메뉴 건너뛰기




Volumn 19, Issue 1, 2013, Pages 21-26

US Hemophilia Treatment Center population trends 1990-2010: Patient diagnoses, demographics, health services utilization

Author keywords

Haemophilia; Public health; Registries; Trends

Indexed keywords

AFRICAN AMERICAN; ARTICLE; DEATH; DEMOGRAPHY; DISEASE REGISTRY; DISEASE SEVERITY; ETHNIC DIFFERENCE; FEMALE; HEALTH CARE UTILIZATION; HEMOPHILIA; HISPANIC; HUMAN; HUMAN IMMUNODEFICIENCY VIRUS INFECTION; MAJOR CLINICAL STUDY; MALE; MORTALITY; PATIENT MONITORING; POPULATION RESEARCH; PRIORITY JOURNAL; RISK REDUCTION; TREATMENT PLANNING; TREND STUDY; VON WILLEBRAND DISEASE;

EID: 84871000117     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2012.02915.x     Document Type: Article
Times cited : (42)

References (29)
  • 1
    • 27644457882 scopus 로고    scopus 로고
    • A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders
    • Baker JR, Crudder SO, Riske B, Bias V, Forsberg A. A model for a regional system of care to promote the health and well-being of people with rare chronic genetic disorders. Am J Public Health 2005; 95: 1910-6.
    • (2005) Am J Public Health , vol.95 , pp. 1910-1916
    • Baker, J.R.1    Crudder, S.O.2    Riske, B.3    Bias, V.4    Forsberg, A.5
  • 2
    • 27644449978 scopus 로고    scopus 로고
    • Comprehensive care for hemophilia and related inherited bleeding disorders: why it matters
    • Hoots WK. Comprehensive care for hemophilia and related inherited bleeding disorders: why it matters. Curr Hematol Rep 2003; 2: 395-401.
    • (2003) Curr Hematol Rep , vol.2 , pp. 395-401
    • Hoots, W.K.1
  • 3
    • 0022002357 scopus 로고
    • Life expectancy of Swedish haemophiliacs, 1831-1980
    • Larsson SA. Life expectancy of Swedish haemophiliacs, 1831-1980. Br J Haematol 1985; 59: 593-602.
    • (1985) Br J Haematol , vol.59 , pp. 593-602
    • Larsson, S.A.1
  • 4
    • 0026525874 scopus 로고
    • A computerized database for haemophilia patient records
    • Cumming IR, Cumming AM, Redding OM et al. A computerized database for haemophilia patient records. Clin Lab Haematol 1992; 14: 9-17.
    • (1992) Clin Lab Haematol , vol.14 , pp. 9-17
    • Cumming, I.R.1    Cumming, A.M.2    Redding, O.M.3
  • 5
    • 0028345068 scopus 로고
    • First report on UK database of haemophilia B mutations and pedigrees UK Haemophilia Centres
    • Saad S, Rowley G, Tagliavacca L, Green PM, Giannelli F. First report on UK database of haemophilia B mutations and pedigrees UK Haemophilia Centres. Thromb Haemost 1994; 71: 563-70.
    • (1994) Thromb Haemost , vol.71 , pp. 563-570
    • Saad, S.1    Rowley, G.2    Tagliavacca, L.3    Green, P.M.4    Giannelli, F.5
  • 6
    • 0029798214 scopus 로고    scopus 로고
    • A database for a National Haemophilia Centre
    • O'Connor GI, Temperley IJ. A database for a National Haemophilia Centre. Clin Lab Haematol 1996; 18: 195-200.
    • (1996) Clin Lab Haematol , vol.18 , pp. 195-200
    • O'Connor, G.I.1    Temperley, I.J.2
  • 7
    • 0026323925 scopus 로고
    • Survey of the Canadian hemophilia population
    • Walker I. Survey of the Canadian hemophilia population. Can J Public Health 1991; 82: 127-9.
    • (1991) Can J Public Health , vol.82 , pp. 127-129
    • Walker, I.1
  • 8
    • 0029129325 scopus 로고
    • The Canadian Hemophilia Registry as the basis for a national system for monitoring the use of factor concentrates
    • Walker I, Pai M, Akabutu J et al. The Canadian Hemophilia Registry as the basis for a national system for monitoring the use of factor concentrates. Transfusion 1995; 35: 548-51.
    • (1995) Transfusion , vol.35 , pp. 548-551
    • Walker, I.1    Pai, M.2    Akabutu, J.3
  • 9
    • 0019127930 scopus 로고
    • The Pennsylvania hemophilia program 1973-1978
    • Eyster ME, Lewis JH, Shapiro SS et al. The Pennsylvania hemophilia program 1973-1978. Am J Hematol 1980; 9: 277-86.
    • (1980) Am J Hematol , vol.9 , pp. 277-286
    • Eyster, M.E.1    Lewis, J.H.2    Shapiro, S.S.3
  • 14
    • 0035087710 scopus 로고    scopus 로고
    • Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia
    • Soucie JM, Symons J, Evatt B, Brettler D, Huszti H, Linden J. Home-based factor infusion therapy and hospitalization for bleeding complications among males with haemophilia. Haemophilia 2001; 7: 198-206.
    • (2001) Haemophilia , vol.7 , pp. 198-206
    • Soucie, J.M.1    Symons, J.2    Evatt, B.3    Brettler, D.4    Huszti, H.5    Linden, J.6
  • 15
    • 0034661520 scopus 로고    scopus 로고
    • Mortality among males with hemophilia: relations with source of medical care
    • Soucie JM, Nuss R, Evatt B et al. Mortality among males with hemophilia: relations with source of medical care. Blood 2000; 96: 437-42.
    • (2000) Blood , vol.96 , pp. 437-442
    • Soucie, J.M.1    Nuss, R.2    Evatt, B.3
  • 16
    • 84871001965 scopus 로고    scopus 로고
    • Centers for Disease Control and Prevention. National Public Health Performance Standards Program. Available at Accessed January 11, 2011.
    • Centers for Disease Control and Prevention. National Public Health Performance Standards Program. Available at http://www.cdc.gov/nphpsp/essentialServices.html. Accessed January 11, 2011.
  • 17
    • 0003561541 scopus 로고
    • National Research Council. The National Academies Press, Washington, DC
    • National Research Council. The Future of Public Health. The National Academies Press, Washington, DC; 1988.
    • (1988) The Future of Public Health
  • 18
    • 84870977614 scopus 로고    scopus 로고
    • U.S. Census Bureau: State and County QuickFacts. Data derived from Population Estimates, American Community Survey, Census of Population and Housing, State and County Housing Unit Estimates, County Business Patterns, Nonemployer Statistics, Economic Census, Survey of Business Owners, Building Permits, Consolidated Federal Funds Report. Last Revised: Tuesday, 17-Jan-2012 16:42:01 EST.
    • U.S. Census Bureau: State and County QuickFacts. Data derived from Population Estimates, American Community Survey, Census of Population and Housing, State and County Housing Unit Estimates, County Business Patterns, Nonemployer Statistics, Economic Census, Survey of Business Owners, Building Permits, Consolidated Federal Funds Report. Last Revised: Tuesday, 17-Jan-2012 16:42:01 EST.
  • 19
    • 84871015900 scopus 로고    scopus 로고
    • U.S. Department of Health and Human Services, Health Resources and Services Administration. Women's Health USA 2009.
    • U.S. Department of Health and Human Services, Health Resources and Services Administration. Women's Health USA 2009.
  • 20
    • 36249017859 scopus 로고    scopus 로고
    • Women with bleeding disorders
    • Byams VR. Women with bleeding disorders. J Womens Health (Larchmt) 2007; 16: 1249-51.
    • (2007) J Womens Health (Larchmt) , vol.16 , pp. 1249-1251
    • Byams, V.R.1
  • 21
    • 83055187115 scopus 로고    scopus 로고
    • von Willebrand disease (VWD): evidence-based diagnosis and management guidelines, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA)
    • Nichols WL, Hultin MB, James AH et al. von Willebrand disease (VWD): evidence-based diagnosis and management guidelines, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA). Haemophilia 2008; 14: 171-232.
    • (2008) Haemophilia , vol.14 , pp. 171-232
    • Nichols, W.L.1    Hultin, M.B.2    James, A.H.3
  • 22
    • 73449138383 scopus 로고    scopus 로고
    • ACOG Committee Opinion no. 451: Von Willebrand disease in women
    • Committee on Adolescent Health Care and Committee on Gynecologic Practice
    • Committee on Adolescent Health Care and Committee on Gynecologic Practice. ACOG Committee Opinion no. 451: Von Willebrand disease in women. Obstet Gynecol 2009; 114: 1439-43.
    • (2009) Obstet Gynecol , vol.114 , pp. 1439-1443
  • 23
    • 84870974801 scopus 로고    scopus 로고
    • U.S. Department of Health and Human Services. Office of Disease Prevention and Health Promotion. Healthy People 2020. Washington, DC. Available at Accessed July 23, 2012.
    • U.S. Department of Health and Human Services. Office of Disease Prevention and Health Promotion. Healthy People 2020. Washington, DC. Available at http://www.healthypeople.gov/2020/topicsobjectives2020/overview.aspx?topicid=4. Accessed July 23, 2012.
  • 24
    • 0031785486 scopus 로고    scopus 로고
    • Occurrence of hemophilia in the United States The Hemophilia Surveillance System Project Investigators
    • Soucie JM, Evatt B, Jackson D. Occurrence of hemophilia in the United States The Hemophilia Surveillance System Project Investigators. Am J Hematol 1998; 59: 288-94.
    • (1998) Am J Hematol , vol.59 , pp. 288-294
    • Soucie, J.M.1    Evatt, B.2    Jackson, D.3
  • 25
    • 81355142674 scopus 로고    scopus 로고
    • UDC Rare Bleeding and Clotting Disorders Working Group and the European Network Rare Bleeding Disorders Database Knowledge and Therapeutic Gaps: A public health problem in the rare coagulation disorders population
    • Shapiro AD, Soucie JM, Peyvandi F, Aschman DJ, DiMichele DM. UDC Rare Bleeding and Clotting Disorders Working Group and the European Network Rare Bleeding Disorders Database Knowledge and Therapeutic Gaps: A public health problem in the rare coagulation disorders population. Am J Prevent Med 2011; 41(Suppl 4): S324-31.
    • (2011) Am J Prevent Med , vol.41 , Issue.SUPPL. 4
    • Shapiro, A.D.1    Soucie, J.M.2    Peyvandi, F.3    Aschman, D.J.4    DiMichele, D.M.5
  • 27
    • 33646381900 scopus 로고    scopus 로고
    • What do we know about health care team effectiveness? A review of the literature
    • Lemieux-Charles L, McGuire WL. What do we know about health care team effectiveness? A review of the literature Med Care Res Rev 2006; 63: 263-300.
    • (2006) Med Care Res Rev , vol.63 , pp. 263-300
    • Lemieux-Charles, L.1    McGuire, W.L.2
  • 28
    • 34547757915 scopus 로고    scopus 로고
    • Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
    • Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
    • (2007) N Engl J Med , vol.357 , pp. 535-544
    • Manco-Johnson, M.J.1    Abshire, T.C.2    Shapiro, A.D.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.