Specific standards of care for adults with intellectual disabilities

Nursing Management

Volumn 22, Issue 1, 2015, Pages 32-37

  Fries, Tanya ^a   Ailey, Sarah ^a  

^a RUSH UNIVERSITY COLLEGE OF NURSING   (United States)

Author keywords

Communication; Developmental disabilities; Intellectual disabilities; Nursing care plans; Standards of care

Indexed keywords

ADULT; AGED; FEMALE; HEALTH CARE QUALITY; HUMAN; INTELLECTUAL IMPAIRMENT; INTERPERSONAL COMMUNICATION; MALE; MIDDLE AGED; NURSE PATIENT RELATIONSHIP; NURSING; NURSING CARE; PATIENT SAFETY; PRACTICE GUIDELINE; QUESTIONNAIRE; STANDARDS; UNITED STATES; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; COMMUNICATION; FEMALE; GUIDELINES AS TOPIC; HUMANS; INTELLECTUAL DISABILITY; MALE; MIDDLE AGED; MIDWESTERN UNITED STATES; NURSE-PATIENT RELATIONS; NURSING CARE; PATIENT SAFETY; QUESTIONNAIRES; STANDARD OF CARE;

EID: 84930064661     PISSN: 13545760     EISSN: 20478976     Source Type: Trade Journal    
DOI: 10.7748/nm.22.1.32.e1296     Document Type: Article

References (38)

1. Agency for Healthcare Research and Quality (2013) Comprehensive Program to Support Patients and Staff Improves Hospital Experience for Adult Patients with Intellectual and Developmental Disabilities. tinyurl.com/qj96vrw (Last accessed: March 5 2015.)
2. Ailey SH, Hart R (2010) A hospital program for working with adult clients with intellectual and developmental disabilities. Intellectual and Developmental Disabilities. 48, 145-147.
3. Ailey SH, Johnson T, Fogg L et al (2014a) Factors related to complications among adult patients with intellectual disabilities at an academic medical center. Intellectual and Developmental Disabilities. In press.
4. Ailey SH, Johnson T, Fogg L et al (2014b) Hospitalizations of adults with intellectual disability in academic medical centers. Intellectual and Developmental Disabilities. 52, 3, 187-192.
5. Ailey SH, Lamb K, Friese T et al (2015) Educating nursing students in clinical leadership. Nursing Management. 21, 9, 23-28.
6. American Nurses Credentialing Center (2008) Magnet Recognition Program: Application Manual 2008. ANCC, Silver Spring MD.
7. Backer C, Chapman M, Mitchell D (2009) Access to secondary healthcare for people with intellectual disabilities: a review of the literature. Journal of Applied Research in Intellectual Disabilities. 22, 6, 514-525.
8. Balogh R, Brownwell M, Ouellette-Kuntz H et al (2010) Hospitalization rates for ambulatory sensitive conditions for persons with and without an intellectual disability: a population perspective. Journal of Intellectual Disability Research. 54, 9, 820-832.
9. Balogh RS, Hunter D, Ouellette-Kuntz H (2005) Hospital utilization among persons with an intellectual disability: Ontario, Canada, 1995-2001. Journal of Applied Research in Intellectual Disabilities. 18, 181-190.
10. Clark J, Gates B (2006) Care planning and delivery for people with profound intellectual disabilities and complex needs. In Gates B (Ed) Care Planning and Delivery in Intellectual Disability Nursing. Blackwell Publishing, Oxford.
11. Coughlin J (2010) Estimating the impact of caregiving and employment on well-being. Outcomes and Insights in Health Management. 2, 1.
12. Eley DS, Boyes J, Young L et al (2009) Accommodation needs for carers of and adults with intellectual disability in regional Australia: their hope for and perceptions of the future. Rural and Remote Health. 9, 3, 1239.
13. Gates B, Barr O (Eds) (2009) Oxford Handbook of Learning and Intellectual Disability Nursing. Oxford University Press, Oxford.
14. Glover G, Evison F (2013) Hospital admissions that should not happen: admissions for ambulatory care sensitive conditions for people with learning disabilities in England. Improving Health and Lives Learning Disabilities Observatory. tinyurl.com/m5syabd (Last accessed: March 5 2015.)
15. HealthIT.gov (2014) How Can I Use My Electronic Health Record to Improve Quality? tinyurl.com/p6vxxrt (Last accessed: March 5 2015.)
16. Iacono T, Bigby C, Unsworth C et al (2014) A systematic review of hospital experiences of people with intellectual disability. BMC Health Services Research. 14, 505.
17. Institute for Healthcare Improvement (2003) IHI's Collaborative Model for Achieving Breakthrough Improvement. IHI, Boston MA.
18. Institute for Healthcare Improvement (2009) Effective Interventions to Reduce Rehospitalizations: A Survey of the Published Evidence. tinyurl.com/nljy5xh (Last accessed: March 5 2015.)
19. Jess G, Torr J, Cooper SA et al (2008) Specialist versus generic models of psychiatry training and service provision for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities. 21, 183-193.
20. Joint Commission (2010) Advancing Effective Communication, Cultural Competence, and Patient- and Family- Centered Care: A Roadmap for Hospitals. Joint Commission, Oakbrook Terrace IL.
21. Kevan F (2003) Challenging behaviour and communication difficulties. British Journal of Learning Disabilities. 31, 75-80.
22. Krahn G, Hammond L, Turner A (2006) A cascade of disparities: health and health care access for people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research. 12, 1, 70-82.
23. Lovell IC (2011) Understanding and working with challenging behavior. Learning Disability Practice. 14, 2, 32-38.
24. Mansell JL (2007) Services for People with Learning Disabilities and Challenging Behaviour or Mental Health Needs: Report of a Project Group. tinyurl.com/myqtslr (Last accessed: March 5 2015.)
25. McCallion P, Nickle T (2008) Individuals with developmental disabilities and their caregivers. Journal of Gerontological Social Work. 50, 245-266.
26. Mencap (2007) Death by Indifference. www. mencap.org.uk/deathbyindifference (Last accessed: March 5 2015.)
27. Mencap (2012) Out of Sight: Stopping the Neglect and Abuse of People with a Learning Disability. tinyurl.com/mbavzn3 (Last accessed: March 5 2015.)
28. National Council on Disability (2009) The Current State of Health Care for People with Disabilities. tinyurl.com/k5luexs (Last accessed: March 5 2015.)
29. O'Hara J (2006) Standards and quality measures for services for people with intellectual disabilities. Current Opinion in Psychiatry. 19, 5, 497-501.
30. Petry K, Maes B, Vlaskamp C (2005) Domains of quality of life of people with profound multiple disabilities: the perspective of parents and direct support staff. Journal of Applied Research in Intellectual Disabilities. 18, 35-46.
31. Ramanujam R, Keyser DJ, Sirio CA (2005) Making a case for organizational change in patient safety initiatives. In Henriksen K, Battles JB, Marks ES et al (Eds) Advances in Patient Safety: From Research to Implementation. Agency for Healthcare Research and Quality, Rockville MD.
32. Schulz R, Sherwood PR (2008) Physical and mental health effects of family caregiving. American Journal of Nursing. 108. Suppl. 9, 23-27.
33. Sowney M, Barr OG (2006) Caring for adults with intellectual disabilities: perceived challenges for nurses in accident and emergency units. Journal of Advanced Nursing. 55, 1, 36-45.
34. Tinglin CC (2013) Adults with intellectual and developmental disabilities: a unique population. Today's Geriatric Medicine. 6, 3, 22.
35. US Department of Health and Human Services (2002) Closing the Gap: A National Blueprint for Improving the Health of Persons with Mental Retardation. Report of the Surgeon General's Conference on Health Disparities and Mental Retardation. Office of the Surgeon General, USDHHS, Washington DC.
36. US Department of Health and Human Services, Centers for Disease Control and Prevention, Office of the Director et al (2005) Introduction to Program Evaluation for Public Health Programs: A Self-study Guide. Centers for Disease Control and Prevention, Atlanta GA.
37. Vanderbilt University (2010) Nursing Quality and Performance Improvement Plan. tinyurl. com/n9vkpax (Last accessed: March 5 2015.)
38. Wood D (2011) Nurses driving performance improvement initiatives. Healthcare News. tinyurl.com/lzj4ndk (Last accessed: March 5 2015.)