Range of outcomes and challenges in middle and later life

Adolescents and Adults with Autism Spectrum Disorders

Volumn , Issue , 2014, Pages 211-238

  Farley, Megan ^a   McMahon, Bill ^b  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84930028499     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1007/978-1-4939-0506-5_11     Document Type: Chapter

References (63)

1. Allen, D., Evans, C., Hider, A., Hawkins, S., Peckett, H., Morgan, H. (2008). Offending behaviour in adults with Asperger syndrome. Journal of Autism and Developmental Disorders, 38 (4), 748-758.
2. American Psychiatric Association. (1980). Diagnostic and statistical manual of mental disorders (3rd ed.). Washington, DC: Author.
3. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
4. Ballaban-Gil, K., Rapin, I., Tuchman, R., Shinnar, S. (1996). Longitudinal examination of behavioral language, and social changes in a population of adolescents and young adults with autistic disorder. Pediatric Neurology, 15 (3), 217-223.
5. Billstedt, E., Gillberg, C., Gillberg, C. (2005). Autism after adolescence: Population-based 13-to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35 (3), 351-360.
6. Broderick, A. A., Ne'eman, A. (2008). Autism as metaphor: Narrative and counter-narrative. International Journal of Inclusive Education, 12 (5/6), 459-476. doi: 10.1080/13603110802377490.
7. Brugha, T. S., McManus, S., Bankart, J., Purdon, S., Smith, J., Bebbington, P., et al. (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archives of General Psychiatry, 68 (5), 459-466.
8. Cederlund, M., Hagberg, B., Billstedt, E., Gillberg, I. C., Gillberg, C. (2008). Asperger syndrome and autism: A comparative longitudinal follow-up study more than 5 years after original diagnosis. Journal of Autism and Developmental Disorders, 38 (1), 72-85.
9. Centers for Disease Control and Prevention. 2012 Prevalence of autism spectrum disorders-Autism and developmental disabilities monitoring network, 14 sites, United States 2008. Surveillance Summaries, 61 (3), 1-19.
10. Cimera, R. E., Cowan, R. J. (2009). The costs of services and employment outcomes achieved by adults with autism in the US [comparative study]. Autism, 13 (3), 285-302.
11. Crane, L., Goddard, L., Pring, L. (2009). Specifi c and general autobiographical knowledge in adults with autism spectrum disorders: The role of personal goals. Memory, 17 (5), 557-576.
12. Danielsson, S., Gillberg, I. C., Billstedt, E., Gillberg, C., Olsson, I. (2005). Epilepsy in young adults with autism: A prospective population-based follow-up study of 120 individuals diagnosed in childhood. Epilepsia, 46 (6), 918-923.
13. Eaves, L. C., Ho, H. (2008). Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38 (4), 739-747.
14. Engstrom, I., Ekstrom, L., Emilsson, B. (2003). Psychosocial functioning in a group of Swedish adults with Asperger syndrome or high-functioning autism. Autism, 7 (1), 99-110.
15. Esbensen, A. J., Greenberg, J. S., Seltzer, M. M., Aman, M. G. (2009). A longitudinal investigation of psychotropic and non-psychotropic medication use among adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 38 (9), 1339-1349.
16. Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research, 2 (2), 109-118. doi: 10.1002/aur.69. PubMed PMID: 19455645.
17. Fodstad, J. C., Matson, J. L. (2009). Issues in identifying the etiology of food refusal in young children. Journal of Pediatric Gastroenterology and Nutrition, 48 (3), 274-275.
18. Fombonne, E. (1999). The epidemiology of autism: A review. Psychological Medicine, 29 , 769-786.
19. Fombonne, E. (2012). Autism in adult life. Canadian Journal of Psychiatry, 57 (5), 273-274.
20. Ganz, M. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatric & Adolescent Medicine, 161 (4), 343-349.
21. Gerhardt, P. F. (2009). The current state of services for adults with autism with autism. New York: Organization for Autism Research.
22. Ghaziuddin, M., Weidmer-Mikhail, E., Ghaziuddin, N. (1998). Comorbidity of Asperger syndrome: A preliminary report. Journal of Intellectual Disability Research, 42 (4), 279-283.
23. Gillberg, C., Billstedt, E., Sundg, V., Gillberg, I. C. (2010). Mortality in autism: A prospective longitudinal community-based study. Journal of Autism and Developmental Disorders, 40 (3), 352-357.
24. Gillberg, C., Steffenburg, S. (1987). Outcome of prognostic factors in infantile autism and similar conditions: A population-based study of 46 cases followed through puberty. Journal of Autism and Developmental Disorders, 17 (2), 273-288.
25. Gillespie-Lynch, K., Sepeta, L., Wang, Y., Marshall, S., Gomez, L., Sigman, M., et al. (2012). Early childhood predictors of the social competence of adults with autism. Journal of Autism and Developmental Disorders, 42 (2), 161-174.
26. Gonzales, N. M., Murray, A., Shay, J., Campbell, M., Small, A. M. (1993). Autistic children at follow-up: Change of diagnosis. Psychopharmacology Bulletin, 29 (3), 353-358.
27. Gotham, K., Bishop, S. L., Lord, C. (2011). Diagnosis of autism spectrum disorders. In D. G. Amaral, G. Dawson, & D. H. Geschwind (Eds.), Autism spectrum disorders (pp. 30-43). New York: Oxford University Press.
28. Happe, F., Charlton, R. A. (2012). Aging in autism spectrum disorders: A mini-review. Gerontology, 58 (1), 70-78.
29. Hofvander, B., Delorme, R., Chaste, P., Nyden, A., Wentz, E., Stahlberg, O., et al. (2009). Psychiatric and psychosocial problems in adults with normal-intelligence autism spectrum disorders. BMC Psychiatry, 9 (35), 1-9.
30. Howlin, P. (2002). Autistic disorders. In P. Howlin & O. Udwin (Eds.), Outcomes in neurodevelopmental and genetic disorders (pp. 136-168). New York: Cambridge University Press.
31. Howlin, P. (2003). Outcome in high-functioning adults with autism with and without early language delays: Implications for the differentiation between autism and Asperger syndrome. Journal of Autism and Developmental Disorders, 33 (1), 3-13.
32. Howlin, P., Goode, S., Hutton, J., Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45 (2), 212-229.
33. Howlin, P., Mawhood, L., Rutter, M. (2000). Autism and developmental receptive language disorder-A follow-up comparison in early adult life. II: Social behavioural, and psychiatric outcomes. Journal of Child Psychology & Psychiatry & Allied Disciplines, 41 (5), 561-578.
34. Isager, T., Mouridsen, S. E., Rich, B. (1999). Mortality and causes of death in pervasive developmental disorders. Autism, 3 (1), 7-16.
35. Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2 , 217-250.
36. Kanner, L. (1971). Follow-up study of eleven autistic children originally reported in 1943. Journal of Autism and Childhood Schizophrenia, 1 (2), 119-145.
37. Kern, J. K., Trivedi, M. H., Grannemann, B. D., Garver, C. R., Johnson, D. G., Andrews, A. A., et al. (2007). Sensory correlations in autism. Autism, 11 (2), 123-134.
38. Kobayashi, R., Murata, T., Yoshinaga, K. (1992). A follow-up study of 201 children with autism in Kyushu and Yamaguchi areas, Japan. Journal of Autism and Developmental Disorders, 22 (3), 395-411.
39. Krauss, M. W., Seltzer, M. M., Jacobson, H. T. (2005). Adults with autism living at home or in non-family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research, 49 (2), 111-124.
40. Lai, M. C., Lombardo, M. V., Pasco, G., Ruigrok, A. N. V., Wheelwright, S. J., Sadek, S. A., et al. (2011). A behavioral comparison of male and female adults with high functioning autism spectrum conditions. PLoS One, 6 (6), e20835.
41. Lotter, V. (1974). Social adjustment and placement of autistic children in Middlesex: A follow up study. Journal of Autism and Childhood Schizophrenia, 4 (1), 11-32.
42. Lotter, V. (1978). Follow-up studies. In M. Rutter & E. Schopler (Eds.), Autism: A reappraisal of consents and treatment. New York: Plenum Press.
43. Marriage, S., Wolverton, A., Marriage, S. (2009). Autism spectrum disorder grown up: A chart review of adult functioning. Journal of the Canadian Academy of Child and Adolescent Psychiatry, 18 (4), 322-328.
44. Mazefsky, C. A., Folstein, S. E., Lainhart, J. E. (2008). Overrepresentation of mood and anxiety disorders in adults with autism and their fi rst-degree relatives: What does it mean? Autism, 1 (3), 193-197. doi: 10.1002/aur.23.
45. McGovern, C. W., Sigman, M. (2005). Continuity and change from early childhood to adolescence in autism. Journal of Child Psychology and Psychiatry, 46 (4), 401-408.
46. Mukaetova-Ladinska, E. B., Perry, E. E., Baron, M. M., Povey, C. C. (2012). Ageing in people with autistic spectrum disorder. International Journal of Geriatric Psychiatry, 27 (2), 109-118.doi: 10.1002/gps.2711.
47. Orsmond, G. I., Krauss, M. W., Seltzer, M. M. (2004). Peer relationships and social and recreational activities among adolescents and adults with autism. Journal of Autism and Developmental Disorders, 34 (3), 245-256.
48. Pickett, D. R., Shavelle, R. M., Strauss, D. J. (2006). 1998-2002 update on causes of death in autism [letter]. Journal of Autism and Developmental Disorders, 36 (2), 659-685.
49. Piven, J., Harper, J., Palmer, P., Arndt, S. (1996). Course of behavioral change in autism: A retrospective study of high-IQ adolescents and adults. Journal of the American Academy of Child and Adolescent Psychiatry, 35 (4), 523-529.
50. Ritvo, R., Ritvo, E. R., Guthrie, D., Yuwiler, A., Ritvo, M., Weisbender, L. (2008). A scale to assist the diagnosis of autism and Asperger's disorder in adults (RAADS): A pilot study. Journal of Autism and Developmental Disorders, 38 (2), 213-223. doi: 10.1007/s10803-007-0380-6.
51. Rumsey, J. M., Rapoport, J. L., Sceery, W. R. (1985). Autistic children as adults: Psychiatric, social, and behavioral outcomes. Journal of the American Academy of Child and Adolescent Psychiatry, 24 (4), 465-473.
52. Rutter, M., Greenfeld, D., Lockyer, L. (1967). A fi ve to fi fteen year follow-up study of infantile psychosis. II. Social and behavioural outcome. British Journal of Psychiatry, 113, 1183-1199.
53. Rutter, M., Lockyer, L. (1967). A fi ve to fi fteen year follow-up study of infantile psychosis. I. Description of sample. British Journal of Psychiatry, 113 (504), 1169-1182. PubMed PMID: 6075451.
54. Saemundsen, E., Juliusson, H., Hjaltested, S., Gunnarsdottir, T., Halldorsdottir, T., Hreidarsson, S., et al. (2010). Prevalence of autism in an urban population of adults with severe intellectual disabilities-A preliminary study. Journal of Intellectual Disability Research, 54 (Pt. 8), 727-735.
55. Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders, 33 (6), 565-581.
56. Seltzer, M. M., Shattuck, P., Abbeduto, L., Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation & Developmental Disabilities Research Reviews, 10 (4), 234-247.
57. Shattuck, P., Seltzer, M., Greenberg, J., Orsmond, G., Bolt, D., Kring, S., et al. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37 (9), 1737-1747.
58. Shavelle, R. M., Strauss, D. (1998). Comparative morality of persons with autism in California, 1980-1996. Journal of Insurance Medicine, 30 (4), 220-225.
59. Shavelle, R., Strauss, D. J., Pickett, J. (2001). Causes of death in autism. Journal of Autism and Developmental Disorders, 31 (6), 569-576.
60. Szatmari, P., Bartolucci, G., Brenner, R., Bomd, S., Rich, S. (1989). A follow-up study of highfunctioning autistic children. Journal of Autism and Developmental Disorders, 19 (2), 213-225.
61. Tsakanikos, E., Underwood, L., Kravariti, E., Bouras, N., McCarthy, J. (2011). Gender differences in co-morbid psychopathology and clinical management in adults with autism spectrum disorders. Research in Autism Spectrum Disorders, 5 (2), 803-808.
62. Venter, A., Lord, C., Schopler, E. (1992). A follow-up study of high-functioning autistic children. Journal of Child Psychology & Psychiatry & Allied Disciplines, 33 (3), 489-507.
63. Woodbury-Smith, M. R., Robinson, J. J., Wheelwright, S. S., Baron-Cohen, S. S. (2005). Screening adults for Asperger syndrome using the AQ: A preliminary study of its diagnostic validity in clinical practice. Journal of Autism and Developmental Disorders, 35 (3), 331-335. doi: 10.1007/s10803-005-3300-7.