Decision-making in patients with advanced cancer compared with amyotrophic lateral sclerosis

Journal of Medical Ethics

Volumn 34, Issue 9, 2008, Pages 664-668

  Astrow, A B ^a,b,c   Sood, J R ^b,c   Nolan, M T ^d   Terry, P B ^d   Clawson, L ^d   Kub, J ^d   Hughes, M ^d   Sulmasy, D P ^b,c,e  

^a MAIMONIDES MEDICAL CENTER   (United States)

^b ST VINCENT S HOSPITAL MANHATTAN   (United States)

^c NEW YORK MEDICAL COLLEGE   (United States)

^d DEPARTMENT OF PATHOLOGY   (United States)

^e ST VINCENT S HOSPITAL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; DECISION MAKING; EPIDEMIOLOGY; FEMALE; HUMAN; MALE; MIDDLE AGED; NEOPLASM; PATIENT CARE; PSYCHOLOGICAL ASPECT; TERMINAL CARE; TERMINALLY ILL PATIENT; UNITED STATES;

ADULT; ADVANCE CARE PLANNING; AGED; AMYOTROPHIC LATERAL SCLEROSIS; DECISION MAKING; EPIDEMIOLOGIC METHODS; FEMALE; HUMANS; MALE; MARYLAND; MIDDLE AGED; NEOPLASMS; TERMINAL CARE; TERMINALLY ILL;

EID: 56749170659     PISSN: 03066800     EISSN: 14734257     Source Type: Journal    
DOI: 10.1136/jme.2007.022731     Document Type: Article

References (38)

1. Martin DK, Emanuel LL, Singer PA. Planning for the end of life. Lancet 2000;356:1672-6.
2. Hagerty RG, Butow PN, Ellis PM, et al. Communicating with realism and hope: incurable cancer patients' views on the disclosure of prognosis. J Clin Oncol 2005;23:1278-88.
3. Blanchard CG, Labrecque MS, Ruckdeschel JC, et al. Information and decision-making preferences of hospitalized adult cancer patients. Soc Sci Med 1988;27:1139-45.
4. Teno JM, Nelson HL, Lynn J. Advance care planning: priorities for ethical and empirical research. Hastings Cent Rep 1994;24:S32-6.
5. Bradley EH, Hallemeier AG, Fried TR, et al. Documentation of discussions about prognosis with terminally ill patients. Am J Med 2001;111:218-23.
6. Sulmasy DP, Hughes MT, Thompson RE, et al. How would terminally ill patients have others make decisions for them in the event of decisional incapacity? A longitudinal study. J Am Geriatr Soc 2007;55:1981-8.
7. Pfeiffer E. A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. J Am Geriatr Soc 1975;23:433-41.
8. Inouye SK, van Dyck CH, Alessi CA, et al. Clarifying confusion: the confusion assessment method. A new method for detection of delirium. Ann Intern Med 1990;113:941-8.
9. Cohen SR, Mount BM, Strobel MG, et al. The McGill quality of life questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliat Med 1995;9:207-19.
10. Goldberg DP, Hillier VF. A scaled version of the general health questionnaire. Psychol Med 1979;9:139-45.
11. Annas GJ. Informed consent, cancer, and truth in prognosis. N Engl J Med 1994;330:223-5.
12. Gordon EJ, Daugherty CK. "Hitting you over the head": oncologists disclosure of prognosis to advanced cancer patients. Bioethics 2003;17:142-68.
13. Miyaji NT. The power of compassion: truth-telling among American doctors in the care of dying patients. Soc Sci Med 1993;36:249-64.
14. SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients. JAMA 1995;274:1592- 8.
15. Bradley EH, Hallemeier AG, Fried TR, et al. Documentation of discussions about prognosis with terminally ill patients. Am J Med 2001;111:218-23.
16. Emanuel EJ, Young-Xu Y, Levinsky NG. Chemotherapy use among Medicare beneficiaries at the end of life. Ann Intern Med 2003;138:639-43.
17. Sardell AN, Trierweiler SJ. Disclosing the cancer diagnosis: procedures that influence patient hopefulness. Cancer 1993;72:3355-65.
18. Hagerty RG, Butow PN, Ellis PA, et al. Cancer patient preferences for communication of prognosis in the metastatic setting. J Clin Oncol 2004;22:1721-30.
19. Yun YH, Lee GL, Kim S, et al. The attitude of cancer patients and their families toward the disclosure of terminal illness. J Clin Oncol 2004;22:204-314.
20. Pentz RD, Lenzi R, Holmes F, et al. Discussion of the do-not-resuscitate order: a pilot study of perceptions of patients with refractory cancer. Support Care Cancer 2002;10:573-8.
21. Parker PA, Baile WF, deMoor C, et al. Breaking bad news about cancer: patient preferences for communication. J Clin Oncol 2001;19:2049-56.
22. Tattersall MH, Gattellari M, Voigt K, et al. When the treatment goal is not cure: are patients informed adequately? Support Care Cancer 2002;10:314-21.
23. Benditt JO, Smith TS, Tonelli MR. Empowering the individual with ALS at the end-of-life: disease-specific advance care planning. Muscle Nerve 2001;1706-9.
24. Good MD, Good BJ, Schaffer C, et al. American oncology and the discourse on hope. Cult Med Psychiatry 1990;14:59-79.
25. Miller RG, Rosenberg JA, Gelinas DF, et al. Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology 1999;52:1311-23.
26. Mandler RN, Anderson FA Jr, Miller RG, et al. The ALS Patient Care Database: insights into end-of-life care in ALS. Amyotroph Lateral Scler Other Motor Neuron Disord 2001;2:203-8.
27. Leydon GM, Boulton M, Moynihan C, et al. Cancer patients' information needs and information seeking behavior: in depth interview study. BMJ 2000;320:909-13.
28. Chochinov HM, Tataryn DJ, Wilson KG, et al. Prognostic awareness and the terminally ill. Psychosomatics 2000;41:500-4.
29. The A, Hak T, Koeter G, et al. Collusion in doctor-patient communication about imminent death: an ethnographic study. BMJ 2000;321:1376-81.
30. Rousseau P. Death denial. J Clin Oncol 2003;21(9 Suppl):52s-3s.
31. Hancock K, Clayton JM, Parker SM, et al. Truth-telling in discussing prognosis in advanced life-limiting illnesses: a systematic review. Palliat Med 2007;21:507-17.
32. Grunfeld EA, Maher J, Browne S, et al. Advanced breast cancer patients' perceptions of decision making for palliative chemotherapy. J Clin Oncol 2006;24:1090-8.
33. Kadish E, Post SG. Oncology and hope. J Clin Oncol 1995;13:1817-22.
34. Arora NK. Interacting with cancer patients: the significance of physicians' communication behavior. Soc Sci Med 2003;57:791-806.
35. Baile WF, Lenzi R, Kudelka AP, et al. Improving physician-patient communication in cancer care: outcome of a workshop for oncologists. J Cancer Educ 1997;12:166-73.
36. Moynihan TJ, Schapira L. Preparing ourselves, our trainees, and our patients: a commentary on truthtelling. J Clin Oncol 2007;25:456-7.
37. Sulmasy DP, Marx ES, Dwyer M. Do the ward notes reflect the quality of end-of-life care? J Med Ethics 1996;22:344-8.
38. Wachter RM, Luce JM, Hearst N, et al. Decisions about resuscitation: inequities among patients with different diseases but similar prognoses. Ann Intern Med 1989;111:525-32.