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Volumn 21, Issue 1, 2012, Pages 67-77

Incurable, invisible and inconclusive: Watchful waiting for chronic lymphocytic leukaemia and implications for doctor-patient communication

Author keywords

Chronic lymphocytic leukaemia (CLL); Doctor patient communication; Psychological impact; Qualitative interviews; Watchful waiting

Indexed keywords

ADAPTIVE BEHAVIOR; AGED; ARTICLE; CHRONIC LYMPHATIC LEUKEMIA; DOCTOR PATIENT RELATION; FEMALE; HUMAN; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; PATIENT SATISFACTION; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUALITY OF LIFE; QUESTIONNAIRE; UNITED KINGDOM; WATCHFUL WAITING;

EID: 84055190734     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/j.1365-2354.2011.01278.x     Document Type: Article
Times cited : (43)

References (51)
  • 1
    • 0033072825 scopus 로고    scopus 로고
    • Specialist nurse counsellor interventions at the time of diagnosis of breast cancer: comparing 'advocacy' with a conventional approach
    • Ambler N., Rumsey N., Harcourt D., Khan F., Cawthorn S. & Barker J. (1999) Specialist nurse counsellor interventions at the time of diagnosis of breast cancer: comparing 'advocacy' with a conventional approach. Journal of Advanced Nursing 29, 445-453.
    • (1999) Journal of Advanced Nursing , vol.29 , pp. 445-453
    • Ambler, N.1    Rumsey, N.2    Harcourt, D.3    Khan, F.4    Cawthorn, S.5    Barker, J.6
  • 2
    • 8744242147 scopus 로고    scopus 로고
    • The professional role of breast cancer nurses in multi-disciplinary breast cancer care teams
    • Amir Z., Scully J. & Borril C. (2004) The professional role of breast cancer nurses in multi-disciplinary breast cancer care teams. European Oncology Nursing Society 8, 306-314.
    • (2004) European Oncology Nursing Society , vol.8 , pp. 306-314
    • Amir, Z.1    Scully, J.2    Borril, C.3
  • 3
    • 0037824761 scopus 로고    scopus 로고
    • Interacting with cancer patients: the significance of physicians' communication behavior
    • Arora N.K. (2003) Interacting with cancer patients: the significance of physicians' communication behavior. Social Science and Medicine 57, 791-806.
    • (2003) Social Science and Medicine , vol.57 , pp. 791-806
    • Arora, N.K.1
  • 5
    • 0346487440 scopus 로고    scopus 로고
    • A study of factors influencing patients' decisions to undergo bone marrow transplantation from a sibling or matched related donor
    • Bywater L. & Atkins S. (2001) A study of factors influencing patients' decisions to undergo bone marrow transplantation from a sibling or matched related donor. European Journal of Oncology Nursing 5, 7-15.
    • (2001) European Journal of Oncology Nursing , vol.5 , pp. 7-15
    • Bywater, L.1    Atkins, S.2
  • 6
    • 84055194417 scopus 로고    scopus 로고
    • Cancer Research UK Cancer Research UK, London, UK.
    • Cancer Research UK (2009) CancerStats Key Facts: Leukaemia. Cancer Research UK, London, UK.
    • (2009) CancerStats Key Facts: Leukaemia
  • 8
    • 0031230693 scopus 로고    scopus 로고
    • Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries?
    • Coyne I.T. (1997) Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries? Journal of Advanced Nursing 26, 623-630.
    • (1997) Journal of Advanced Nursing , vol.26 , pp. 623-630
    • Coyne, I.T.1
  • 10
    • 39749121020 scopus 로고    scopus 로고
    • Department of Health Department of Health, London, UK.
    • Department of Health (2007) Cancer Reform Strategy. Department of Health, London, UK.
    • (2007) Cancer Reform Strategy
  • 11
    • 70450174101 scopus 로고    scopus 로고
    • Department of Health Department of Health, London, UK.
    • Department of Health (2009) The NHS Constitution. Department of Health, London, UK.
    • (2009) The NHS Constitution
  • 12
    • 0036895786 scopus 로고    scopus 로고
    • Men with Cancer: changes in attempts to master the self-image as a man and as a patient
    • Elmberger E., Bolund C. & Lutzen K. (2002) Men with Cancer: changes in attempts to master the self-image as a man and as a patient. Cancer Nursing 25, 477-485.
    • (2002) Cancer Nursing , vol.25 , pp. 477-485
    • Elmberger, E.1    Bolund, C.2    Lutzen, K.3
  • 13
    • 1942503178 scopus 로고    scopus 로고
    • Women's experiences of cervical cellular changes: an unintentional transition from health to liminality?
    • Forss A., Tishelman C., Widmark C. & Sachs L. (2004) Women's experiences of cervical cellular changes: an unintentional transition from health to liminality? Sociology of Health and Illness 26, 306-325.
    • (2004) Sociology of Health and Illness , vol.26 , pp. 306-325
    • Forss, A.1    Tishelman, C.2    Widmark, C.3    Sachs, L.4
  • 14
    • 0033767969 scopus 로고    scopus 로고
    • Breaking bad news in the transition from curative to palliative cancer care - patients' view of the doctor giving the information
    • Friedrichsen M.J., Strang P.M. & Carlsson M.E. (2000) Breaking bad news in the transition from curative to palliative cancer care - patients' view of the doctor giving the information. Support Care Cancer 8, 472-478.
    • (2000) Support Care Cancer , vol.8 , pp. 472-478
    • Friedrichsen, M.J.1    Strang, P.M.2    Carlsson, M.E.3
  • 15
    • 0037868962 scopus 로고    scopus 로고
    • The patients' perspective: a qualitative study of acute myeloid leukaemia patients' need for information and their information-seeking behaviour
    • Friis L.S., Elverdam B. & Schmidt K.G. (2003) The patients' perspective: a qualitative study of acute myeloid leukaemia patients' need for information and their information-seeking behaviour. Support Care Cancer 11, 162-170.
    • (2003) Support Care Cancer , vol.11 , pp. 162-170
    • Friis, L.S.1    Elverdam, B.2    Schmidt, K.G.3
  • 17
    • 0002054513 scopus 로고
    • Learning medicine: the constructing of medical knowledge at Harvard Medical School
    • (eds Lindenbaum S. & Lock M.) University of California Press, London, UK.
    • Good B.J. & Del Vecchio Good M.J. (1993) Learning medicine: the constructing of medical knowledge at Harvard Medical School. In: Knowledge, Power and Practice: The Anthropology of Medicine and Everyday Life (eds Lindenbaum S. & Lock M.), pp. 81-107. University of California Press, London, UK.
    • (1993) Knowledge, Power and Practice: The Anthropology of Medicine and Everyday Life , pp. 81-107
    • Good, B.J.1    Del Vecchio Good, M.J.2
  • 22
    • 33745851117 scopus 로고    scopus 로고
    • Facing mortality: a qualitative in-depth interview study on illness perception, lay theories and coping strategies of adult patients with acute leukaemia 1 week after diagnosis
    • Koenigsmann M., Koehler K., Regner A., Franke A. & Frommer J. (2006) Facing mortality: a qualitative in-depth interview study on illness perception, lay theories and coping strategies of adult patients with acute leukaemia 1 week after diagnosis. Leukemia Research 30, 1127-1134.
    • (2006) Leukemia Research , vol.30 , pp. 1127-1134
    • Koenigsmann, M.1    Koehler, K.2    Regner, A.3    Franke, A.4    Frommer, J.5
  • 24
    • 84055208718 scopus 로고    scopus 로고
    • Leukaemia Research Leukaemia Research, London, UK.
    • Leukaemia Research (2006) Chronic Lymphocytic Leukaemia. Leukaemia Research, London, UK.
    • (2006) Chronic Lymphocytic Leukaemia
  • 25
    • 34247560286 scopus 로고    scopus 로고
    • Depression, anxiety and quality of life in a chronic lymphocytic leukaemia cohort
    • Levin T.T., Yuelin L., Riskind J. & Rai K. (2007) Depression, anxiety and quality of life in a chronic lymphocytic leukaemia cohort. General Hospital Psychiatry 29, 251-256.
    • (2007) General Hospital Psychiatry , vol.29 , pp. 251-256
    • Levin, T.T.1    Yuelin, L.2    Riskind, J.3    Rai, K.4
  • 26
    • 34447544248 scopus 로고    scopus 로고
    • A patient and carer survey in a community clinical nurse specialist service
    • Lewis D. & Anthony D. (2007) A patient and carer survey in a community clinical nurse specialist service. International Journal of Palliative Nursing 13, 230-236.
    • (2007) International Journal of Palliative Nursing , vol.13 , pp. 230-236
    • Lewis, D.1    Anthony, D.2
  • 28
    • 0030453840 scopus 로고    scopus 로고
    • Sampling for qualitative research
    • Marshall M.N. (1996) Sampling for qualitative research. Family Practice 13, 522-525.
    • (1996) Family Practice , vol.13 , pp. 522-525
    • Marshall, M.N.1
  • 29
    • 0036518113 scopus 로고    scopus 로고
    • Qualitative findings on the experience of end-of-life care for hematological malignancies
    • McGrath P. (2002) Qualitative findings on the experience of end-of-life care for hematological malignancies. The American Journal of Hospice and Palliative Care 19, 103-111.
    • (2002) The American Journal of Hospice and Palliative Care , vol.19 , pp. 103-111
    • McGrath, P.1
  • 30
    • 3042563208 scopus 로고    scopus 로고
    • Reflections on serious illness as spiritual journey by survivors of haematological malignancies
    • McGrath P. (2004) Reflections on serious illness as spiritual journey by survivors of haematological malignancies. European Journal of Cancer Care 13, 227-237.
    • (2004) European Journal of Cancer Care , vol.13 , pp. 227-237
    • McGrath, P.1
  • 31
    • 32144432631 scopus 로고    scopus 로고
    • Quality of life in chronic lymphocytic leukemia: a neglected issue
    • Molica S. (2005) Quality of life in chronic lymphocytic leukemia: a neglected issue. Leukemia and Lymphoma 46, 1709-1714.
    • (2005) Leukemia and Lymphoma , vol.46 , pp. 1709-1714
    • Molica, S.1
  • 32
    • 0023818041 scopus 로고
    • Physical disability and social liminality: a study in the rituals of adversity
    • Murphy R.F. & Sheer J. (1988) Physical disability and social liminality: a study in the rituals of adversity. Social Science and Medicine 26, 235-242.
    • (1988) Social Science and Medicine , vol.26 , pp. 235-242
    • Murphy, R.F.1    Sheer, J.2
  • 33
    • 84055208739 scopus 로고    scopus 로고
    • National Cancer Institute SEER Cancer Stat Fact Sheets. Available at: (accessed December 2009).
    • National Cancer Institute (2009) SEER Cancer Stat Fact Sheets. Available at: (accessed December 2009).
    • (2009)
  • 35
    • 1642462887 scopus 로고    scopus 로고
    • Liminality as biographical disruption: unclassifiability following hormonal therapy for advanced prostate cancer
    • Navon L. & Morag A. (2004) Liminality as biographical disruption: unclassifiability following hormonal therapy for advanced prostate cancer. Social Science and Medicine 58, 2337-2347.
    • (2004) Social Science and Medicine , vol.58 , pp. 2337-2347
    • Navon, L.1    Morag, A.2
  • 36
    • 0003818075 scopus 로고
    • Routledge & Kegan Paul, London, UK. Chapter X.
    • Parsons T. (1951) The Social System. Routledge & Kegan Paul, London, UK. Chapter X.
    • (1951) The Social System
    • Parsons, T.1
  • 37
    • 0016515395 scopus 로고
    • The sick role and role of the physician reconsidered
    • Parsons T. (1975) The sick role and role of the physician reconsidered. The Milbank Memorial Fund Quarterly 53, 257-278.
    • (1975) The Milbank Memorial Fund Quarterly , vol.53 , pp. 257-278
    • Parsons, T.1
  • 38
    • 3843130610 scopus 로고    scopus 로고
    • Lived experience of survivors of leukaemia or malignant lymphoma
    • Persson L. & Hallberg I.R. (2004) Lived experience of survivors of leukaemia or malignant lymphoma. Cancer Nursing 27, 303-313.
    • (2004) Cancer Nursing , vol.27 , pp. 303-313
    • Persson, L.1    Hallberg, I.R.2
  • 39
    • 0029375259 scopus 로고
    • Acute leukaemia and malignant lymphoma patients' experiences of disease, treatment and nursing care during the active treatment phase: an explorative study
    • Persson L., Hallberg I.R. & Ohlsson O. (1995) Acute leukaemia and malignant lymphoma patients' experiences of disease, treatment and nursing care during the active treatment phase: an explorative study. European Journal of Cancer Care 4, 133-142.
    • (1995) European Journal of Cancer Care , vol.4 , pp. 133-142
    • Persson, L.1    Hallberg, I.R.2    Ohlsson, O.3
  • 40
    • 31144437869 scopus 로고    scopus 로고
    • Receiving bad news: patients with haematological cancer reflect upon their experience
    • Randall T.C. (2005) Receiving bad news: patients with haematological cancer reflect upon their experience. Palliative Medicine 19, 594-601.
    • (2005) Palliative Medicine , vol.19 , pp. 594-601
    • Randall, T.C.1
  • 42
    • 42349089136 scopus 로고    scopus 로고
    • Is seeing a specialist nurse associated with positive experiences of care? The role and value of specialist nurses in prostate cancer care
    • Tarrant C., Sinfield P., Agarwal S. & Baker R. (2008) Is seeing a specialist nurse associated with positive experiences of care? The role and value of specialist nurses in prostate cancer care. BMC Health Services Research 8, 65.
    • (2008) BMC Health Services Research , vol.8 , pp. 65
    • Tarrant, C.1    Sinfield, P.2    Agarwal, S.3    Baker, R.4
  • 43
    • 4444225855 scopus 로고    scopus 로고
    • Guidelines on the role of the specialist nurse in supporting patients with lung cancer
    • The London and South East Lung Cancer Forum for Nurses
    • The London and South East Lung Cancer Forum for Nurses (2004) Guidelines on the role of the specialist nurse in supporting patients with lung cancer. European Journal of Cancer Care 13, 344-348.
    • (2004) European Journal of Cancer Care , vol.13 , pp. 344-348
  • 45
    • 77249109776 scopus 로고    scopus 로고
    • A census of the advanced and specialist cancer nursing workforce in England, Northern Ireland and Wales
    • Trevatt P. & Leary A. (2010) A census of the advanced and specialist cancer nursing workforce in England, Northern Ireland and Wales. European Journal of Oncology Nursing 14, 68-73.
    • (2010) European Journal of Oncology Nursing , vol.14 , pp. 68-73
    • Trevatt, P.1    Leary, A.2
  • 48
    • 56949097154 scopus 로고    scopus 로고
    • The preoperative experience of patients undergoing surgery for colorectal cancer
    • Worster B. & Holmes S. (2008) The preoperative experience of patients undergoing surgery for colorectal cancer. European Journal of Oncology Nursing 12, 418-424.
    • (2008) European Journal of Oncology Nursing , vol.12 , pp. 418-424
    • Worster, B.1    Holmes, S.2
  • 49
    • 0038637316 scopus 로고    scopus 로고
    • The experience of leukaemia and bone marrow transplant: searching for meaning and agency
    • Xuereb M.C. & Dunlop R. (2003) The experience of leukaemia and bone marrow transplant: searching for meaning and agency. Psycho-Oncology 12, 397-409.
    • (2003) Psycho-Oncology , vol.12 , pp. 397-409
    • Xuereb, M.C.1    Dunlop, R.2
  • 50
    • 1642527383 scopus 로고    scopus 로고
    • Illness behaviour: a selective review and synthesis
    • Young J.T. (2004) Illness behaviour: a selective review and synthesis. Sociology of Health and Illness 26, 1-31.
    • (2004) Sociology of Health and Illness , vol.26 , pp. 1-31
    • Young, J.T.1
  • 51
    • 33645979985 scopus 로고    scopus 로고
    • Making sense of qualitative data analysis with illustrations from the DIPEx project
    • Ziebland S. & McPherson A. (2006) Making sense of qualitative data analysis with illustrations from the DIPEx project. Medical Education 40, 405-414.
    • (2006) Medical Education , vol.40 , pp. 405-414
    • Ziebland, S.1    McPherson, A.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.