-
1
-
-
27644457882
-
A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders
-
Baker JR, Crudder SO, Riske B, Bias V, Forsberg A. A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders. Am J Public Health 2005; 95: 1910-6.
-
(2005)
Am J Public Health
, vol.95
, pp. 1910-1916
-
-
Baker, J.R.1
Crudder, S.O.2
Riske, B.3
Bias, V.4
Forsberg, A.5
-
2
-
-
27644449978
-
Comprehensive care for hemophilia and related inherited bleeding disorders: why it matters
-
Hoots WK. Comprehensive care for hemophilia and related inherited bleeding disorders: why it matters. Curr Hematol Rep 2003; 2: 395-401.
-
(2003)
Curr Hematol Rep
, vol.2
, pp. 395-401
-
-
Hoots, W.K.1
-
3
-
-
0022002357
-
Life expectancy of Swedish haemophiliacs, 1831-1980
-
Larsson SA. Life expectancy of Swedish haemophiliacs, 1831-1980. Br J Haematol 1985; 59: 593-602.
-
(1985)
Br J Haematol
, vol.59
, pp. 593-602
-
-
Larsson, S.A.1
-
5
-
-
0028345068
-
First report on UK database of haemophilia B mutations and pedigrees UK Haemophilia Centres
-
Saad S, Rowley G, Tagliavacca L, Green PM, Giannelli F. First report on UK database of haemophilia B mutations and pedigrees UK Haemophilia Centres. Thromb Haemost 1994; 71: 563-70.
-
(1994)
Thromb Haemost
, vol.71
, pp. 563-570
-
-
Saad, S.1
Rowley, G.2
Tagliavacca, L.3
Green, P.M.4
Giannelli, F.5
-
6
-
-
0029798214
-
A database for a National Haemophilia Centre
-
O'Connor GI, Temperley IJ. A database for a National Haemophilia Centre. Clin Lab Haematol 1996; 18: 195-200.
-
(1996)
Clin Lab Haematol
, vol.18
, pp. 195-200
-
-
O'Connor, G.I.1
Temperley, I.J.2
-
7
-
-
0026323925
-
Survey of the Canadian hemophilia population
-
Walker I. Survey of the Canadian hemophilia population. Can J Public Health 1991; 82: 127-9.
-
(1991)
Can J Public Health
, vol.82
, pp. 127-129
-
-
Walker, I.1
-
8
-
-
0029129325
-
The Canadian Hemophilia Registry as the basis for a national system for monitoring the use of factor concentrates
-
Walker I, Pai M, Akabutu J et al. The Canadian Hemophilia Registry as the basis for a national system for monitoring the use of factor concentrates. Transfusion 1995; 35: 548-51.
-
(1995)
Transfusion
, vol.35
, pp. 548-551
-
-
Walker, I.1
Pai, M.2
Akabutu, J.3
-
9
-
-
0019127930
-
The Pennsylvania hemophilia program 1973-1978
-
Eyster ME, Lewis JH, Shapiro SS et al. The Pennsylvania hemophilia program 1973-1978. Am J Hematol 1980; 9: 277-86.
-
(1980)
Am J Hematol
, vol.9
, pp. 277-286
-
-
Eyster, M.E.1
Lewis, J.H.2
Shapiro, S.S.3
-
10
-
-
0022293085
-
West Virginia State Hemophilia Program
-
Jubelirer SJ, Ohgren LC, Haddy L, Stevenson M, Rogers JS, 2nd. West Virginia State Hemophilia Program. W V Med J 1985; 81: 259-61.
-
(1985)
W V Med J
, vol.81
, pp. 259-261
-
-
Jubelirer, S.J.1
Ohgren, L.C.2
Haddy, L.3
Stevenson, M.4
Rogers 2nd, J.S.5
-
13
-
-
1542376712
-
Home management of haemophilia
-
Teitel JM, Barnard D, Israels S, Lillicrap D, Poon MC, Sek J. Home management of haemophilia. Haemophilia 2004; 10: 118-33.
-
(2004)
Haemophilia
, vol.10
, pp. 118-133
-
-
Teitel, J.M.1
Barnard, D.2
Israels, S.3
Lillicrap, D.4
Poon, M.C.5
Sek, J.6
-
14
-
-
0035087710
-
Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia
-
Soucie JM, Symons J, Evatt B, Brettler D, Huszti H, Linden J. Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia. Haemophilia 2001; 7: 198-206.
-
(2001)
Haemophilia
, vol.7
, pp. 198-206
-
-
Soucie, J.M.1
Symons, J.2
Evatt, B.3
Brettler, D.4
Huszti, H.5
Linden, J.6
-
15
-
-
0034661520
-
Mortality among males with hemophilia: relations with source of medical care
-
Soucie JM, Nuss R, Evatt B et al. Mortality among males with hemophilia: relations with source of medical care. Blood 2000; 96: 437-42.
-
(2000)
Blood
, vol.96
, pp. 437-442
-
-
Soucie, J.M.1
Nuss, R.2
Evatt, B.3
-
16
-
-
84871001965
-
-
Centers for Disease Control and Prevention. National Public Health Performance Standards Program. Available at Accessed January 11, 2011.
-
Centers for Disease Control and Prevention. National Public Health Performance Standards Program. Available at http://www.cdc.gov/nphpsp/essentialServices.html. Accessed January 11, 2011.
-
-
-
-
17
-
-
0003561541
-
-
National Research Council. The National Academies Press, Washington, DC
-
National Research Council. The Future of Public Health. The National Academies Press, Washington, DC; 1988.
-
(1988)
The Future of Public Health
-
-
-
18
-
-
84870977614
-
-
U.S. Census Bureau: State and County QuickFacts. Data derived from Population Estimates, American Community Survey, Census of Population and Housing, State and County Housing Unit Estimates, County Business Patterns, Nonemployer Statistics, Economic Census, Survey of Business Owners, Building Permits, Consolidated Federal Funds Report. Last Revised: Tuesday, 17-Jan-2012 16:42:01 EST.
-
U.S. Census Bureau: State and County QuickFacts. Data derived from Population Estimates, American Community Survey, Census of Population and Housing, State and County Housing Unit Estimates, County Business Patterns, Nonemployer Statistics, Economic Census, Survey of Business Owners, Building Permits, Consolidated Federal Funds Report. Last Revised: Tuesday, 17-Jan-2012 16:42:01 EST.
-
-
-
-
19
-
-
84871015900
-
-
U.S. Department of Health and Human Services, Health Resources and Services Administration. Women's Health USA 2009.
-
U.S. Department of Health and Human Services, Health Resources and Services Administration. Women's Health USA 2009.
-
-
-
-
20
-
-
36249017859
-
Women with bleeding disorders
-
Byams VR. Women with bleeding disorders. J Womens Health (Larchmt) 2007; 16: 1249-51.
-
(2007)
J Womens Health (Larchmt)
, vol.16
, pp. 1249-1251
-
-
Byams, V.R.1
-
21
-
-
83055187115
-
von Willebrand disease (VWD): evidence-based diagnosis and management guidelines, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA)
-
Nichols WL, Hultin MB, James AH et al. von Willebrand disease (VWD): evidence-based diagnosis and management guidelines, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA). Haemophilia 2008; 14: 171-232.
-
(2008)
Haemophilia
, vol.14
, pp. 171-232
-
-
Nichols, W.L.1
Hultin, M.B.2
James, A.H.3
-
22
-
-
73449138383
-
ACOG Committee Opinion no. 451: Von Willebrand disease in women
-
Committee on Adolescent Health Care and Committee on Gynecologic Practice
-
Committee on Adolescent Health Care and Committee on Gynecologic Practice. ACOG Committee Opinion no. 451: Von Willebrand disease in women. Obstet Gynecol 2009; 114: 1439-43.
-
(2009)
Obstet Gynecol
, vol.114
, pp. 1439-1443
-
-
-
23
-
-
84870974801
-
-
U.S. Department of Health and Human Services. Office of Disease Prevention and Health Promotion. Healthy People 2020. Washington, DC. Available at Accessed July 23, 2012.
-
U.S. Department of Health and Human Services. Office of Disease Prevention and Health Promotion. Healthy People 2020. Washington, DC. Available at http://www.healthypeople.gov/2020/topicsobjectives2020/overview.aspx?topicid=4. Accessed July 23, 2012.
-
-
-
-
24
-
-
0031785486
-
Occurrence of hemophilia in the United States The Hemophilia Surveillance System Project Investigators
-
Soucie JM, Evatt B, Jackson D. Occurrence of hemophilia in the United States The Hemophilia Surveillance System Project Investigators. Am J Hematol 1998; 59: 288-94.
-
(1998)
Am J Hematol
, vol.59
, pp. 288-294
-
-
Soucie, J.M.1
Evatt, B.2
Jackson, D.3
-
25
-
-
81355142674
-
UDC Rare Bleeding and Clotting Disorders Working Group and the European Network Rare Bleeding Disorders Database Knowledge and Therapeutic Gaps: A public health problem in the rare coagulation disorders population
-
Shapiro AD, Soucie JM, Peyvandi F, Aschman DJ, DiMichele DM. UDC Rare Bleeding and Clotting Disorders Working Group and the European Network Rare Bleeding Disorders Database Knowledge and Therapeutic Gaps: A public health problem in the rare coagulation disorders population. Am J Prevent Med 2011; 41(Suppl 4): S324-31.
-
(2011)
Am J Prevent Med
, vol.41
, Issue.SUPPL. 4
-
-
Shapiro, A.D.1
Soucie, J.M.2
Peyvandi, F.3
Aschman, D.J.4
DiMichele, D.M.5
-
26
-
-
11844255344
-
Results of a survey of hospital coagulation laboratories in the United States. 2001
-
Shahangian S, Stankovic AK, Lubin IM, Handsfield JH, White MD. Results of a survey of hospital coagulation laboratories in the United States. 2001. Arch Pathol Lab Med 2005; 129: 47-60.
-
(2005)
Arch Pathol Lab Med
, vol.129
, pp. 47-60
-
-
Shahangian, S.1
Stankovic, A.K.2
Lubin, I.M.3
Handsfield, J.H.4
White, M.D.5
-
27
-
-
33646381900
-
What do we know about health care team effectiveness? A review of the literature
-
Lemieux-Charles L, McGuire WL. What do we know about health care team effectiveness? A review of the literature Med Care Res Rev 2006; 63: 263-300.
-
(2006)
Med Care Res Rev
, vol.63
, pp. 263-300
-
-
Lemieux-Charles, L.1
McGuire, W.L.2
-
28
-
-
34547757915
-
Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
-
Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
-
(2007)
N Engl J Med
, vol.357
, pp. 535-544
-
-
Manco-Johnson, M.J.1
Abshire, T.C.2
Shapiro, A.D.3
-
29
-
-
0011816661
-
Improving chronic illness care: translating evidence into action
-
Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff 2001; 20: 64-78.
-
(2001)
Health Aff
, vol.20
, pp. 64-78
-
-
Wagner, E.H.1
Austin, B.T.2
Davis, C.3
Hindmarsh, M.4
Schaefer, J.5
Bonomi, A.6
|