Patient and caregiver preferences for home dialysis-The home first study: A protocol for qualitative interviews and discrete choice experiments

BMJ Open

Volumn 5, Issue 4, 2015, Pages

  Walker, Rachael C ^a,b   Morton, Rachael L ^b,c   Tong, Allison ^b,d   Marshall, Mark R ^e,f,g   Palmer, Suetonia ^h   Howard, Kirsten ^b,i  

^a Hawke's Bay District Health Board   (New Zealand)

^b UNIVERSITY OF SYDNEY   (Australia)

^c UNIVERSITY OF OXFORD   (United Kingdom)

^d CHILDREN S HOSPITAL AT WESTMEAD   (Australia)

^e UNIVERSITY OF AUCKLAND   (New Zealand)

^f Division of Medicine Emergency and Integrated Care   (New Zealand)

^g Baxter Healthcare Asia Pacific   (China)

^h UNIVERSITY OF OTAGO   (New Zealand)

ⁱ UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAREGIVER; CHRONIC KIDNEY DISEASE; DISCRETE CHOICE EXPERIMENT; HEALTH CARE COST; HEALTH CARE POLICY; HOME DIALYSIS; HUMAN; MAJOR CLINICAL STUDY; METHODOLOGY; NEW ZEALAND; PATIENT DECISION MAKING; PATIENT PREFERENCE; QUALITATIVE RESEARCH; QUALITY OF LIFE; SEMI STRUCTURED INTERVIEW; SURVIVAL; ADULT; ATTITUDE TO HEALTH; DECISION MAKING; FEMALE; HEMODIALYSIS; MALE; PATIENT EDUCATION; PSYCHOLOGY;

ADULT; ATTITUDE TO HEALTH; CAREGIVERS; CHOICE BEHAVIOR; DECISION MAKING; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; NEW ZEALAND; PATIENT EDUCATION AS TOPIC; PATIENT PREFERENCE; QUALITATIVE RESEARCH; QUALITY OF LIFE; RENAL DIALYSIS;

EID: 84928233745     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2014-007405     Document Type: Article

References (45)

1. Grassmann A, Gioberge S, Moeller S, et al. ESRD patients in 2004: global overview of patient numbers, treatment modalities and associated trends. Nephrol Dial Transplant 2005;20:2587-93.
2. Nordio M, Limido A, Maggiore U, et al. Survival in patients treated by long-term dialysis compared with the general population. Am J Kidney Dis 2012;59:819-28.
3. Dale PL, Hutton J, Elgazzar H. Utility of health states in chronic kidney disease: a structured review of the literature. Curr Med Res Opin 2008;24:193-206.
4. USRDS Annual Data Report: International Comparisons. 2013. http://www.ajkd.org/issue/S0272-6386(13)X0014-9 (accessed 22 Jul 2014).
5. McDonald S, Clayton P, Hurst K. The Australia and New Zealand Dialysis and Transplant Registry. 35th Annual Report. Adelaide, Australia, 2012.
6. Registry: E-E. ERA-EDTA Registry Annual Report 2012. Amsterdam, The Netherlands: Academic Medical Center, Department of Medical Informatics, 2014.
7. Gilg JRA, Fogarty D. UK renal registry 16th annual report: chapter 1 UK renal replacement therapy incidence in 2012: national and centre-specific analyses. Nephron Clin Pract 2013;125:1-28.
8. Costs of ESRD. U.S. Renal Data System 2013 Report. http://www.usrds.org/2013/pdf/v2-ch11-13.pdf (accessed 22 Jul 2014).
9. Ashton T, Marshall MR. The organization and financing of dialysis and kidney transplantation services in New Zealand. Int J Health Care Finance Econ 2007;7:233-52.
10. Cass A. The Economic Impact of End-stage Kidney Disease in Australia: Projections to 2020. Report. Sydney, Australia: The George Institute for Global Health, 2010.
11. Manns BJ, Mendelssohn DC, Taub KJ. The economics of end-stage renal disease care in Canada: incentives and impact on delivery of care. Int J Health Care Finance Econ 2007;7:149-69.
12. Marshall MR, Hawley CM, Kerr PG, et al. Home hemodialysis and mortality risk in Australian and New Zealand populations. Am J Kidney Dis 2011;58:782-93.
13. Walker R, Marshall M, Morton RL, et al. The cost effectiveness of contemporary home haemodialysis modalities compared to facility haemodialysis: a systematic review of full economic evaluations. Nephrology 2014;19:459-70.
14. Wyld M, Morton RL, Hayen A, et al. A systematic review and meta-analysis of utility-based quality of life in chronic kidney disease treatments. PLoS Med 2012;9:e1001307.
15. NICE guideline TA48-Guidance on home compared with hospital haemodialysis for patients with end-stage renal failure. 2002 (5 August 2012). http://www.nice.org.uk/nicemedia/live/11472/32449/32449.pdf
16. Stanley M, CARI. The CARI guidelines. Peritoneal dialysis versus haemodialysis (adult). Nephrology (Carlton) 2010;15(Suppl 1):S24-31.
17. Briggs N, Hurst K, McDonald SP. Chapter 4: methods and location of dialysis. In: Hurst K, McDonald SP, eds. The 35th annual ANZDATA report 2012. Adelaide, South Australia: ANZDATA Registry, 2013:1-10.
18. Jain AK, Blake P, Cordy P, et al. Global trends in rates of peritoneal dialysis. J Am Soc Nephrol 2012;23:533-44.
19. Diaz-Buxo JA. Early referral and selection of peritoneal dialysis as a treatment modality. Nephrol Dial Transplant 2000;15:147-9.
20. Elizabeth JL, Hanna L, Walker D, et al. Pre-dialysis education and patient choice. J Ren Care 2006;32:214-20.
21. Goovaerts T, Jadoul M, Goffin E. Influence of a pre-dialysis education programme (PDEP) on the mode of renal replacement therapy. Nephrol Dial Transplant 2005;20:1842-7.
22. Goovaerts T, Jadoul M, Goffin E. Influence of a predialysis education program on the choice of renal replacement therapy. Am J Kidney Dis 2012;60:499.
23. Key SM. Optimizing dialysis modality choices around the world: a review of literature concerning the role of enhanced early pre-ESRD education in choice of renal replacement therapy modality. Nephrol Nurs J 2008;35:387-94; quiz 95.
24. Little J, Irwin A, Marshall T, et al. Predicting a patient's choice of dialysis modality: experience in a United Kingdom renal department. Am J Kidney Dis 2001;37:981-6.
25. Manns BJ, Taub K, Vanderstraeten C, et al. The impact of education on chronic kidney disease patients' plans to initiate dialysis with self-care dialysis: a randomized trial. Kidney Int 2005;68:1777-83.
26. Mehrotra R, Marsh D, Vonesh E, et al. Patient education and access of ESRD patients to renal replacement therapies beyond in-center hemodialysis. Kidney Int 2005;68:378-90.
27. Morton RL, Snelling P, Webster AC, et al. Factors influencing patient choice of dialysis versus conservative care to treat end-stage kidney disease. CMAJ 2012;184:E277-83.
28. Manns B, Hemmelgarn B, Lillie E, et al. Setting research priorities for patients on or nearing dialysis. Clin J Am Soc Nephrol 2014;9:1813-21.
29. Morton RL, Snelling P, Webster AC, et al. Dialysis modality preference of patients with CKD and family caregivers: a discrete-choice study. Am J Kidney Dis 2012;60:102-11.
30. Tong A, Palmer S, Manns B, et al. The beliefs and expectations of patients and caregivers about home haemodialysis: an interview study. BMJ Open 2013;3:e002148.
31. de Bekker-Grob EW, Ryan M, Gerard K. Discrete choice experiments in health economics: a review of the literature. Health Econ 2012;21:145-72.
32. Lancaster JK. A new approach to a consumer theory. J Political Econ 1966;74:132-57.
33. Bridges JF, Hauber AB, Marshall D, et al. Conjoint analysis applications in health-a checklist: a report of the ISPOR Good Research Practices for Conjoint Analysis Task Force. Value health 2011;14:403-13.
34. Liamputtong P. Qualitative research methods. Melbourne, Australia: Oxford Univeristy Press, 2009.
35. Thomas DR. A general inductive approach for analyzing qualitative evaluation data. Am J Eval 2006;27:237-46.
36. Rose J, Bliemer MJ. Sample size requirements for stated choice experiments. Transportation 2013;40:1021-41.
37. Kalantar-Zadeh K, Unruh M. Health related quality of life in patients with chronic kidney disease. Int Urol Nephrol 2005;37:367-78.
38. Herdman M, Gudex C, Lloyd A, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res 2011;20:1727-36.
39. Chew LD, Bradley KA, Boyko EJ. Brief questions to identify patients with inadequate health literacy. Fam Med 2004;36:588-94.
40. Davison SN, Kromm SK, Currie GR. Patient and health professional preferences for organ allocation and procurement, end-of-life care and organization of care for patients with chronic kidney disease using a discrete choice experiment. Nephrol Dial Transplant 2010;25:2334-41.
41. Halpern SD, Berns JS, Israni AK. Willingness of patients to switch from conventional to daily hemodialysis: looking before we leap. Am J Med 2004;116:606-12.
42. Hensher DA, Rose JM, Greene WH. Applied choice analysis: a primer. Cambridge: Cambridge University Press, 2005.
43. Fiebig DG, Keane MP, Louviere J, et al. The generalized multinomial logit model: accounting for scale and coefficient heterogeneity. Marketing Sci 2010;29:393-421.
44. de Bekker-Grob EW, Rose JM, Donkers B, et al. Men's preferences for prostate cancer screening: a discrete choice experiment. Br J Cancer 2013;108:533-41.
45. Swait J. A structural equation model of latent segmentation and product choice for cross-sectional revealed preference choice data. J Retailing Consumer Serv 1994;1:77-89.