Cancer-related information needs and cancer's impact on control over life influence health-related quality of life among adolescents and young adults with cancer

Psycho-Oncology

Volumn 24, Issue 9, 2015, Pages 1104-1115

  DeRouen, Mindy C ^a   Smith, Ashley Wilder ^b   Tao, Li ^a,c   Bellizzi, Keith M ^d   Lynch, Charles F ^e   Parsons, Helen M ^f   Kent, Erin E ^b   Keegan, Theresa H M ^a,c  

^a CANCER PREVENTION INSTITUTE OF CALIFORNIA   (United States)

^b NATIONAL CANCER INSTITUTE   (United States)

^c STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d UNIVERSITY OF CONNECTICUT   (United States)

^e UNIVERSITY OF IOWA   (United States)

^f UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

Author keywords

adolescent and young adult (AYA); cancer survivor; control; health related quality of life (HRQOL); information need; oncology

Indexed keywords

ACCESS TO INFORMATION; ADOLESCENT; ADOLESCENT HEALTH; ADULT; ARTICLE; CANCER DIAGNOSIS; CANCER PATIENT; CANCER REGISTRY; CANCER SURVIVOR; DISEASE ASSOCIATION; FEMALE; HEALTH CARE NEED; HEALTH IMPACT ASSESSMENT; HEALTH STATUS; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MENTAL HEALTH; POPULATION RESEARCH; QUALITY OF LIFE; UNITED STATES; YOUNG ADULT; CONTROL; HEALTH SERVICE; NEOPLASMS; PATIENT EDUCATION; PSYCHOLOGY; QUESTIONNAIRE; STATISTICS AND NUMERICAL DATA; SURVIVOR;

ADOLESCENT; ADULT; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; INTERNAL-EXTERNAL CONTROL; MALE; NEOPLASMS; PATIENT EDUCATION AS TOPIC; QUALITY OF LIFE; SURVEYS AND QUESTIONNAIRES; SURVIVORS; YOUNG ADULT;

EID: 84941168435     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3730     Document Type: Article

References (41)

1. Bleyer A,. Young adult oncology: the patients and their survival challenges. CA Cancer J Clin 2007; 57 (4): 242-255.
2. Zebrack B,. Developing a new instrument to assess the impact of cancer in young adult survivors of childhood cancer. J Cancer Surviv 2009; 3 (3): 174-180.
3. Parsons HM, Harlan LC, Lynch CF, et al,. Impact of cancer on work and education among adolescent and young adult cancer survivors. J Clin Oncol 2012; 30 (19): 2393-2400.
4. Albritton K, Bleyer WA,. The management of cancer in the older adolescent. Eur J Cancer 2003; 39 (18): 2584-2599.
5. Mertens AC, Yasui Y, Neglia JP, et al,. Late mortality experience in five-year survivors of childhood and adolescent cancer: the Childhood Cancer Survivor study. J Clin Oncol 2001; 19 (13): 3163-3172.
6. Oeffinger KC, Mertens AC, Sklar CA, et al,. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 2006; 355 (15): 1572-1582.
7. Oeffinger KC, Hudson MM, Mertens AC, et al,. Increasing rates of breast cancer and cardiac surveillance among high-risk survivors of childhood Hodgkin lymphoma following a mailed, one-page survivorship care plan. Pediatr Blood Cancer 2011; 56 (5): 818-824.
8. Keegan TH, Lichtensztajn DY, Kato I, et al,. Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. J Cancer Surviv 2012; 6 (3): 239-250.
9. Bellizzi KM, Smith A, Schmidt S, et al,. Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult. Cancer 2012; 118 (20): 5155-5162.
10. Smith A, Bellizzi KM, Keegan TH, et al,. Health-related quality of life of adolescent and young adult cancer patients in the United States: the AYA HOPE study. J Clin Oncol 2013; 31 (17): 2136-2145.
11. Zebrack BJ, Mills J, Weitzman TS,. Health and supportive care needs of young adult cancer patients and survivors. J Cancer Surviv 2007; 1 (2): 137-145.
12. Schmidt C,. Lack of progress in teen and young adult cancers concerns researchers, prompts study. J Natl Cancer Inst 2006; 98 (24): 1760-1763.
13. Beckjord EB, Arora NK, McLaughlin W, et al,. Health-related information needs in a large and diverse sample of adult cancer survivors: implications for cancer care. J Cancer Surviv 2008; 2 (3): 179-189.
14. Zebrack B, Bleyer A, Albritton K, et al,. Assessing the health care needs of adolescent and young adult cancer patients and survivors. Cancer 2006; 107 (12): 2915-2923.
15. Prociuk TJ, Breen LJ, Lussier RJ,. Hopelessness, internal-external locus of control, and depression. J Clin Psychol 1976; 32 (2): 299-300.
16. Ajzen I,. Perceived behavioral control, self-efficacy, locus of control, and the theory of planned behavior. J Appl Soc Psychol 2002; 32 (4): 665-683.
17. Pettingale KW, Morris T, Greer S, et al,. Mental attitudes to cancer: an additional prognostic factor. Lancet 1985; 1 (8431): 750.
18. Zebrack B, Hamilton R, Smith AW,. Psychosocial outcomes and service use among young adults with cancer. Semin Oncol 2009; 36 (5): 468-477.
19. Cunningham AJ, Lockwood GA, Cunningham JA,. A relationship between perceived self-efficacy and quality of life in cancer patients. Patient Educ Couns 1991; 17 (1): 71-78.
20. Lev EL, Owen SV,. Counseling women with breast cancer using principles developed by Albert Bandura. Perspect Psychiatr Care 2000; 36 (4): 131-138.
21. Watson M, Haviland JS, Greer S, et al,. Influence of psychological response on survival in breast cancer: a population-based cohort study. Lancet 1999; 354 (9187): 1331-1336.
22. Watson M, Homewood J, Haviland J, et al,. Influence of psychological response on breast cancer survival: 10-year follow-up of a population-based cohort. Eur J Cancer 2005; 41 (12): 1710-1714.
23. Kent EE, Arora NK, Rowland JH, et al,. Health information needs and health-related quality of life in a diverse population of long-term cancer survivors. Patient Educ Couns 2012; 89 (2): 345-352.
24. Graves KD,. Social cognitive theory and cancer patients' quality of life: a meta-analysis of psychosocial intervention components. Health Psychol 2003; 22 (2): 210-219.
25. Graves KD, Carter CL, Anderson ES, et al,. Quality of life pilot intervention for breast cancer patients: use of social cognitive theory. Palliat Support Care 2003; 1 (2): 121-134.
26. Bandura A., Health promotion by social cognitive means. Health Educ Behav 2004; 31 (2): 143-164.
27. Harlan LC, Lynch CF, Keegan TH, et al,. Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study. J Cancer Surviv 2011; 5 (3): 305-314.
28. National Cancer Institute. Closing the gap: research and care imperatives for adolescents and young adults with cancer. Report of the Adolescent and Young Adult Oncology Progress Review Group. Bethesda: National Cancer Institute, 2006.
29. Parsons HM, Harlan LC, Seibel NL, et al,. Clinical trial participation and time to treatment among adolescents and young adults with cancer: does age at diagnosis or insurance make a difference? J Clin Oncol 2011; 29 (30): 4045-4053.
30. Arora NK, Hamilton AS, Potosky AL, et al,. Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors. J Cancer Surviv 2007; 1 (1): 49-63.
31. Bellizzi KM, Miller MF, Arora NK, et al,. Positive and negative life changes experienced by survivors of non-Hodgkin's lymphoma. Ann Behav Med 2007; 34 (2): 188-199.
32. Ware JE, Kosinski M, Turner-Bowker DM, et al,. How to Score Version 2 of the SF-12 Health Survey (With a Supplement Documenting Version 1). Quality Metric Incorporated: Lincoln, RI, 2002.
33. Rainey LC,. Effects of preparatory patient education for radiation oncology patients. Cancer 1985; 56 (5): 1056-1061.
34. Roberts CS, Piper L, Denny J, et al,. A support group intervention to facilitate young adults' adjustment to cancer. Health Soc Work 1997; 22 (2): 133-141.
35. Eiser C, Hill JJ, Blacklay A,. Surviving cancer; what does it mean for you? An evaluation of a clinic based intervention for survivors of childhood cancer. Psycho-Oncology 2000; 9 (3): 214-220.
36. Arora NK, Weaver KE, Clayman ML, et al,. Physicians' decision-making style and psychosocial outcomes among cancer survivors. Patient Educ Couns 2009; 77 (3): 404-412.
37. Galway K, Black A, Cantwell M, et al,. Psychosocial interventions to improve quality of life and emotional wellbeing for recently diagnosed cancer patients. Cochrane Database Syst Rev 2012; 11:CD007064.
38. Smith A, Parsons HM, Kent EE, et al,. Unmet support service needs and health-related quality of life among adolescent and young adults with cancer: the AYA HOPE Study. Front Pediatr Oncol 2013; 3 (75).
39. Kent EE, Smith A, Keegan TH, et al,. Talking about cancer and meeting peer survivors: social information needs in adolescents and young adults diagnosed with cancer. JAYAO 2013; 2 (2): 44-52.
40. Merluzzi TV, Nairn RC, Hegde K, et al,. Self-efficacy for coping with cancer: revision of the Cancer Behavior Inventory (version 2.0). Psycho-Oncology 2001; 10 (3): 206-217.
41. Furnham A, Steele H,. Measuring locus of control: a critique of general, children's, health- and work-related locus of control questionnaires. Br J Psychol 1993; 84 (Pt 4): 443-479.