-
2
-
-
0025835096
-
Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
-
Bach J.R., Campagnolo D.I. & Hoeman S. (1991) Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. American Journal of Physical Medicine and Rehabilitation 70 (3), 129-135.
-
(1991)
American Journal of Physical Medicine and Rehabilitation
, vol.70
, Issue.3
, pp. 129-135
-
-
Bach, J.R.1
Campagnolo, D.I.2
Hoeman, S.3
-
3
-
-
3042727517
-
A psychological approach to measuring quality of life in Duchenne de Boulogne muscular dystrophic patients under home ventilatory assistance
-
Benony H., Raphael J.-C., Montoux F. & Andronikof-Sanglade A. (1996) A psychological approach to measuring quality of life in Duchenne de Boulogne muscular dystrophic patients under home ventilatory assistance. Revue Europeene de Psychologie Appliquee 46, 108-120.
-
(1996)
Revue Europeene de Psychologie Appliquee
, vol.46
, pp. 108-120
-
-
Benony, H.1
Raphael, J.-C.2
Montoux, F.3
Andronikof-Sanglade, A.4
-
4
-
-
3042810721
-
Problems of family relationships and social life
-
M. Blaxter (Ed.). Heinemann, London
-
Blaxter M. (1976) Problems of family relationships and social life. In: M. Blaxter (Ed.) The Meaning of Disability: A Sociological Study of Impairment, pp. 196-219. Heinemann, London.
-
(1976)
The Meaning of Disability: A Sociological Study of Impairment
, pp. 196-219
-
-
Blaxter, M.1
-
5
-
-
0018561427
-
Reactions of families to children with Duchenne muscular dystrophy
-
Buchanan D.C., LaBarbera C.J., Roelofs R. & Olson W. (1979) Reactions of families to children with Duchenne muscular dystrophy. General Hospital Psychiatry 1 (3), 262-269.
-
(1979)
General Hospital Psychiatry
, vol.1
, Issue.3
, pp. 262-269
-
-
Buchanan, D.C.1
Labarbera, C.J.2
Roelofs, R.3
Olson, W.4
-
6
-
-
0028948935
-
Deletion status and intellectual impairment in Duchenne muscular dystrophy
-
Bushby K.M.D., Appleton R., Anderson L.V.B., Welch J.L., Kelly P. & Gardner-Medwin D. (1995) Deletion status and intellectual impairment in Duchenne muscular dystrophy. Developmental Medicine and Child Neurology 37, 260-269.
-
(1995)
Developmental Medicine and Child Neurology
, vol.37
, pp. 260-269
-
-
Bushby, K.M.D.1
Appleton, R.2
Anderson, L.V.B.3
Welch, J.L.4
Kelly, P.5
Gardner-Medwin, D.6
-
7
-
-
0023278304
-
Chronic illness, disability, and mental and social well-being: Findings of the Ontario Child Health Study
-
Cadman D., Boyle M., Szatmari P. & Offord D.R. (1987) Chronic illness, disability, and mental and social well-being: findings of the Ontario Child Health Study. Pediatrics 79 (5), 805-813.
-
(1987)
Pediatrics
, vol.79
, Issue.5
, pp. 805-813
-
-
Cadman, D.1
Boyle, M.2
Szatmari, P.3
Offord, D.R.4
-
12
-
-
0024994206
-
Cultural differences in family communication about Duchenne muscular dystrophy
-
Fitzpatrick C. & Barry C. (1990) Cultural differences in family communication about Duchenne muscular dystrophy. Developmental Medicine and Child Neurology 32, 967-973.
-
(1990)
Developmental Medicine and Child Neurology
, vol.32
, pp. 967-973
-
-
Fitzpatrick, C.1
Barry, C.2
-
15
-
-
0027891812
-
Perspectives on understanding and changing the environments of children with disabilities
-
Law M. & Dunn W. (2001) Perspectives on understanding and changing the environments of children with disabilities. Physical and Occupational Therapy in Pediatrics 13 (3), 1-17.
-
(2001)
Physical and Occupational Therapy in Pediatrics
, vol.13
, Issue.3
, pp. 1-17
-
-
Law, M.1
Dunn, W.2
-
16
-
-
84862387355
-
-
Muscular Dystrophy Campaign (1999) URL http://www.muscular-dystrophy.org/ information/KeyFacts/duchenne.htm/
-
(1999)
-
-
-
17
-
-
0346802928
-
-
(July 2002.) National Statistics, London
-
National Statistics (2002) Internet Access: Households and Individuals. (July 2002.) National Statistics, London.
-
(2002)
Internet Access: Households and Individuals
-
-
-
18
-
-
77953333765
-
-
(December 2000.) Office of National Statistics, London
-
Office of National Statistics (2000) Internet Access. (December 2000.) Office of National Statistics, London.
-
(2000)
Internet Access
-
-
-
19
-
-
0032950116
-
Use of technology by people with physical disabilities in Australia
-
Pell S.D., Gillies R.M. & Carss M. (1999) Use of technology by people with physical disabilities in Australia. Disability and Rehabilitation 21 (2), 56-60.
-
(1999)
Disability and Rehabilitation
, vol.21
, Issue.2
, pp. 56-60
-
-
Pell, S.D.1
Gillies, R.M.2
Carss, M.3
-
20
-
-
0027598492
-
Reasonable efforts for children with disabilities: The parents' perspective
-
Petr C.G. & Barney D.D. (1993) Reasonable efforts for children with disabilities: the parents' perspective. Social Work 39 (3), 248-254.
-
(1993)
Social Work
, vol.39
, Issue.3
, pp. 248-254
-
-
Petr, C.G.1
Barney, D.D.2
-
21
-
-
0001457476
-
Qualitative data analysis for applied policy research
-
A. Bryman & R. G. Burgess (Eds). Routledge, London
-
Ritchie J. & Spencer L. (1994) Qualitative data analysis for applied policy research. In: A. Bryman & R. G. Burgess (Eds) Analyzing Qualitative Data, pp. 173-194. Routledge, London.
-
(1994)
Analyzing Qualitative Data
, pp. 173-194
-
-
Ritchie, J.1
Spencer, L.2
-
23
-
-
0344460737
-
Internet based information and support: Use by parents of children with disabilities
-
Shank N., Laible D., Murphy-Berman V. & Wright G. (1999) Internet based information and support: use by parents of children with disabilities. New Technology in the Human Services 12 (1), 7-19.
-
(1999)
New Technology in the Human Services
, vol.12
, Issue.1
, pp. 7-19
-
-
Shank, N.1
Laible, D.2
Murphy-Berman, V.3
Wright, G.4
-
24
-
-
0037532102
-
-
Association for Children with Life-threatening or Terminal Conditions and Their Families/National Council for Hospice and Specialist Palliative Care Services, Bristol/London
-
Thornes R. (2001) Palliative Care for Young People Aged 13-24 Years. Association for Children with Life-threatening or Terminal Conditions and Their Families/National Council for Hospice and Specialist Palliative Care Services, Bristol/London.
-
(2001)
Palliative Care for Young People Aged 13-24 Years
-
-
Thornes, R.1
-
27
-
-
0032133245
-
Promoting good health in adolescents with disabilities
-
Zajicek-Farber M.L. (1998) Promoting good health in adolescents with disabilities. Health and Social Work 23 (3), 203-213.
-
(1998)
Health and Social Work
, vol.23
, Issue.3
, pp. 203-213
-
-
Zajicek-Farber, M.L.1
|