-
1
-
-
84884292762
-
The registry of the International society for heart and lung transplantation: Thirtieth adult lung and heart-lung transplant report—2013
-
PID: 24054805
-
Yusen, R. D., Christie, J. D., Edwards, L. B., Kucheryavaya, A. Y., Benden, C., Dipchand, A. I., et al. (2013). The registry of the International society for heart and lung transplantation: Thirtieth adult lung and heart-lung transplant report—2013. Journal of Heart and Lung Transplantation,32(10), 965–978.
-
(2013)
Journal of Heart and Lung Transplantation
, vol.32
, Issue.10
, pp. 965-978
-
-
Yusen, R.D.1
Christie, J.D.2
Edwards, L.B.3
Kucheryavaya, A.Y.4
Benden, C.5
Dipchand, A.I.6
-
2
-
-
84867097855
-
Solid-organ transplantation in older adults: Current status and future research
-
COI: 1:STN:280:DC%2BC38bltFalsA%3D%3D, PID: 22958872
-
Abecassis, M., Bridges, N. D., Clancy, C. J., Dew, M. A., Eldadah, B., Englesbe, M. J., et al. (2012). Solid-organ transplantation in older adults: Current status and future research. American Journal of Transplantation,12(10), 2608–2622.
-
(2012)
American Journal of Transplantation
, vol.12
, Issue.10
, pp. 2608-2622
-
-
Abecassis, M.1
Bridges, N.D.2
Clancy, C.J.3
Dew, M.A.4
Eldadah, B.5
Englesbe, M.J.6
-
3
-
-
33750550453
-
Medical complications after lung transplantation
-
PID: 17072799
-
Arcasoy, S. M., & Wilt, J. (2006). Medical complications after lung transplantation. Seminars in Respiratory and Critical Care Medicine,27(5), 508–520.
-
(2006)
Seminars in Respiratory and Critical Care Medicine
, vol.27
, Issue.5
, pp. 508-520
-
-
Arcasoy, S.M.1
Wilt, J.2
-
5
-
-
84879905698
-
Quality of life in lung transplantation
-
PID: 23821515
-
Singer, J. P., & Singer, L. G. (2013). Quality of life in lung transplantation. Seminars in Respiratory and Critical Care Medicine,34(3), 421–430.
-
(2013)
Seminars in Respiratory and Critical Care Medicine
, vol.34
, Issue.3
, pp. 421-430
-
-
Singer, J.P.1
Singer, L.G.2
-
6
-
-
80055007179
-
Content validity—Establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: Part 1—Eliciting concepts for a new PRO instrument
-
PID: 22152165
-
Patrick, D. L., et al. (2011). Content validity—Establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: Part 1—Eliciting concepts for a new PRO instrument. Value in Health,14(8), 967–977.
-
(2011)
Value in Health
, vol.14
, Issue.8
, pp. 967-977
-
-
Patrick, D.L.1
-
7
-
-
84952976133
-
The design and selection of patient-reported outcomes measures for use in patient centered outcomes research
-
Acaster, S., Cimms, T., & Lloyd, A. (2012). The design and selection of patient-reported outcomes measures for use in patient centered outcomes research. Oxford outcomes. http://www.pcori.org/assets/The-Design-and-Selection-of-Patient-Reported-Outcomes-Measures-for-Use-in-Patient-Centered-Outcomes-Research1.pdf.
-
(2012)
Oxford outcomes
-
-
Acaster, S.1
Cimms, T.2
Lloyd, A.3
-
9
-
-
84875736771
-
A thematic analysis of quality of life in lung transplant: the existing evidence and implications for future directions
-
COI: 1:STN:280:DC%2BC3svgsFKgtg%3D%3D, PID: 23432992
-
Singer, J. P., et al. (2013). A thematic analysis of quality of life in lung transplant: the existing evidence and implications for future directions. American Journal of Transplantation,13(4), 839–850.
-
(2013)
American Journal of Transplantation
, vol.13
, Issue.4
, pp. 839-850
-
-
Singer, J.P.1
-
11
-
-
0026877917
-
The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection
-
PID: 1593914
-
Ware, J. E, Jr, & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care,30(6), 473–483.
-
(1992)
Medical Care
, vol.30
, Issue.6
, pp. 473-483
-
-
Ware, J.E.1
Sherbourne, C.D.2
-
12
-
-
79951722885
-
PRO development: Rigorous qualitative research as the crucial foundation
-
PID: 20512662
-
Lasch, K. E., et al. (2010). PRO development: Rigorous qualitative research as the crucial foundation. Quality of Life Research,19(8), 1087–1096.
-
(2010)
Quality of Life Research
, vol.19
, Issue.8
, pp. 1087-1096
-
-
Lasch, K.E.1
-
13
-
-
84878484155
-
Qualitative research in organ transplantation: Recent contributions to clinical care and policy
-
COI: 1:CAS:528:DC%2BC3sXhtVKhsLfO, PID: 23648238
-
Tong, A., et al. (2013). Qualitative research in organ transplantation: Recent contributions to clinical care and policy. American Journal of Transplantation,13(6), 1390–1399.
-
(2013)
American Journal of Transplantation
, vol.13
, Issue.6
, pp. 1390-1399
-
-
Tong, A.1
-
16
-
-
0028063345
-
Development of the kidney disease quality of life (KDQOL) instrument
-
COI: 1:STN:280:DyaK2M7ksVWhsA%3D%3D, PID: 7841967
-
Hays, R. D., et al. (1994). Development of the kidney disease quality of life (KDQOL) instrument. Quality of Life Research,3(5), 329–338.
-
(1994)
Quality of Life Research
, vol.3
, Issue.5
, pp. 329-338
-
-
Hays, R.D.1
-
17
-
-
84977808202
-
Qualitative research and evaluation methods, 3rd ed. Thousand Oaks: Sage. xxiv, 598, p
-
Patton, M. Q. (2002). Qualitative research and evaluation methods, 3rd ed. Thousand Oaks: Sage. xxiv, 598, p. 65.
-
(2002)
65
-
-
Patton, M.Q.1
-
18
-
-
84898609395
-
Development and validation of a lung transplant-specific disability questionnaire
-
Singer, J. P., et al. (2014). Development and validation of a lung transplant-specific disability questionnaire. Thorax,69(5), 445–450.
-
(2014)
Thorax
, vol.69
, Issue.5
, pp. 445-450
-
-
Singer, J.P.1
-
19
-
-
84855987141
-
Development and validation of a short form of the valued life activities disability questionnaire for rheumatoid arthritis
-
PID: 21905253
-
Katz, P. P., et al. (2011). Development and validation of a short form of the valued life activities disability questionnaire for rheumatoid arthritis. Arthritis Care and Research,63(12), 1664–1671.
-
(2011)
Arthritis Care and Research
, vol.63
, Issue.12
, pp. 1664-1671
-
-
Katz, P.P.1
-
20
-
-
0024042879
-
The MOS short-form general health survey. Reliability and validity in a patient population
-
COI: 1:STN:280:DyaL1c3nsFGnsg%3D%3D, PID: 3393032
-
Stewart, A. L., Hays, R. D., & Ware, J. E., Jr. (1988). The MOS short-form general health survey. Reliability and validity in a patient population. Medical Care,26(7), 724–735.
-
(1988)
Medical Care
, vol.26
, Issue.7
, pp. 724-735
-
-
Stewart, A.L.1
Hays, R.D.2
Ware, J.E.3
-
21
-
-
70349959880
-
Qualitative research and content validity: Developing best practices based on science and experience
-
PID: 19784865
-
Brod, M., Tesler, L. E., & Christensen, T. L. (2009). Qualitative research and content validity: Developing best practices based on science and experience. Quality of Life Research,18(9), 1263–1278.
-
(2009)
Quality of Life Research
, vol.18
, Issue.9
, pp. 1263-1278
-
-
Brod, M.1
Tesler, L.E.2
Christensen, T.L.3
-
23
-
-
0004037366
-
-
Sage, Thousand Oaks
-
Strauss, A., Strauss, A. L., & Corbin, J. M. (1997). Grounded theory in practice (p. 280). Thousand Oaks: Sage.
-
(1997)
Grounded theory in practice
, pp. 280
-
-
Strauss, A.1
Strauss, A.L.2
Corbin, J.M.3
-
24
-
-
0034200020
-
Methodological issues in grounded theory
-
COI: 1:STN:280:DC%2BD3czgslOksw%3D%3D, PID: 10849161
-
Cutcliffe, J. R. (2000). Methodological issues in grounded theory. Journal of Advanced Nursing,31(6), 1476–1484.
-
(2000)
Journal of Advanced Nursing
, vol.31
, Issue.6
, pp. 1476-1484
-
-
Cutcliffe, J.R.1
-
25
-
-
84897112804
-
Family perspectives on deceased organ donation: Thematic synthesis of qualitative studies
-
COI: 1:STN:280:DC%2BC2critl2msA%3D%3D, PID: 24612855
-
Ralph, A., et al. (2014). Family perspectives on deceased organ donation: Thematic synthesis of qualitative studies. American Journal of Transplantation,14(4), 923–935.
-
(2014)
American Journal of Transplantation
, vol.14
, Issue.4
, pp. 923-935
-
-
Ralph, A.1
-
26
-
-
60649113929
-
Perceptions of transitional care needs and experiences in pediatric heart transplant recipients
-
COI: 1:STN:280:DC%2BD1M7os1Shtw%3D%3D, PID: 19260839
-
Anthony, S. J., et al. (2009). Perceptions of transitional care needs and experiences in pediatric heart transplant recipients. American Journal of Transplantation,9(3), 614–619.
-
(2009)
American Journal of Transplantation
, vol.9
, Issue.3
, pp. 614-619
-
-
Anthony, S.J.1
-
27
-
-
33646698557
-
How many interviews are enough? An experiment with data saturation and variability
-
Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough? An experiment with data saturation and variability. Field Methods,18(1), 59–82.
-
(2006)
Field Methods
, vol.18
, Issue.1
, pp. 59-82
-
-
Guest, G.1
Bunce, A.2
Johnson, L.3
-
28
-
-
34548645725
-
Symptom experience after lung transplantation: impact on quality of life and adherence
-
PID: 17845632
-
Kugler, C., et al. (2007). Symptom experience after lung transplantation: impact on quality of life and adherence. Clinical Transplantation,21(5), 590–596.
-
(2007)
Clinical Transplantation
, vol.21
, Issue.5
, pp. 590-596
-
-
Kugler, C.1
-
29
-
-
0032757295
-
Symptom experiences of lung transplant recipients: Comparisons across gender, pretransplantation diagnosis, and type of transplantation
-
COI: 1:STN:280:DC%2BD3c%2Fksl2htA%3D%3D, PID: 10580217
-
Lanuza, D. M., et al. (1999). Symptom experiences of lung transplant recipients: Comparisons across gender, pretransplantation diagnosis, and type of transplantation. Heart and Lung,28(6), 429–437.
-
(1999)
Heart and Lung
, vol.28
, Issue.6
, pp. 429-437
-
-
Lanuza, D.M.1
-
30
-
-
84870715330
-
A longitudinal study of patients’ symptoms before and during the first year after lung transplantation
-
PID: 22988999
-
Lanuza, D. M., et al. (2012). A longitudinal study of patients’ symptoms before and during the first year after lung transplantation. Clinical Transplantation,26(6), E576–E589.
-
(2012)
Clinical Transplantation
, vol.26
, Issue.6
, pp. 576-589
-
-
Lanuza, D.M.1
-
31
-
-
84857373180
-
Onset and risk factors for anxiety and depression during the first 2 years after lung transplantation
-
PID: 22245165
-
Dew, M. A., et al. (2012). Onset and risk factors for anxiety and depression during the first 2 years after lung transplantation. General Hospital Psychiatry,34(2), 127–138.
-
(2012)
General Hospital Psychiatry
, vol.34
, Issue.2
, pp. 127-138
-
-
Dew, M.A.1
-
32
-
-
84873094737
-
Quality of recipient–caregiver relationship and psychological distress are correlates of self-care agency after lung transplantation
-
PID: 23004565
-
DeVito Dabbs, A., et al. (2013). Quality of recipient–caregiver relationship and psychological distress are correlates of self-care agency after lung transplantation. Clinical Transplantation,27(1), 113–120.
-
(2013)
Clinical Transplantation
, vol.27
, Issue.1
, pp. 113-120
-
-
DeVito Dabbs, A.1
-
33
-
-
38549120658
-
Adherence to the medical regimen during the first two years after lung transplantation
-
PID: 18212623
-
Dew, M. A., et al. (2008). Adherence to the medical regimen during the first two years after lung transplantation. Transplantation,85(2), 193–202.
-
(2008)
Transplantation
, vol.85
, Issue.2
, pp. 193-202
-
-
Dew, M.A.1
-
34
-
-
84870501455
-
Predictors and outcomes of health-related quality of life in caregivers of cardiothoracic transplant recipients
-
COI: 1:STN:280:DC%2BC38bltFWnuw%3D%3D, PID: 22958758
-
Myaskovsky, L., et al. (2012). Predictors and outcomes of health-related quality of life in caregivers of cardiothoracic transplant recipients. American Journal of Transplantation,12(12), 3387–3397.
-
(2012)
American Journal of Transplantation
, vol.12
, Issue.12
, pp. 3387-3397
-
-
Myaskovsky, L.1
-
35
-
-
78649958699
-
Insurance status is an independent predictor of long-term survival after lung transplantation in the United States
-
PID: 20869264
-
Allen, J. G., et al. (2011). Insurance status is an independent predictor of long-term survival after lung transplantation in the United States. Journal of Heart and Lung Transplantation,30(1), 45–53.
-
(2011)
Journal of Heart and Lung Transplantation
, vol.30
, Issue.1
, pp. 45-53
-
-
Allen, J.G.1
-
36
-
-
3042682710
-
Understanding the breast cancer experience of women: A qualitative study of African American, Asian American, Latina and Caucasian cancer survivors
-
PID: 15188447
-
Ashing-Giwa, K. T., et al. (2004). Understanding the breast cancer experience of women: A qualitative study of African American, Asian American, Latina and Caucasian cancer survivors. Psycho-Oncology,13(6), 408–428.
-
(2004)
Psycho-Oncology
, vol.13
, Issue.6
, pp. 408-428
-
-
Ashing-Giwa, K.T.1
-
37
-
-
0041379801
-
Measuring patients’ perceptions of the outcomes of treatment for early prostate cancer
-
PID: 12886172
-
Clark, J. A., et al. (2003). Measuring patients’ perceptions of the outcomes of treatment for early prostate cancer. Medical Care,41(8), 923–936.
-
(2003)
Medical Care
, vol.41
, Issue.8
, pp. 923-936
-
-
Clark, J.A.1
-
38
-
-
0020699588
-
On the receiving end—Patient perception of the side-effects of cancer chemotherapy
-
COI: 1:STN:280:DyaL3s7jtFyitw%3D%3D, PID: 6681766
-
Coates, A., et al. (1983). On the receiving end—Patient perception of the side-effects of cancer chemotherapy. European Journal of Cancer and Clinical Oncology,19(2), 203–208.
-
(1983)
European Journal of Cancer and Clinical Oncology
, vol.19
, Issue.2
, pp. 203-208
-
-
Coates, A.1
-
39
-
-
84905254868
-
Recommended patient-reported core set of symptoms to measure in adult cancer treatment trials
-
Reeve, B. B. et al. (2014). Recommended patient-reported core set of symptoms to measure in adult cancer treatment trials. Journal of the National Cancer Institute, 106(7), 1−8.
-
(2014)
Journal of the National Cancer Institute
, vol.106
, Issue.7
, pp. 0-1
-
-
Reeve, B.B.1
-
40
-
-
0642347610
-
Cognitive function, fatigue, and menopausal symptoms in women receiving adjuvant chemotherapy for breast cancer
-
PID: 14615445
-
Tchen, N., et al. (2003). Cognitive function, fatigue, and menopausal symptoms in women receiving adjuvant chemotherapy for breast cancer. Journal of Clinical Oncology,21(22), 4175–4183.
-
(2003)
Journal of Clinical Oncology
, vol.21
, Issue.22
, pp. 4175-4183
-
-
Tchen, N.1
-
41
-
-
0031895298
-
Life after breast cancer: Understanding women’s health-related quality of life and sexual functioning
-
COI: 1:STN:280:DyaK1c7ivFagtA%3D%3D, PID: 9469334
-
Ganz, P. A., et al. (1998). Life after breast cancer: Understanding women’s health-related quality of life and sexual functioning. Journal of Clinical Oncology,16(2), 501–514.
-
(1998)
Journal of Clinical Oncology
, vol.16
, Issue.2
, pp. 501-514
-
-
Ganz, P.A.1
-
42
-
-
33745501826
-
International guidelines for the selection of lung transplant candidates: 2006 update—A consensus report from the Pulmonary Scientific Council of the International Society for Heart and Lung Transplantation
-
PID: 16818116
-
Orens, J. B., et al. (2006). International guidelines for the selection of lung transplant candidates: 2006 update—A consensus report from the Pulmonary Scientific Council of the International Society for Heart and Lung Transplantation. Journal of Heart and Lung Transplantation,25(7), 745–755.
-
(2006)
Journal of Heart and Lung Transplantation
, vol.25
, Issue.7
, pp. 745-755
-
-
Orens, J.B.1
-
43
-
-
33645685224
-
Development of the new lung allocation system in the United States
-
COI: 1:STN:280:DC%2BD283gslWlug%3D%3D, PID: 16613597
-
Egan, T. M., et al. (2006). Development of the new lung allocation system in the United States. American Journal of Transplantation,6(5 Pt 2), 1212–1227.
-
(2006)
American Journal of Transplantation
, vol.6
, Issue.5
, pp. 1212-1227
-
-
Egan, T.M.1
-
44
-
-
0035845256
-
Qualitative research: Standards, challenges, and guidelines
-
COI: 1:STN:280:DC%2BD3MvmvVWiug%3D%3D
-
Malterud, K. (2001). Qualitative research: Standards, challenges, and guidelines. The Lancet,358(9280), 483–488.
-
(2001)
The Lancet
, vol.358
, Issue.9280
, pp. 483-488
-
-
Malterud, K.1
-
45
-
-
6344253018
-
Defining patient-reported outcomes
-
PID: 15367236
-
Doward, L. C., & McKenna, S. P. (2004). Defining patient-reported outcomes. Value in Health,7(Suppl 1), S4–S8.
-
(2004)
Value in Health
, vol.7
, pp. 4-8
-
-
Doward, L.C.1
McKenna, S.P.2
-
46
-
-
80655144381
-
BODE index and quality of life in advanced chronic obstructive pulmonary disease before and after lung transplantation
-
Eskander, A. et al. (2011). BODE index and quality of life in advanced chronic obstructive pulmonary disease before and after lung transplantation. The Journal of Heart and Lung Transplantation, 30(12), 1334–1341.
-
(2011)
The Journal of Heart and Lung Transplantation
, vol.30
, Issue.12
, pp. 1334-1341
-
-
Eskander, A.1
-
47
-
-
80052912386
-
Assessing survival benefits from lung transplantation
-
COI: 1:STN:280:DC%2BC3MnmvFymsA%3D%3D, PID: 21742227
-
Thabut, G., & Fournier, M. (2011). Assessing survival benefits from lung transplantation. Revue des Maladies Respiratoires,28(6), e1–e6.
-
(2011)
Revue des Maladies Respiratoires
, vol.28
, Issue.6
, pp. 1-6
-
-
Thabut, G.1
Fournier, M.2
-
48
-
-
67649657517
-
Lung transplantation outcomes: the importance and inadequacies of assessing survival
-
COI: 1:STN:280:DC%2BD1Mrjs1yktQ%3D%3D, PID: 19656141
-
Yusen, R. D. (2009). Lung transplantation outcomes: the importance and inadequacies of assessing survival. American Journal of Transplantation,9(7), 1493–1494.
-
(2009)
American Journal of Transplantation
, vol.9
, Issue.7
, pp. 1493-1494
-
-
Yusen, R.D.1
-
49
-
-
67749119775
-
Integrating health status and survival data: The palliative effect of lung volume reduction surgery
-
PID: 19483114
-
Benzo, R., et al. (2009). Integrating health status and survival data: The palliative effect of lung volume reduction surgery. American Journal of Respiratory and Critical Care Medicine,180(3), 239–246.
-
(2009)
American Journal of Respiratory and Critical Care Medicine
, vol.180
, Issue.3
, pp. 239-246
-
-
Benzo, R.1
-
50
-
-
79959945477
-
Qualitative interviews vs standardized self-report questionnaires in assessing quality of life in heart transplant recipients
-
PID: 21531580
-
Abbey, S. E., et al. (2011). Qualitative interviews vs standardized self-report questionnaires in assessing quality of life in heart transplant recipients. Journal of Heart and Lung Transplantation,30(8), 963–966.
-
(2011)
Journal of Heart and Lung Transplantation
, vol.30
, Issue.8
, pp. 963-966
-
-
Abbey, S.E.1
-
51
-
-
84863634388
-
Content validity of patient-reported outcome measures: Perspectives from a PROMIS meeting
-
PID: 21866374
-
Magasi, S., et al. (2012). Content validity of patient-reported outcome measures: Perspectives from a PROMIS meeting. Quality of Life Research,21(5), 739–746.
-
(2012)
Quality of Life Research
, vol.21
, Issue.5
, pp. 739-746
-
-
Magasi, S.1
-
52
-
-
37749041179
-
OMERACT: An international initiative to improve outcome measurement in rheumatology
-
PID: 18039364
-
Tugwell, P., et al. (2007). OMERACT: An international initiative to improve outcome measurement in rheumatology. Trials,8, 38.
-
(2007)
Trials
, vol.8
, pp. 38
-
-
Tugwell, P.1
-
53
-
-
68349130317
-
Evaluation of a hand-held, computer-based intervention to promote early self-care behaviors after lung transplant
-
PID: 19473201
-
DeVito Dabbs, A., et al. (2009). Evaluation of a hand-held, computer-based intervention to promote early self-care behaviors after lung transplant. Clinical Transplantation,23(4), 537–545.
-
(2009)
Clinical Transplantation
, vol.23
, Issue.4
, pp. 537-545
-
-
DeVito Dabbs, A.1
-
54
-
-
84861813911
-
Exercise training after lung transplantation improves participation in daily activity: A randomized controlled trial
-
COI: 1:STN:280:DC%2BC38vlsVajsg%3D%3D, PID: 22390625
-
Langer, D., et al. (2012). Exercise training after lung transplantation improves participation in daily activity: A randomized controlled trial. American Journal of Transplantation,12(6), 1584–1592.
-
(2012)
American Journal of Transplantation
, vol.12
, Issue.6
, pp. 1584-1592
-
-
Langer, D.1
-
56
-
-
34247203095
-
Failing to plan is planning to fail: improving the quality of care with survivorship care plans
-
PID: 17093272
-
Earle, C. C. (2006). Failing to plan is planning to fail: improving the quality of care with survivorship care plans. Journal of Clinical Oncology,24(32), 5112–5116.
-
(2006)
Journal of Clinical Oncology
, vol.24
, Issue.32
, pp. 5112-5116
-
-
Earle, C.C.1
|