A scoping review of bereavement risk assessment measures: Implications for palliative care

Palliative Medicine

Volumn 29, Issue 7, 2015, Pages 577-589

  Sealey, Margaret ^a   Breen, Lauren J ^a   O'Connor, Moira ^a   Aoun, Samar M ^a  

^a CURTIN UNIVERSITY   (Australia)

Author keywords

bereavement; family caregivers; instruments; measures; Palliative care; risk assessment

Indexed keywords

BEREAVEMENT; BEREAVEMENT EXPERIENCE QUESTIONNAIRE 24; BEREAVEMENT RISK ASSESSMENT TOOL; BEREAVEMENT RISK INDEX; BRIEF GRIEF QUESTIONNAIRE; CAREGIVER; CORE BEREAVEMENT ITEMS; EMOTION ASSESSMENT; GRIEF; GRIEF EVALUATION MEASURE; GRIEF EXPERIENCE QUESTIONNAIRE; HOGAN GRIEF REACTION CHECKLIST; HUMAN; INTERNAL CONSISTENCY; INTERRATER RELIABILITY; INVENTORY OF COMPLICATED GRIEF; INVENTORY OF COMPLICATED GRIEF REVISED; INVENTORY OF TRAUMATIC GRIEF; MARWIT MEUSER CAREGIVER GRIEF INVENTORY; MARWIT MEUSER CAREGIVER GRIEF INVENTORY SHORT FORM; PALLIATIVE THERAPY; PREDICTIVE VALIDITY; PROLONGED GRIEF 12; PROLONGED GRIEF 13; PSYCHOMETRY; REVIEW; REVISED GRIEF EXPERIENCE INVENTORY; RISK ASSESSMENT; TEST RETEST RELIABILITY; TEXAS REVISED INVENTORY OF GRIEF; TWO TRACK BEREAVEMENT QUESTIONNAIRE; ADAPTIVE BEHAVIOR; FAMILY; PROCEDURES; PSYCHOLOGY; QUESTIONNAIRE;

ADAPTATION, PSYCHOLOGICAL; BEREAVEMENT; CAREGIVERS; FAMILY; HUMANS; PALLIATIVE CARE; PSYCHOMETRICS; RISK ASSESSMENT; SURVEYS AND QUESTIONNAIRES;

EID: 84930800502     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216315576262     Document Type: Review

References (82)

1. Hudson PL, Remedios C, Zordan R, et al.Clinical practice guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients. Melbourne, VIC, Australia: Centre for Palliative Care, St Vincent's Hospital Melbourne, 2010, www.centreforpallcare.org
2. Hall C, Hudson PL, Boughey A Bereavement support standards for specialist palliative care services. Melbourne, VIC, Australia: Department of Health, State Government of Victoria (SGoV), Victorian Government ; 2012: 31.
3. National Institute for Clinical Excellence (NICE) Guidance on cancer services - improving supportive and palliative care for adults with cancer: the manual. London: NICE ; 2004 :
4. Palliative Care Australia. Standards for providing quality palliative care for all Australians. 4 th ed. Deakin West, ACT, Australia: Palliative Care Australia, 2005, 40 pp.
5. World Health Organization. Palliative care: what it is, http://www.who.int/hiv/topics/palliative/PalliativeCare/en/print.html (2002, accessed 29 March 2009).
6. Hudson PL, Remedios C, Zordan R, et al. Guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients. J Palliat Med. 2012 ; 15 (6). 696-702
7. Mather MA, Good PD, Cavenagh JD, et al. Survey of bereavement support provided by Australian palliative care services. Med J Aust. 2008 ; 188: 228-230
8. Breen LJ, Aoun SM, O'Connor M, et al. Bridging the gaps in palliative care bereavement support: an international perspective. Death Stud. 2014 ; 38 (1-5). 54-61
9. O'Connor M, Abbott J, Payne S, et al. A comparison of bereavement services provided in hospice and palliative care settings in Australia, the UK and the USA. Prog Palliat Care. 2009 ; 17 (2). 69-74
10. Rumbold B, Aoun S.. Bereavement and palliative care: a public health perspective. Prog Palliat Care. 2014 ; 22 (3). 131-135
11. Aoun S, Breen LJ, Rumbold B, et al. Reported experiences of bereavement support in Western Australia: a pilot study. Aust N Z J Public Health. 2014 ; 38: 473-79. DOI: 10.1111/1753-6405.12177.
12. Breen LJ, O'Connor M. The fundamental paradox in the grief literature: a critical reflection. Omega. 2007 ; 55 (3). 199-218
13. Currow D C Allen K Plummer J. et al Bereavement help-seeking following an 'expected' death: a cross-sectional randomised face-to-face population survey. BMC Palliat Care2008; 7: 19, http://www.biomedcentral.com/1472-684X/7/19
14. Lichtenthal WG, Nilsson M, Kissane DW, et al. Underutilization of mental health services among bereaved caregivers with prolonged grief disorder. Psychiatr Serv. 2011 ; 62 (10). 1225-1229
15. Hudson PL, Trauer T, Graham S, et al. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010 ; 24 (7). 656-668
16. Schut H, Stroebe M. Challenges in evaluating adult bereavement services. Bereave Care. 2011 ; 30 (1). 5-9
17. Aoun S, Breen LJ, O'Connor M, et al. A public health approach to bereavement support services in palliative care. Aust N Z J Public Health. 2012 ; 36 (1). 14-16
18. Shear MK, Simon NM, Wall M, et al. Complicated grief and related bereavement issues for DSM-5. Depress Anxiety. 2011 ; 28 (2). 103-117
19. Prigerson H G Horowitz M J Jacobs S C. et al Prolonged grief disorder: psychometric validation of criteria proposed for DSM-V and ICD-11. PLoS Med2009; 6(8), http://www.plosmedicine.org/article/info:doi/10.1371/journal.pmed.1000121
20. American Psychiatric Association. Diagnostic and statistical manual of mental disorders: DSM-5. 5 (ed American Psychiatric Association DSMTF). 5th ed. Washington, DC; Arlington, VA: American Psychiatric Association, 2013.
21. Maercker A, Brewin CR, Bryant RA, et al. Proposals for mental disorders specifically associated with stress in the International Classification of Diseases-11. Lancet. 2013 ; 381 (9878). 1683-1685
22. Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005 ; 8 (1). 19-32
23. Moher D, Liberati A, Tetzlaff J, et al. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009 ; 6 (7). 1-6
24. Rose C, Wainwright W, Downing M, et al. Inter-rater reliability of the bereavement risk assessment tool. Palliat Support Care. 2011 ; 9: 153-164
25. Kristjanson LJ, Cousins K, Smith J, et al. Evaluation of the Bereavement Risk Index (BRI): a community hospice care protocol. Int J Palliat Nurs. 2005 ; 11 (12). 610-618
26. Robinson LA, Nuamah IF, Lev E, et al. A prospective longitudinal investigation of spousal bereavement examining Parkes and Weiss' Bereavement Risk Index. J Palliat Care. 1995 ; 11 (4). 5-13
27. Marwit SJ, Meuser TM. Development and initial validation of an inventory to assess grief in caregivers of persons with Alzheimer's disease. Gerontologist. 2002 ; 42 (6). 751-765
28. Marwit SJ, Kaye PN. Measuring grief in caregivers of persons with acquired brain injury. Brain Inj. 2006 ; 20 (13-14). 1419-1429
29. Marwit SJ, Chibnall JT, Dougherty R, et al. Assessing pre-death grief in cancer caregivers using the Marwit-Meuser Caregiver Grief Inventory (MM-CGI). Psychooncology. 2008 ; 17 (3). 300-303
30. Marwit SJ, Meuser TM. Development of a short form inventory to assess grief in caregivers of dementia patients. Death Stud. 2005 ; 29: 191-205
31. Kiely DK, Prigerson HG, Mitchell SL. Health care proxy grief symptoms before the death of nursing home residents with advanced dementia. Am J Geriatr Psychiatry. 2008 ; 16 (8). 664-673
32. Lai C, Luciani M, Morelli E, et al. Predictive role of different dimensions of burden for risk of complicated grief in caregivers of terminally ill patients. Am J Hosp Palliat Care. 2014 ; 31 (2). 189-193
33. Guarnaccia CA, Hayslip B. Factor structure of the bereavement experience questionnaire: the BEQ-24, a revised short-form. Omega. 1998 ; 37 (4). 303-316
34. Burnett P, Middleton W, Raphael B, et al. Measuring core bereavement phenomena. Psychol Med. 1997 ; 27: 49-57
35. Jordan JR, Baker J, Matteis M, et al. The grief evaluation measure (GEM): an initial validation study. Death Stud. 2005 ; 29: 301-332
36. Barrett TW, Scott TB. Development of the Grief Experience Questionnaire. Suicide Life Threat Behav. 1989 ; 19 (2). 201-215
37. Hogan NS, Greenfield DB, Schmidt LA. Development and validation of the Hogan Grief Reaction Checklist. Death Stud. 2001 ; 25: 1-32
38. Prigerson HG, Jacobs SC.Traumatic grief as a distinct disorder: a rationale, consensus criteria, and a preliminary empirical test. Handbook of bereavement research: consequences, coping, and care. Stroebe MS Hansson RO Stroebe W, et al. (eds.) Washington, DC: American Psychological Association ; 2001: 613-645.
39. Boelen P, van den Bout J, de Keijser J, et al. Reliability and validity of the Dutch version of the Inventory of Traumatic Grief (ITG). Death Stud. 2003 ; 27 (3). 227-247
40. Lev E, Munro BH, McCorkle R. A shortened version of an instrument measuring bereavement. Int J Nurs Stud. 1993 ; 30 (3). 213-226
41. Faschingbauer T, DeVaul RA, Zisook S The Texas Revised Inventory of Grief Biopsychosocial aspects of bereavement. Zisook S (ed.) Washington, DC: American Psychiatric Press, Inc ; 1987: 111-124.
42. Zisook S, Devaul RA, Click MA. Measuring symptoms of grief and bereavement. Am J Psychiatry. 1982 ; 139 (12). 1590-1593
43. Faschingbauer TR, Devaul RA, Zisook S. Development of the Texas Inventory of Grief. Am J Psychiatry. 1977 ; 134 (6). 696-698
44. Futterman A, Holland JM, Brown PJ, et al. Factorial validity of the Texas Revised Inventory of Grief Present Scale among bereaved older adults. Psychol Assess. 2010 ; 22 (3). 675-687
45. Rubin SS, Bar Nadav O, Malkinson R, et al. The Two-Track Model of Bereavement Questionnaire (TTBQ): development and validation of a relational measure. Death Stud. 2009 ; 33 (4). 305-333
46. Bar Nadav O, Rubin SS. Assessing complicated grief using the Two-Track Bereavement Questionnaire (TTBQ). The 10th international conference on Grief and Bereavement in Contemporary Society: East meets West expanding frontiers and diversity, Hong Kong, 11-14 June 2014, paper no. SF-000163, p. 54.
47. Shear K, Jackson CT, Essock SM, et al. Screening for complicated grief among Project Liberty service recipients 18 months after September 11, 2001. Psychiatr Serv. 2006 ; 57 (9). 1291-1297
48. Ito M, Nakajima S, Fujisawa D, et al. Brief measure for screening complicated grief: reliability and discriminant validity. PLoS One. 2012 ; 7 (2). e31209 DOI:10.1371/journal.pone.0031209
49. Fujisawa D, Miyashita M, Nakajima S, et al. Prevalence and determinants of complicated grief in general population. J Affect Disord. 2010 ; 127: 352-358
50. Prigerson HG, Maciejewski PK, Reynolds CF, et al. Inventory of Complicated Grief: a scale to measure maladaptive symptoms of loss. Psychiatry Res. 1995 ; 59: 65-79
51. O'Connor M, Lasgaard M, Shevlin M, et al. A confirmatory factor analysis of combined models of the Harvard Trauma Questionnaire and the Inventory of Complicated Grief-Revised: are we measuring complicated grief or posttraumatic stress?. J Anxiety Disord. 2010 ; 24: 672-679
52. Guldin M-B O'Connor M Sokolowski I. et al. Identifying bereaved subjects at risk of complicated grief: predictive value of questionnaire items in a cohort study. BMC Palliat Care2011; 10: 9, http://www.biomedcentral.com/1472-684X/10/9
53. Papa A, Lancaster N, Kahler J. Commonalities in grief responding across bereavement and non-bereavement losses. J Affect Disord. 2014 ; 161: 136-143
54. Walsh K, King M, Jones L, et al. Spiritual beliefs may affect outcome of bereavement: prospective study. BMJ. 2002 ; 324: 1551
55. Koffman J, Hotopf M, Higginson IJ. Does ethnicity matter? Bereavement outcomes in two ethnic groups living in the United Kingdom. Palliat Support Care. 2005 ; 3: 183-190
56. Tolstikova K, Fleming S, Chartier B, et al. Grief, complicated grief, and trauma: the role of the search for meaning, impaired self-reference, and death anxiety. Illn Crises Loss. 2005 ; 13 (4). 293-313
57. Neimeyer RA, Hogan NS, Laurie A The measurement of grief: psychometric considerations in the assessment of reactions to bereavement Handbook of bereavement research and practice: advances in theory and intervention. Stroebe MS Schut H Stroebe W, et al. (eds.) Washington, DC: American Psychological Association ; 2008: 133-161.
58. Bailley SE, Dunham K, Kral MJ. Factor structure of the Grief Experience Questionnaire (GEQ). Death Stud. 2000 ; 24 (8). 721-738
59. Chentsova-Dutton Y, Schucter S, Hutchin S, et al. Depression and grief reactions in hospice caregivers: from pre-death to 1 year afterwards. J Affect Disord. 2002 ; 69: 53-60
60. Byrne GJA, Raphael B. A longitudinal study of bereavement phenomena in recently widowed elderly men. Psychol Med. 1994 ; 24: 411-421
61. TenoJ M Okun S N Casey V A. et al. Toolkit of instruments to measure end of life care (TIME). 2001, 139 pp., http://www.chcr.brown.edu/pcoc/toolkit.htm
62. Prigerson HG, Bierhals AJ, Kasl SV, et al. Complicated grief as a disorder distinct from bereavement-related depression and anxiety: a replication study. Am J Psychiatry. 1996 ; 153 (11). 1484-1486
63. Sundin EC, Horowitz MJ. Impact of Events Scale: psychometric properties. Br J Psychiatry. 2002 ; 180: 205-209
64. Horowitz MJ, Wilner N, Alvarez W. Impact of Event Scale: a measure of subjective stress. Psychosom Med. 1979 ; 41 (3). 209-218
65. Weiss D, Marmar C The Impact of Event Scale - revised Assessing psychological trauma and post traumatic stress disorder: a handbook for practitioners. Wilson JP Keane TM (eds.) New York: Guilford Press ; 1997: 399-411.
66. Meert K, Donaldson AE, Newth CJL, et al. Complicated grief and associated risk factors among parents following a child's death in the pediatric intensive care unit. Arch Pediatr Adolesc Med. 2010 ; 164 (11). 1045-1051
67. Kristensen P, Tonnessen A, Weisaeth L, et al. Visiting the site of death: experiences of the bereaved after the 2004 Southeast Asian Tsunami. Death Stud. 2012 ; 36: 462-476
68. Mitchell AM, Kim Y, Prigerson HG, et al. Complicated grief in survivors of suicide. Crisis. 2004 ; 25 (1). 12-18
69. Sung SC, Dryman MT, Marks E, et al. Complicated grief among individuals with major depression: prevalence, comorbidity, and associated features. J Affect Disord. 2011 ; 134: 453-458
70. Anderson WG, Arnold RM, Angus DC, et al. Posttraumatic stress and complicated grief in family members of patients in the intensive care unit. J Gen Intern Med. 2008 ; 23 (11). 1871-1876
71. Guldin MB, Vedsted P, Zachariae R, et al. Complicated grief and need for professional support in family caregivers of cancer patients in palliative care: a longitudinal cohort study. Support Care Cancer. 2012 ; 20 (8). 1679-1685
72. Jacobsen JC, Zhang B, Block SD, et al. Distinguishing symptoms of grief and depression in a cohort of advanced cancer patients. Death Stud. 2010 ; 34: 257-273
73. Hinton DE, Nickerson A, Bryant RA. Prolonged grief in Cambodian refugees following genocide: rebirth concerns and avoidance of reminders. J Loss Trauma. 2013 ; 18 (5). 444-460
74. Aoun SM, Connors SL, Priddis L, et al. Motor Neurone Disease family carers' experiences of caring, palliative care and bereavement: an exploratory qualitative study. Palliat Med. 2012 ; 26 (6). 842-850
75. Agnew A, Manktelow R, Taylor BJ, et al. Bereavement needs assessment in specialist palliative care: a review of the literature. Palliat Med. 2010 ; 24: 46-59
76. Williams A-L, McCorkle R. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care. 2011 ; 9: 315-325
77. Relf M Machin L Archer N. Guidance for bereavement needs assessment in palliative care. September2010. London: Help the Hospices, http://www.hospiceuk.org/docs/default-source/default-document-library/guidance-for-bereavement-needs-assessment-in-palliative-care.pdf?sfvrsn=0
78. Agnew A, Manktelow R, Haynes T, et al. Bereavement assessment practice in hospice settings: challenges for palliative care social workers. Br J Soc Work. 2011 ; 41: 111-130
79. Field D, Payne S, Relf M, et al. Some issues in the provision of adult bereavement support by UK hospices. Soc Sci Med. 2007 ; 64: 428-438
80. Ewing G, Grande G. Development of a Carer Support Needs Assessment Tool (CSNAT) for end-of-life care practice at home: a qualitative study. Palliat Med. 2012 ; 27 (3). 244-256
81. Mularski RA, Dy SM, Shugarman LR, et al. A systematic review of measures of end-of-life care and its outcomes. Health Serv Res. 2007 ; 42 (5). 1848-1870
82. Stiel S, Pastrana T, Balzer C, et al. Outcome assessment instruments in palliative and hospice care - a review of the literature. Support Care Cancer. 2012 ; 20: 2879-2893