-
1
-
-
84926681605
-
-
American College of Medical Genetics and Genomics. American College of Medical Genetics and Genomics, accessed 30 July 2014
-
American College of Medical Genetics and Genomics. (2014). Incidental Findings in Clinical Genomics: A Clarification. American College of Medical Genetics and Genomics, available from: https:// www. acmg. net/docs/Incidental-Findings-in-Clinical- Genomics-A-Clarication. pdf [accessed 30 July 2014].
-
(2014)
Incidental Findings in Clinical Genomics: A Clarification
-
-
-
2
-
-
84862661551
-
-
Australian Government National Health and Medical Research Council. Australian Government, [accessed 24 July 2014]
-
Australian Government National Health and Medical Research Council. (2010). Biobanks Information Paper. Australian Government, available from: http://www. nhmrc. gov. au/-files-nhmrc/file/your- health/egenetics/practioners/biobanks-information- paper. pdf [accessed 24 July 2014].
-
(2010)
Biobanks Information Paper
-
-
-
3
-
-
0036187419
-
Reflections and recommendations on research ethics in developing countries
-
1132
-
Benatar, S. (2002). Reflections and Recommendations on Research Ethics in Developing Countries. Social Science and Medicine, 54, 1131-1141; 1132.
-
(2002)
Social Science and Medicine
, vol.54
, pp. 1131-1141
-
-
Benatar, S.1
-
4
-
-
78149423985
-
Developing a simplified consent form for biobanking
-
Beskow, L. M., Friedman, J. Y., Hardy, N. C., Lin, L. and Weinfurt, K. P. (2010). Developing a Simplified Consent Form for Biobanking. PLoS One, 5, e13302.
-
(2010)
PLoS One
, vol.5
, pp. e13302
-
-
Beskow, L.M.1
Friedman, J.Y.2
Hardy, N.C.3
Lin, L.4
Weinfurt, K.P.5
-
5
-
-
33644821535
-
Towards an international system of ethics and governance of biobanks: A "special status" for genetic data?
-
Bovenberg, J. (2005). Towards an International System of Ethics and Governance of Biobanks: A "Special Status" for Genetic Data? Critical Public Health, 15, 369-383.
-
(2005)
Critical Public Health
, vol.15
, pp. 369-383
-
-
Bovenberg, J.1
-
6
-
-
36048999422
-
Proposing modesty for informed consent
-
Burgess, M. M. (2007). Proposing Modesty for Informed Consent. Social Science and Medicine, 65, 2284-2295.
-
(2007)
Social Science and Medicine
, vol.65
, pp. 2284-2295
-
-
Burgess, M.M.1
-
7
-
-
84892474244
-
From 'trust us' to participatory governance: Deliberative publics and science policy
-
Burgess, M. M. (2014). From 'trust us' to Participatory Governance: Deliberative Publics and Science Policy. Public Understanding of Science, 23, 48-52.
-
(2014)
Public Understanding of Science
, vol.23
, pp. 48-52
-
-
Burgess, M.M.1
-
8
-
-
58149223088
-
The ethical challenges of genetic databases: Safeguarding altruism and trust
-
Campbell, A. V. (2007). The Ethical Challenges of Genetic Databases: Safeguarding Altruism and Trust. King's Law Journal, 18, 237-245.
-
(2007)
King's Law Journal
, vol.18
, pp. 237-245
-
-
Campbell, A.V.1
-
9
-
-
0347135836
-
Biobanks for genomics and genomics for biobanks
-
Cambon-Thomsen, A., Ducoumau, P., Gourraud, P. A. and Pontille, D. (2003). Biobanks for Genomics and Genomics for Biobanks. Comparative and Functional Genomics, 4, 628-634.
-
(2003)
Comparative and Functional Genomics
, vol.4
, pp. 628-634
-
-
Cambon-Thomsen, A.1
Ducoumau, P.2
Gourraud, P.A.3
Pontille, D.4
-
10
-
-
84870892051
-
The public interest, public goods, and third-party access to UK biobank
-
Capps, B. (2012). The Public Interest, Public Goods, and Third-Party Access to UK Biobank. Public Health Ethics, 5, 240-251.
-
(2012)
Public Health Ethics
, vol.5
, pp. 240-251
-
-
Capps, B.1
-
11
-
-
41849095185
-
Research ethics recommendations for whole-genome research: Consensus statement
-
Caulfield, T., McGuire, A. L., Cho, M., Buchanan, J. A., Burgess, M. M., Danilczyk, D., Diaz, C. M., Felsenfeld, A. L., Fryer-Edwards, K., Green, S. K., Hodosh, M. A., Juengst, E. T., Kaye, J., Kedes, L., Knoppers, B. M., Lemmens, T., Meslin, E., Murphy, J., Nussbaum, R. L., Otlowski, M., Pullman, D., Ray, P. L., Sugarman, J. and Timmons, M. (2008). Research Ethics Recommendations for Whole-Genome Research: Consensus Statement. PLoS Biology, 6, 430-435.
-
(2008)
PLoS Biology
, vol.6
, pp. 430-435
-
-
Caulfield, T.1
McGuire, A.L.2
Cho, M.3
Buchanan, J.A.4
Burgess, M.M.5
Danilczyk, D.6
Diaz, C.M.7
Felsenfeld, A.L.8
Fryer-Edwards, K.9
Green, S.K.10
Hodosh, M.A.11
Juengst, E.T.12
Kaye, J.13
Kedes, L.14
Knoppers, B.M.15
Lemmens, T.16
Meslin, E.17
Murphy, J.18
Nussbaum, R.L.19
Otlowski, M.20
Pullman, D.21
Ray, P.L.22
Sugarman, J.23
Timmons, M.24
more..
-
12
-
-
38549099198
-
Biobanks and blanket consent: The proper place of the public good and public perception rationales
-
Caulfield, T. (2007). Biobanks and Blanket Consent: The Proper Place of the Public Good and Public Perception Rationales. King's Law Journal, 18, 209-226.
-
(2007)
King's Law Journal
, vol.18
, pp. 209-226
-
-
Caulfield, T.1
-
13
-
-
13744261262
-
Research involving humans: A time for change?
-
Chalmers, D. (2004). Research Involving Humans: A Time for Change? The Journal of Law, Medicine and Ethics, 4, 583-495.
-
(2004)
The Journal of Law, Medicine and Ethics
, vol.4
, pp. 583-495
-
-
Chalmers, D.1
-
14
-
-
42449114100
-
Human genetic research databases and biobanks
-
Chalmers, D. and Nicol, D. (2008). Human Genetic Research Databases and Biobanks. Journal of Law and Medicine, 15, 538-554.
-
(2008)
Journal of Law and Medicine
, vol.15
, pp. 538-554
-
-
Chalmers, D.1
Nicol, D.2
-
15
-
-
3242771560
-
Commercialisation of biotechnology: Public trust and research
-
Chalmers, D. and Nicol, D. (2004). Commercialisation of Biotechnology: Public Trust and Research. International Journal of Biotechnology, 6, 116-133.
-
(2004)
International Journal of Biotechnology
, vol.6
, pp. 116-133
-
-
Chalmers, D.1
Nicol, D.2
-
16
-
-
84942918907
-
A role for research ethics committees in exchanges of biospecimens through material transfer agreements
-
Chalmers, D., Nicol, D., Nicolas, P. and Zeps, N. (2014). A Role for Research Ethics Committees in Exchanges of Biospecimens Through Material Transfer Agreements. Journal of Bioethical Inquiry, 11, 301-306.
-
(2014)
Journal of Bioethical Inquiry
, vol.11
, pp. 301-306
-
-
Chalmers, D.1
Nicol, D.2
Nicolas, P.3
Zeps, N.4
-
17
-
-
77958607891
-
Confronting real time ethical, legal, and social issues in the electronic medical records and genomics (eMERGE) consortium
-
Clayton, E. W., Smith, M., Fullerton, S. M., Burke, W., McCarty, C. A., Koenig, B. A., McGuire, A. L., Beskow, L. M., Dressler, L., Lemke, A. A., Ramos, E. M. and Rodriguez, L. L. (2010). Confronting Real Time Ethical, Legal, and Social Issues in the Electronic Medical Records and Genomics (eMERGE) Consortium. Genetics in Medicine, 12, 616-620.
-
(2010)
Genetics in Medicine
, vol.12
, pp. 616-620
-
-
Clayton, E.W.1
Smith, M.2
Fullerton, S.M.3
Burke, W.4
McCarty, C.A.5
Koenig, B.A.6
McGuire, A.L.7
Beskow, L.M.8
Dressler, L.9
Lemke, A.A.10
Ramos, E.M.11
Rodriguez, L.L.12
-
19
-
-
34250006413
-
Genome-wide association study identifies novel breast cancer susceptibility loci
-
Easton, D. F., Pooley, K. A., Dunning, A. M., Pharoah, P. D. P., Thompson, D., Ballinger, D. G., Struewing, J. P., Morrison, J., Field, H., Luben, R., Wareham, N., Ahmed, S., Healey, C. S. and Bowman, R. (2007). Genome-wide Association Study Identifies Novel Breast Cancer Susceptibility Loci. Nature, 447, 1087-1093.
-
(2007)
Nature
, vol.447
, pp. 1087-1093
-
-
Easton, D.F.1
Pooley, K.A.2
Dunning, A.M.3
Pharoah, P.D.P.4
Thompson, D.5
Ballinger, D.G.6
Struewing, J.P.7
Morrison, J.8
Field, H.9
Luben, R.10
Wareham, N.11
Ahmed, S.12
Healey, C.S.13
Bowman, R.14
-
20
-
-
33745956333
-
Encouraging translational research through harmonization of fda and common-rule informed consent requirements for research with banked specimens
-
Evans, B. J. and Meslin, E. M. (2006). Encouraging Translational Research Through Harmonization of FDA and Common-rule Informed Consent Requirements for Research with Banked Specimens. Journal of Legal Medicine, 27, 119-166.
-
(2006)
Journal of Legal Medicine
, vol.27
, pp. 119-166
-
-
Evans, B.J.1
Meslin, E.M.2
-
21
-
-
77952294318
-
Meeting the governance challenges of next generation biorepository research
-
Fullerton, S. M., Anderson, N. R., Guzauskas, G., Freeman, D. and Fryer-Edwards, K. (2010). Meeting the Governance Challenges of Next Generation Biorepository Research. Science Translational Medicine, 2, 15cm3.
-
(2010)
Science Translational Medicine
, vol.2
, pp. 15cm3
-
-
Fullerton, S.M.1
Anderson, N.R.2
Guzauskas, G.3
Freeman, D.4
Fryer-Edwards, K.5
-
23
-
-
14644413526
-
The challenge of assuring continued post-trial access to beneficial treatment
-
Grady, C. (2005). The Challenge of Assuring Continued Post-trial Access to Beneficial Treatment. Yale Journal of Health Policy, Law, and Ethics, 1, 425-435.
-
(2005)
Yale Journal of Health Policy, Law, and Ethics
, vol.1
, pp. 425-435
-
-
Grady, C.1
-
24
-
-
84880535720
-
Recommendations for reporting of incidental findings in clinical exome and genome sequencing
-
accessed 30 July 2014
-
Green, R. C., Berg, J. S., Grody, W. W., Kalia, S. S., Korf, B. R., Martin, C. L., McGuire, A., Nussbaum, R. L., O'Daniel, J. M., Ormond, K. E., Rehm, H. L., Watson, M. S., Williams, M. S. and Biesecker, L. G. (2013). Recommendations for Reporting of Incidental Findings in Clinical Exome and Genome Sequencing. American College of Medical Genetics and Genomics, available from: http://www. genome. gov/Pages/Health/HealthCareProvidersInfo/ACMG- Incidental-Findings-Report. pdf [accessed 30 July 2014].
-
(2013)
American College of Medical Genetics and Genomics
-
-
Green, R.C.1
Berg, J.S.2
Grody, W.W.3
Kalia, S.S.4
Korf, B.R.5
Martin, C.L.6
McGuire, A.7
Nussbaum, R.L.8
O'daniel, J.M.9
Ormond, K.E.10
Rehm, H.L.11
Watson, M.S.12
Williams, M.S.13
Biesecker, L.G.14
-
25
-
-
33344475590
-
Should donors be allowed to give broad confsent to future biobank research?
-
Hansson, M., Dillner, J., Bartram, C., Carlson, J. and Helgesson, G. (2006). Should Donors be Allowed to Give Broad Confsent to Future Biobank Research? The Lancet Oncology, 7, 266-269.
-
(2006)
The Lancet Oncology
, vol.7
, pp. 266-269
-
-
Hansson, M.1
Dillner, J.2
Bartram, C.3
Carlson, J.4
Helgesson, G.5
-
26
-
-
52149090094
-
The next steps for genomic medicine: Challenges and opportunities for the developing world
-
Hardy, B., Seguin, B., Goodsaid, F., Jimenez-Sanchez, G., Singer, P. A. and Daar, A. S. (2008). The Next Steps for Genomic Medicine: Challenges and Opportunities for the Developing World. Nature Reviews Genetics, 9, S23-S27.
-
(2008)
Nature Reviews Genetics
, vol.9
, pp. S23-S27
-
-
Hardy, B.1
Seguin, B.2
Goodsaid, F.3
Jimenez-Sanchez, G.4
Singer, P.A.5
Daar, A.S.6
-
27
-
-
84872826516
-
Characterizing biobank organizations in the U. S.: Results from a national survey
-
Henderson, G. E., Cadigan, R. J., Edwards, T. P., Conlon, I., Nelson, A. G., Evans, J. P., Davis, A. M., Zimmer, C. and Weiner, B. J. (2013). Characterizing Biobank Organizations in the U. S.: Results From a National Survey. Genome Medicine, 5, 3.
-
(2013)
Genome Medicine
, vol.5
, pp. 3
-
-
Henderson, G.E.1
Cadigan, R.J.2
Edwards, T.P.3
Conlon, I.4
Nelson, A.G.5
Evans, J.P.6
Davis, A.M.7
Zimmer, C.8
Weiner, B.J.9
-
28
-
-
50849101381
-
Resolving individuals contributing trace amounts of dna to highly complex mixtures using high-density SNP genotyping microarrays
-
Homer, N., Szelinger, S., Redman, M., Duggan, D., Tembe, W., Muehling, J., Pearson, J. V., Stephan, D. A., Nelson, S. F. and Craig, D. W. (2008). Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays. Plos Genetics, 4, 1-9.
-
(2008)
Plos Genetics
, vol.4
, pp. 1-9
-
-
Homer, N.1
Szelinger, S.2
Redman, M.3
Duggan, D.4
Tembe, W.5
Muehling, J.6
Pearson, J.V.7
Stephan, D.A.8
Nelson, S.F.9
Craig, D.W.10
-
29
-
-
77951115122
-
International network of cancer genome projects
-
Hudson, T. (2010). International Network of Cancer Genome Projects. Nature, 464, 993-998.
-
(2010)
Nature
, vol.464
, pp. 993-998
-
-
Hudson, T.1
-
30
-
-
84859488836
-
On sharing quantitative trait gwas results in an era of multiple-omics and the limits of genomic privacy
-
Im, H. K., Gamazon, E., Nicolae, D. and Cox, N. (2012). On Sharing Quantitative Trait GWAS Results in an era of Multiple-omics and the Limits of Genomic Privacy. American Journal of Human Genetics, 90, 591-598.
-
(2012)
American Journal of Human Genetics
, vol.90
, pp. 591-598
-
-
Im, H.K.1
Gamazon, E.2
Nicolae, D.3
Cox, N.4
-
31
-
-
48349108322
-
Best practices for repositories: Collection, storage, retrieval and distribution of biological materials for research
-
ISBER.
-
ISBER. (2008). Best Practices for Repositories: Collection, Storage, Retrieval and Distribution of Biological Materials for Research. Cell Preservation Technology, 6, 1-58.
-
(2008)
Cell Preservation Technology
, vol.6
, pp. 1-58
-
-
-
32
-
-
80053307605
-
From single biobanks to international networks: Developing e-governance
-
Kaye, J. (2011). From Single Biobanks to International Networks: Developing e-governance. Human Genetics, 130, 377-382.
-
(2011)
Human Genetics
, vol.130
, pp. 377-382
-
-
Kaye, J.1
-
33
-
-
48349137285
-
Governing genetic databases: Collection, storage and use
-
Kaye, J. (2007). Governing Genetic Databases: Collection, Storage and Use. King's Law Journal, 18, 201-208.
-
(2007)
King's Law Journal
, vol.18
, pp. 201-208
-
-
Kaye, J.1
-
34
-
-
84859900558
-
Science and society: From patients to partners: Participant-centric initiatives in biomedical research
-
Kaye, J., Curren, L., Anderson, N., Edwards, K., Fullerton, S. M., Kanellopoulou, N., Lund, D., MacArthur, D. G., Mascalzoni, D., Shepherd, J., Taylor, P. L., Terry, S. F. and Winter, S. F. (2012a). Science and Society: From Patients to Partners: Participant-centric Initiatives in Biomedical Research. Nature Reviews Genetics, 13, 371-376.
-
(2012)
Nature Reviews Genetics
, vol.13
, pp. 371-376
-
-
Kaye, J.1
Curren, L.2
Anderson, N.3
Edwards, K.4
Fullerton, S.M.5
Kanellopoulou, N.6
Lund, D.7
Macarthur, D.G.8
Mascalzoni, D.9
Shepherd, J.10
Taylor, P.L.11
Terry, S.F.12
Winter, S.F.13
-
35
-
-
84860789494
-
ELSI 2. 0: A new collaboratory for genomics and society research
-
Kaye, J., Meslin, E., Knoppers, B., Juengst, E., Deschenes, M., Cambon-Thomsen, A., Chalmers, D., De Vries, J., Edwards, K. and Hoppe, N. (2012b). 'ELSI 2. 0: A New Collaboratory for Genomics and Society Research. Science, 336, 673-674.
-
(2012)
Science
, vol.336
, pp. 673-674
-
-
Kaye, J.1
Meslin, E.2
Knoppers, B.3
Juengst, E.4
Deschenes, M.5
Cambon-Thomsen, A.6
Chalmers, D.7
De Vries, J.8
Edwards, K.9
Hoppe, N.10
-
37
-
-
84921382128
-
Dynamic consent: A patient interface for twenty-first century research networks
-
Kaye, J., Whitley, E. A., Lund, D., Morrison, M., Teare, H. and Melham, K. (2015). Dynamic Consent: A Patient Interface for Twenty-first Century Research Networks. European Journal of Human Genetics, 23, 141-146.
-
(2015)
European Journal of Human Genetics
, vol.23
, pp. 141-146
-
-
Kaye, J.1
Whitley, E.A.2
Lund, D.3
Morrison, M.4
Teare, H.5
Melham, K.6
-
39
-
-
10644282182
-
Human genetic research: Emerging trends in ethics
-
Knoppers, B. M. and Chadwick, R. (2006). Human Genetic Research: Emerging Trends in Ethics. Nature Reviews Genetics, 6, 75-79.
-
(2006)
Nature Reviews Genetics
, vol.6
, pp. 75-79
-
-
Knoppers, B.M.1
Chadwick, R.2
-
40
-
-
16644401011
-
Beyond the rhetoric: Population genetics and benefit-sharing
-
Knoppers, B. M. and Sheremeta, L. (2003). Beyond the Rhetoric: Population Genetics and Benefit-sharing. Health Law Journal, 11, 89-117.
-
(2003)
Health Law Journal
, vol.11
, pp. 89-117
-
-
Knoppers, B.M.1
Sheremeta, L.2
-
41
-
-
84882449721
-
Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?
-
Kristin, S., Bjørn Kåre, M. and Berge, S. (2013). Broad Consent Versus Dynamic Consent in Biobank Research: Is Passive Participation an Ethical Problem? European Journal of Human Genetics, 21, 897-902.
-
(2013)
European Journal of Human Genetics
, vol.21
, pp. 897-902
-
-
Kristin, S.1
Bjørn Kåre, M.2
Berge, S.3
-
42
-
-
48349127513
-
Consent for biobanking: Lack of dissent when opting-in does not necessarily support 'opt-out'
-
Laurie, G. (2008). Consent for Biobanking: Lack of Dissent When Opting-in Does Not Necessarily Support 'opt-out'. British Medical Journal, 337, 186-187.
-
British Medical Journal
, vol.337
, pp. 186-187
-
-
Laurie, G.1
-
43
-
-
84880097758
-
Protecting health research subjects: A jurisdictional analysis
-
Llewellyn, J., Downie, J. and Holmes, R. (2003). Protecting Health Research Subjects: A Jurisdictional Analysis. Health Law Journal, pp. 207-242.
-
(2003)
Health Law Journal
, pp. 207-242
-
-
Llewellyn, J.1
Downie, J.2
Holmes, R.3
-
44
-
-
79959882088
-
Ethical and practical challenges of sharing data from genome-wide association studies: The emerge consortium experience
-
McGuire, A. L., Basford, M., Dressler, L. G., Fullerton, S. M., Koenig, B. A., Li, R., McCarty, C. A., Ramos, E., Smith, M. E., Somkin, C. P., Waudby, C., Wolf, W. A. and Clayton, E. W. (2010). Ethical and Practical Challenges of Sharing Data from Genome-wide Association Studies: The eMERGE Consortium Experience. Genome Research, 21, 1001-1007.
-
(2010)
Genome Research
, vol.21
, pp. 1001-1007
-
-
McGuire, A.L.1
Basford, M.2
Dressler, L.G.3
Fullerton, S.M.4
Koenig, B.A.5
Li, R.6
McCarty, C.A.7
Ramos, E.8
Smith, M.E.9
Somkin, C.P.10
Waudby, C.11
Wolf, W.A.12
Clayton, E.W.13
-
45
-
-
53149142519
-
Informed consent in the genomics era
-
Mascalzoni, D., Hicks, A., Pramstaller, P. and Wjst, M. (2008). Informed Consent in the Genomics era. PLoS Medecine, 5, e192.
-
(2008)
PLoS Medecine
, vol.5
, pp. e192
-
-
Mascalzoni, D.1
Hicks, A.2
Pramstaller, P.3
Wjst, M.4
-
46
-
-
13844275522
-
Regulating research and experimentation: A view from the UK
-
McLean, S. (2004). Regulating Research and Experimentation: A View from the UK. Journal of Law Medicine and Ethics, 32, 604-612.
-
(2004)
Journal of Law Medicine and Ethics
, vol.32
, pp. 604-612
-
-
McLean, S.1
-
48
-
-
0032501363
-
Updating protections for human subjects involved in research
-
Moreno, J., Caplan, A. L. and Wolpe, P. R. (1998). Updating Protections for Human Subjects Involved in Research. JAMA, 280, 1951-1958.
-
(1998)
JAMA
, vol.280
, pp. 1951-1958
-
-
Moreno, J.1
Caplan, A.L.2
Wolpe, P.R.3
-
49
-
-
84926668577
-
-
National Institutes of Health Revitalization Act. [accessed 2 September 2014]
-
National Institutes of Health Revitalization Act. (1993). Available from: http://orwh. od. nih. gov/about /pdf/NIH-Revitalization-Act-1993. pdf [accessed 2 September 2014].
-
(1993)
-
-
-
51
-
-
84880901378
-
-
National Cancer Institute. U. S. Department of Health and Human Services. [accessed 30 July 2014]
-
National Cancer Institute. (2013). Cancer Genome Atlas. U. S. Department of Health and Human Services, available from: http://cancergenome. nih. gov/ [accessed 30 July 2014].
-
(2013)
Cancer Genome Atlas
-
-
-
52
-
-
84860153905
-
-
National Cancer Institute. National Institutes of Health. accessed 30 July 2014
-
National Cancer Institute. (2011). Best Practices for Biospecimen Resources. National Institutes of Health, available from: http://biospecimens. cancer. gov/bestpractices/2011-NCIBestPractices. pdf [accessed 30 July 2014].
-
(2011)
Best Practices for Biospecimen Resources
-
-
-
54
-
-
34548169034
-
Public trust, intellectual property and human genetic databases; The need to address benefit sharing
-
Nicol, D. (2006). Public Trust, Intellectual Property and Human Genetic Databases; the Need to Address Benefit Sharing. Journal of International Biotechnology Law, 3, 89-103.
-
(2006)
Journal of International Biotechnology Law
, vol.3
, pp. 89-103
-
-
Nicol, D.1
-
55
-
-
84881883364
-
Standards for biobank access and intellectual property
-
In Rimmer, M. and McLennan, A. (eds). Cheltenham UK: Queen Mary Studies in Intellectual Property, Edward Elgar
-
Nicol, D. and Gold, E. R. (2012). Standards for biobank access and intellectual property. In Rimmer, M. and McLennan, A. (eds), Intellectual Property and Emerging Technologies: The New Biology. Cheltenham UK: Queen Mary Studies in Intellectual Property, Edward Elgar, pp. 133-157.
-
(2012)
Intellectual Property and Emerging Technologies: The New Biology
, pp. 133-157
-
-
Nicol, D.1
Gold, E.R.2
-
57
-
-
79960699766
-
From consent to institutions: Adaptive governance for genomic biobanks
-
O'Doherty, K., Burgess, M. M., Edwards, K., Gallagher, R., Hawkins, A., Kaye, J., McCaffrey, V. and Winickoff, D. (2011). From Consent to Institutions: Adaptive Governance for Genomic Biobanks. Social Science and Medicine, 73, 367-374.
-
(2011)
Social Science and Medicine
, vol.73
, pp. 367-374
-
-
O'doherty, K.1
Burgess, M.M.2
Edwards, K.3
Gallagher, R.4
Hawkins, A.5
Kaye, J.6
McCaffrey, V.7
Winickoff, D.8
-
58
-
-
77957594024
-
Broken promises of privacy: Responding to the surprising failure of anonymization
-
Ohm, P. (2010). Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization. UCLA Law Review, 57, 1701-1777.
-
(2010)
UCLA Law Review
, vol.57
, pp. 1701-1777
-
-
Ohm, P.1
-
59
-
-
84926649790
-
-
Public Population Project in Genomics and Society. accessed 20 July 2014
-
Public Population Project in Genomics and Society. (2005). Ethics Governance and Public Engagement, available from: http://www. p3gobservatory. org/re pository/ethics. htm [accessed 20 July 2014].
-
(2005)
Ethics Governance and Public Engagement
-
-
-
60
-
-
84860329478
-
Baysian method to predict individual SNP genotypes from gene expression data
-
Schadt, E., Woo, S. and Hao, K. (2012). Baysian Method to Predict Individual SNP Genotypes from Gene Expression Data. Nature Genetics, 44, 603-608.
-
(2012)
Nature Genetics
, vol.44
, pp. 603-608
-
-
Schadt, E.1
Woo, S.2
Hao, K.3
-
61
-
-
0035849989
-
Ethical issues in the design and conduct of clinical trials in developing countries
-
Shapiro, H. T. and Meslin, E. M. (2001). Ethical Issues in the Design and Conduct of Clinical Trials in Developing Countries. New England Journal of Medicine, 345, 139-141.
-
(2001)
New England Journal of Medicine
, vol.345
, pp. 139-141
-
-
Shapiro, H.T.1
Meslin, E.M.2
-
62
-
-
80655139255
-
Can broad consent be informed consent?
-
Sheehan, M. (2011). Can Broad Consent Be Informed Consent? Public Health Ethics, 4, 226-235.
-
(2011)
Public Health Ethics
, vol.4
, pp. 226-235
-
-
Sheehan, M.1
-
63
-
-
84889048941
-
Reforming biobank consent policy: A necessary move away from broad consent toward dynamic consent
-
Stein, D. T. and Terry, S. F. (2013). Reforming Biobank Consent Policy: A Necessary Move Away from Broad Consent Toward Dynamic Consent. Genetic Testing and Molecular Biomarkers, 17, 855-856.
-
(2013)
Genetic Testing and Molecular Biomarkers
, vol.17
, pp. 855-856
-
-
Stein, D.T.1
Terry, S.F.2
-
66
-
-
84926675804
-
-
Susan G Komen for the Cure. [accessed 30 July 2014]
-
Susan G Komen for the Cure. (2011). Tissue Bank at the IU Simon Cancer Center, available from: https://ko mentissuebank. iu. edu/ [accessed 30 July 2014].
-
(2011)
Tissue Bank at the IU Simon Cancer Center
-
-
-
67
-
-
55549116026
-
Personal genomes: When consent gets in the way
-
Taylor, P. (2008). Personal Genomes: When Consent Gets in the Way. Nature, 456, 32-33.
-
(2008)
Nature
, vol.456
, pp. 32-33
-
-
Taylor, P.1
-
68
-
-
84926623003
-
-
UK Biobank. accessed 24 July 2014
-
UK Biobank. (2007). Ethical and Governance Framework, available from: http://www. ukbiobank. ac. uk/wp-content/uploads/2011/05/EGF20082. pdf [accessed 24 July 2014].
-
(2007)
Ethical and Governance Framework
-
-
-
69
-
-
33645229263
-
-
[accessed 30 July 2014]
-
UNESCO. (2005). Universal Declaration on Bioethics and Human Rights, available from: http://portal. unesco. org/en/ev. php-URL-ID=31058&URL-DO= DO-TOPIC&URL-SECTION=201. html [accessed 30 July 2014].
-
(2005)
Universal Declaration on Bioethics and Human Rights
-
-
-
70
-
-
82555167177
-
-
US Department of Health and Human Services. [accessed 30 July 2014]
-
US Department of Health and Human Services. (2011). Advance Notice of Proposed Rulemaking for Revisions to the Common Rule, available from: http://www. hhs. gov/ohrp/humansubjects/anprm2011page. html [accessed 30 July 2014].
-
(2011)
Advance Notice of Proposed Rulemaking for Revisions to the Common Rule
-
-
-
71
-
-
84926628556
-
-
Vanderbilt University Medical Center, accessed 30 July 2014
-
Vanderbilt University Medical Center. (2012). Vanderbilt DNA Databank, available from: https://medschool. vanderbilt. edu/dbmi/biovu-vanderbilts-dna-databank [accessed 30 July 2014].
-
(2012)
Vanderbilt DNA Databank
-
-
-
72
-
-
34547950328
-
Partnership in U. K. Biobank: A third way for genomic property?
-
Winickoff, D. E. (2007). Partnership in U. K. Biobank: A Third Way for Genomic Property? Journal of Law, Medicine and Ethics, 35, 440-456.
-
(2007)
Journal of Law, Medicine and Ethics
, vol.35
, pp. 440-456
-
-
Winickoff, D.E.1
-
73
-
-
84859566974
-
Managing incidental findings and research results in genomic research involving biobanks and archived data sets
-
Wolf, S. M., Crock, B. N., Van Ness, B., Lawrence, F., Kahn, J. P., Beskow, L. M., Cho, M. K., Christman, M. F., Green, R. C., Hall, R., Illes, J., Keane, M., Knoppers, B. M., Koenig, B. A., Kohane, I. S., LeRoy, B., Maschke, K. J., McGeveran, W., Ossorio, P., Parker, L. S., Petersen, G. M., Richardson, H. S., Scott, J. A., Terry, S. F., Wilfond, B. S. and Wolf, W. A. (2012). Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets. Genetics in Medicine, 14, 361-384.
-
(2012)
Genetics in Medicine
, vol.14
, pp. 361-384
-
-
Wolf, S.M.1
Crock, B.N.2
Van Ness, B.3
Lawrence, F.4
Kahn, J.P.5
Beskow, L.M.6
Cho, M.K.7
Christman, M.F.8
Green, R.C.9
Hall, R.10
Illes, J.11
Keane, M.12
Knoppers, B.M.13
Koenig, B.A.14
Kohane, I.S.15
Leroy, B.16
Maschke, K.J.17
McGeveran, W.18
Ossorio, P.19
Parker, L.S.20
Petersen, G.M.21
Richardson, H.S.22
Scott, J.A.23
Terry, S.F.24
Wilfond, B.S.25
Wolf, W.A.26
more..
-
74
-
-
38049144317
-
Biobanking for europe
-
Yuille, M., van Ommen, G. J., Brechot, C., Cambon-Thomsen, A., Dagher, G., Landegren, U., Litton, J. E., Pasterk, M., Taussig, M., Wichmann, H. E. and Zatloukal, K. (2008). Biobanking for Europe. Briefings in Bioinformatics, 9, 14-24.
-
(2008)
Briefings in Bioinformatics
, vol.9
, pp. 14-24
-
-
Yuille, M.1
Van Ommen, G.J.2
Brechot, C.3
Cambon-Thomsen, A.4
Dagher, G.5
Landegren, U.6
Litton, J.E.7
Pasterk, M.8
Taussig, M.9
Wichmann, H.E.10
Zatloukal, K.11
-
75
-
-
40649099658
-
Should post-trial provision of beneficial experimental interventions be mandatory in developing countries?
-
Zong, Z. (2008). Should Post-trial Provision of Beneficial Experimental Interventions be Mandatory in Developing Countries?' Journal of Medical Ethics, 34, 188-192.
-
(2008)
Journal of Medical Ethics
, vol.34
, pp. 188-192
-
-
Zong, Z.1
|