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Volumn 17, Issue , 2014, Pages

Effectiveness of teleassistance at improving quality of life in people with neuromuscular diseases

Author keywords

neuromuscular disease; quality of life; social interaction; teleassistance; videoconferencing

Indexed keywords

ADULT; AGED; CLINICAL TRIAL; FEMALE; HUMAN; HUMAN RELATION; INTERVIEW; MALE; MIDDLE AGED; NEUROMUSCULAR DISEASES; PROCEDURES; PSYCHOLOGY; QUALITY OF LIFE; TELEREHABILITATION; TREATMENT OUTCOME; VIDEOCONFERENCING; YOUNG ADULT;

EID: 84939239751     PISSN: 11387416     EISSN: 19882904     Source Type: Journal    
DOI: 10.1017/sjp.2014.89     Document Type: Article
Times cited : (14)

References (45)
  • 1
    • 0029652962 scopus 로고
    • La versión española del SF-36 Health Survey (Cuestionario de Salud SF-36): Un instrumento para la medida de los resultados clínicos
    • Alonso J., Prieto L., & Antó J. M. (1995). La versión española del SF-36 Health Survey (Cuestionario de Salud SF-36): Un instrumento para la medida de los resultados clínicos [The Spanish versión of the SF-36 Health Survey: An instrument for measuring clinical outcomes]. Medicina Clínica, 104, 771-776.
    • (1995) Medicina Clínica , vol.104 , pp. 771-776
    • Alonso, J.1    Prieto, L.2    Antó, J.M.3
  • 2
    • 79952832048 scopus 로고    scopus 로고
    • On-line psychological support for parents of children and teenagers with neuromuscular diseases
    • Amayra Caro I., Lázaro Pérez E., López Paz J. F., & De la Cruz Beldarrain A. (2008). On-line psychological support for parents of children and teenagers with neuromuscular diseases. Neuromuscular Disorders, 18, 821. http://dx.doi.org/10.1016/j.nmd.2008.06.335
    • (2008) Neuromuscular Disorders , vol.18 , pp. 821
    • Amayra Caro, I.1    Lázaro Pérez, E.2    López Paz, J.F.3    De La Cruz Beldarrain, A.4
  • 4
  • 5
    • 0032912344 scopus 로고    scopus 로고
    • Measuring health status in psychiatric community surveys: Internal and external validity of the Spanish version of the SF-36
    • Ayuso-Mateos J. L., Lasa L., Vázquez-Barquero J. L., Oviedo A., & Díez-Manrique J. F. (1999). Measuring health status in psychiatric community surveys: Internal and external validity of the Spanish version of the SF-36. Acta Psychiatrica Scandinavica, 99, 26-32. http://dx.doi.org/10.UU/j.1600-0447.1999.tb05381.x
    • (1999) Acta Psychiatrica Scandinavica , vol.99 , pp. 26-32
    • Ayuso-Mateos, J.L.1    Lasa, L.2    Vázquez-Barquero, J.L.3    Oviedo, A.4    Díez-Manrique, J.F.5
  • 7
    • 0028781938 scopus 로고
    • Adaptación de una medida de la disfunción relacionada con la enfermedad: La versión española del Sickness Impact Profile
    • Badía X., & Alonso J. (1994). Adaptación de una medida de la disfunción relacionada con la enfermedad: La versión española del Sickness Impact Profile [Adapting a measure of dysfunction related to the disease: The Spanish version of the Sickness Impact Profile]. Medicina Clínica, 102, 90-95.
    • (1994) Medicina Clínica , vol.102 , pp. 90-95
    • Badía, X.1    Alonso, J.2
  • 8
    • 0016871502 scopus 로고
    • The Sickness Impact Profile: Validation of a health status measure
    • Bergner M., Bobbitt R. A., Pollard W. E., Martin D. P., & Gilson B. S. (1976). The Sickness Impact Profile: Validation of a health status measure. Medical Care, 14, 57-67. http://dx.doi.org/10.1097/00005650-197601000-00006
    • (1976) Medical Care , vol.14 , pp. 57-67
    • Bergner, M.1    Bobbitt, R.A.2    Pollard, W.E.3    Martin, D.P.4    Gilson, B.S.5
  • 9
  • 11
    • 79958713348 scopus 로고    scopus 로고
    • The effect of telephone-administered cognitive-behavioral therapy on quality of life among patients with multiple sclerosis
    • Cosio D., Jin L., Siddique J., & Mohr D. C. (2011). The effect of telephone-administered cognitive-behavioral therapy on quality of life among patients with multiple sclerosis. Annals of Behavioral Medicine, 41, 227-234. http://dx.doi.org/10.1007/s12160-010-9236-y
    • (2011) Annals of Behavioral Medicine , vol.41 , pp. 227-234
    • Cosio, D.1    Jin, L.2    Siddique, J.3    Mohr, D.C.4
  • 12
    • 79751470474 scopus 로고    scopus 로고
    • Satisfaction with telehealth for cancer support groups in rural American Indian and Alaska native communities
    • Doorenbos A. Z., Eaton L. H., Haozous E., Towle C, Revels L., & Buchwald D. (2010). Satisfaction with telehealth for cancer support groups in rural American Indian and Alaska native communities. Clinical Journal of Oncology Nursing, 14, 765-770. http://dx.doi.org/10.1188/10.CJON.765-770
    • (2010) Clinical Journal of Oncology Nursing , vol.14 , pp. 765-770
    • Doorenbos, A.Z.1    Eaton, L.H.2    Haozous, E.3    Towle, C.4    Revels, L.5    Buchwald, D.6
  • 13
    • 0025998134 scopus 로고
    • Population frequencies of inherited neuromuscular diseases-A world survey
    • Emery A. (1991). Population frequencies of inherited neuromuscular diseases-A world survey. Neuromuscular Disorders, 1, 19-29. http://dx.doi.org/10.1016/0960-8966(91)90039-U
    • (1991) Neuromuscular Disorders , vol.1 , pp. 19-29
    • Emery, A.1
  • 14
    • 77949898338 scopus 로고    scopus 로고
    • The impact of telemedicine on quality of life in rural areas: The Extremadura model of specialized care delivery
    • Ferrer-Roca O., García-Nogales A., & Peláez C. (2010). The impact of telemedicine on quality of life in rural areas: The Extremadura model of specialized care delivery. Telemedicine and e-Health, 16, 233-243. http://dx.doi.org/10.1089/tmj.2009.0107
    • (2010) Telemedicine and E-Health , vol.16 , pp. 233-243
    • Ferrer-Roca, O.1    García-Nogales, A.2    Peláez, C.3
  • 15
    • 84939218032 scopus 로고    scopus 로고
    • Self-effcacy social support and locus of control as correlates of health-related quality of life in myasthenia gravis
    • Fioravanti G., Casale S., Mantegazza R., Leonardi M., & Raggi A. (2010). Self-effcacy social support and locus of control as correlates of health-related quality of life in myasthenia gravis. Bollettino di Psicología Applicata, 261, 19-27.
    • (2010) Bollettino di Psicología Applicata , vol.261 , pp. 19-27
    • Fioravanti, G.1    Casale, S.2    Mantegazza, R.3    Leonardi, M.4    Raggi, A.5
  • 16
    • 80054719791 scopus 로고    scopus 로고
    • A systematic review of quality of life in adults with muscle disease
    • Graham C. D., Rose M. R., Grunfeld E. A., Kyle S. D., & Weinman J. (2011). A systematic review of quality of life in adults with muscle disease. Journal of Neurology, 258, 1581-1592. http://dx.doi.org/10.1007/s00415-011-6062-5
    • (2011) Journal of Neurology , vol.258 , pp. 1581-1592
    • Graham, C.D.1    Rose, M.R.2    Grunfeld, E.A.3    Kyle, S.D.4    Weinman, J.5
  • 18
    • 17744399242 scopus 로고    scopus 로고
    • Treatment for depression and its relationship to improvement in quality of life and psychological well-being in multiple sclerosis patients
    • Hart S., Fonareva I., Merluzzi N., & Mohr D. C. (2005). Treatment for depression and its relationship to improvement in quality of life and psychological well-being in multiple sclerosis patients. Quality of Life Research, 14, 695-703. http://dx.doi.org/10.1007/s11136-004-1364-z
    • (2005) Quality of Life Research , vol.14 , pp. 695-703
    • Hart, S.1    Fonareva, I.2    Merluzzi, N.3    Mohr, D.C.4
  • 19
    • 21244471125 scopus 로고    scopus 로고
    • Pain, coping, and disability in adolescents and young adults with cystic fbrosis: A Web-based study
    • Hubbard P. A., Broome M. E., & Antia L. A. (2005). Pain, coping, and disability in adolescents and young adults with cystic fbrosis: A Web-based study. Pediatric Nursing, 31, 82-86.
    • (2005) Pediatric Nursing , vol.31 , pp. 82-86
    • Hubbard, P.A.1    Broome, M.E.2    Antia, L.A.3
  • 23
    • 70449111710 scopus 로고    scopus 로고
    • Identifcation of international classifcation of functioning, disability and health relevant categories to describe functioning and disability of patients with myasthenia gravis
    • Leonardi M., Raggi A., Antozzi C, Confalonieri P., Maggi L., Cornelio F., & Mantegazza R. (2009). Identifcation of international classifcation of functioning, disability and health relevant categories to describe functioning and disability of patients with myasthenia gravis. Disability and Rehabilitation, 31, 2041-2046. http://dx.doi.org/10.1080/09638280902893634
    • (2009) Disability and Rehabilitation , vol.31 , pp. 2041-2046
    • Leonardi, M.1    Raggi, A.2    Antozzi, C.3    Confalonieri, P.4    Maggi, L.5    Cornelio, F.6    Mantegazza, R.7
  • 24
    • 74849127919 scopus 로고    scopus 로고
    • The relationship between health, disability and quality of life in myasthenia gravis: Results from an Italian study
    • Leonardi M., Raggi A., Antozzi C, Confalonieri P., Maggi L., Cornelio F., & Mantegazza R. (2010). The relationship between health, disability and quality of life in myasthenia gravis: Results from an Italian study. Journal of Neurology, 257, 98-102. http://dx.doi.org/10.1007/s00415-009-5279-z
    • (2010) Journal of Neurology , vol.257 , pp. 98-102
    • Leonardi, M.1    Raggi, A.2    Antozzi, C.3    Confalonieri, P.4    Maggi, L.5    Cornelio, F.6    Mantegazza, R.7
  • 26
    • 77957231619 scopus 로고    scopus 로고
    • The effcacy of Web-based cognitive behavioral interventions for chronic pain: A systematic review and meta-analysis
    • Macea D. D., Gajos K., Daglia Calil Y. A., & Fregni F. (2010). The effcacy of Web-based cognitive behavioral interventions for chronic pain: A systematic review and meta-analysis. The Journal of Pain, 11, 917-929. http://dx.doi.org/10.1016/j.jpain.2010.06.005
    • (2010) The Journal of Pain , vol.11 , pp. 917-929
    • MacEa, D.D.1    Gajos, K.2    Daglia Calil, Y.A.3    Fregni, F.4
  • 27
    • 0034600561 scopus 로고    scopus 로고
    • Systematic review of studies of patient satisfaction with telemedicine
    • Mair F., & Whitten P. (2000). Systematic review of studies of patient satisfaction with telemedicine. BJM, 320, 1517-1520. http://dx.doi.org/10.1136/bmj.320.7248.1517
    • (2000) BJM , vol.320 , pp. 1517-1520
    • Mair, F.1    Whitten, P.2
  • 28
    • 70349767111 scopus 로고    scopus 로고
    • Home telehealth for diabetes management: A systematic review and meta-analysis
    • Polisena J., Tran K., Cimon K., Hutton B., McGill S., & Palmer K. (2009). Home telehealth for diabetes management: A systematic review and meta-analysis. Diabetes, Obesity & Metabolism, 11, 913-930. http://dx.doi.org/10.1111/j.1463-1326.2009.01057.x
    • (2009) Diabetes, Obesity & Metabolism , vol.11 , pp. 913-930
    • Polisena, J.1    Tran, K.2    Cimon, K.3    Hutton, B.4    McGill, S.5    Palmer, K.6
  • 29
    • 77950971131 scopus 로고    scopus 로고
    • Home telehealth for chronic obstructive pulmonary disease: A systematic review and meta-analysis
    • Polisena J., Tran K., Cimon K., Hutton B., McGill S., Palmer K., & Scott R. E. (2010). Home telehealth for chronic obstructive pulmonary disease: A systematic review and meta-analysis. Journal of Telemedicine & Telecare, 16, 120-127. http://dx.doi.org/10.1258/jtt.2009.090812
    • (2010) Journal of Telemedicine & Telecare , vol.16 , pp. 120-127
    • Polisena, J.1    Tran, K.2    Cimon, K.3    Hutton, B.4    McGill, S.5    Palmer, K.6    Scott, R.E.7
  • 31
    • 16244377493 scopus 로고    scopus 로고
    • An interactive web-based intervention for persons with TBI and their families: Use and evaluation by female significant others
    • Rotondi A. J., Sinkule J., & Spring M. (2005). An interactive web-based intervention for persons with TBI and their families: Use and evaluation by female significant others. Journal of Head Trauma Rehabilitation, 20, 173-185. http://dx.doi.org/10.1097/00001199-200503000-00005
    • (2005) Journal of Head Trauma Rehabilitation , vol.20 , pp. 173-185
    • Rotondi, A.J.1    Sinkule, J.2    Spring, M.3
  • 32
    • 24944568909 scopus 로고    scopus 로고
    • Contribution of demographic, medical, and social support variables in predicting the mental health dimension of quality of life among people with multiple sclerosis
    • Schwartz C, & Frohner R. (2005). Contribution of demographic, medical, and social support variables in predicting the mental health dimension of quality of life among people with multiple sclerosis. Health & Social Work, 30, 203-212. http://dx.doi.org/10.1093/hsw/30.3.203
    • (2005) Health & Social Work , vol.30 , pp. 203-212
    • Schwartz, C.1    Frohner, R.2
  • 33
    • 33750504036 scopus 로고    scopus 로고
    • The utility of videoconferencing to provide innovative delivery of psychological treatment for rural cancer patients: Results of a pilot study
    • Shepherd L., Goldstein D., Whitford H., Thewes B., Brummell V., & Hicks M. (2006). The utility of videoconferencing to provide innovative delivery of psychological treatment for rural cancer patients: Results of a pilot study. Journal of Pain and Symptom Management, 32, 453-461. http://dx.doi.org/10.1016/j.jpainsymman.2006.05.018
    • (2006) Journal of Pain and Symptom Management , vol.32 , pp. 453-461
    • Shepherd, L.1    Goldstein, D.2    Whitford, H.3    Thewes, B.4    Brummell, V.5    Hicks, M.6
  • 34
    • 79960033722 scopus 로고    scopus 로고
    • Effcacy of telehealth treatments for posttraumatic stress-related symptoms: A meta-analysis
    • Sloan D. M., Gallagher M. W., Feinstein B. A., Lee D. J., & Pruneau G. M. (2011). Effcacy of telehealth treatments for posttraumatic stress-related symptoms: A meta-analysis. Cognitive Behaviour Therapy, 40, 111-125. http://dx.doi.org/10.1080/16506073.2010.550058
    • (2011) Cognitive Behaviour Therapy , vol.40 , pp. 111-125
    • Sloan, D.M.1    Gallagher, M.W.2    Feinstein, B.A.3    Lee, D.J.4    Pruneau, G.M.5
  • 35
    • 1542392695 scopus 로고    scopus 로고
    • The Golden Freeway: A preliminary evaluation of a pilot study advancing information technology as a social intervention for boys with Duchenne muscular dystrophy and their families
    • Soutter J., Hamilton N., Russell P., Russell C, Bushby K., Sloper P., & Bartlett K. (2004). The Golden Freeway: A preliminary evaluation of a pilot study advancing information technology as a social intervention for boys with Duchenne muscular dystrophy and their families. Health and Social Care in the Community, 12, 25-33. http://dx.doi.org/10.1111/j.1365-2524.2004.00465.x
    • (2004) Health and Social Care in the Community , vol.12 , pp. 25-33
    • Soutter, J.1    Hamilton, N.2    Russell, P.3    Russell, C.4    Bushby, K.5    Sloper, P.6    Bartlett, K.7
  • 36
  • 40
    • 77449149223 scopus 로고    scopus 로고
    • A pilot trial of telemedicine-assisted, integrated care for patients with advanced amyotrophic lateral sclerosis and their caregivers
    • Vitacca M., Comini L., Tentorio M., Assoni G., Trainini D., Fiorenza D., Scalvini S. (2010). A pilot trial of telemedicine-assisted, integrated care for patients with advanced amyotrophic lateral sclerosis and their caregivers. Journal of Telemedicine and Telecare, 16, 83-88. http://dx.doi.org/10.1258/jtt.2009.090604
    • (2010) Journal of Telemedicine and Telecare , vol.16 , pp. 83-88
    • Vitacca, M.1    Comini, L.2    Tentorio, M.3    Assoni, G.4    Trainini, D.5    Fiorenza, D.6    Scalvini, S.7
  • 41
    • 0026877917 scopus 로고
    • The MOS 36-item short-form health-survey (SF-36): I. Conceptual framework and item selection
    • Ware J. E., & Sherbourne C. D. (1992). The MOS 36-item short-form health-survey (SF-36): I. Conceptual framework and item selection. Medical Care, 30, 473-483. http://dx.doi.org/10.1097/00005650-199206000-00002
    • (1992) Medical Care , vol.30 , pp. 473-483
    • Ware, J.E.1    Sherbourne, C.D.2
  • 42
    • 84856282653 scopus 로고    scopus 로고
    • An Internet-based virtual coach to promote physical activity adherence in overweight adults: Randomized controlled trial
    • Watson A., Bickmore T., Cange A., Kulshreshtha A., & Kvedar J. (2012). An Internet-based virtual coach to promote physical activity adherence in overweight adults: Randomized controlled trial. Journal of Medical Internet Research, 14, 44-55. http://dx.doi.org/10.2196/jmir.1629
    • (2012) Journal of Medical Internet Research , vol.14 , pp. 44-55
    • Watson, A.1    Bickmore, T.2    Cange, A.3    Kulshreshtha, A.4    Kvedar, J.5
  • 43
    • 33751223822 scopus 로고    scopus 로고
    • Perceived social support, psychological adjustment, and functional ability in youths with physical disabilities
    • Wilson S., Washington L. A., Engel J. M., Ciol M. A., & Jensen M. P. (2006). Perceived social support, psychological adjustment, and functional ability in youths with physical disabilities. Rehabilitation Psychology, 51, 322-330. http://dx.doi.org/10.1037/0090-5550.51.4.322
    • (2006) Rehabilitation Psychology , vol.51 , pp. 322-330
    • Wilson, S.1    Washington, L.A.2    Engel, J.M.3    Ciol, M.A.4    Jensen, M.P.5
  • 44
    • 77957377045 scopus 로고    scopus 로고
    • Health-related quality of life in ALS, myasthenia gravis and facioscapulohumeral muscular dystrophy
    • Winter Y., Schepelmann K., Spottke A. E., Claus D., Grothe C, Schröder R., & Dodel R. (2010). Health-related quality of life in ALS, myasthenia gravis and facioscapulohumeral muscular dystrophy. Journal of Neurology, 257, 1473-1481. http://dx.doi.org/10.1007/s00415-010-5549-9
    • (2010) Journal of Neurology , vol.257 , pp. 1473-1481
    • Winter, Y.1    Schepelmann, K.2    Spottke, A.E.3    Claus, D.4    Grothe, C.5    Schröder, R.6    Dodel, R.7


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