-
1
-
-
27644488152
-
The multidisciplinary management of Duchenne muscular dystrophy
-
Bushby K, Bourke J, Bullock R, Eagle M, Gibson M, Quinby J. The multidisciplinary management of Duchenne muscular dystrophy. Current Paediatrics 2005; 15: 292-300.
-
(2005)
Current Paediatrics
, vol.15
, pp. 292-300
-
-
Bushby, K.1
Bourke, J.2
Bullock, R.3
Eagle, M.4
Gibson, M.5
Quinby, J.6
-
2
-
-
61549103435
-
Disability and survival in Duchenne muscular dystrophy
-
Kohler M, Clarenbach CF, Bahler C, Brack T, Russi EW, Bloch KE. Disability and survival in Duchenne muscular dystrophy. J Neurol Neurosurg Psychiatry 2009; 80: 320-325.
-
(2009)
J Neurol Neurosurg Psychiatry
, vol.80
, pp. 320-325
-
-
Kohler, M.1
Clarenbach, C.F.2
Bahler, C.3
Brack, T.4
Russi, E.W.5
Bloch, K.E.6
-
3
-
-
84869164525
-
Survival in Duchenne muscular dystrophy
-
Rall S, Grimm T. Survival in Duchenne muscular dystrophy. Acta Myol 2012; 31: 117-120.
-
(2012)
Acta Myol
, vol.31
, pp. 117-120
-
-
Rall, S.1
Grimm, T.2
-
4
-
-
84869160655
-
Improvement of survival in Duchenne Muscular Dystrophy: Retrospective analysis of 835 patients
-
Passamano L, Taglia A, Palladino A, Viggiano E, D'Ambrosio P, Scutifero M, et al. Improvement of survival in Duchenne Muscular Dystrophy: retrospective analysis of 835 patients. Acta Myol 2012; 31: 121-125.
-
(2012)
Acta Myol
, vol.31
, pp. 121-125
-
-
Passamano, L.1
Taglia, A.2
Palladino, A.3
Viggiano, E.4
D'Ambrosio, P.5
Scutifero, M.6
-
5
-
-
79956046546
-
Therapeutic approaches to muscular dystrophy
-
Goyenvalle A, Seto JT, Davies KE, Chamberlan J. Therapeutic approaches to muscular dystrophy. Hum Mol Genet 2011; 20 (R1): R69-R78.
-
(2011)
Hum Mol Genet
, vol.20
, Issue.R1
, pp. R69-R78
-
-
Goyenvalle, A.1
Seto, J.T.2
Davies, K.E.3
Chamberlan, J.4
-
6
-
-
67449094466
-
Experimental therapy in Duchenne muscular dystrophy
-
van den Bergen JC, Straathof CS, Aartsma-Rus A, Ginjaar IB, Verschuuren JJ. Experimental therapy in Duchenne muscular dystrophy. Ned Tijdschr Geneesk 2009; 153: 870-875.
-
(2009)
Ned Tijdschr Geneesk
, vol.153
, pp. 870-875
-
-
Van Den Bergen, J.C.1
Straathof, C.S.2
Aartsma-Rus, A.3
Ginjaar, I.B.4
Verschuuren, J.J.5
-
7
-
-
0035092299
-
Long-term ventilation for patients with Duchenne Muscular Dystrophy: Physician's beliefs and practices
-
Gibson B. Long-term ventilation for patients with Duchenne Muscular Dystrophy: Physician's beliefs and practices. Chest 2001; 119: 940-946.
-
(2001)
Chest
, vol.119
, pp. 940-946
-
-
Gibson, B.1
-
8
-
-
0025835096
-
Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
-
Bach JR, Campagnolo DI, Hoeman S. Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support. Am J Phys Med Rehabil 1991; 70: 129-135.
-
(1991)
Am J Phys Med Rehabil
, vol.70
, pp. 129-135
-
-
Bach, J.R.1
Campagnolo, D.I.2
Hoeman, S.3
-
9
-
-
12344314856
-
Adult life with Duchenne muscular dystrophy: Observations among an emerging and unforeseen patient population
-
Rahbek J, Werge B, Madsen A, Marquardt J, Steffensen BF, Jeppesen J. Adult life with Duchenne muscular dystrophy: observations among an emerging and unforeseen patient population. Pediatr Rehabil 2005; 8: 17-28.
-
(2005)
Pediatr Rehabil
, vol.8
, pp. 17-28
-
-
Rahbek, J.1
Werge, B.2
Madsen, A.3
Marquardt, J.4
Steffensen, B.F.5
Jeppesen, J.6
-
10
-
-
26944476254
-
Quality of life, physical disability, and respiratory impairment in Duchenne muscular dystrophy
-
Kohler M, Clarenbach CF, Böni L, Brack T, Russi EW, Bloch KE. Quality of life, physical disability, and respiratory impairment in Duchenne muscular dystrophy. Am J Respir Crit Care Med 2005; 172: 1032-1036.
-
(2005)
Am J Respir Crit Care Med
, vol.172
, pp. 1032-1036
-
-
Kohler, M.1
Clarenbach, C.F.2
Böni, L.3
Brack, T.4
Russi, E.W.5
Bloch, K.E.6
-
11
-
-
35148841682
-
Evaluation of the quality of life of children with Duchenne's progressive muscular dystrophy
-
Longo-Araujo de Melo E, Moreno-Valdes MT. Evaluation of the quality of life of children with Duchenne's progressive muscular dystrophy. Rev Neurol 2007; 45: 81-87.
-
(2007)
Rev Neurol
, vol.45
, pp. 81-87
-
-
Longo-Araujo De Melo, E.1
Moreno-Valdes, M.T.2
-
12
-
-
79952340717
-
Duchenne muscular dystrophy: Quality of life among 95 patients evaluated using the Life Satisfaction Index for Adolescents
-
Simon VA, Resende MB, Simon MA, Zanoteli E, Reed UC. Duchenne muscular dystrophy: quality of life among 95 patients evaluated using the Life Satisfaction Index for Adolescents. Arq Neuropsiquiqtr 2011; 69: 19-22.
-
(2011)
Arq Neuropsiquiqtr
, vol.69
, pp. 19-22
-
-
Simon, V.A.1
Resende, M.B.2
Simon, M.A.3
Zanoteli, E.4
Reed, U.C.5
-
13
-
-
77949442788
-
The PedsQL in pediatric patients with Duchenne muscular dystrophy: Feasibility, reliability and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales
-
Davis SE, Hynan LS, Limbers CA, Andersen CM, Greene MC, Varni JW, et al. The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales. J Clin Neuromuscul Dis 2010; 11: 97-109.
-
(2010)
J Clin Neuromuscul Dis
, vol.11
, pp. 97-109
-
-
Davis, S.E.1
Hynan, L.S.2
Limbers, C.A.3
Andersen, C.M.4
Greene, M.C.5
Varni, J.W.6
-
14
-
-
77956314050
-
Relationship between clinical outcome measures and parent proxy report of health-related quality of life in ambulatory children with Duchenne muscular dystrophy
-
McDonald CM, MacDonald DA, Bagley A, Sienko Thomas S, Buckon CE, et al. Relationship between clinical outcome measures and parent proxy report of health-related quality of life in ambulatory children with Duchenne muscular dystrophy. J Child Neurol 2010; 9: 1130-1134.
-
(2010)
J Child Neurol
, vol.9
, pp. 1130-1134
-
-
McDonald, C.M.1
MacDonald, D.A.2
Bagley, A.3
Sienko Thomas, S.4
Buckon, C.E.5
-
15
-
-
79957609976
-
Qualilty of life in Duchenne muscular dystrophy: The subjective impact on children and parents
-
Baiardini I, Minetti C, Bonifacino S, Porcu A, Klersy C, Petralia P, et al. Qualilty of life in Duchenne muscular dystrophy: the subjective impact on children and parents. J Child Neurol 2011; 26: 707-713.
-
(2011)
J Child Neurol
, vol.26
, pp. 707-713
-
-
Baiardini, I.1
Minetti, C.2
Bonifacino, S.3
Porcu, A.4
Klersy, C.5
Petralia, P.6
-
16
-
-
84870517916
-
Health related quality of life in children and adolescents with Duchenne muscular dystrophy
-
Uzark K, King E, Cripe L, Spicer R, Sage J, Kinnett K, et al. Health related quality of life in children and adolescents with Duchenne muscular dystrophy. Pediatrics 2012; 130: e1559-e1566.
-
(2012)
Pediatrics
, vol.130
, pp. e1559-e1566
-
-
Uzark, K.1
King, E.2
Cripe, L.3
Spicer, R.4
Sage, J.5
Kinnett, K.6
-
17
-
-
0023088356
-
Upper vs lower extremity functional loss in neuromuscular disease
-
Lord JP, Portwood MM, Fowler WM, Lieberman JS, Carson R. Upper vs lower extremity functional loss in neuromuscular disease. Arch Phys Med Rehabil 1987; 68: 8-9.
-
(1987)
Arch Phys Med Rehabil
, vol.68
, pp. 8-9
-
-
Lord, J.P.1
Portwood, M.M.2
Fowler, W.M.3
Lieberman, J.S.4
Carson, R.5
-
18
-
-
0032211654
-
Translation, validation and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations
-
Aaronson NK, Muller M, Cohen PD, Essink-Bot ML, Fekkes M, Sanderman R, et al. Translation, validation and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol 1998; 51: 1055-1068.
-
(1998)
J Clin Epidemiol
, vol.51
, pp. 1055-1068
-
-
Aaronson, N.K.1
Muller, M.2
Cohen, P.D.3
Essink-Bot, M.L.4
Fekkes, M.5
Sanderman, R.6
-
19
-
-
30744471410
-
Do the SF-36 and WHOQOL-BREF measure the same constructs? Evidence from the Taiwan population
-
Huang IC, Wu AW, Frangakis C. Do the SF-36 and WHOQOL-BREF measure the same constructs? Evidence from the Taiwan population. Qual Life Res 2006; 15: 15-24.
-
(2006)
Qual Life Res
, vol.15
, pp. 15-24
-
-
Huang, I.C.1
Wu, A.W.2
Frangakis, C.3
-
20
-
-
0031775905
-
Development of the World Health Organization WHOQOL-BREF quality of life assessment
-
The WHOQOL Group. Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychol Med 1998; 28: 551-558.
-
(1998)
Psychol Med
, vol.28
, pp. 551-558
-
-
-
21
-
-
33645087365
-
Quality of life and psychopathology: Investigations into their relationship
-
Masthoff ED, Trompenaars FJ, van Heck GL, Hodiamont PP, de Vries J. Quality of life and psychopathology: investigations into their relationship. Aust N Z J Psychiatry 2006; 40: 333-340.
-
(2006)
Aust N Z J Psychiatry
, vol.40
, pp. 333-340
-
-
Masthoff, E.D.1
Trompenaars, F.J.2
Van Heck, G.L.3
Hodiamont, P.P.4
De Vries, J.5
-
22
-
-
0028824086
-
The World Health Organization Quality of Life assessment (WHOQOL): Position paper from the World Health Organization
-
World Health Organization. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med 1995; 41: 1403-1409.
-
(1995)
Soc Sci Med
, vol.41
, pp. 1403-1409
-
-
World Health Organization1
-
23
-
-
77957989520
-
Health-related quality of life in boys with Duchenne muscular dystrophy: Agreement between parents and their sons
-
Bray P, Bundy AC, Ryan MM, North KN, Everett A. Health-related quality of life in boys with Duchenne muscular dystrophy: agreement between parents and their sons. J Child Neurol 2010; 25: 1188-1194.
-
(2010)
J Child Neurol
, vol.25
, pp. 1188-1194
-
-
Bray, P.1
Bundy, A.C.2
Ryan, M.M.3
North, K.N.4
Everett, A.5
-
24
-
-
0037388810
-
Individualization in quality of life measurement: Instruments and approaches
-
Dijkers MP. Individualization in quality of life measurement: instruments and approaches. Arch Phys Med Rehabil 2003; 84 Suppl 2: S3-S14.
-
(2003)
Arch Phys Med Rehabil
, vol.84
, pp. S3-S14
-
-
Dijkers, M.P.1
-
26
-
-
77956237333
-
Applications of response shift theory and methods to participation measurement: A brief history of a young field
-
Schwartz CE. Applications of response shift theory and methods to participation measurement: a brief history of a young field. Arch Phys Med Rehabil 2010; 91 Suppl 9: S38-S43.
-
(2010)
Arch Phys Med Rehabil
, vol.91
, pp. S38-S43
-
-
Schwartz, C.E.1
-
27
-
-
34347325986
-
Men on the margin: A Bourdieusian examination of living into adulthood with muscular dystrophy
-
Gibson BE, Young NL, Upshur RE, McKeever P. Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy. Soc Sci Med 2007; 65: 505-517.
-
(2007)
Soc Sci Med
, vol.65
, pp. 505-517
-
-
Gibson, B.E.1
Young, N.L.2
Upshur, R.E.3
McKeever, P.4
-
28
-
-
17344385922
-
Duchenne muscular dystrophy. See me graduate
-
Verberkt HJ. Duchenne muscular dystrophy. See me graduate. Lancet 2001; 358 Suppl: S26.
-
(2001)
Lancet
, vol.358
, pp. S26
-
-
Verberkt, H.J.1
-
29
-
-
33846288380
-
Current treatment of adult Duchenne muscular dystrophy
-
Wagner KR, Lechtzin N, Judge DP. Current treatment of adult Duchenne muscular dystrophy. Biochim Biophys Acta 2007; 1772: 229-237.
-
(2007)
Biochim Biophys Acta
, vol.1772
, pp. 229-237
-
-
Wagner, K.R.1
Lechtzin, N.2
Judge, D.P.3
-
30
-
-
33749264062
-
"My son is still walking": Stages of receptivity to discussions of advance care planning among parents of sons with Duchenne muscular dystrophy
-
Erby LH, Rushton C, Geller G. "My son is still walking": stages of receptivity to discussions of advance care planning among parents of sons with Duchenne muscular dystrophy. Semin Pediatr Neurol 2006; 13: 132-140.
-
(2006)
Semin Pediatr Neurol
, vol.13
, pp. 132-140
-
-
Erby, L.H.1
Rushton, C.2
Geller, G.3
-
31
-
-
84859641520
-
Transition to adulthood for young men with Duchenne muscular dystrophy: Research from the UK
-
Abbott D, Carpenter J, Bushby K. Transition to adulthood for young men with Duchenne muscular dystrophy: research from the UK. Neuromuscular Disord 2012; 22: 445-446.
-
(2012)
Neuromuscular Disord
, vol.22
, pp. 445-446
-
-
Abbott, D.1
Carpenter, J.2
Bushby, K.3
-
32
-
-
33947536564
-
Are persons with physical disabilities who participate in society healthier and happier? Structural equation modelling of objective participation and subjective well-being
-
van Campen C, Iedema J. Are persons with physical disabilities who participate in society healthier and happier? Structural equation modelling of objective participation and subjective well-being. Qual Life Res 2007: 16: 635-645.
-
(2007)
Qual Life Res
, vol.16
, pp. 635-645
-
-
Van Campen, C.1
Iedema, J.2
|