메뉴 건너뛰기




Volumn 257, Issue 9, 2010, Pages 1473-1481

Health-related quality of life in ALS, myasthenia gravis and facioscapulohumeral muscular dystrophy

Author keywords

ALS; Facioscapulohumeral muscular dystrophy; Health related quality of life; Myasthenia gravis

Indexed keywords

ADULT; AMYOTROPHIC LATERAL SCLEROSIS; ARTICLE; BODY MASS; CONTROLLED STUDY; DEPRESSION; DISEASE SEVERITY; FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY; FEMALE; GROUPS BY AGE; HEALTH CENTER; HEALTH SURVEY; HUMAN; MAJOR CLINICAL STUDY; MALE; MYASTHENIA GRAVIS; OUTCOME ASSESSMENT; PAIN ASSESSMENT; PRACTICE GUIDELINE; PRIORITY JOURNAL; PROGNOSIS; QUALITY OF LIFE; SCORING SYSTEM;

EID: 77957377045     PISSN: 03405354     EISSN: 14321459     Source Type: Journal    
DOI: 10.1007/s00415-010-5549-9     Document Type: Article
Times cited : (74)

References (46)
  • 1
    • 0036358705 scopus 로고    scopus 로고
    • Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease
    • 10.1177/104990910201900109 12173612
    • RT Abresch GT Carter MP Jensen DD Kilmer 2002 Assessment of pain and health-related quality of life in slowly progressive neuromuscular disease Am J Hosp Palliat Care 19 39 48 10.1177/104990910201900109 12173612
    • (2002) Am J Hosp Palliat Care , vol.19 , pp. 39-48
    • Abresch, R.T.1    Carter, G.T.2    Jensen, M.P.3    Kilmer, D.D.4
  • 2
    • 34547604192 scopus 로고    scopus 로고
    • Psychological health in patients with amyotrophic lateral sclerosis
    • DOI 10.1080/17482960701374643, PII 780847056
    • AJ Averill EJ Kasarskis SC Segerstrom 2007 Psychological health in patients with amyotrophic lateral sclerosis Amyotroph Lateral Scler 8 243 254 10.1080/17482960701374643 17653923 (Pubitemid 47190229)
    • (2007) Amyotrophic Lateral Sclerosis , vol.8 , Issue.4 , pp. 243-254
    • Averill, A.J.1    Kasarskis, E.J.2    Segerstrom, S.C.3
  • 3
    • 18844394305 scopus 로고    scopus 로고
    • Quality of life in patients with Parkinson's disease
    • DOI 10.1016/j.parkreldis.2004.12.005, PII S1353802005000167
    • M Behari AK Srivastava RM Pandey 2005 Quality of life in patients with Parkinson's disease Parkinsonism Relat Disord 11 221 226 10.1016/j.parkreldis. 2004.12.005 1:STN:280:DC%2BD2M3ktF2gtw%3D%3D 15878582 (Pubitemid 40692833)
    • (2005) Parkinsonism and Related Disorders , vol.11 , Issue.4 , pp. 221-226
    • Behari, M.1    Srivastava, A.K.2    Pandey, R.M.3
  • 4
    • 0027292883 scopus 로고
    • Testing the validity of the EuroQoL and comparing it with the SF-36 health survey questionnaire
    • 10.1007/BF00435221 1:STN:280:DyaK2c%2FgsVyjtg%3D%3D 8401453
    • J Brazier N Jones P Kind 1993 Testing the validity of the EuroQoL and comparing it with the SF-36 health survey questionnaire Qual Life Res 2 169 180 10.1007/BF00435221 1:STN:280:DyaK2c%2FgsVyjtg%3D%3D 8401453
    • (1993) Qual Life Res , vol.2 , pp. 169-180
    • Brazier, J.1    Jones, N.2    Kind, P.3
  • 5
    • 0028142392 scopus 로고
    • El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases and the El Escorial "clinical limits of amyotrophic lateral sclerosis" workshop contributors
    • 10.1016/0022-510X(94)90191-0 7807156
    • BR Brooks 1994 El Escorial World Federation of Neurology criteria for the diagnosis of amyotrophic lateral sclerosis. Subcommittee on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis of the World Federation of Neurology Research Group on Neuromuscular Diseases and the El Escorial "Clinical limits of amyotrophic lateral sclerosis" workshop contributors J Neurol Sci 124 96 107 10.1016/0022-510X(94)90191-0 7807156
    • (1994) J Neurol Sci , vol.124 , pp. 96-107
    • Brooks, B.R.1
  • 8
    • 36549078667 scopus 로고    scopus 로고
    • Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis
    • DOI 10.1080/17482960701553949, PII 786929909
    • IJ De Groot MW Post T van Heuveln LH Van den Berg E Lindeman 2007 Cross-sectional and longitudinal correlations between disease progression and different health-related quality of life domains in persons with amyotrophic lateral sclerosis Amyotroph Lateral Scler 8 356 361 10.1080/17482960701553949 18033593 (Pubitemid 350176934)
    • (2007) Amyotrophic Lateral Sclerosis , vol.8 , Issue.6 , pp. 356-361
    • De Droot, I.J.M.1    Post, M.W.M.2    Van Heuveln, T.3    Van Den Berg, L.H.4    Lindeman, E.5
  • 11
    • 17144472450 scopus 로고    scopus 로고
    • The SF-36 in the Federal Health Survey-description of a current normal sample
    • Ellert U, Bellach BM (1999) The SF-36 in the Federal Health Survey-description of a current normal sample. Gesundheitswesen:184-190
    • (1999) Gesundheitswesen , pp. 184-190
    • Ellert, U.1    Bellach, B.M.2
  • 12
    • 61549096586 scopus 로고    scopus 로고
    • Quality of life in amyotrophic lateral sclerosis/motor neuron disease: A structured review
    • 10.1080/17482960802163721 18752087
    • J Epton R Harris C Jenkinson 2009 Quality of life in amyotrophic lateral sclerosis/motor neuron disease: a structured review Amyotroph Lateral Scler 10 15 26 10.1080/17482960802163721 18752087
    • (2009) Amyotroph Lateral Scler , vol.10 , pp. 15-26
    • Epton, J.1    Harris, R.2    Jenkinson, C.3
  • 13
    • 0016823810 scopus 로고
    • "Mini-mental state": A practical method for grading the cognitive state of patients for the clinician
    • 10.1016/0022-3956(75)90026-6 1:STN:280:DyaE28%2FntFKjtw%3D%3D 1202204
    • MF Folstein SE Folstein PR McHugh 1975 "Mini-mental state": a practical method for grading the cognitive state of patients for the clinician J Psychiatr Res 12 3 189 198 10.1016/0022-3956(75)90026-6 1:STN:280: DyaE28%2FntFKjtw%3D%3D 1202204
    • (1975) J Psychiatr Res , vol.12 , Issue.3 , pp. 189-198
    • Folstein, M.F.1    Folstein, S.E.2    McHugh, P.R.3
  • 17
    • 67651176147 scopus 로고    scopus 로고
    • Health-related quality of life in Huntington's disease: Which factors matter most?
    • 10.1002/mds.22412 19097181
    • AK Ho AS Gilbert SL Mason AO Goodman RA Barker 2009 Health-related quality of life in Huntington's disease: which factors matter most? Mov Disord 24 574 578 10.1002/mds.22412 19097181
    • (2009) Mov Disord , vol.24 , pp. 574-578
    • Ho, A.K.1    Gilbert, A.S.2    Mason, S.L.3    Goodman, A.O.4    Barker, R.A.5
  • 18
    • 0034641222 scopus 로고    scopus 로고
    • Myasthenia gravis: Recommendations for clinical research standards. Task Force of the Medical Scientific Advisory Board of the Myasthenia Gravis Foundation of America
    • 10891897
    • A Jaretzki RJ Barohn RM Ernstoff HJ Kaminski JC Keesey AS Penn DB Sanders 2000 Myasthenia gravis: recommendations for clinical research standards. Task Force of the Medical Scientific Advisory Board of the Myasthenia Gravis Foundation of America Neurology 55 16 23 10891897
    • (2000) Neurology , vol.55 , pp. 16-23
    • Jaretzki, A.1    Barohn, R.J.2    Ernstoff, R.M.3    Kaminski, H.J.4    Keesey, J.C.5    Penn, A.S.6    Sanders, D.B.7
  • 19
    • 0033675585 scopus 로고    scopus 로고
    • The ALS Health Profile study: Quality of life of amyotrophic lateral sclerosis patients and carers in Europe
    • 10.1007/s004150070069 1:STN:280:DC%2BD3M7ptV2isA%3D%3D 11151414
    • C Jenkinson R Fitzpatrick M Swash V Peto 2000 The ALS Health Profile study: quality of life of amyotrophic lateral sclerosis patients and carers in Europe J Neurol 247 835 840 10.1007/s004150070069 1:STN:280: DC%2BD3M7ptV2isA%3D%3D 11151414
    • (2000) J Neurol , vol.247 , pp. 835-840
    • Jenkinson, C.1    Fitzpatrick, R.2    Swash, M.3    Peto, V.4
  • 22
    • 0035886429 scopus 로고    scopus 로고
    • Patients' health-related quality of life and utilities associated with different stages of amyotrophic lateral sclerosis
    • DOI 10.1016/S0022-510X(01)00616-5, PII S0022510X01006165
    • GM Kiebert C Green C Murphy JD Mitchell M O'Brien A Burrell PN Leigh 2001 Patients' health-related quality of life and utilities associated with different stages of amyotrophic lateral sclerosis J Neurol Sci 191 87 93 10.1016/S0022-510X(01)00616-5 1:STN:280:DC%2BD3Mnkt1OjtA%3D%3D 11676997 (Pubitemid 33035900)
    • (2001) Journal of the Neurological Sciences , vol.191 , Issue.1-2 , pp. 87-93
    • Kiebert, G.M.1    Green, C.2    Murphy, C.3    Mitchell, J.D.4    O'Brien, M.5    Burrell, A.6    Leigh, P.N.7
  • 23
    • 0034219890 scopus 로고    scopus 로고
    • The health-related quality of life of patients suffering from the late effects of polio (post-polio)
    • 10.1046/j.1365-2648.2000.01412.x 1:STN:280:DC%2BD3cvgsV2lug%3D%3D 10886448
    • C Kling A Persson A Gardulf 2000 The health-related quality of life of patients suffering from the late effects of polio (post-polio) J Adv Nurs 32 164 173 10.1046/j.1365-2648.2000.01412.x 1:STN:280:DC%2BD3cvgsV2lug%3D%3D 10886448
    • (2000) J Adv Nurs , vol.32 , pp. 164-173
    • Kling, C.1    Persson, A.2    Gardulf, A.3
  • 24
    • 17144379311 scopus 로고    scopus 로고
    • Gesundheitszustand der deutschen bevolkerung: Ergebnisse einer reprasentativen befragung mit dem EuroQol-instrument
    • DOI 10.1055/s-2005-857991
    • HH Koenig S Bernert MC Angermeyer 2005 Health Status of the German population: results of a representative survey using the EuroQol questionnaire Gesundheitswesen 67 173 182 10.1055/s-2005-857991 (Pubitemid 40523398)
    • (2005) Gesundheitswesen , vol.67 , Issue.3 , pp. 173-182
    • Konig, H.-H.1    Bernert, S.2    Angermeyer, M.C.3
  • 25
    • 33845962189 scopus 로고    scopus 로고
    • Social-economic costs and quality of life of Alzheimer disease in the Canary Islands, Spain
    • DOI 10.1212/01.wnl.0000249311.80411.93, PII 0000611420061226000024
    • J Lopez-Bastida P Serrano-Aguilar L Perestelo-Perez J Oliva-Moreno 2006 Social-economic costs and quality of life of Alzheimer disease in the Canary Islands, Spain Neurology 67 2186 2191 10.1212/01.wnl.0000249311.80411.93 17190942 (Pubitemid 46035475)
    • (2006) Neurology , vol.67 , Issue.12 , pp. 2186-2191
    • Lopez-Bastida, J.1    Serrano-Aguilar, P.2    Perestelo-Perez, L.3    Oliva-Moreno, J.4
  • 26
    • 49449087743 scopus 로고    scopus 로고
    • Disease-specific measure of quality of life for myasthenia gravis
    • 10.1002/mus.21016 18697209
    • LL Mullins MY Carpentier RH Paul DB Sanders 2008 Disease-specific measure of quality of life for myasthenia gravis Muscle Nerve 38 947 956 10.1002/mus.21016 18697209
    • (2008) Muscle Nerve , vol.38 , pp. 947-956
    • Mullins, L.L.1    Carpentier, M.Y.2    Paul, R.H.3    Sanders, D.B.4
  • 27
    • 4544329455 scopus 로고    scopus 로고
    • Health-related quality of life in amyotrophic lateral sclerosis: Determining a meaningful deterioration
    • DOI 10.1023/B:QURE.0000040786.75103.3a
    • JM Norquist R Fitzpatrick C Jenkinson 2004 Health-related quality of life in amyotrophic lateral sclerosis: determining a meaningful deterioration Qual Life Res 13 1409 1414 10.1023/B:QURE.0000040786.75103.3a 15503836 (Pubitemid 39221628)
    • (2004) Quality of Life Research , vol.13 , Issue.8 , pp. 1409-1414
    • Norquist, J.M.1    Fitzpatrick, R.2    Jenkinson, C.3
  • 28
    • 0038106768 scopus 로고    scopus 로고
    • Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time
    • 10.1080/14660820310004780 14506943
    • JM Norquist C Jenkinson R Fitzpatrick M Swash 2003 Factors which predict physical and mental health status in patients with amyotrophic lateral sclerosis over time Amyotroph Lateral Scler Other Motor Neuron Disord 4 112 117 10.1080/14660820310004780 14506943
    • (2003) Amyotroph Lateral Scler Other Motor Neuron Disord , vol.4 , pp. 112-117
    • Norquist, J.M.1    Jenkinson, C.2    Fitzpatrick, R.3    Swash, M.4
  • 29
    • 0032976224 scopus 로고    scopus 로고
    • Definitive molecular diagnosis of facioscapulohumeral dystrophy
    • 1:CAS:528:DyaK1MXktVeju7Y%3D 10371529
    • RW Orrell R Tawil J Forrester JT Kissel JR Mendell DA Figlewicz 1999 Definitive molecular diagnosis of facioscapulohumeral dystrophy Neurology 52 1822 1826 1:CAS:528:DyaK1MXktVeju7Y%3D 10371529
    • (1999) Neurology , vol.52 , pp. 1822-1826
    • Orrell, R.W.1    Tawil, R.2    Forrester, J.3    Kissel, J.T.4    Mendell, J.R.5    Figlewicz, D.A.6
  • 31
    • 0036126222 scopus 로고    scopus 로고
    • Health-related quality of life in patients with myasthenia gravis and the relationship between patient-oriented assessment and conventional measurements
    • 10.1007/s100720100066 1:STN:280:DC%2BD387os1aksw%3D%3D 11917973
    • L Padua A Evoli I Aprile P Caliandro S Mazza R Padua P Tonali 2001 Health-related quality of life in patients with myasthenia gravis and the relationship between patient-oriented assessment and conventional measurements Neurol Sci 22 363 369 10.1007/s100720100066 1:STN:280:DC%2BD387os1aksw%3D%3D 11917973
    • (2001) Neurol Sci , vol.22 , pp. 363-369
    • Padua, L.1    Evoli, A.2    Aprile, I.3    Caliandro, P.4    Mazza, S.5    Padua, R.6    Tonali, P.7
  • 32
    • 0035187420 scopus 로고    scopus 로고
    • Health-related quality of life in type 1 diabetic patients and influence of peripheral nerve involvement
    • DOI 10.1007/s100720100020
    • L Padua C Saponara G Ghirlanda I Aprile R Padua F Pauri P Tonali 2001 Health-related quality of life in type 1 diabetic patients and influence of peripheral nerve involvement Neurol Sci 22 239 245 10.1007/s100720100020 1:STN:280:DC%2BD3MnosFCqtg%3D%3D 11731877 (Pubitemid 33085682)
    • (2001) Neurological Sciences , vol.22 , Issue.3 , pp. 239-245
    • Padua, L.1    Saponara, C.2    Ghirlanda, G.3    Aprile, I.4    Padua, R.5    Pauri, F.6    Tonali, P.7
  • 33
    • 0034124334 scopus 로고    scopus 로고
    • Physical activity and mental health: Current concepts
    • 10.2165/00007256-200029030-00003 1:STN:280:DC%2BD3c3gtFyktg%3D%3D 10739267
    • SA Paluska TL Schwenk 2000 Physical activity and mental health: current concepts Sports Med 29 167 180 10.2165/00007256-200029030-00003 1:STN:280:DC%2BD3c3gtFyktg%3D%3D 10739267
    • (2000) Sports Med , vol.29 , pp. 167-180
    • Paluska, S.A.1    Schwenk, T.L.2
  • 34
    • 0035136176 scopus 로고    scopus 로고
    • What have we learned about cognition in myasthenia gravis?: A review of methods and results
    • DOI 10.1016/S0149-7634(00)00052-X, PII S014976340000052X
    • RH Paul RA Cohen T Zawacki JM Gilchrist MS Aloia 2001 What have we learned about cognition in myasthenia gravis? A review of methods and results Neurosci Biobehav Rev 25 75 81 10.1016/S0149-7634(00)00052-X 1:STN:280:DC%2BD3M3is1Whuw%3D%3D 11166079 (Pubitemid 32098342)
    • (2001) Neuroscience and Biobehavioral Reviews , vol.25 , Issue.1 , pp. 75-81
    • Paul, R.H.1    Cohen, R.A.2    Zawacki, T.3    Gilchrist, J.M.4    Aloia, M.S.5
  • 35
    • 76449111965 scopus 로고    scopus 로고
    • Concordance between severity of disease, disability and health-related quality of life in myasthenia gravis
    • 10.1007/s10072-009-0167-y 19816655
    • A Raggi M Leonardi C Antozzi P Confalonieri L Maggi F Cornelio R Mantegazza 2009 Concordance between severity of disease, disability and health-related quality of life in myasthenia gravis Neurol Sci 31 41 45 10.1007/s10072-009-0167-y 19816655
    • (2009) Neurol Sci , vol.31 , pp. 41-45
    • Raggi, A.1    Leonardi, M.2    Antozzi, C.3    Confalonieri, P.4    Maggi, L.5    Cornelio, F.6    Mantegazza, R.7
  • 36
    • 33847325786 scopus 로고    scopus 로고
    • Assessing health-related quality of life in patients with Parkinson's disease in a prospective longitudinal study
    • DOI 10.1016/j.parkreldis.2006.07.009, PII S135380200600160X
    • M Reuther EA Spottke J Klotsche O Riedel H Peter K Berger O Athen R Kohne-Volland RC Dodel 2007 Assessing health-related quality of life in patients with Parkinson's disease in a prospective longitudinal study Parkinsonism Relat Disord 13 108 114 10.1016/j.parkreldis.2006.07.009 1:STN:280: DC%2BD2s7gs1ektw%3D%3D 17055326 (Pubitemid 46329519)
    • (2007) Parkinsonism and Related Disorders , vol.13 , Issue.2 , pp. 108-114
    • Reuther, M.1    Spottke, E.A.2    Klotsche, J.3    Riedel, O.4    Peter, H.5    Berger, K.6    Athen, O.7    Kohne-Volland, R.8    Dodel, R.C.9
  • 37
    • 0035957088 scopus 로고    scopus 로고
    • Quality of life in ALS is maintained as physical function declines
    • 1:STN:280:DC%2BD3M7ps1Kiuw%3D%3D 11222784
    • RA Robbins Z Simmons BA Bremer SM Walsh S Fischer 2001 Quality of life in ALS is maintained as physical function declines Neurology 56 442 444 1:STN:280:DC%2BD3M7ps1Kiuw%3D%3D 11222784
    • (2001) Neurology , vol.56 , pp. 442-444
    • Robbins, R.A.1    Simmons, Z.2    Bremer, B.A.3    Walsh, S.M.4    Fischer, S.5
  • 38
    • 33645224593 scopus 로고    scopus 로고
    • Correlation between regional myasthenic weakness and mental aspects of quality of life
    • 10.1111/j.1468-1331.2006.01149.x 1:STN:280:DC%2BD287gtlemug%3D%3D 16490052
    • A Rostedt L Padua EV Stalberg 2006 Correlation between regional myasthenic weakness and mental aspects of quality of life Eur J Neurol 13 191 193 10.1111/j.1468-1331.2006.01149.x 1:STN:280:DC%2BD287gtlemug%3D%3D 16490052
    • (2006) Eur J Neurol , vol.13 , pp. 191-193
    • Rostedt, A.1    Padua, L.2    Stalberg, E.V.3
  • 40
    • 0033875826 scopus 로고    scopus 로고
    • What contributes to quality of life in patients with Parkinson's disease?
    • DOI 10.1136/jnnp.69.3.308
    • A Schrag M Jahanshahi N Quinn 2000 What contributes to quality of life in patients with Parkinson's disease? J Neurol Neurosurg Psychiatry 69 308 312 10.1136/jnnp.69.3.308 1:STN:280:DC%2BD3cvivFChtw%3D%3D 10945804 (Pubitemid 30636233)
    • (2000) Journal of Neurology Neurosurgery and Psychiatry , vol.69 , Issue.3 , pp. 308-312
    • Schrag, A.1    Jahanshahi, M.2    Quinn, N.3
  • 41
    • 0001515797 scopus 로고
    • Gradients of functional ability of importance in rehabilitation of patients with progressive muscular and neuromuscular diseases
    • 1:STN:280:DyaG1c%2Fgt1ahtQ%3D%3D 13459572
    • CA Swinyard GC Deaver L Greenspan 1957 Gradients of functional ability of importance in rehabilitation of patients with progressive muscular and neuromuscular diseases Arch Phys Med Rehabil 38 574 579 1:STN:280: DyaG1c%2Fgt1ahtQ%3D%3D 13459572
    • (1957) Arch Phys Med Rehabil , vol.38 , pp. 574-579
    • Swinyard, C.A.1    Deaver, G.C.2    Greenspan, L.3
  • 46
    • 34547679861 scopus 로고    scopus 로고
    • Fatigue is part of the burden of neuromuscular diseases [2]
    • DOI 10.1007/s00415-006-0436-0
    • JH Wokke 2007 Fatigue is part of the burden of neuromuscular diseases J Neurol 254 948 949 10.1007/s00415-006-0436-0 17325819 (Pubitemid 47222301)
    • (2007) Journal of Neurology , vol.254 , Issue.7 , pp. 948-949
    • Wokke, J.H.J.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.