The quality of patient-centred care: Haematological cancer survivors' perceptions

Psycho-Oncology

Volumn 24, Issue 7, 2015, Pages 796-803

  Tzelepis, Flora ^a   Sanson Fisher, Robert W ^a   Hall, Alix E ^a   Carey, Mariko L ^a   Paul, Christine L ^a   Clinton Mcharg, Tara ^a  

^a HUNTER MEDICAL RESEARCH INSTITUTE   (Australia)

Author keywords

cancer; haematology; oncology; patient centred; quality of care

Indexed keywords

ADULT; AGE; AGED; ARTICLE; ASSESSMENT OF HUMANS; AUSTRALIA; CANCER DIAGNOSIS; CANCER REGISTRY; CANCER SURVIVOR; CONTROLLED STUDY; DEPRESSION; FAMILY; FEMALE; FRIEND; HEALTH CARE QUALITY; HEMATOLOGIC MALIGNANCY; HOSPITAL PERSONNEL; HUMAN; MAJOR CLINICAL STUDY; MALE; NONHODGKIN LYMPHOMA; ORGANIZATION; OUTCOME ASSESSMENT; PATIENT ATTITUDE; PATIENT CARE; PEER GROUP; PRIVATE HEALTH INSURANCE; QUALITY OF PATIENT CENTERED CANCER CARE; STRESS; TOTAL QUALITY MANAGEMENT; ADOLESCENT; ATTITUDE TO HEALTH; EMPLOYMENT; HEALTH INSURANCE; HEMATOLOGIC DISEASE; MENTAL STRESS; MIDDLE AGED; PATIENT SATISFACTION; PERCEPTION; QUESTIONNAIRE; REGISTER; SURVIVOR; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGE FACTORS; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; DEPRESSION; EMPLOYMENT; FEMALE; HEMATOLOGIC NEOPLASMS; HUMANS; INSURANCE, HEALTH; LYMPHOMA, NON-HODGKIN; MALE; MIDDLE AGED; PATIENT SATISFACTION; PATIENT-CENTERED CARE; PERCEPTION; QUALITY OF HEALTH CARE; REGISTRIES; STRESS, PSYCHOLOGICAL; SURVEYS AND QUESTIONNAIRES; SURVIVORS; YOUNG ADULT;

EID: 84936989446     PISSN: 10579249     EISSN: 10991611     Source Type: Journal    
DOI: 10.1002/pon.3728     Document Type: Article

References (36)

1. Evans J, Ziebland S, Pettitt A,. Incurable, invisible and inconclusive: watchful waiting for chronic lymphocytic leukaemia and implications for doctor-patient communication. Eur J Cancer Care 2012; 21: 67-77.
2. National Institute for Clinical Excellence. Improving Outcomes in Haematological Cancers. National Institute for Clinical Excellence: London, 2003.
3. Australian Institute of Health and Welfare. Cancer in Australia 2010: An Overview. Australian Institute of Health and Welfare: Canberra, 2010.
4. Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. National Academy Press: Washington DC, 2001.
5. Gerteis M, Edgman-Levitan S, Daley J,. Through the Patient's Eyes. Understanding and Promoting Patient-centered Care. Jossey-Bass: San Francisco, CA, 1993.
6. Wensing M, Elwyn G,. Methods for incorporating patients' views in health care. BMJ 2003; 326: 877-879.
7. Wong WS, Fielding R,. The association between patient satisfaction and quality of life in Chinese lung and liver cancer patients. Med Care 2008; 46: 293-302.
8. Von Essen L, Larsson G, Oberg K, Sjoden PO,. 'Satisfaction with care': associations with health-related quality of life and psychosocial function among Swedish patients with endocrine gastrointestinal tumours. Eur J Cancer Care 2002; 11: 91-99.
9. Frojd C, Lampic C, Larsson G, von Essen L,. Is satisfaction with doctors' care related to health-related quality of life, anxiety and depression among patients with carcinoid tumours? A longitudinal report. Scand J Caring Sci 2009; 23: 107-116.
10. Bickell NA, Weidmann J, Fei K, Lin JJ, Leventhal H,. Underuse of breast cancer adjuvant treatment: patient knowledge, beliefs, and medical mistrust. J Clin Oncol 2009; 27: 5160-5167.
11. Mandelblatt JS, Sheppard VB, Hurria A, et al., Breast cancer adjuvant chemotherapy decisions in older women: the role of patient preference and interactions with physicians. J Clin Oncol 2010; 28: 3146-3153.
12. Shin DW, Park JH, Shim EJ, Hahm MI, Park EC,. Predictors and outcomes of feeling of insufficient consultation time in cancer care in Korea: results of a nationwide multicenter survey. Support Care Cancer 2012; 20: 1965-1973.
13. Kowalski C, Nitzsche A, Scheibler F, Steffen P, Albert U-S, Pfaff H,. Breast cancer patients' trust in physicians: the impact of patients' perception of physicians' communication behaviors and hospital organizational climate. Patient Educ Couns 2009; 77: 344-348.
14. Carey M, Anderson A, Sanson-Fisher R, Lynagh M, Paul C, Tzelepis F,. How well are we meeting haematological cancer survivors' preferences for involvement in treatment decision making? Patient Educ Couns 2012; 88: 87-92.
15. Arden-Close E, Absolom K, Greenfield DM, et al., Gender differences in self-reported late effects, quality of life and satisfaction with clinic in survivors of lymphoma. Psycho-Oncology 2011; 20: 1202-1210.
16. Lobb EA, Joske D, Butow P, et al., When the safety net of treatment has been removed: patients' unmet needs at the completion of treatment for haematological malignancies. Patient Educ Couns 2009; 77: 103-108.
17. Parry C, Morningstar E, Kendall J, Coleman EA,. Working without a net: leukemia and lymphoma survivors' perspectives on care delivery at end-of-treatment and beyond. J Psychosoc Oncol 2011; 29: 175-198.
18. Ayanian JZ, Zaslavsky AM, Arora NK, et al., Patients' experiences with care for lung cancer and colorectal cancer: findings from the Cancer Care Outcomes Research and Surveillance Consortium. J Clin Oncol 2010; 28: 4154-4161.
19. Noh DY, Nam SJ, Ahn SH, et al., Association of clinical experiences with patient-reported outcomes among breast cancer surgery patients: breast cancer quality care study. Qual Life Res 2008; 17: 215-225.
20. Tzelepis F, Rose SK, Sanson-Fisher RW, Clinton-McHarg T, Carey ML, Paul CL,. Are we missing the Institute of Medicine's mark?A systematic review of patient-reported outcome measures assessing quality of patient-centred cancer care. BMC Cancer 2014; 14:41.
21. Tzelepis F, Sanson-Fisher RW, Hall AE, Carey ML, Paul CL, Clinton-McHarg T,. Development and psychometric evaluation of the Quality of Patient-Centered Cancer Care (QPCCC) measure with hematological cancer survivors. Cancer Under editorial review.
22. Antony MM, Cox BJ, Enns MW, Swinson RP,. Psychometric properties of the 42-item and 21-item versions of the Depression Anxiety Stress Scales in clinical groups and a community sample. Psychol Assess 1998; 10: 176-181.
23. Kleeberg UR, Feyer P, Günther W, Behrens M,. Patient satisfaction in outpatient cancer care: a prospective survey using the PASQOC questionnaire. Support Care Cancer 2008; 16: 947 -. 954
24. de Kok M, Sixma HJM, van der Weijden T, et al., A patient-centred instrument for assessment of quality of breast cancer care: results of a pilot questionnaire. Qual Saf Health Care 2010; 19:e40.
25. Singer S, Gotze H, Mobius C, et al., Quality of care and emotional support from the inpatient cancer patient's perspective. Langenbecks Arch Surg 2009; 394: 723-731.
26. Markert A, Thierry V, Kleber M, Behrens M, Engelhardt M,. Chemotherapy safety and severe adverse events in cancer patients: strategies to efficiently avoid chemotherapy errors in in- and outpatient treatment. Int J Cancer 2009; 124: 722-728.
27. Hall A, Campbell HS, Sanson-Fisher R, et al., Unmet needs of Australian and Canadian haematological cancer survivors: a cross-sectional international comparative study. Psycho-Oncology 2013; 22: 2032-2038.
28. Campbell HS, Phaneuf MR, Deane K,. Cancer peer support programs-do they work? Patient Educ Couns 2004; 55: 3-15.
29. Dunn J, Steginga SK, Rosoman N, Millichap D,. A review of peer support in the context of cancer. J Psychosoc Oncol 2003; 21: 55-67.
30. Hoey LM, Ieropoli SC, White VM, Jefford M,. Systematic review of peer-support programs for people with cancer. Patient Educ Couns 2008; 70: 315-337.
31. Cancer Council Australia. Cancer care and your rights: a practical guide for people with cancer and their families and friends. Woolloomooloo: Cancer Council Australia 2013.
32. Clauson J, Hsieh YC, Acharya S, Rademaker AW, Morrow M,. Results of the Lynn Sage Second-Opinion Program for local therapy in patients with breast carcinoma. Changes in management and determinants of where care is delivered. Cancer 2002; 94: 889-894.
33. Tattersall MHN, Dear RF, Jansen J, et al., Second opinions in oncology: the experiences of patients attending the Sydney Cancer Centre. MJA 2009; 191: 209-212.
34. Sanson-Fisher R, Carey M, Mackenzie L, Hill D, Campbell S, Turner D,. Reducing inequities in cancer care: the role of cancer registries. Cancer 2009; 115: 3597-3605.
35. Courtney RJ, Paul CL, Carey ML, et al., A population-based cross-sectional study of colorectal cancer screening practices of first-degree relatives of colorectal cancer patients. BMC Cancer 2013; 13:13.
36. Boyes AW, Girgis A, D'Este C, Zucca AC,. Prevalence and correlates of cancer survivors' supportive care needs 6 months after diagnosis: a population-based cross-sectional study. BMC Cancer 2012; 12:150.