Broadening public participation in systematic reviews: A case example involving young people in two configurative reviews

Research Synthesis Methods

Volumn 6, Issue 2, 2015, Pages 206-217

  Oliver, Kathryn ^a   Rees, Rebecca ^b   Brady, Louca Mai ^a   Kavanagh, Josephine ^b   Oliver, Sandy ^b   Thomas, James ^b  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b UNIVERSITY OF LONDON   (United Kingdom)

Author keywords

Childhood obesity; Systematic reviews; User involvement; Young people

Indexed keywords

ADOLESCENT; CHILD; CONSUMER; CONSUMER ATTITUDE; EDUCATION; FEMALE; GREAT BRITAIN; HUMAN; LITERATURE; MALE; PEDIATRIC OBESITY; PUBLIC OPINION; STATISTICS AND NUMERICAL DATA;

ADOLESCENT; CHILD; CONSUMER BEHAVIOR; CONSUMER PARTICIPATION; EDUCATION; FEMALE; GREAT BRITAIN; HUMANS; MALE; PEDIATRIC OBESITY; PUBLIC OPINION; REVIEW LITERATURE AS TOPIC;

EID: 84938678978     PISSN: None     EISSN: 17592887     Source Type: Journal    
DOI: 10.1002/jrsm.1145     Document Type: Article

References (36)

1. Alderson P. 2001. Research by children International journal of social research methodology 4.2: 139-153.
2. Barber R, Beresford P, Boote J, Cooper C, Faulkner A. 2011. Evaluating the impact of service user involvement on research: a prospective case study. International Journal of Consumer Studies 35(6): 609-615. Available from: 10.1111/j.1470-6431.2011.01017.x Web of Science.
3. Boote J, Wong R, Booth A. 2015. Talking the talk or walking the walk? 'A bibliometric review of the literature on public involvement in health research published between 1995 and 2009. Health expectations: an international journal of public participation in health care and health policy 18.1: 44.
4. Brady LM, Davis E, Ghosh A, Surti B, Wilson L. 2011. Involving young people in research: making an impact in public health. In Barnes M, Phil Cotterell P (eds). Critical Perspectives on User Involvement. Policy Press: Bristol.
5. Brady LM, Davey C, Shaw C, Blades R. 2012. 'Involving children and young people in research-principles into practice'. In Beresford P, Carr S (ed). Social Care, Service Users and User Involvement: Building on research. Jessica Kingsley: London, 226-242.
6. Brett J, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, Suleman R. 2012. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations n/a available from: doi: 10.1111/j.1369-7625.2012.00795.x.
7. Brownlie J. 2009. Researching, not playing, in the public sphere Sociology 43.4: 699-716.
8. Caird J, Kavanagh J, Oliver K, Oliver S, O'Mara A, Stansfield C, Thomas J. 2011. Childhood obesity and educational attainment: a systematic review. EPPI-Centre, Social Science Research Unit, Institute of Education, University of London.
9. Caron-Flinterman JF, Broerse JE, Bunders JF. 2005. The experiential knowledge of patients: a new resource for biomedical research? Social Science and Medicine 60(11): 2575-2584.
10. Clinical Research Networks Children. (Available from: http://www.crn.nihr.ac.uk/children/pcpie/young-personsadvisory- group/.)[accessed 2 Dec 2014].
11. Davey C. 2011. Evaluation of the PEAR Project. London: National Children's Bureau.
12. Entwistle VA, Sowden AJ, Watt IS. 1998. Evaluating interventions to promote patient involvement in decisionmaking: by what criteria should effectiveness be judged? Journal of health services research & policy 3.2: 100-107.
13. Garcia J & the PSHE Review Group. 2006. Conflict resolution, peer mediation and young people's relationships. EPPI-Centre, Social Science Research Unit, Institute of Education, University of London, London.
14. Gillard S, Borschmann R, Turner K, Goodrich Purnell N, Lovell K, Chambers M. 2010. What difference does it make? Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients. Health Expectations 13(2): 185-194.
15. Gough D, Oliver S, Thomas J. 2012. An Introduction to Systematic Reviews. London: Sage. INVOLVE. (Available from: http://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/.) [accessed 2 Dec 2014].
16. Kellett M. 2005. How to Develop Children as Researchers. London: Paul Chapman.
17. Kirby P, Lanyon C, Cronin K, Sinclair R. 2003. Building a Culture of Participation: Involving Children and Young People in Policy, Service Planning, Delivery and Evaluation. London: DfES.
18. Kirby P. 2004. A Guide to Actively Involving Young People in Research: For researchers, research commissioners, and managers. Hampshire: Involve.
19. Kreis J, Schmidt H. 2013. Public engagement in health technology assessment and coverage decisions: a study of experiences in France, Germany, and the United Kingdom. Journal of Health Politics, Policy and Law 38(1): 89-122.
20. Liabo K, Gray K, Mulcahy D. 2012. A systematic review of interventions to support looked-after children in school. Child & family social work.
21. National Institute for Health and Clinical Excellence. CG43 obesity: full guideline. 2006. NICE London.
22. Oliver S. 2015. Public involvement in research: making sense of the diversity. Journal of health services research & policy 20.1: 45-51.
23. th September. doi:10.1177/1355819614551848.
24. Powell MA, Smith AB. 2009. Children's participation rights in research. Childhood 16: 124-142.
25. Rees R. 2004. Use of an advisory group to ensure relevance: reflections on participation of stakeholders in a review of sexual health promotion for men who have sex with men (MSM), 69-70.
26. Rees R, Oliver S. 2007. "User involvement in systematic reviews: an example from health promotion" In Coren E, (ed). Collection of examples of service user and carer participation in systematic reviews, Social Care Institute for Excellence: London.
27. Rees R, Oliver K, Woodman J, Thomas J. 2009. Children's views about obesity, body size, shape and weight: a systematic review. EPPI-Centre, Institute of Education, University of London.
28. Rose D, Wykes T, Leese M. et al. 2003. Patients' perspectives on electroconvulsive therapy: a systematic review. BMJ 326: 1363-1366.
29. Shaw C, Brady LM, Davey C. 2011. Guidelines for Research with Children and Young People. London: National Children's Bureau Research Centre.
30. Staley K. 2009. Exploring Impact: Public involvement in NHS, public health and social care research, INVOLVE, Eastleigh.
31. Staley K. 2012. An evaluation of service user involvement in studies adopted by the Mental Health Research Network. Methods 10.2.1 Part 1, 10.
32. Stewart R, Liabo K. 2012. Involvement in research without compromising research quality. Journal of Health Services Research and Policy 17(4): 248-251 available from: http://hsr.sagepub.com/content/17/4/248.abstract.
33. Thomas J, Sutcliffe K, Harden A, Oakley A, Oliver S, Rees R, Brunton G, Kavanagh J. 2003. Children and healthy eating: a systematic review of barriers and facilitators EPPI-Centre, Institute of Education, University of London.
34. Tuffrey-Wijne I, Butler G. 2010. Co-researching with people with learning disabilities: an experience of involvement in qualitative data analysis. Health Expectations 13(2): 174-184.
35. Turner M, Beresford P. 2005. User controlled research. Its meanings and potential. Final report. Eastleigh: INVOLVE.
36. Vale CL, Tierney JF, Spera N, Whelan A, Nightingale A, Hanley B. 2012. Evaluation of patient involvement in a systematic review and meta-analysis of individual patient data in cervical cancer treatment. Systematic reviews 1(1): 1-8.