Unmet need and problems accessing core health care services for children with autism spectrum disorder

Maternal and Child Health Journal

Volumn 16, Issue 5, 2012, Pages 1081-1091

  Chiri, Giuseppina ^a   Warfield, Marji Erickson ^a  

^a BRANDEIS UNIVERSITY   (United States)

Author keywords

Access problems; Access to care; Autism spectrum disorder; Unmet needs

Indexed keywords

ADOLESCENT; ARTICLE; AUTISM; CHILD; CHILD HEALTH CARE; FEMALE; HANDICAPPED CHILD; HEALTH CARE DELIVERY; HEALTH CARE DISPARITY; HEALTH CARE SURVEY; HEALTH INSURANCE; HEALTH SERVICE; HUMAN; INSURANCE; MALE; NEEDS ASSESSMENT; ORGANIZATION AND MANAGEMENT; PARENT; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; SOCIOECONOMICS; STATISTICAL MODEL; STATISTICS; UNITED STATES; UTILIZATION REVIEW;

ADOLESCENT; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; DISABLED CHILDREN; FEMALE; HEALTH CARE SURVEYS; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HEALTHCARE DISPARITIES; HUMANS; INSURANCE COVERAGE; INSURANCE, HEALTH; LOGISTIC MODELS; MALE; NEEDS ASSESSMENT; PARENTS; SOCIOECONOMIC FACTORS; UNITED STATES;

EID: 84864145552     PISSN: 10927875     EISSN: 15736628     Source Type: Journal    
DOI: 10.1007/s10995-011-0833-6     Document Type: Article

References (45)

1. Centers for Disease Control and Prevention. (2009). Prevalence of autism spectrum disorders - Autism and developmental disabilities monitoring network, United States, 2006. Morbidity and Mortality Weekly Report, 58(SS10), 1-20.
2. Centers for Disease Control and Prevention. (2007). Prevalence of autism spectrum disorders-Autism and developmental disabilities monitoring network, 14 sites, United States 2002. Morbidity and Mortality Weekly Report, 56(SS1), 12-28.
3. Centers for Disease Control and Prevention. (2011). Data and Statistics. http://www.cdc.gov/ncbddd/autism/data.html. Accessed 11 Feb 2011.
4. Newschaffer, C. J., Croen, L. A., Daniels, J., et al. (2007). The epidemiology of autism spectrum disorders. Annual Review of Public Health, 28(1), 235-258. (Pubitemid 46833342)
5. Strickland, B. B., Jones, J. R., Ghandour, R. M., et al. (2011). The medical home: health care access and impact for children and youth in the United States. Pediatrics, 127(4), 604-611.
6. Newacheck, P. W., McManus, M., Fox, H. B., et al. (2000). Access to health care for children with special health care needs. Pediatrics, 105, 760-766. (Pubitemid 30219522)
7. Davidoff, A. J. (2004). Insurance for children with special health care needs: patterns of coverage and burden on families to provide adequate insurance. Pediatrics, 114(2), 394-403. (Pubitemid 39006667)
8. Warfield, M. E., & Gulley, S. (2006). Unmet need and problems accessing specialty medical and related services among children with special health care needs. Maternal and Child Health Journal, 10(2), 201-216.
9. Kogan, M. D., Strickland, B. B., Blumberg, S. J., et al. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005-2006. Pediatrics, 122(6), e1149-e1158.
10. Liptak, G. S., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism: Data from US national samples. Journalof Autism and Developmental Disorders, 36(7), 871-879. (Pubitemid 44440106)
11. Croen, L. A., Najjar, D. V., Ray, G. T., et al. (2006). A comparison of health care utilization and costs of children with and without autism spectrum disorders in a large group-model health plan. Pediatrics, 118(4), e1203-e1211. (Pubitemid 46393771)
12. Gurney, J. G., McPheeters, M. L., & Davis, M. M. (2006). Parental report of health conditions and health care use among children with and without autism: National survey of children's health. Archives of Pediatrics and Adolescent Medicine, 160(8), 825-830. (Pubitemid 44199242)
13. Peng, C. Z., Hatlestad, P., Klug, M. G., et al. (2009). Health care costs and utilization rates for children with pervasive developmental disorders in North Dakota from 1998 to 2004: impact on Medicaid. Journal of Child Neurology, 24(2), 140-147.
14. Krauss, M. W., Gulley, S., Sciegaj, M., et al. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41(5), 329-339.
15. Newacheck, P. W., Hughes, D. C., Hung, Y. Y., et al. (2000). The unmet health needs of America's children. Pediatrics, 105(4 Pt 2), 989-997. (Pubitemid 30198742)
16. Cantor, J. C., Schoen, C., Belloff, D., et al. (2007). Aiming higher: Results from a state scorecard on health system performance. New york: The Commonwealth Fund Commission on a High Performance Health System.
17. Kuhlthau, K., Nyman, R. M., Ferris, T. G., et al. (2004). Correlates of use of specialty care. Pediatrics, 113(3), e249-e255.
18. Andersen, R. M. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behavior, 36(1), 1-10.
19. US Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The National Survey of Children with Special Health Care Needs Chartbook 2005-2006. Rockville, Maryland: US Department of Health and Human Services 2007.
20. Bethell, C. D., Read, D., Stein, R. E. K., et al. (2002). Identifying children with special health care needs: Development and evaluation of a short screening instrument. Ambulatory Pediatrics, 2(1), 38-48. (Pubitemid 44133341)
21. Osterling, J. A., Brooks, C. A., Unis, A. S., et al. (2000). A child with an autism spectrum disorder. In M. J. Guralnick (Ed.), Interdisciplinary clinical assessment of young children with developmental disabilities. Baltimore: Paul H. Brookes Pub. Co.
22. Blumberg, S. J., Welch, E. M., Chowdhury, S. R., et al. (2008). Design and operation of the national survey of children with special health care needs, 2005-2006. National center for health statistics. Vital Health Statistics, 1(45), 1-188.
23. StataCorp. (2007). Stata statistical software: Release 10. College Station, TX: StataCorp LP.
24. Breakwell, G. M. (2006). Research methods in psychology (3rd ed.). London; Thousand Oaks, CA: Sage Publications.
25. Kilbourne, A. M., Switzer, G., Hyman, K., et al. (2006). Advancing health disparities research within the health care system: a conceptual framework. American Journal of Public Health, 96(12), 2113-2121. (Pubitemid 44865101)
26. Fox, H. B., & McManus, M. A. (2001). A national study of commercial health insurance and medicaid definitions of medical necessity: What do they mean for children? Ambulatory Pediatrics, 1(1), 16-22. (Pubitemid 33719879)
27. Kastner, T. A. (2004). Committee on children with disabilities. Managed care and children with special health care needs. Pediatrics, 114(6), 1693-1698. (Pubitemid 41754941)
28. Honberg, L. E., Kogan, M. D., Allen, D., et al. (2009). Progress in ensuring adequate health insurance for children with special health care needs. Pediatrics, 124(5), 1273-1280.
29. Tang, M. H., Hill, K. S., Boudreau, A. A., et al. (2008). Medicaid managed care and the unmet need for mental health care among children with special health care needs. Health Services Research, 43(3), 882-900. (Pubitemid 351623960)
30. Simpson, L., & Fraser, I. (1999). Children and managed care: What research can, can't, and should tell us about impact. Medical Care Research and Review, 56(Suppl 2), 13-36. (Pubitemid 29235026)
31. Darer, J. D., Hwang, W., Pham, H. H., et al. (2004). More training needed in chronic care: A survey of US Physicians. Academic Medicine, 79(6), 541-548. (Pubitemid 38691479)
32. Halfon, N., Inkelas, M., & Wood, D. (1995). Nonfinancial barriers to care for children and youth. Annual Review of Public Health, 16, 447-472.
33. Mayer, M. L., Skinner, A. C., & Slifkin, R. T. (2004). Unmet need for routine and specialty care: data from the national survey of children with special health care needs. Pediatrics, 113(2), e109-e115.
34. DeRigne, L., Porterfield, S., & Metz, S. (2009). The influence of health insurance on parent's reports of children's unmet mental health needs. Maternal and Child Health Journal, 13(2), 176-186.
35. Benedict, R. E. (2006). Disparities in use of and unmet need for therapeutic and supportive services among school-age children with functional limitations: A comparison across settings. Health Services Research, 41(1), 103-124.
36. Peele, P. B., Lave, J. R., & Xu, Y. (1999). Benefit limits in managed behavioral health care: Do they matter? The Journal of Behavioral Health Services and Research, 26(4), 430-441. (Pubitemid 29501447)
37. Peele, P. B., Lave, J. R., & Kelleher, K. J. (2002). Exclusions and limitations in children's behavioral health care coverage. Psychiatric Services, 53(5), 591-594. (Pubitemid 34454179)
38. Yu, S. M., Huang, Z. J., Schwalberg, R. H., et al. (2006). Parental english proficiency and children's health services access. American Journal of Public Health, 96(8), 1449-1455. (Pubitemid 44198668)
39. Welterlin, A., & LaRue, R. H. (2007). Serving the needs of immigrant families of children with autism. Disability and Society, 22(7), 600-747.
40. Shenkman, E., Vogel, B., Brooks, R., et al. (2001). Race and ethnicity and the identification of special needs children. Health Care Financing Review, 23(2), 35-51. (Pubitemid 34184418)
41. Yu, S. M., & Singh, G. K. (2009). Household language use and health care access, unmet need, and family impact among CSHCN. Pediatrics, 124(Suppl 4), S414-S419.
42. Strickland, B., McPherson, M., Weissman, G., et al. (2004). Access to the medical home: Results of the national survey of children with special health care needs. Pediatrics, 113(5), 1485-1492. (Pubitemid 38580669)
43. Huang, Z. J., Kogan, M. D., Yu, S. M., et al. (2005). Delayed or forgone care among children with special health care needs: an analysis of the 2001 National Survey of Children with Special Health Care Needs. Ambulatory Pediatrics, 5(1), 60-67. (Pubitemid 40259928)
44. van Dyck, P. C., Kogan, M. D., McPherson, M. G., et al. (2004). Prevalence and characteristics of children with special health care needs. Archives of Pediatrics and Adolescent Medicine, 158(9), 884-890. (Pubitemid 39181090)
45. Schieve, L., Rice, C., & Boyle, C. (2006). Mental health in the United States: parental report of diagnosed autism in children aged 4-17 years-United States, 2003-2004. Morbidity and Mortality Weekly Report, 55(17), 481-486. (Pubitemid 43736036)