206th ENMC International Workshop: Care for a novel group of patients - adults with Duchenne muscular dystrophy Naarden, The Netherlands, 23-25 May 2014

Neuromuscular Disorders

Volumn 25, Issue 9, 2015, Pages 727-738

  Rahbek, Jes ^a   Steffensen, Birgit F ^a   Bushby, Kate ^b   de Groot, Imelda J M ^c  

^a The Danish National Rehabilitation Center for Neuromuscular Diseases   (Denmark)

^b NEWCASTLE UNIVERSITY   (United Kingdom)

^c RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

BISPHOSPHONIC ACID DERIVATIVE; CALCIUM; CORTICOSTEROID; DIPEPTIDYL CARBOXYPEPTIDASE INHIBITOR; DYSTROPHIN; PARATHYROID HORMONE[1-34]; STEROID; VITAMIN D;

ABSENCE OF SIDE EFFECTS; ADULT; AGE DISTRIBUTION; ARTICLE; ARTIFICIAL VENTILATION; ATTENTION DEFICIT DISORDER; AUTISM; BONE DENSITY; BONE DISEASE; CATARACT; CAUSE OF DEATH; CEREBROVASCULAR ACCIDENT; COPING BEHAVIOR; CULTURAL FACTOR; DEHYDRATION; DELAYED PUBERTY; DIET SUPPLEMENTATION; DRUG TOLERABILITY; DRUG WITHDRAWAL; DUCHENNE MUSCULAR DYSTROPHY; EMERGENCY CARE; ENTERIC FEEDING; EVIDENCE BASED MEDICINE; FATIGUE; FORCED VITAL CAPACITY; FRACTURE; GASTROINTESTINAL DISEASE; GENERAL PRACTITIONER; GROWTH DISORDER; HAND FUNCTION; HEALTH CARE ACCESS; HEALTH EDUCATION; HEART ARRHYTHMIA; HEART DISEASE; HEART FAILURE; HEART LEFT VENTRICLE EJECTION FRACTION; HEART LEFT VENTRICLE FUNCTION; HUMAN; HYPERACTIVITY; HYPERCAPNIA; HYPERTENSION; KIDNEY FAILURE; KNOWLEDGE; LEG FRACTURE; LIMB FRACTURE; LUNG CLEARANCE; LUNG COMPLICATION; MACROGLOSSIA; MALOCCLUSION; MANAGED CARE; MEDICAL EDUCATION; MEDICAL SPECIALIST; MENTAL DISEASE; MUSCLE WEAKNESS; NETHERLANDS; NUTRITIONAL STATUS; OBESITY; OSTEOPOROSIS; PAIN; PATIENT CARE; PATIENT MONITORING; PHYSIOTHERAPY; PRACTICE GUIDELINE; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; PROPHYLAXIS; PSYCHOTHERAPY; QUALITY OF LIFE; SCOLIOSIS; SEXUAL BEHAVIOR; SEXUAL DYSFUNCTION; SLEEP DISORDER; SOCIAL LIFE; SOCIAL SUPPORT; SOCIAL WELFARE; SPEECH DISORDER; SPEECH THERAPY; SPINE FRACTURE; SPINE SURGERY; SURVIVAL; TEAMWORK; TERMINAL CARE; TRACHEOSTOMY; TREATMENT INDICATION; UNSPECIFIED SIDE EFFECT; WEIGHT GAIN; WHEELCHAIR; WORKSHOP; AGE; HEALTH CARE QUALITY; MALE; MUSCULAR DYSTROPHY, DUCHENNE; NEEDS ASSESSMENT; YOUNG ADULT;

ADULT; AGE FACTORS; HUMANS; MALE; MUSCULAR DYSTROPHY, DUCHENNE; NEEDS ASSESSMENT; NETHERLANDS; STANDARD OF CARE; YOUNG ADULT;

EID: 84939562187     PISSN: 09608966     EISSN: 18732364     Source Type: Journal    
DOI: 10.1016/j.nmd.2015.05.005     Document Type: Article

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