qualitative study of a German sample of neurologists and ALS patients. Journal of the Neurological Sciences, 237(1-2), 67-74.
    • (2005) Journal of the Neurological Sciences , vol.237 , Issue.1-2 , pp. 67-74
    • Burchardi, N.1    Rauprich, O.2    Hecht, M.3
  • 7
    • 34748875343 scopus 로고    scopus 로고
    • Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers
    • Clayton, J. M., Hancock, K. M., Butow, P. N., et al. (2007). Clinical practice guidelines for communicating prognosis and end-of-life issues with adults in the advanced stages of a life-limiting illness, and their caregivers. The Medical Journal of Australia, 186(12), S81-S108.
    • (2007) The Medical Journal of Australia , vol.186 , Issue.12 , pp. S81-S108
    • Clayton, J.M.1    Hancock, K.M.2    Butow, P.N.3
  • 8
    • 0038545193 scopus 로고    scopus 로고
    • Mapping the journey: Family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease
    • Dawson, S. & Kristjanson, L. J. (2002). Mapping the journey: Family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease. Journal of Palliative Care, 19(1), 36-42.
    • (2002) Journal of Palliative Care , vol.19 , Issue.1 , pp. 36-42
    • Dawson, S.1    Kristjanson, L.J.2
  • 9
    • 77951046282 scopus 로고    scopus 로고
    • The impact of advance care planning on end-of-life care in elderly patients: Randomized controlled trial
    • Detering, K. M., Hancock, A. D., Reade, M. C., et al. (2010). The impact of advance care planning on end-of-life care in elderly patients: Randomized controlled trial. BMJ, 340. Available from http://www. bmj. com/content/ 340/bmj. c1345.
    • (2010) BMJ , vol.340
    • Detering, K.M.1    Hancock, A.D.2    Reade, M.C.3
  • 10
    • 84857462095 scopus 로고    scopus 로고
    • Withdrawal of invasive home mechanical ventilation in patients with advanced amyotrophic lateral sclerosis: Ten years of Danish experience
    • Dreyer, P. S., Felding, M., Klitnæs, C. S., et al. (2012). Withdrawal of invasive home mechanical ventilation in patients with advanced amyotrophic lateral sclerosis: Ten years of Danish experience. Journal of Palliative Medicine, 15(2), 205-209.
    • (2012) Journal of Palliative Medicine , vol.15 , Issue.2 , pp. 205-209
    • Dreyer, P.S.1    Felding, M.2    Klitnæs, C.S.3
  • 11
    • 69549086485 scopus 로고    scopus 로고
    • Understanding advance care planning as a process of health behavior change
    • Fried, T. R., Bullock, K., Iannone, L., et al. (2009). Understanding advance care planning as a process of health behavior change. Journal of the American Geriatrics Society, 57(9), 1547-1555.
    • (2009) Journal of the American Geriatrics Society , vol.57 , Issue.9 , pp. 1547-1555
    • Fried, T.R.1    Bullock, K.2    Iannone, L.3
  • 12
    • 0037072295 scopus 로고    scopus 로고
    • The final month of life in patients with ALS
    • Ganzini, L., Johnston, W. S. & Silveira, M. J. (2002). The final month of life in patients with ALS. Neurology, 59(3), 428-431.
    • (2002) Neurology , vol.59 , Issue.3 , pp. 428-431
    • Ganzini, L.1    Johnston, W.S.2    Silveira, M.J.3
  • 13
    • 34447275959 scopus 로고    scopus 로고
    • Proof of love and other themes: A qualitative exploration of the experience of caring for people with motor neurone disease
    • Herz, H., McKinnon, P. M. & Butow, P. N. (2006). Proof of love and other themes: A qualitative exploration of the experience of caring for people with motor neurone disease. Progress in Palliative Care, 14(5), 209-214.
    • (2006) Progress in Palliative Care , vol.14 , Issue.5 , pp. 209-214
    • Herz, H.1    McKinnon, P.M.2    Butow, P.N.3
  • 14
    • 49249092627 scopus 로고    scopus 로고
    • Toward a better understanding of amyotrophic lateral sclerosis
    • quiz 343-334
    • Hoffman, J. J. (2008). Toward a better understanding of amyotrophic lateral sclerosis. Home Healthcare Nurse, 26(6), 337-342; quiz 343-334.
    • (2008) Home Healthcare Nurse , vol.26 , Issue.6 , pp. 337-342
    • Hoffman, J.J.1
  • 15
    • 79955779329 scopus 로고    scopus 로고
    • Advance care planning for patients with ALS: Feasibility of an interactive computer program
    • Hossler, C., Levi, B. H., Simmons, Z., et al. (2011). Advance care planning for patients with ALS: Feasibility of an interactive computer program. Amyotrophic Lateral Sclerosis, 12(3), 172-177.
    • (2011) Amyotrophic Lateral Sclerosis , vol.12 , Issue.3 , pp. 172-177
    • Hossler, C.1    Levi, B.H.2    Simmons, Z.3
  • 18
    • 22244435945 scopus 로고    scopus 로고
    • Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field
    • Mays, N., Pooe, C., Popay, J., et al. (2005). Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. Journal of Health Service Research & Policy, 10(Suppl. 1), 6-20.
    • (2005) Journal of Health Service Research & Policy , vol.10 , pp. 6-20
    • Mays, N.1    Pooe, C.2    Popay, J.3
  • 19
    • 0033981057 scopus 로고    scopus 로고
    • The ALS patient care database: Goals, design, and early results
    • Miller, R. G., Anderson, F. A., Jr., Bradley, W. G., et al. (2000). The ALS patient care database: Goals, design, and early results. Neurology, 54(1), 53-57.
    • (2000) Neurology , vol.54 , Issue.1 , pp. 53-57
    • Miller, R.G.1    Anderson, F.A.2    Jr3    Bradley, W.G.4
  • 20
    • 34250209501 scopus 로고    scopus 로고
    • Amyotrophic lateral sclerosis
    • Mitchell, J. D. & Borasio, G. D. (2007). Amyotrophic lateral sclerosis. Lancet, 369(9578), 2031-2041.
    • (2007) Lancet , vol.369 , Issue.9578 , pp. 2031-2041
    • Mitchell, J.D.1    Borasio, G.D.2
  • 22
    • 0034653486 scopus 로고    scopus 로고
    • Systematic implementation of an advance directive program in nursing homes: A randomized controlled trial
    • Molloy, D. W., Guyatt, G. H., Russo, R., et al. (2000). Systematic implementation of an advance directive program in nursing homes: A randomized controlled trial. The Journal of the American Medical Association, 283(11), 1437-1444.
    • (2000) The Journal of the American Medical Association , vol.283 , Issue.11 , pp. 1437-1444
    • Molloy, D.W.1    Guyatt, G.H.2    Russo, R.3
  • 23
    • 0029893212 scopus 로고    scopus 로고
    • Patients with amyotrophic lateral sclerosis receiving longterm mechanical ventilation: Advance care planning and outcomes
    • Moss, A. H., Oppenheimer, E. A., Casey, P., et al. (1996). Patients with amyotrophic lateral sclerosis receiving longterm mechanical ventilation: Advance care planning and outcomes. Chest, 110(1), 249-255.
    • (1996) Chest , vol.110 , Issue.1 , pp. 249-255
    • Moss, A.H.1    Oppenheimer, E.A.2    Casey, P.3
  • 24
    • 35148882227 scopus 로고    scopus 로고
    • Endof-life decision making in 42 patients with amyotrophic lateral sclerosis
    • Munroe, C. A., Sirdofsky, M. D., Kuru, T., et al. (2007). Endof-life decision making in 42 patients with amyotrophic lateral sclerosis. Respiratory Care, 52(8), 996-999.
    • (2007) Respiratory Care , vol.52 , Issue.8 , pp. 996-999
    • Munroe, C.A.1    Sirdofsky, M.D.2    Kuru, T.3
  • 25
    • 49949109559 scopus 로고    scopus 로고
    • District nurses' attitudes toward patient consent: The case of mechanical ventilation on amyotrophic lateral sclerosis patients. Results from a French national survey
    • Peretti-Watel, P., Bendiane, M. K., Galinier, A., et al. (2008). District nurses' attitudes toward patient consent: The case of mechanical ventilation on amyotrophic lateral sclerosis patients. Results from a French national survey. Journal of Critical Care, 23(3), 332-338.
    • (2008) Journal of Critical Care , vol.23 , Issue.3 , pp. 332-338
    • Peretti-Watel, P.1    Bendiane, M.K.2    Galinier, A.3
  • 26
    • 84857347570 scopus 로고    scopus 로고
    • The preferred priorities for care document in motor neurone disease: Views of bereaved relatives and carers
    • Preston, H., Fineberg, I. C., Callagher, P., et al. (2012). The preferred priorities for care document in motor neurone disease: Views of bereaved relatives and carers. Palliative Medicine, 26(2), 132-138.
    • (2012) Palliative Medicine , vol.26 , Issue.2 , pp. 132-138
    • Preston, H.1    Fineberg, I.C.2    Callagher, P.3
  • 27
    • 84904434517 scopus 로고    scopus 로고
    • Dying with motor neurone disease: What can we learn from family caregivers?
    • Ray, R. A., Brown, J. &Street, A. F. (2012). Dying with motor neurone disease: What can we learn from family caregivers? Health Expectations, 17(4), 466-476.
    • (2012) Health Expectations , vol.17 , Issue.4 , pp. 466-476
    • Ray, R.A.1    Brown, J.2    Street, A.F.3
  • 28
    • 20644456675 scopus 로고    scopus 로고
    • Attitudes toward advance directives and advance directive completion rates
    • Salmond, S. W. & David, E. (2005). Attitudes toward advance directives and advance directive completion rates. Orthopedic Nursing, 24(2), 117-127.
    • (2005) Orthopedic Nursing , vol.24 , Issue.2 , pp. 117-127
    • Salmond, S.W.1    David, E.2
  • 29
    • 0025741368 scopus 로고
    • Amyotrophic lateral sclerosis and life-sustaining therapy: Patients' desires for information, participation in decision making, and life-sustaining therapy
    • Silverstein, M. D., Stocking, C. B., Antel, J. P., et al. (1991). Amyotrophic lateral sclerosis and life-sustaining therapy: Patients' desires for information, participation in decision making, and life-sustaining therapy. Mayo Clinic Proceedings, 66(9), 906-913.
    • (1991) Mayo Clinic Proceedings , vol.66 , Issue.9 , pp. 906-913
    • Silverstein, M.D.1    Stocking, C.B.2    Antel, J.P.3
  • 30
    • 0036749789 scopus 로고    scopus 로고
    • Motor neurone disease
    • Talbot, K. (2002). Motor neurone disease. Postgraduate Medical Journal, 78(923), 513-519.
    • (2002) Postgraduate Medical Journal , vol.78 , Issue.923 , pp. 513-519
    • Talbot, K.1
  • 31
    • 33846587942 scopus 로고    scopus 로고
    • Association between advance directives and quality of end-oflife care: A national study
    • Teno, J. M., Gruneir, A., Schwartz, Z., et al. (2007). Association between advance directives and quality of end-oflife care: A national study. Journal of the American Geriatrics Society, 55(2), 189-194.
    • (2007) Journal of the American Geriatrics Society , vol.55 , Issue.2 , pp. 189-194
    • Teno, J.M.1    Gruneir, A.2    Schwartz, Z.3
  • 32
    • 0038690119 scopus 로고    scopus 로고
    • Health professionals' views on advance directives: A qualitative interdisciplinary study
    • Thompson, T. D., Barbour, R. S. & Schwartz, L. (2003). Health professionals' views on advance directives: A qualitative interdisciplinary study. Palliative Medicine, 17(5), 403-409.
    • (2003) Palliative Medicine , vol.17 , Issue.5 , pp. 403-409
    • Thompson, T.D.1    Barbour, R.S.2    Schwartz, L.3
  • 33
    • 84861794904 scopus 로고    scopus 로고
    • Experiences of dying, deathand bereavement inmotorneurone disease: A qualitative study
    • Whitehead, B., O'Brien, M. R., Jack, B. A., et al. (2012). Experiences of dying, deathand bereavement inmotorneurone disease: A qualitative study. Palliative Medicine, 26(4), 368-378.
    • (2012) Palliative Medicine , vol.26 , Issue.4 , pp. 368-378
    • Whitehead, B.1    O'Brien, M.R.2    Jack, B.A.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.