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Volumn 23, Issue 1, 2015, Pages 8-21

Measuring informed choice in population-based reproductive genetic screening: A systematic review

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ATTITUDE; BEHAVIOR; CONFLICT; DECISION MAKING; FRAGILE X SYNDROME; GENETIC SCREENING; HUMAN; KNOWLEDGE; PERSONAL VALUE; POPULATION GENETICS; PRENATAL SCREENING; PRIORITY JOURNAL; SYSTEMATIC REVIEW; ATTITUDE TO HEALTH; DOWN SYNDROME; GENETICS; HETEROZYGOTE; MASS SCREENING; META ANALYSIS; REPRODUCTION;

EID: 84926980439     PISSN: 10184813     EISSN: 14765438     Source Type: Journal    
DOI: 10.1038/ejhg.2014.89     Document Type: Article
Times cited : (39)

References (80)
  • 1
    • 0037413486 scopus 로고    scopus 로고
    • Genomic medicine - Population screening in the age of genomic medicine
    • Khoury MJ, McCabe LL, McCabe ERB: Genomic medicine - Population screening in the age of genomic medicine. N Engl J Med 2003; 348: 50-58.
    • (2003) N Engl J Med , vol.348 , pp. 50-58
    • Khoury, M.J.1    McCabe, L.L.2    McCabe, E.R.B.3
  • 2
    • 1342324899 scopus 로고    scopus 로고
    • Population genetic screening programmes: Principles, techniques, practices, and policies
    • Godard B, ten Kate L, Evers-Kiebooms G, Ayme S: Population genetic screening programmes: principles, techniques, practices, and policies. Eur J Hum Genet 2003; 11: S49-S87.
    • (2003) Eur J Hum Genet , vol.11 , pp. S49-S87
    • Godard, B.1    Ten Kate, L.2    Evers-Kiebooms, G.3    Ayme, S.4
  • 6
    • 0038281518 scopus 로고    scopus 로고
    • Women's knowledge of prenatal ultrasound and informed choice
    • Kohut RJ, Dewey D, Love EJ: Women's knowledge of prenatal ultrasound and informed choice. J Genet Counsel 2002; 11: 265-276.
    • (2002) J Genet Counsel , vol.11 , pp. 265-276
    • Kohut, R.J.1    Dewey, D.2    Love, E.J.3
  • 7
    • 0033055122 scopus 로고    scopus 로고
    • Informed decision making: An annotated bibliography and systematic review
    • Bekker H, Thornton JG, Airey CM et al: Informed decision making: an annotated bibliography and systematic review. Health Technol Assess 1999; 3: 1-156.
    • (1999) Health Technol Assess , vol.3 , pp. 1-156
    • Bekker, H.1    Thornton, J.G.2    Airey, C.M.3
  • 8
    • 9144234428 scopus 로고    scopus 로고
    • Promoting informed decisions about cancer screening in communities and healthcare systems
    • Briss P, Rimer B, Reilley B et al: Promoting informed decisions about cancer screening in communities and healthcare systems. Am J Prev Med 2004; 26: 67-80.
    • (2004) Am J Prev Med , vol.26 , pp. 67-80
    • Briss, P.1    Rimer, B.2    Reilley, B.3
  • 9
    • 4143140995 scopus 로고    scopus 로고
    • Informed decision making: What is its role in cancer screening?
    • Rimer BK, Briss PA, Zeller PK, Chan ECY, Woolf SH: Informed decision making: what is its role in cancer screening? Cancer 2004; 101: 1214-1228.
    • (2004) Cancer , vol.101 , pp. 1214-1228
    • Rimer, B.K.1    Briss, P.A.2    Zeller, P.K.3    Chan, E.C.Y.4    Woolf, S.H.5
  • 10
    • 0028795768 scopus 로고
    • Validation of a decisional conflict scale
    • O'Connor AM: Validation of a decisional conflict scale. Med Decis Making 1995; 15: 25-30.
    • (1995) Med Decis Making , vol.15 , pp. 25-30
    • O'Connor, A.M.1
  • 14
    • 17444413788 scopus 로고    scopus 로고
    • How should we measure informed choice? The case of cancer screening
    • Jepson RG, Hewison J, Thompson AGH, Weller D: How should we measure informed choice? The case of cancer screening. J Med Ethics 2005; 31: 192-196.
    • (2005) J Med Ethics , vol.31 , pp. 192-196
    • Jepson, R.G.1    Hewison, J.2    Thompson, A.G.H.3    Weller, D.4
  • 15
    • 33646827017 scopus 로고    scopus 로고
    • Informed choice for screening: Implications for evaluation
    • Irwig L, McCaffery K, Salkeld G, Bossuyt P: Informed choice for screening: implications for evaluation. Br Med J 2006; 332: 1148-1150.
    • (2006) Br Med J , vol.332 , pp. 1148-1150
    • Irwig, L.1    McCaffery, K.2    Salkeld, G.3    Bossuyt, P.4
  • 16
    • 33845404114 scopus 로고    scopus 로고
    • Measures used in studies of informed decision making about cancer screening: A systematic review
    • Mullen PD, Allen JD, Glanz K et al: Measures used in studies of informed decision making about cancer screening: a systematic review. Ann Behav Med 2006; 32: 188-201.
    • (2006) Ann Behav Med , vol.32 , pp. 188-201
    • Mullen, P.D.1    Allen, J.D.2    Glanz, K.3
  • 17
    • 84927049420 scopus 로고    scopus 로고
    • (cited 08/09/2013); URL
    • Foundation for Genetics and Population Health. Glossary of genetics terminology. 2012 (cited 08/09/2013); URL. http://www.phgfoundation.org/pages/resources/glossary.htm
    • (2012) Glossary of Genetics Terminology
  • 18
    • 0037854640 scopus 로고    scopus 로고
    • Survey of the knowledge, attitudes and experiences of Western Australian women in relation to prenatal screening and diagnostic procedures
    • Rostant K, Steed L, O'Leary P: Survey of the knowledge, attitudes and experiences of Western Australian women in relation to prenatal screening and diagnostic procedures. Aust N Z J Obstet Gynaecol 2003; 43: 134-138.
    • (2003) Aust N Z J Obstet Gynaecol , vol.43 , pp. 134-138
    • Rostant, K.1    Steed, L.2    O'Leary, P.3
  • 20
    • 80051741347 scopus 로고    scopus 로고
    • First-trimester Down syndrome screening: Pregnant women's knowledge
    • Dahl K, Hvidman L, Jørgensen FS et al: First-trimester Down syndrome screening: pregnant women's knowledge. Ultrasound Obstet Gynecol 2011; 38: 145-151.
    • (2011) Ultrasound Obstet Gynecol , vol.38 , pp. 145-151
    • Dahl, K.1    Hvidman, L.2    Jørgensen, F.S.3
  • 21
    • 0030821708 scopus 로고    scopus 로고
    • Written patient information about triple-marker screening: A randomized, controlled trial
    • Glazier R, Goel V, Holzapfel S, Summers A, Pugh P, Yeung M: Written patient information about triple-marker screening: a randomized, controlled trial. Obstet Gynecol 1997; 90: 769-774.
    • (1997) Obstet Gynecol , vol.90 , pp. 769-774
    • Glazier, R.1    Goel, V.2    Holzapfel, S.3    Summers, A.4    Pugh, P.5    Yeung, M.6
  • 23
    • 0036280314 scopus 로고    scopus 로고
    • The effects of prenatal group genetic counselling on knowledge, anxiety and decisional conflict: Issues for nuchal translucency screening
    • Kaiser AS, Ferris LE, Pastuszak AL et al: The effects of prenatal group genetic counselling on knowledge, anxiety and decisional conflict: issues for nuchal translucency screening. J Obstet Gynaecol 2002; 22: 246-255.
    • (2002) J Obstet Gynaecol , vol.22 , pp. 246-255
    • Kaiser, A.S.1    Ferris, L.E.2    Pastuszak, A.L.3
  • 24
    • 0028132668 scopus 로고
    • Informed consent to undergo serum screening for Down's syndrome: The gap between policy and practice
    • Smith DK, Shaw RW, Marteau TM: Informed consent to undergo serum screening for Down's syndrome: the gap between policy and practice. Br Med J 1994; 309: 776.
    • (1994) Br Med J , vol.309 , pp. 776
    • Smith, D.K.1    Shaw, R.W.2    Marteau, T.M.3
  • 25
    • 84655161867 scopus 로고    scopus 로고
    • Prenatal counseling-implications of the cultural background of pregnant women on information processing, emotional response and acceptance
    • Tschudin S, Huang D, Mor-Gultekin H, Alder J, Bitzer J, Tercanli S: Prenatal counseling-implications of the cultural background of pregnant women on information processing, emotional response and acceptance. Eur J Ultrasound 2011; 32:(Suppl 2) E100-E107.
    • (2011) Eur J Ultrasound , vol.32 , pp. E100-E107
    • Tschudin, S.1    Huang, D.2    Mor-Gultekin, H.3    Alder, J.4    Bitzer, J.5    Tercanli, S.6
  • 26
    • 80051899652 scopus 로고    scopus 로고
    • Impact on informed choice of offering antenatal sickle cell and thalassaemia screening in primary care: A randomized trial
    • Brown K, Dormandy E, Reid E, Gulliford M, Marteau T: Impact on informed choice of offering antenatal sickle cell and thalassaemia screening in primary care: a randomized trial. J Med Screen 2011; 18: 65-75.
    • (2011) J Med Screen , vol.18 , pp. 65-75
    • Brown, K.1    Dormandy, E.2    Reid, E.3    Gulliford, M.4    Marteau, T.5
  • 27
    • 77952400779 scopus 로고    scopus 로고
    • Antenatal screening for haemoglobinopathies in primary care: A cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial
    • Dormandy E, Bryan S, Gulliford MC et al: Antenatal screening for haemoglobinopathies in primary care: a cohort study and cluster randomised trial to inform a simulation model. The Screening for Haemoglobinopathies in First Trimester (SHIFT) trial. Health Technol Assess 2010; 14: 1-160.
    • (2010) Health Technol Assess , vol.14 , pp. 1-160
    • Dormandy, E.1    Bryan, S.2    Gulliford, M.C.3
  • 28
    • 60749109340 scopus 로고    scopus 로고
    • Computerized prenatal genetic testing decision-assisting tool: A randomized controlled trial
    • Kuppermann M, Norton ME, Gates E et al: Computerized prenatal genetic testing decision-assisting tool: a randomized controlled trial. Obstet Gynecol 2009; 113: 53-63.
    • (2009) Obstet Gynecol , vol.113 , pp. 53-63
    • Kuppermann, M.1    Norton, M.E.2    Gates, E.3
  • 29
    • 0030662990 scopus 로고    scopus 로고
    • Patient decision making: An evaluation of two different methods of presenting information about a screening test
    • Michie S, Smith D, McClennan A, Marteau TM: Patient decision making: an evaluation of two different methods of presenting information about a screening test. Br J Health Psychol 1997; 2: 317-326.
    • (1997) Br J Health Psychol , vol.2 , pp. 317-326
    • Michie, S.1    Smith, D.2    McClennan, A.3    Marteau, T.M.4
  • 30
    • 0028836712 scopus 로고
    • Antenatal screening for carriers of cystic fibrosis: Randomised trial of stepwise v couple screening
    • Miedzybrodzka ZH, Hall MH, Mollison J et al: Antenatal screening for carriers of cystic fibrosis: randomised trial of stepwise v couple screening. Br Med J 1995; 310: 353-357.
    • (1995) Br Med J , vol.310 , pp. 353-357
    • Miedzybrodzka, Z.H.1    Hall, M.H.2    Mollison, J.3
  • 31
    • 38049003053 scopus 로고    scopus 로고
    • Use of a decision aid for prenatal testing of fetal abnormalities to improve women's informed decision making: A cluster randomised controlled trial
    • Nagle C, Gunn J, Bell R et al: Use of a decision aid for prenatal testing of fetal abnormalities to improve women's informed decision making: a cluster randomised controlled trial. Br J Obstet Gynaecol 2008; 115: 339-347.
    • (2008) Br J Obstet Gynaecol , vol.115 , pp. 339-347
    • Nagle, C.1    Gunn, J.2    Bell, R.3
  • 32
    • 0037117117 scopus 로고    scopus 로고
    • Use of evidence based leaflets to promote informed choice in maternity care: Randomised controlled trial in everyday practice
    • O'Cathain A, Walters SJ, Nicholl JP, Thomas KJ, Kirkham M: Use of evidence based leaflets to promote informed choice in maternity care: randomised controlled trial in everyday practice. Br Med J 2002; 324: 643-646.
    • (2002) Br Med J , vol.324 , pp. 643-646
    • O'Cathain, A.1    Walters, S.J.2    Nicholl, J.P.3    Thomas, K.J.4    Kirkham, M.5
  • 33
    • 0034651194 scopus 로고    scopus 로고
    • Randomised controlled trial comparing effectiveness of touch screen system with leaflet for providing women with information on prenatal tests
    • Graham W, Smith P, Kamal A, Fitzmaurice A, Smith N, Hamilton N: Randomised controlled trial comparing effectiveness of touch screen system with leaflet for providing women with information on prenatal tests. Br Med J 2000; 320: 155-160.
    • (2000) Br Med J , vol.320 , pp. 155-160
    • Graham, W.1    Smith, P.2    Kamal, A.3    Fitzmaurice, A.4    Smith, N.5    Hamilton, N.6
  • 34
    • 0035103671 scopus 로고    scopus 로고
    • Use of videotapes for viewing at home to inform choice in Down syndrome screening: A randomised controlled trial
    • Hewison J, Cuckle H, Baillie C et al: Use of videotapes for viewing at home to inform choice in Down syndrome screening: a randomised controlled trial. Prenat Diagn 2001; 21: 146-149.
    • (2001) Prenat Diagn , vol.21 , pp. 146-149
    • Hewison, J.1    Cuckle, H.2    Baillie, C.3
  • 35
    • 33644893357 scopus 로고    scopus 로고
    • Informed choice in antenatal Down syndrome screening: A cluster-randomised trial of combined versus separate visit testing
    • Dormandy E, Michie S, Hooper R, Marteau TM: Informed choice in antenatal Down syndrome screening: a cluster-randomised trial of combined versus separate visit testing. Patient Educ Couns 2006; 61: 56-64.
    • (2006) Patient Educ Couns , vol.61 , pp. 56-64
    • Dormandy, E.1    Michie, S.2    Hooper, R.3    Marteau, T.M.4
  • 36
    • 84921032235 scopus 로고    scopus 로고
    • Development of a fragile X syndrome (FXS) knowledge scale: Towards a modified multidimensional measure of informed choice for FXS population carrier screening
    • e-pub ahead of print 15 October 2012
    • Ames AG, Jaques A, Ukoumunne OC et al: Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening. Health Expect 2012; e-pub ahead of print 15 October 2012; doi:10.1111/hex.12009.
    • (2012) Health Expect
    • Ames, A.G.1    Jaques, A.2    Ukoumunne, O.C.3
  • 38
    • 80051765380 scopus 로고    scopus 로고
    • Knowledge of prenatal screening and psychological management of test decisions
    • Dahl K, Hvidman L, Jorgensen FS, Kesmodel US: Knowledge of prenatal screening and psychological management of test decisions. Ultrasound Obstet Gynecol 2011; 38: 152-157.
    • (2011) Ultrasound Obstet Gynecol , vol.38 , pp. 152-157
    • Dahl, K.1    Hvidman, L.2    Jorgensen, F.S.3    Kesmodel, U.S.4
  • 39
    • 0036401547 scopus 로고    scopus 로고
    • Informed choice to undergo prenatal screening: A comparison of two hospitals conducting testing either as part of a routine visit or requiring a separate visit
    • Dormandy E, Hooper R, Michie S, Marteau T: Informed choice to undergo prenatal screening: a comparison of two hospitals conducting testing either as part of a routine visit or requiring a separate visit. J Med Screen 2002; 9: 109-114.
    • (2002) J Med Screen , vol.9 , pp. 109-114
    • Dormandy, E.1    Hooper, R.2    Michie, S.3    Marteau, T.4
  • 40
    • 18444378173 scopus 로고    scopus 로고
    • Low uptake of prenatal screening for Down syndrome in minority ethnic groups and socially deprived groups: A reflection of women's attitudes or a failure to facilitate informed choices?
    • Dormandy E, Michie S, Hooper R, Marteau TM: Low uptake of prenatal screening for Down syndrome in minority ethnic groups and socially deprived groups: a reflection of women's attitudes or a failure to facilitate informed choices? Int J Epidemiol 2005; 34: 346-352.
    • (2005) Int J Epidemiol , vol.34 , pp. 346-352
    • Dormandy, E.1    Michie, S.2    Hooper, R.3    Marteau, T.M.4
  • 41
    • 34248155291 scopus 로고    scopus 로고
    • Development of a measure of informed choice suitable for use in low literacy populations
    • Dormandy E, Tsui EYL, Marteau TM: Development of a measure of informed choice suitable for use in low literacy populations. Patient Educ Couns 2007; 66: 278-295.
    • (2007) Patient Educ Couns , vol.66 , pp. 278-295
    • Dormandy, E.1    Tsui, E.Y.L.2    Marteau, T.M.3
  • 42
    • 82255175608 scopus 로고    scopus 로고
    • Meeting patients' education and decision-making needs for first trimester prenatal aneuploidy screening
    • Farrell RM, Nutter B, Agatisa PK: Meeting patients' education and decision-making needs for first trimester prenatal aneuploidy screening. Prenat Diagn 2011; 31: 1222-1228.
    • (2011) Prenat Diagn , vol.31 , pp. 1222-1228
    • Farrell, R.M.1    Nutter, B.2    Agatisa, P.K.3
  • 43
    • 42349089915 scopus 로고    scopus 로고
    • What about informed consent in first-trimester ultrasound screening for Down syndrome?
    • Favre R, Moutel G, Duchange N et al: What about informed consent in first-trimester ultrasound screening for Down syndrome? Fetal Diagn Ther 2008; 23: 173-184.
    • (2008) Fetal Diagn Ther , vol.23 , pp. 173-184
    • Favre, R.1    Moutel, G.2    Duchange, N.3
  • 45
    • 79953207411 scopus 로고    scopus 로고
    • The validation and translation of Multidimensional Measure of Informed Choice in Greek
    • Gourounti K, Sandal J: The validation and translation of Multidimensional Measure of Informed Choice in Greek. Midwifery 2011; 27: 170-173.
    • (2011) Midwifery , vol.27 , pp. 170-173
    • Gourounti, K.1    Sandal, J.2
  • 46
    • 43049181362 scopus 로고    scopus 로고
    • Do pregnant women in Greece make informed choices about antenatal screening for Down's syndrome? A questionnaire survey
    • Gourounti K, Sandall J: Do pregnant women in Greece make informed choices about antenatal screening for Down's syndrome? A questionnaire survey. Midwifery 2008; 24: 153-162.
    • (2008) Midwifery , vol.24 , pp. 153-162
    • Gourounti, K.1    Sandall, J.2
  • 48
    • 10644247677 scopus 로고    scopus 로고
    • Do women know that prenatal testing detects fetuses with Down syndrome?
    • Jaques AM, Halliday JL, Bell RJ: Do women know that prenatal testing detects fetuses with Down syndrome? J Obstet Gynaecol 2004; 24: 647-651.
    • (2004) J Obstet Gynaecol , vol.24 , pp. 647-651
    • Jaques, A.M.1    Halliday, J.L.2    Bell, R.J.3
  • 49
    • 23844519655 scopus 로고    scopus 로고
    • Informed choice in women attending private clinics to undergo first-trimester screening for Down syndrome
    • Jaques AM, Sheffield LJ, Halliday JL: Informed choice in women attending private clinics to undergo first-trimester screening for Down syndrome. Prenat Diagn 2005; 25: 656-664.
    • (2005) Prenat Diagn , vol.25 , pp. 656-664
    • Jaques, A.M.1    Sheffield, L.J.2    Halliday, J.L.3
  • 50
    • 52049110786 scopus 로고    scopus 로고
    • A model for offering carrier screening for fragile X syndrome to nonpregnant women: Results from a pilot study
    • Metcalfe S, Jacques A, Archibald A et al: A model for offering carrier screening for fragile X syndrome to nonpregnant women: results from a pilot study. Genet Med 2008; 10: 525-535.
    • (2008) Genet Med , vol.10 , pp. 525-535
    • Metcalfe, S.1    Jacques, A.2    Archibald, A.3
  • 51
    • 0032841573 scopus 로고    scopus 로고
    • Prenatal tests: How are women deciding?
    • Michie S, Smith D, Marteau TM: Prenatal tests: how are women deciding? Prenat Diagn 1999; 19: 743-748.
    • (1999) Prenat Diagn , vol.19 , pp. 743-748
    • Michie, S.1    Smith, D.2    Marteau, T.M.3
  • 52
    • 33748132518 scopus 로고    scopus 로고
    • Are pregnant Australian women well informed about prenatal genetic screening? A systematic investigation using the Multidimensional Measure of Informed Choice
    • Rowe HJ, Fisher JRW, Quinlivan JA: Are pregnant Australian women well informed about prenatal genetic screening? A systematic investigation using the Multidimensional Measure of Informed Choice. Aust N Z J Obstet Gynaecol 2006; 46: 433-439.
    • (2006) Aust N Z J Obstet Gynaecol , vol.46 , pp. 433-439
    • Rowe, H.J.1    Fisher, J.R.W.2    Quinlivan, J.A.3
  • 53
    • 77954194852 scopus 로고    scopus 로고
    • Effects of knowledge, education, and experience on acceptance of first trimester screening for chromosomal anomalies
    • Stefansdottir V, Skirton H, Jonasson K, Hardardottir H, Jonsson JJ: Effects of knowledge, education, and experience on acceptance of first trimester screening for chromosomal anomalies. Acta Obstet Gynecol Scand 2010; 89: 931-938.
    • (2010) Acta Obstet Gynecol Scand , vol.89 , pp. 931-938
    • Stefansdottir, V.1    Skirton, H.2    Jonasson, K.3    Hardardottir, H.4    Jonsson, J.J.5
  • 54
    • 0025915136 scopus 로고
    • Screening for carriers of cystic fibrosis through primary health care services
    • Watson EK, Mayall E, Chapple J et al: Screening for carriers of cystic fibrosis through primary health care services. Br Med J 1991; 303: 504-507.
    • (1991) Br Med J , vol.303 , pp. 504-507
    • Watson, E.K.1    Mayall, E.2    Chapple, J.3
  • 55
    • 78751703004 scopus 로고    scopus 로고
    • Are adolescents' decisions about prenatal screening for Down syndrome informed? A controlled, prospective study
    • Wynter KH, Rowe HJ, Fisher JR, Lee M, Quinlivan JA: Are adolescents' decisions about prenatal screening for Down syndrome informed? A controlled, prospective study. J Pediatr Adolesc Gynecol 2011; 24: 29-34.
    • (2011) J Pediatr Adolesc Gynecol , vol.24 , pp. 29-34
    • Wynter, K.H.1    Rowe, H.J.2    Fisher, J.R.3    Lee, M.4    Quinlivan, J.A.5
  • 56
    • 33646785403 scopus 로고    scopus 로고
    • Beyond race or ethnicity and socioeconomic status: Predictors of prenatal testing for Down syndrome
    • Kuppermann M, Learman LA, Gates E et al: Beyond race or ethnicity and socioeconomic status: predictors of prenatal testing for Down syndrome. Obstet Gynecol 2006; 107: 1087-1097.
    • (2006) Obstet Gynecol , vol.107 , pp. 1087-1097
    • Kuppermann, M.1    Learman, L.A.2    Gates, E.3
  • 57
    • 44949274046 scopus 로고
    • The theory of planned behavior
    • Ajzen I: The theory of planned behavior. Organ Behav Hum Decis Process 1991; 50: 179-211.
    • (1991) Organ Behav Hum Decis Process , vol.50 , pp. 179-211
    • Ajzen, I.1
  • 58
    • 4544322158 scopus 로고    scopus 로고
    • Psychosocial aspects of genetic screening of pregnant women and newborns: A systematic review
    • Green JM, Hewison J, Bekker HL, Bryant LD, Cuckle HS: Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. Health Technol Assess 2004; 8: 1-128.
    • (2004) Health Technol Assess , vol.8 , pp. 1-128
    • Green, J.M.1    Hewison, J.2    Bekker, H.L.3    Bryant, L.D.4    Cuckle, H.S.5
  • 59
    • 0043169640 scopus 로고    scopus 로고
    • Understanding why decision aids work: Linking process with outcome
    • Bekker HL, Hewison J, Thornton JG: Understanding why decision aids work: linking process with outcome. Patient Educ Couns 2003; 50: 323-329.
    • (2003) Patient Educ Couns , vol.50 , pp. 323-329
    • Bekker, H.L.1    Hewison, J.2    Thornton, J.G.3
  • 60
    • 0030043640 scopus 로고    scopus 로고
    • Patient satisfaction with health care decisions: The satisfaction with decision scale
    • Holmes-Rovner M, Kroll J, Schmitt N et al: Patient satisfaction with health care decisions: the satisfaction with decision scale. Med Decis Making 1996; 16: 58-64.
    • (1996) Med Decis Making , vol.16 , pp. 58-64
    • Holmes-Rovner, M.1    Kroll, J.2    Schmitt, N.3
  • 61
    • 0016264378 scopus 로고
    • Judgment under uncertainty: Heuristics and biases
    • Tversky A, Kahneman D: Judgment under uncertainty: heuristics and biases. Science 1974; 185: 1124-1131.
    • (1974) Science , vol.185 , pp. 1124-1131
    • Tversky, A.1    Kahneman, D.2
  • 62
    • 84859341631 scopus 로고    scopus 로고
    • Dichotomizing continuous variables in statistical analysis
    • Dawson NV, Weiss R: Dichotomizing continuous variables in statistical analysis. Med Decis Making 2012; 32: 225-226.
    • (2012) Med Decis Making , vol.32 , pp. 225-226
    • Dawson, N.V.1    Weiss, R.2
  • 64
    • 71949120009 scopus 로고    scopus 로고
    • It's something I need to consider: Decisions about carrier screening for fragile X syndrome in a population of non-pregnant women
    • Archibald AD, Jaques AM, Wake S, Collins VR, Cohen J, Metcalfe SA: "It's something I need to consider": decisions about carrier screening for fragile X syndrome in a population of non-pregnant women. Am J Med Genet A 2009; 149A: 2731-2738.
    • (2009) Am J Med Genet A , vol.149 A , pp. 2731-2738
    • Archibald, A.D.1    Jaques, A.M.2    Wake, S.3    Collins, V.R.4    Cohen, J.5    Metcalfe, S.A.6
  • 65
    • 35948959333 scopus 로고    scopus 로고
    • Assessment of psychosocial outcomes in genetic counseling research: An overview of available measurement scales
    • Kasparian NA, Wakefield CE, Meiser B: Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales. J Genet Counsel 2007; 16: 693-712.
    • (2007) J Genet Counsel , vol.16 , pp. 693-712
    • Kasparian, N.A.1    Wakefield, C.E.2    Meiser, B.3
  • 66
    • 84884255195 scopus 로고    scopus 로고
    • A tiered-layered-staged model for informed consent in personal genome testing
    • Bunnik EM, Janssens ACJ, Schermer MH: A tiered-layered-staged model for informed consent in personal genome testing. Eur J Hum Genet 2012; 21: 596-601.
    • (2012) Eur J Hum Genet , vol.21 , pp. 596-601
    • Bunnik, E.M.1    Janssens, A.C.J.2    Schermer, M.H.3
  • 69
    • 79960197002 scopus 로고    scopus 로고
    • Should non-invasiveness change informed consent procedures for prenatal diagnosis?
    • Deans Z, Newson A: Should non-invasiveness change informed consent procedures for prenatal diagnosis? Health Care Anal 2011; 19: 122-132.
    • (2011) Health Care Anal , vol.19 , pp. 122-132
    • Deans, Z.1    Newson, A.2
  • 70
    • 70549105703 scopus 로고    scopus 로고
    • Will the introduction of non-invasive prenatal diagnostic testing erode informed choices? An experimental study of health care professionals
    • van den Heuvel A, Chitty L, Dormandy E et al: Will the introduction of non-invasive prenatal diagnostic testing erode informed choices? An experimental study of health care professionals. Patient Educ Couns 2010; 78: 24-28.
    • (2010) Patient Educ Couns , vol.78 , pp. 24-28
    • Van Den-Heuvel, A.1    Chitty, L.2    Dormandy, E.3
  • 71
    • 0036768317 scopus 로고    scopus 로고
    • The multi-dimensional measure of informed choice: A validation study
    • Michie S, Dormandy E, Marteau TM: The multi-dimensional measure of informed choice: a validation study. Patient Educ Couns 2002; 48: 87-91.
    • (2002) Patient Educ Couns , vol.48 , pp. 87-91
    • Michie, S.1    Dormandy, E.2    Marteau, T.M.3
  • 73
    • 0024246597 scopus 로고
    • Development of a selfadministered questionnaire to measure women's knowledge of prenatal screening and diagnostic tests
    • Marteau TM, Johnston M, Plenicar M, Shaw RW, Slack J: Development of a selfadministered questionnaire to measure women's knowledge of prenatal screening and diagnostic tests. J Psychosom Res 1988; 32: 403-408.
    • (1988) J Psychosom Res , vol.32 , pp. 403-408
    • Marteau, T.M.1    Johnston, M.2    Plenicar, M.3    Shaw, R.W.4    Slack, J.5
  • 74
    • 33845942655 scopus 로고    scopus 로고
    • Screening for fetal chromosomal abnormalities
    • American College of Obstetricians and Gynecologists Committee. ACOG Practice Bulletin No. 77: screening for fetal chromosomal abnormalities. Obstet Gynecol 2007; 109: 217-227.
    • (2007) Obstet Gynecol , vol.109 , pp. 217-227
  • 75
    • 79955918621 scopus 로고    scopus 로고
    • Risk and uncertainty: Shifting decision making for aneuploidy screening to the first trimester of pregnancy
    • Farrell RM, Dolgin N, Flocke SA, Winbush V, Mercer MB, Simon C: Risk and uncertainty: shifting decision making for aneuploidy screening to the first trimester of pregnancy. Genet Med 2011; 13: 429-436.
    • (2011) Genet Med , vol.13 , pp. 429-436
    • Farrell, R.M.1    Dolgin, N.2    Flocke, S.A.3    Winbush, V.4    Mercer, M.B.5    Simon, C.6
  • 76
    • 0028825102 scopus 로고
    • A randomised trial of three methods of giving information about prenatal testing
    • Thornton JG, Hewison J, Lilford RJ, Vail A: A randomised trial of three methods of giving information about prenatal testing. Br Med J 1995; 311: 1127-1130.
    • (1995) Br Med J , vol.311 , pp. 1127-1130
    • Thornton, J.G.1    Hewison, J.2    Lilford, R.J.3    Vail, A.4
  • 77
    • 0032437469 scopus 로고    scopus 로고
    • Acceptance of amniocentesis by women in the state of Montana (USA) who are screen positive for Down's syndrome
    • Priest JH, FitzGerald JM, Haag MM, Streets K, Vanisko M, Johnson JP: Acceptance of amniocentesis by women in the state of Montana (USA) who are screen positive for Down's syndrome. J Med Screen 1998; 5: 178-182.
    • (1998) J Med Screen , vol.5 , pp. 178-182
    • Priest, J.H.1    Fitzgerald, J.M.2    Haag, M.M.3    Streets, K.4    Vanisko, M.5    Johnson, J.P.6


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