Heart failure patients' descriptions of participation in structured home care

Health Expectations

Volumn 18, Issue 5, 2015, Pages 1384-1396

  Näsström, Lena M ^a   Idvall, Ewa A C ^b,c   Strömberg, Anna E ^a,d  

^a LINKÖPING UNIVERSITY   (Sweden)

^b MALMÖ UNIVERSITY   (Sweden)

^c LUND UNIVERSITY HOSPITAL   (Sweden)

^d Regional Cancer Centre Southeast   (Sweden)

Author keywords

Decision making; Heart failure; Home care; Involvement; Patient participation; Qualitative method

Indexed keywords

AGED; DECISION MAKING; FEMALE; HEART FAILURE; HOME CARE; HUMAN; HUMAN RELATION; INTERVIEW; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PSYCHOLOGY; QUALITATIVE RESEARCH; SELF CARE; SWEDEN; VERY ELDERLY;

AGED; AGED, 80 AND OVER; DECISION MAKING; FEMALE; HEART FAILURE; HOME CARE SERVICES; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PROFESSIONAL-PATIENT RELATIONS; QUALITATIVE RESEARCH; SELF CARE; SWEDEN;

EID: 84942292733     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/hex.12120     Document Type: Article

References (52)

1. WHO. The health for all policy framework for the WHO European Region, Update 2005. Copenhagen: WHO, 2005. Available at: http://www.euro.who.int/__data/assets/pdf_file/0008/98387/E87861.pdf, accesed 10 May 2012.
2. Guadagnoli E, Ward P. Patient participation in decision-making. Social Science & Medicine, 1998; 47: 329-339.
3. Socialdepartementet. Kommittédirektiv. Stärkt ställning för patienten genom en ny patientlagstiftning. Stockholm: Socialdepartementet, Direktiv, 2011: 25. Available at: http://www.regeringen.se/content/1/c6/16/46/08/1ffd2177.pdf, accessed 10 May 2012.
4. Tritter JQ. Public and patient participation in health care and health policy in the United Kingdom. Health Expectations, 2011; 14: 220-223.
5. Eldh AC, Ehnfors M, Ekman I. The phenomena of participation and non-participation in health care-experiences of patients attending a nurse-led clinic for chronic heart failure. European Journal of Cardiovascular Nursing, 2004; 3: 239-246.
6. Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L, Pittet D. Patient participation: current knowledge and applicability to patient safety. Mayo Clinic Proceedings, 2010; 85: 53-62.
7. Cahill J. Patient participation: a concept analysis. Journal of Advanced Nursing, 1996; 24: 561-571.
8. Sahlsten MJ, Larsson IE, Sjostrom B, Plos KA. An analysis of the concept of patient participation. Nursing Forum, 2008; 43: 2-11.
9. Eldh AC, Ehnfors M, Ekman I. The meaning of patient participation for patients and nurses at a nurse-led clinic for chronic heart failure. European Journal of Cardiovascular Nursing, 2006; 5: 45-53.
10. Florin J, Ehrenberg A, Ehnfors M. Patient participation in clinical decision-making in nursing: a comparative study of nurses' and patients' perceptions. Journal of Clinical Nursing, 2006; 15: 1498-1508.
11. Nordgren L, Asp M, Fagerberg I. An exploration of the phenomenon of formal care from the perspective of middle-aged heart failure patients. European Journal of Cardiovascular Nursing, 2007; 6: 121-129.
12. Lainscak M, Blue L, Clark AL et al. Self-care management of heart failure: practical recommendations from the Patient Care Committee of the Heart Failure Association of the European Society of Cardiology. European Journal of Heart Failure, 2011; 13: 115-126.
13. Lee CS, Moser DK, Lennie TA, Riegel B. Event-free survival in adults with heart failure who engage in self-care management. Heart and Lung, 2011; 40: 12-20.
14. Stromberg A, Martensson J, Fridlund B, Levin LA, Karlsson JE, Dahlstrom U. Nurse-led heart failure clinics improve survival and self-care behaviour in patients with heart failure: results from a prospective, randomised trial. European Heart Journal, 2003; 24: 1014-1023.
15. Wu JR, Corley DJ, Lennie TA, Moser DK. Effect of a medication-taking behavior feedback theory-based intervention on outcomes in patients with heart failure. Journal of Cardiac Failure, 2012; 18: 1-9.
16. McMurray JJ, Adamopoulos S, Anker SD et al. ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: the Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Failure 2012 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association (HFA) of the ESC. European Heart Journal, 2012; 33: 1787-1847.
17. Brannstrom M, Ekman I, Norberg A, Boman K, Strandberg G. Living with severe chronic heart failure in palliative advanced home care. European Journal of Cardiovascular Nursing, 2006; 5: 295-302.
18. Ekman I, Cleland JG, Swedberg K, Charlesworth A, Metra M, Poole-Wilson PA. Symptoms in patients with heart failure are prognostic predictors: insights from COMET. Journal of Cardiac Failure, 2005; 11: 288-292.
19. Patel H, Shafazand M, Schaufelberger M, Ekman I. Reasons for seeking acute care in chronic heart failure. The European Journal of Heart Failure, 2007; 9: 702-708.
20. Yu DS, Lee DT, Kwong AN, Thompson DR, Woo J. Living with chronic heart failure: a review of qualitative studies of older people. Journal of Advanced Nursing, 2008; 61: 474-483.
21. Socialstyrelsen. Hemsjukvård i förändring. En kartläggning av hemsjukvården i Sverige och förslag till indikationer. Stockholm: Socialstyrelsen. Available at: http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/8800/2008-126-59_200812659.pdf, accessed 10 May 2012.
22. Blue L, Lang E, McMurray JJ et al. Randomised controlled trial of specialist nurse intervention in heart failure. BMJ, 2001; 323: 715-718.
23. Morcillo C, Valderas JM, Aguado O et al. Evaluation of a home-based intervention in heart failure patients. Results of a randomized study. Revista Espanola de Cardiologia, 2005; 58: 618-625.
24. Stewart S, Horowitz JD. Home-based intervention in congestive heart failure: long-term implications on readmission and survival. Circulation, 2002; 105: 2861-2866.
25. Patel H, Shafazand M, Ekman I, Hojgard S, Swedberg K, Schaufelberger M. Home care as an option in worsening chronic heart failure - a pilot study to evaluate feasibility, quality adjusted life years and cost-effectiveness. European Journal of Heart Failure, 2008; 10: 675-681.
26. Jaarsma T, van der Wal MH, Lesman-Leegte I et al. Effect of moderate or intensive disease management program on outcome in patients with heart failure: Coordinating Study Evaluating Outcomes of Advising and Counseling in Heart Failure (COACH). Archives of Internal Medicine, 2008; 168: 316-324.
27. Savard LA, Thompson DR, Clark AM. A meta-review of evidence on heart failure disease management programs: the challenges of describing and synthesizing evidence on complex interventions. Trials, 2011; 12: 194.
28. Jaarsma T, Luttik ML. Home care in heart failure: towards an integrated care model. European Journal of Heart Failure, 2011; 13: 823-824.
29. Berg BL. Qualitative Research Methods for the Social Sciences, 7th edn. Boston: Allyn & Bacon, 2009.
30. Jaarsma T, Strömberg A, Alonso A. A description of EU-criteria/components for optimal based management of heart failure patients. 2010. Available at: http://integratedhomecare.eu/uploads/Diverse%20uploads/D2_Homecare%20222954.pdf, accessed 10 June 2012.
31. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 2004; 24: 105-112.
32. Grove SK, Burns N, Gray JR. The Practice of Nursing Research. Appraisal, Synthesis and Generation of Evidence. 7th edn. St. Louis, Missouri: Elsevier, Saunders, 2012.
33. Frank C, Asp M, Dahlberg K. Patient participation in emergency care - a phenomenographic study based on patients' lived experience. International Emergency Nursing, 2009; 17: 15-22.
34. Larsson IE, Sahlsten MJ, Sjostrom B, Lindencrona CS, Plos KA. Patient participation in nursing care from a patient perspective: a Grounded Theory study. Scandinavian Journal of Caring Sciences, 2007; 21: 313-320.
35. Kiely KM, Gopinath B, Mitchell P, Luszcz M, Anstey KJ. Cognitive, health, and sociodemographic predictors of longitudinal decline in hearing acuity among older adults. Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 2012; 67: 997-1003.
36. Sainio C, Eriksson E, Lauri S. Patient participation in decision making about care. Cancer Nursing, 2001; 24: 172-179.
37. Socialdepartementet. Hälso- och sjukvårdslag 1982:763. Stockholm. Available at: http://www.riksdagen.se/sv/Dokument-Lagar/Lagar/Svenskforfattningssamling/Halso–och-sjukvardslag-1982_sfs-1982-763/, accessed 5 November 2012.
38. Bastiaens H, Van Royen P, Pavlic DR, Raposo V, Baker R. Older people's preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries. Patient Education and Counseling, 2007; 68: 33-42.
39. Riegel B, Lee CS, Dickson VV. Self care in patients with chronic heart failure. Nature Reviews. Cardiology, 2011; 8: 644-654.
40. Shearer NB, Cisar N, Greenberg EA. A telephone-delivered empowerment intervention with patients diagnosed with heart failure. Heart and Lung, 2007; 36: 159-169.
41. Tutton EM. Patient participation on a ward for frail older people. Journal of Advanced Nursing, 2005; 50: 143-152.
42. Kraetschmer N, Sharpe N, Urowitz S, Deber RB. How does trust affect patient preferences for participation in decision-making? Health Expectations, 2004; 7: 317-326.
43. Ommen O, Thuem S, Pfaff H, Janssen C. The relationship between social support, shared decision-making and patient's trust in doctors: a cross-sectional survey of 2, 197 inpatients using the Cologne Patient Questionnaire. International Journal of Public Health, 2011; 56: 319-327.
44. Sainio C, Lauri S. Cancer patients' decision-making regarding treatment and nursing care. Journal of Advanced Nursing, 2003; 41: 250-260.
45. Ekdahl AW, Andersson L, Friedrichsen M. "They do what they think is the best for me." Frail elderly patients' preferences for participation in their care during hospitalization. Patient Education and Counseling, 2010; 80: 233-240.
46. Ekdahl AW, Andersson L, Wirehn AB, Friedrichsen M. Are elderly people with co-morbidities involved adequately in medical decision making when hospitalised? A cross-sectional survey BMC Geriatrics, 2011; 11: 46.
47. Foss C. Elders and patient participation revisited - a discourse analytic approach to older persons' reflections on patient participation. Journal of Clinical Nursing, 2011; 20: 2014-2022.
48. Thompson AG. The meaning of patient involvement and participation in health care consultations: a taxonomy. Social Science & Medicine, 2007; 64: 1297-1310.
49. Hoglund AT, Winblad U, Arnetz B, Arnetz JE. Patient participation during hospitalization for myocardial infarction: perceptions among patients and personnel. Scandinavian Journal of Caring Sciences, 2010; 24: 482-489.
50. Larsson IE, Sahlsten MJ, Segesten K, Plos KA. Patients' perceptions of barriers for participation in nursing care. Scandinavian Journal of Caring Sciences, 2011; 25: 575-582.
51. Burton D, Blundell N, Jones M, Fraser A, Elwyn G. Shared decision-making in cardiology: do patients want it and do doctors provide it? Patient Education and Counseling, 2010; 80: 173-179.
52. Florin J, Ehrenberg A, Ehnfors M. Clinical decision-making: predictors of patient participation in nursing care. Journal of Clinical Nursing, 2008; 17: 2935-2944.