-
1
-
-
0031785486
-
Occurrence of hemophilia in the united states the hemophilia surveillance system Project Investigators
-
Soucie JM, Evatt B, Jackson D. Occurrence of hemophilia in the United States. The Hemophilia Surveillance System Project Investigators. Am J Hematol 1998;59:288-94
-
(1998)
Am J Hematol
, vol.59
, pp. 288-294
-
-
Soucie, J.M.1
Evatt, B.2
Jackson, D.3
-
3
-
-
34547757915
-
Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
-
Manco-Johnson MJ, Abshire TC, Shapiro AD, et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007;357:535-44
-
(2007)
N Engl J Med
, vol.357
, pp. 535-544
-
-
Manco-Johnson, M.J.1
Abshire, T.C.2
Shapiro, A.D.3
-
4
-
-
0036207230
-
Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients
-
Royal S, Schramm W, Berntorp E, et al. Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients. Haemophilia 2002;8:44-50
-
(2002)
Haemophilia
, vol.8
, pp. 44-50
-
-
Royal, S.1
Schramm, W.2
Berntorp, E.3
-
5
-
-
79953306825
-
A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study
-
Gringeri A, Lundin B, von Mackensen S, et al. A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study). J Thromb Haemost 2011;9:700-10
-
(2011)
J Thromb Haemost
, vol.9
, pp. 700-710
-
-
Gringeri, A.1
Lundin, B.2
Von Mackensen, S.3
-
6
-
-
84935866330
-
-
National Hemophilia Foundation. MASAC Recommendation 179. MASAC Recommendation Concerning Prophylaxis (Regular Administration of Clotting Factor Concentrate to Prevent Bleeding. Accessed April 1
-
National Hemophilia Foundation. MASAC [Medical and Scientific Advisory Council] Recommendation 179. MASAC Recommendation Concerning Prophylaxis (Regular Administration of Clotting Factor Concentrate to Prevent Bleeding). http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF. aspx?menuid57&contentid1007. Accessed April 1, 2013
-
(2013)
Medical and Scientific Advisory Council
-
-
-
7
-
-
11044235064
-
Utilization of care in haemophilia: A resource-based method for cost analysis from the Haemophilia Utilization Group Study (HUGS)
-
Globe DR, Curtis RG, Koerper MA, et al. Utilization of care in haemophilia: a resource-based method for cost analysis from the Haemophilia Utilization Group Study (HUGS). Haemophilia 2004;10(1 Suppl):63-70
-
(2004)
Haemophilia
, vol.10
, Issue.1
, pp. 63-70
-
-
Globe, D.R.1
Curtis, R.G.2
Koerper, M.A.3
-
8
-
-
4844222412
-
Costs of on-demand and prophylactic treatment for severe haemophilia in Norway and Sweden
-
Carlsson KS, Hojgard S, Lindgren A, et al. Costs of on-demand and prophylactic treatment for severe haemophilia in Norway and Sweden. Haemophilia 2004;10:515-26
-
(2004)
Haemophilia
, vol.10
, pp. 515-526
-
-
Carlsson, K.S.1
Hojgard, S.2
Lindgren, A.3
-
9
-
-
80052628400
-
Inhibitors of propagation of coagulation (factors VIII, IX and XI): A review of current therapeutic practice
-
Franchini M, Mannucci PM. Inhibitors of propagation of coagulation (factors VIII, IX and XI): a review of current therapeutic practice. Br J Clin Pharmacol 2011;72:553-62
-
(2011)
Br J Clin Pharmacol
, vol.72
, pp. 553-562
-
-
Franchini, M.1
Mannucci, P.M.2
-
10
-
-
0141482007
-
Cost of care and quality of life for patients with hemophilia complicated by inhibitors: The COCIS Study Group
-
Gringeri A, Mantovani LG, Scalone L, et al. Cost of care and quality of life for patients with hemophilia complicated by inhibitors: the COCIS Study Group. Blood 2003;102:2358-63
-
(2003)
Blood
, vol.102
, pp. 2358-2363
-
-
Gringeri, A.1
Mantovani, L.G.2
Scalone, L.3
-
11
-
-
4844219932
-
Treatment patterns and cost-of-illness of severe haemophilia in patients with inhibitors in Germany
-
Auerswald G, von Depka Prondzinski M, Ehlken B, et al. Treatment patterns and cost-of-illness of severe haemophilia in patients with inhibitors in Germany. Haemophilia 2004;10:499-508
-
(2004)
Haemophilia
, vol.10
, pp. 499-508
-
-
Auerswald, G.1
Von Depka Prondzinski, M.2
Ehlken, B.3
-
12
-
-
84901596180
-
The social burden and quality of life of patients with haemophilia in Italy
-
Kodra Y, Cavazza M, Schieppati A, et al. The social burden and quality of life of patients with haemophilia in Italy. Blood transfusionTrasfusione del sangue 2014;12(Suppl 3):s567-75
-
(2014)
Blood TransfusionTrasfusione Del Sangue
, vol.12
, pp. s567-s575
-
-
Kodra, Y.1
Cavazza, M.2
Schieppati, A.3
-
13
-
-
84857111181
-
Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States 2008
-
Guh S, Grosse SD, McAlister S, et al. Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008. Haemophilia 2012;18:268-75
-
(2012)
Haemophilia
, vol.18
, pp. 268-275
-
-
Guh, S.1
Grosse, S.D.2
McAlister, S.3
-
14
-
-
38149091426
-
Medical costs and resource utilization for hemophilia patients with and without HIV or HCV infection
-
Tencer T, Friedman HS, Li-McLeod J, et al. Medical costs and resource utilization for hemophilia patients with and without HIV or HCV infection. J Manag Care Pharm 2007;13:790-8
-
(2007)
J Manag Care Pharm
, vol.13
, pp. 790-798
-
-
Tencer, T.1
Friedman, H.S.2
Li-Mcleod, J.3
-
15
-
-
84857112623
-
Health care expenditures for Medicaidcovered males with haemophilia in the United States 2008
-
Guh S, Grosse SD, McAlister S, et al. Health care expenditures for Medicaidcovered males with haemophilia in the United States, 2008. Haemophilia 2012;18:276-83
-
(2012)
Haemophilia
, vol.18
, pp. 276-283
-
-
Guh, S.1
Grosse, S.D.2
McAlister, S.3
-
16
-
-
84860335262
-
Healthcare resource utilization among haemophilia A patients in the United States
-
Valentino LA, Pipe SW, Tarantino MD, et al. Healthcare resource utilization among haemophilia A patients in the United States. Haemophilia 2012;18:332-8
-
(2012)
Haemophilia
, vol.18
, pp. 332-338
-
-
Valentino, L.A.1
Pipe, S.W.2
Tarantino, M.D.3
-
17
-
-
80052037388
-
Haemophilia utilization group study - Part Va (HUGS Va): Design, methods and baseline data
-
Zhou ZY, Wu J, Baker J, et al. Haemophilia utilization group study - Part Va (HUGS Va): design, methods and baseline data. Haemophilia 2011;17: 729-36
-
(2011)
Haemophilia
, vol.17
, pp. 729-736
-
-
Zhou, Z.Y.1
Wu, J.2
Baker, J.3
-
18
-
-
27644457882
-
A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders
-
Baker JR, Crudder SO, Riske B, et al. A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders. Am J Public Health 2005;95:1910-16
-
(2005)
Am J Public Health
, vol.95
, pp. 1910-1916
-
-
Baker, J.R.1
Crudder, S.O.2
Riske, B.3
-
19
-
-
0034661520
-
Mortality among males with hemophilia: Relations with source of medical care the Hemophilia Surveillance System Project Investigators
-
Soucie JM, Nuss R, Evatt B, et al. Mortality among males with hemophilia: relations with source of medical care. The Hemophilia Surveillance System Project Investigators. Blood 2000;96:437-42
-
(2000)
Blood
, vol.96
, pp. 437-442
-
-
Soucie, J.M.1
Nuss, R.2
Evatt, B.3
-
20
-
-
0035087710
-
Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia
-
Soucie JM, Symons JT, Evatt B, et al. Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia. Haemophilia 2001;7:198-206
-
(2001)
Haemophilia
, vol.7
, pp. 198-206
-
-
Soucie, J.M.1
Symons, J.T.2
Evatt, B.3
-
21
-
-
77949436343
-
High school completion rates among men with hemophilia
-
Drake JH, Soucie JM, Cutter SC, et al. High school completion rates among men with hemophilia. Am J Prev Med 2010;38(4 Suppl):S489-94
-
(2011)
Am J Prev Med
, vol.38
, Issue.4
, pp. S489-S494
-
-
Drake, J.H.1
Soucie, J.M.2
Cutter, S.C.3
-
23
-
-
84876534613
-
-
Accessed April 28 2012
-
Centers for Medicare & Medicaid Services. MEDPAR. http://www.cms. gov/Research-Statistics-Data-and-Systems/Statistics-Trends-and-Reports/MedicareFeeforSvcPartsAB/MEDPAR.html. Accessed April 28, 2012
-
Centers for Medicare & Medicaid Services. MEDPAR
-
-
-
27
-
-
84935875032
-
-
Accessed January 27 2012
-
Ready price. 2012. http://www.micromedexsolutions.com/home/dispatch. Accessed January 27, 2012
-
(2012)
Ready Price
-
-
-
28
-
-
0020146381
-
Cost-of-illness methodology: A guide to current practices and procedures
-
Hodgson TA, Meiners MR. Cost-of-illness methodology: a guide to current practices and procedures. Milbank Mem Fund Q Health Soc 1982;60: 429-62
-
(1982)
Milbank Mem Fund Q Health Soc
, vol.60
, pp. 429-462
-
-
Hodgson, T.A.1
Meiners, M.R.2
-
30
-
-
84935825592
-
Total health services-mean and median expenses per person with expense and distribution of expenses by source of payment: United States, 2010
-
Agency for Healthcare Research and Quality Accessed April 28 2013
-
Agency for Healthcare Research and Quality. Total health services-mean and median expenses per person with expense and distribution of expenses by source of payment: United States, 2010. Medical Expenditure Panel Survey Household Component Data. http://meps.ahrq.gov/survey-comp/household.jsp. Accessed April 28, 2013
-
Medical Expenditure Panel Survey Household Component Data
-
-
-
31
-
-
84935902950
-
-
Centers For Disease Control and Prevention Blood Disorders Accessed April 10 2013
-
Centers For Disease Control and Prevention Blood Disorders. Information for hemophilia treatment centers. http://www.cdc.gov/ncbddd/blooddisorders/udc/udc-hemophilia.html. Accessed April 10, 2013
-
Information for Hemophilia Treatment Centers
-
-
-
32
-
-
12144290833
-
Joint range-of-motion limitations among young males with hemophilia: Prevalence and risk factors
-
Soucie JM, Cianfrini C, Janco RL et al. Joint range-of-motion limitations among young males with hemophilia: prevalence and risk factors. Blood 2004;103:2467-73
-
(2004)
Blood
, vol.103
, pp. 2467-2473
-
-
Soucie, J.M.1
Cianfrini, C.2
Janco, R.L.3
-
33
-
-
84871000117
-
US Hemophilia Treatment Center population trends 1990-2010: Patient diagnoses, demographics, health services utilization
-
Baker JR, Riske B, Drake JH, et al. US Hemophilia Treatment Center population trends 1990-2010: patient diagnoses, demographics, health services utilization. Haemophilia 2013;19:21-6
-
(2013)
Haemophilia
, vol.19
, pp. 21-26
-
-
Baker, J.R.1
Riske, B.2
Drake, J.H.3
|