-
1
-
-
53349107714
-
Informed consent for biorepositories: Assessing prospective participants' understanding and opinions
-
Beskow, L. M., & Dean, E. (2008). Informed consent for biorepositories: Assessing prospective participants' understanding and opinions. Cancer Epidemiology, Biomarkers & Prevention, 17, 1440-1451.
-
(2008)
Cancer Epidemiology, Biomarkers & Prevention
, vol.17
, pp. 1440-1451
-
-
Beskow, L.M.1
Dean, E.2
-
2
-
-
84893097016
-
Preemptive genotyping for personalized medicine: Design of the right drug, right dose, right time-using genomic data to individualize treatment protocol
-
Bielinski, S. J., Olson, J. E., Pathak, J., Weinshilboum, R. M., Wang, L., Lyke, K. J., . . .Kullo, I. J. (2014). Preemptive genotyping for personalized medicine: Design of the right drug, right dose, right time-Using genomic data to individualize treatment protocol. Mayo Clinic Proceedings, 89, 25-33.
-
(2014)
Mayo Clinic Proceedings
, vol.89
, pp. 25-33
-
-
Bielinski, S.J.1
Olson, J.E.2
Pathak, J.3
Weinshilboum, R.M.4
Wang, L.5
Lyke, K.J.6
Kullo, I.J.7
-
3
-
-
84859583108
-
Opportunities and challenges for the integration of massively parallel fenomic sequencing into clinical practice: Lessons from the ClinSeq project
-
Biesecker, L. G. (2012). Opportunities and challenges for the integration of massively parallel fenomic sequencing into clinical practice: Lessons from the ClinSeq project. Genetics in Medicine, 14, 393-398.
-
(2012)
Genetics in Medicine
, vol.14
, pp. 393-398
-
-
Biesecker, L.G.1
-
4
-
-
69749108657
-
The ClinSeq project: Piloting large-scale genome sequencing for research in genomic medicine
-
Biesecker, L. G., Mullikin, J. C., Facio, F. M., Turner, C., Cherukuri, P. F., Blakesley, R. W., . . .Green, E. D. (2009). The ClinSeq project: Piloting large-scale genome sequencing for research in genomic medicine. Genome Research, 19, 1665-1674.
-
(2009)
Genome Research
, vol.19
, pp. 1665-1674
-
-
Biesecker, L.G.1
Mullikin, J.C.2
Facio, F.M.3
Turner, C.4
Cherukuri, P.F.5
Blakesley, R.W.6
Green, E.D.7
-
5
-
-
14044263470
-
Personal characteristics of older primary care patients who provide a Buccal swab for apolipoprotein e testing and banking of genetic material: The spectrum study
-
Bogner, H. R., Wittink, M. N., Merz, J. F., Straton, J. B., Cronholm, P. F., Rabins, P. V., & Gallo, J. J. (2004). Personal characteristics of older primary care patients who provide a buccal swab for apolipoprotein E testing and banking of genetic material: The spectrum study. Community Genetics, 7, 202-210.
-
(2004)
Community Genetics
, vol.7
, pp. 202-210
-
-
Bogner, H.R.1
Wittink, M.N.2
Merz, J.F.3
Straton, J.B.4
Cronholm, P.F.5
Rabins, P.V.6
Gallo, J.J.7
-
6
-
-
84861658359
-
Whole-genome sequencing: The new standard of care?
-
Brunham, L. R., & Hayden, M. R. (2012). Whole-genome sequencing: The new standard of care? Science, 336(6085), 1112-1113.
-
(2012)
Science
, vol.336
, Issue.6085
, pp. 1112-1113
-
-
Brunham, L.R.1
Hayden, M.R.2
-
8
-
-
84861690041
-
The ultimate genetic test
-
Drmanac, R. (2012). The ultimate genetic test. Science, 336(6085), 1110-1112.
-
(2012)
Science
, vol.336
, Issue.6085
, pp. 1110-1112
-
-
Drmanac, R.1
-
9
-
-
81555203460
-
Motivators for participation in a whole-genome sequencing study: Implications for translational genomics research
-
Facio, F. M., Brooks, S., Loewenstein, J., Green, S., Biesecker, L. G., & Biesecker, B. B. (2011). Motivators for participation in a whole-genome sequencing study: Implications for translational genomics research. European Journal of Human Genetics, 19, 1213-1217.
-
(2011)
European Journal of Human Genetics
, vol.19
, pp. 1213-1217
-
-
Facio, F.M.1
Brooks, S.2
Loewenstein, J.3
Green, S.4
Biesecker, L.G.5
Biesecker, B.B.6
-
10
-
-
84859619831
-
Return of individual research results from genome-wide association studies: Experience of the Electronic Medical Records And Genomics (eMERGE) network
-
Fullerton, S. M., Wolf, W. A., Brothers, K. B., Clayton, E. W., Crawford, D. C., Denny, J. C., . . .Jarvik, G. P. (2012). Return of individual research results from genome-wide association studies: Experience of the Electronic Medical Records and Genomics (eMERGE) Network. Genetics in Medicine, 14, 424-431.
-
(2012)
Genetics in Medicine
, vol.14
, pp. 424-431
-
-
Fullerton, S.M.1
Wolf, W.A.2
Brothers, K.B.3
Clayton, E.W.4
Crawford, D.C.5
Denny, J.C.6
Jarvik, G.P.7
-
11
-
-
34250650978
-
Community engagement in genetic research: Results of the first public consultation for the Quebec CARTaGENE project
-
Godard, B., Marshall, J., & Laberge, C. (2007). Community engagement in genetic research: Results of the first public consultation for the Quebec CARTaGENE project. Community Genetics, 10, 147-158.
-
(2007)
Community Genetics
, vol.10
, pp. 147-158
-
-
Godard, B.1
Marshall, J.2
Laberge, C.3
-
12
-
-
80855148238
-
Motivations and perceptions of early adopters of personalized genomics: Perspectives from research participants
-
Gollust, S. E., Gordon, E. S., Zavac, C., Griffin, G., Christman, M. F., Pyeritz, R. E., . . .Bernhardt, B. A. (2012). Motivations and perceptions of early adopters of personalized genomics: Perspectives from research participants. Public Health Genomics, 15, 22-30.
-
(2012)
Public Health Genomics
, vol.15
, pp. 22-30
-
-
Gollust, S.E.1
Gordon, E.S.2
Zavac, C.3
Griffin, G.4
Christman, M.F.5
Pyeritz, R.E.6
Bernhardt, B.A.7
-
13
-
-
84875677674
-
Public knowledge and attitudes toward genetics and genetic testing
-
Haga, S. B., Barry, W. T., Mills, R., Ginsburg, G. S., Svetkey, L., Sullivan, J., & Willard, H. F. (2013). Public knowledge and attitudes toward genetics and genetic testing. Genetic Testing and Molecular Biomarkers, 17, 327-335.
-
(2013)
Genetic Testing and Molecular Biomarkers
, vol.17
, pp. 327-335
-
-
Haga, S.B.1
Barry, W.T.2
Mills, R.3
Ginsburg, G.S.4
Svetkey, L.5
Sullivan, J.6
Willard, H.F.7
-
14
-
-
84857856437
-
The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository
-
Harris, E. D., Ziniel, S. I., Amatruda, J. G., Clinton, C. M., Savage, S. K., Taylor, P. L., . . .Holm, I. A. (2012). The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository. Genetics in Medicine, 14, 330-337.
-
(2012)
Genetics in Medicine
, vol.14
, pp. 330-337
-
-
Harris, E.D.1
Ziniel, S.I.2
Amatruda, J.G.3
Clinton, C.M.4
Savage, S.K.5
Taylor, P.L.6
Holm, I.A.7
-
15
-
-
84885160797
-
Stakeholder engagement: A key component of integrating genomic information into electronic health records
-
Hartzler, A., McCarty, C. A., Rasmussen, L. V., William, M. S., Brilliant, M., Bowton, E. A., . . .Trinidad, S. B. (2013). Stakeholder engagement: A key component of integrating genomic information into electronic health records. Genetics in Medicine, 15, 792-801.
-
(2013)
Genetics in Medicine
, vol.15
, pp. 792-801
-
-
Hartzler, A.1
McCarty, C.A.2
Rasmussen, L.V.3
William, M.S.4
Brilliant, M.5
Bowton, E.A.6
Trinidad, S.B.7
-
16
-
-
84857100461
-
Sequencing set to alter clinical landscape
-
Hayden, E. C. (2012). Sequencing set to alter clinical landscape. Nature, 482(7385), 288.
-
(2012)
Nature
, vol.482
, Issue.7385
, pp. 288
-
-
Hayden, E.C.1
-
17
-
-
56049124576
-
Patients' views on identifiability of samples and informed consent for genetic research
-
Hull, S. C., Sharp, R. R., Botkin, J. R., Brown, M., Hughes, M., Sugarman, J., . . .Wilfond, B. S. (2008). Patients' views on identifiability of samples and informed consent for genetic research. American Journal of Bioethics, 8(10), 62-70.
-
(2008)
American Journal of Bioethics
, vol.8
, Issue.10
, pp. 62-70
-
-
Hull, S.C.1
Sharp, R.R.2
Botkin, J.R.3
Brown, M.4
Hughes, M.5
Sugarman, J.6
Wilfond, B.S.7
-
18
-
-
71849090072
-
Public opinion about the importance of privacy in Biobank research
-
Kaufman, D. J., Murphy-Bollinger, J., Scott, J., & Hudson, K. L. (2009). Public opinion about the importance of privacy in biobank research. American Journal of Human Genetics, 85, 643-654.
-
(2009)
American Journal of Human Genetics
, vol.85
, pp. 643-654
-
-
Kaufman, D.J.1
Murphy-Bollinger, J.2
Scott, J.3
Hudson, K.L.4
-
19
-
-
33748207767
-
Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the swedish general public think?
-
Kettis-Lindblad, A., Ring, L., Viberth, E., & Hansson, M. G. (2006). Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? European Journal of Public Health, 16, 433-440.
-
(2006)
European Journal of Public Health
, vol.16
, pp. 433-440
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
20
-
-
77955660006
-
Public and biobank participant attitudes toward genetic research participation and data sharing
-
Lemke, A. A., Wolf, W. A., Hebert-Beirne, J., & Smith, M. E. (2010). Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics, 13, 368-377.
-
(2010)
Public Health Genomics
, vol.13
, pp. 368-377
-
-
Lemke, A.A.1
Wolf, W.A.2
Hebert-Beirne, J.3
Smith, M.E.4
-
21
-
-
77956634832
-
Glad you asked: Participants' opinions of re-consent for dbGaP data submission
-
Ludman, E. J., Fullerton, S. M., Spangler, L., Trinidad, S. B., Fujii, M. M., Jarvik, G. P., . . .Burke, W. (2010). Glad you asked: Participants' opinions of re-consent for dbGaP data submission. Journal of Empirical Research on Human Research Ethics, 5(3), 9-16.
-
(2010)
Journal of Empirical Research on Human Research Ethics
, vol.5
, Issue.3
, pp. 9-16
-
-
Ludman, E.J.1
Fullerton, S.M.2
Spangler, L.3
Trinidad, S.B.4
Fujii, M.M.5
Jarvik, G.P.6
Burke, W.7
-
22
-
-
80053892357
-
Human genetics: Genomes on prescription
-
Maher, B. (2011). Human genetics: Genomes on prescription. Nature, 478(7367), 22-24.
-
(2011)
Nature
, vol.478
, Issue.7367
, pp. 22-24
-
-
Maher, B.1
-
23
-
-
79953317220
-
Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large Biobank
-
McCarty, C. A., Garber, A., Reeser, J. C., & Fost, N. C. (2011). Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank. American Journal of Medical Genetics Part A, 155A, 737-741.
-
(2011)
American Journal of Medical Genetics Part A
, vol.155 A
, pp. 737-741
-
-
McCarty, C.A.1
Garber, A.2
Reeser, J.C.3
Fost, N.C.4
-
24
-
-
33845725166
-
Informed consent and subject motivation to participate in a large, population-based genomics study: The marshfield clinic personalized medicine research project
-
McCarty, C. A., Nair, A., Austin, D. M., & Giampietro, P. F. (2007). Informed consent and subject motivation to participate in a large, population-based genomics study: The Marshfield Clinic Personalized Medicine Research Project. Community Genetics, 10, 2-9.
-
(2007)
Community Genetics
, vol.10
, pp. 2-9
-
-
McCarty, C.A.1
Nair, A.2
Austin, D.M.3
Giampietro, P.F.4
-
25
-
-
84857989179
-
Experiences of patients with chronic gastrointestinal conditions: In their own words
-
McCormick, J. B., Hammer, R. R., Farrell, R. M., Geller, G., James, K. M., Loftus, E. V. Jr., Sharp, R. R. (2012). Experiences of patients with chronic gastrointestinal conditions: In their own words. Health and Quality of Life Outcomes, 10, Article25. doi:10.1186/1477-7525-10-25.
-
(2012)
Health and Quality of Life Outcomes
, vol.10
-
-
McCormick, J.B.1
Hammer, R.R.2
Farrell, R.M.3
Geller, G.4
James, K.M.5
Loftus, E.V.6
Sharp, R.R.7
-
26
-
-
38149081397
-
DNA data sharing: Research participants' perspectives
-
McGuire, A. L., Hamilton, J. A., Lunstroth, R., McCullough, L. B., & Goldman, A. (2008). DNA data sharing: Research participants' perspectives. Genetics in Medicine, 10, 46-53.
-
(2008)
Genetics in Medicine
, vol.10
, pp. 46-53
-
-
McGuire, A.L.1
Hamilton, J.A.2
Lunstroth, R.3
McCullough, L.B.4
Goldman, A.5
-
27
-
-
77952506275
-
-
Nvivo Qualitatitve Data Analysis Software. . QSR International Pty Ltd. Doncaster, Victoria, Australia
-
Nvivo Qualitatitve Data Analysis Software. (2008). Version 8 [Computer software]. QSR International Pty Ltd. Doncaster, Victoria, Australia.
-
(2008)
Version 8 [Computer Software]
-
-
-
28
-
-
84884648409
-
The Mayo clinic Biobank: A building block for individualized medicine
-
Olson, J. E., Ryu, E., Johnson, K. J., Koenig, B. A., Maschke, K. J., Morrisette, J. A., . . .Cerhan, J. R. (2013). The Mayo Clinic Biobank: A building block for individualized medicine. Mayo Clinic Proceedings, 88, 952-962.
-
(2013)
Mayo Clinic Proceedings
, vol.88
, pp. 952-962
-
-
Olson, J.E.1
Ryu, E.2
Johnson, K.J.3
Koenig, B.A.4
Maschke, K.J.5
Morrisette, J.A.6
Cerhan, J.R.7
-
29
-
-
59849085993
-
Assessing the understanding of Biobank participants
-
Ormond, K. E., Cirino, A. L., Helenowski, I. B., Chisholm, R. L., & Wolf, W. A. (2009). Assessing the understanding of biobank participants. American Journal of Medical Genetics Part A, 149A, 188-198.
-
(2009)
American Journal of Medical Genetics Part A
, vol.149 A
, pp. 188-198
-
-
Ormond, K.E.1
Cirino, A.L.2
Helenowski, I.B.3
Chisholm, R.L.4
Wolf, W.A.5
-
30
-
-
77955662068
-
Genomic research and wide data sharing: Views of prospective participants
-
Trinidad, S. B., Fullerton, S. M., Bares, J. M., Jarvik, G. P., Larson, E. B., & Burke, W. (2010). Genomic research and wide data sharing: Views of prospective participants. Genetics in Medicine, 12, 486-495.
-
(2010)
Genetics in Medicine
, vol.12
, pp. 486-495
-
-
Trinidad, S.B.1
Fullerton, S.M.2
Bares, J.M.3
Jarvik, G.P.4
Larson, E.B.5
Burke, W.6
-
31
-
-
1642514698
-
Willingness to donate blood samples for genetic research: A survey from a community in Singapore
-
Wong, M. L., Chia, K. S., Yam, W. M., Teodoro, G. R., & Lau, K. W. (2004). Willingness to donate blood samples for genetic research: A survey from a community in Singapore. Clinical Genetics, 65, 45-51.
-
(2004)
Clinical Genetics
, vol.65
, pp. 45-51
-
-
Wong, M.L.1
Chia, K.S.2
Yam, W.M.3
Teodoro, G.R.4
Lau, K.W.5
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