Experts 1 - Experiences of long-term life-limiting conditions among patients and carers: Protocol for a qualitative meta-synthesis and conceptual modelling study

BMJ Open

Volumn 5, Issue 4, 2015, Pages

  May, Carl R ^a,b   Masters, Jayne ^a,b   Welch, Lindsay ^a,c   Hunt, Katherine ^a   Pope, Catherine ^a   Myall, Michelle ^a   Griffiths, Peter ^a   Roderick, Paul ^a,b,d   Glanville, Julie ^e   Richardson, Alison ^a,b  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^b UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST   (United Kingdom)

^c ST MARY S HOSPITAL   (United Kingdom)

^d UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^e UNIVERSITY OF YORK   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAREGIVER; CHRONIC DISEASE; DISEASE COURSE; HEALTH CARE; HEALTH CARE PERSONNEL; HEALTH CARE SYSTEM; HEALTH CARE UTILIZATION; HUMAN; META ANALYSIS; QUALITATIVE ANALYSIS; QUALITATIVE RESEARCH; SOCIAL CARE; SYSTEMATIC REVIEW; WORKLOAD; AUSTRALIA AND NEW ZEALAND; EUROPE; HEALTH CARE DELIVERY; INTEGRATED HEALTH CARE SYSTEM; LONG TERM CARE; NORTH AMERICA; ORGANIZATION AND MANAGEMENT; STANDARDS;

AUSTRALASIA; CAREGIVERS; CHRONIC DISEASE; DELIVERY OF HEALTH CARE; DELIVERY OF HEALTH CARE, INTEGRATED; EUROPE; HUMANS; LONG-TERM CARE; NORTH AMERICA; QUALITATIVE RESEARCH;

EID: 84926443360     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2014-007372     Document Type: Article

References (45)

1. Tinetti ME, Basu J. Research on multiple chronic conditions: where we are and where we need to go. Med Care 2014;52(Suppl 3):S3-6.
2. Barnett K, Mercer SW, Norbury M, et al. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet 2012;380:37-43.
3. Holman HR. Chronic disease and the healthcare crisis. Chronic Illn 2005;1:265-74; discussion 75-9.
4. Boyd CM, Wolff JL, Giovannetti E, et al. Healthcare task difficulty among older adults with multimorbidity. Med Care 2014;52:S118-25.
5. Luijks HD, Loeffen MJ, Lagro-Janssen AL, et al. GPs' considerations in multimorbidity management: a qualitative study. Br J Gen Pract 2012;62:e503-10.
6. Leppin AL, Gionfriddo MR, Kessler M, et al. Preventing 30-day hospital readmissions: a systematic review and meta-analysis of randomized trials. JAMA Intern Med 2014;174:1095-107.
7. Kangovi S, Grande D, Meehan P, et al. Perceptions of readmitted patients on the transition from hospital to home. J Hosp Med 2012;7:709-12.
8. Hempstead K, DeLia D, Cantor JC, et al. The fragmentation of hospital use among a cohort of high utilizers implications for emerging care coordination strategies for patients with multiple chronic conditions. Med Care 2014;52:S67-74.
9. Vassilev I, Rogers A, Blickem C, et al. Social networks, the 'work' and work force of chronic illness self-management: a survey analysis of personal communities. PLoS One 2013;8:e59723.
10. Sav A, King MA, Whitty JA, et al. Burden of treatment for chronic illness: a concept analysis and review of the literature. Health Expect 2013. Published Online First: 31 Jan 2013. doi:10.1111/hex.12046
11. Jani B, Blane D, Browne S, et al. Identifying treatment burden as an important concept for end of life care in those with advanced heart failure. Curr Opin Support Palliat Care 2013;7:3-7.
12. Mair F, Browne S, Gallacher K, et al. Treatment burden and chronic heart failure: why we need more person centred care. Int J Qual Methods 2011;10:518-19.
13. Grembowski D, Schaefer J, Johnson KE, et al. A conceptual model of the role of complexity in the care of patients with multiple chronic conditions. Med Care 2014;52(Suppl 3):S7-14.
14. Shigayeva A, Coker RJ. Communicable disease control programmes and health systems: an analytical approach to sustainability. Health Policy Plan 2015;30:368-85.
15. May C, Finch T. Implementing, embedding, and integrating practices: an outline of normalization process theory. Sociology 2009;43:535-54.
16. May C. Towards a general theory of implementation. Implement Sci 2013;8:18.
17. May C, Montori VM, Mair FS. We need minimally disruptive medicine. BMJ 2009;339:B2803.
18. Gallacher K, Morrison D, Jani B, et al. Uncovering treatment burden as a key concept for stroke care: a systematic review of qualitative research. PLoS Med 2013;10:e1001473.
19. Eton DT, Ramalho de Oliveira D, Egginton JS, et al. Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study. Patient Relat Outcome Meas 2012;3:39-49.
20. Shippee ND, Shah ND, May CR, et al. Cumulative complexity: a functional, patient-centered model of patient complexity can improve research and practice. J Clin Epidemiol 2012;65:1041-51.
21. May CR, Eton DT, Boehmer K, et al. Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness. BMC Health Serv Res 2014;14:281.
22. Oni T, McGrath N, BeLue R, et al. Chronic diseases and multi-morbidity - a conceptual modification to the WHO ICCC model for countries in health transition. BMC Public Health 2014;14:575.
23. Safford MM, Allison JJ, Kiefe CI. Patient complexity: more than comorbidity. The vector model of complexity. J Gen Intern Med 2007;22:382-90.
24. van der Vlegel-Brouwer W. Integrated healthcare for chronically ill. Reflections on the gap between science and practice and how to bridge the gap. Int J Integr Care 2013;13:e019.
25. Thorne S, Paterson B, Acorn S, et al. Chronic illness experience: insights from a metastudy. Qual Health Res 2002;12:437-52.
26. Charmaz K. Good days, bad days: the self in chronic illness. New Burnswick, NJ: Rutgers University Press, 2006.
27. Corbin J, Strauss A. Unending work and care: managing chronic illness at home. San Francisco: Jossey-Bass, 1998.
28. Clark AM, Savard LA, Spaling MA, et al. Understanding help-seeking decisions in people with heart failure: a qualitative systematic review. Int J Nurs Stud 2012;49:1582-97.
29. Sinnott C, Mc Hugh S, Browne J, et al. GPs' perspectives on the management of patients with multimorbidity: systematic review and synthesis of qualitative research. BMJ Open 2013;3:e003610.
30. Bower P, Harkness E, Macdonald W, et al. Illness representations in patients with multimorbid long-term conditions: qualitative study. Psychol Health 2012;27:1211-26.
31. Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care 2007;19:349-57.
32. Tong A, Flemming K, McInnes E, et al. Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Med Res Methodol 2012;12:181.
33. Clark J. How to peer review a qualitative manuscript. In: Godlee F, Jefferson T, eds. Peer review in health sciences. 2nd edn. London: BMJ Books, 2003:219-35.
34. Glaser B. The constant comparison method of qualitative analysis. Soc Probl 1965;12:436-45.
35. Armstrong D, Gosling A, Weinman J, et al. The place of inter-rater reliability in qualitative research: an empirical study. Sociology 1997;31:597-606.
36. May C, Sibley A, Hunt K. The nursing work of hospital-based clinical practice guideline implementation: an explanatory systematic review using Normalisation Process Theory. Int J Nurs Stud 2014;51:289-99.
37. Bridges J, Nicholson C, Maben J, et al. Capacity for care: meta-ethnography of acute care nurses' experiences of the nurse-patient relationship. J Adv Nurs 2013;69:760-72.
38. Carlsen B, Glenton C, Pope C. Thou shalt versus thou shalt not: a meta-synthesis of GPs' attitudes to clinical practice guidelines. Br J Gen Pract 2007;57:971-8.
39. Smith LK, Pope C, Botha JL. Patients' help-seeking experiences and delay in cancer presentation: a qualitative synthesis. Lancet 2005;366:825-31.
40. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res 2005;15:1277-88.
41. Gladwin CH. Ethnographic decision tree modelling. Thousand Oaks, CA: Sage, 1989.
42. Cohen GL. Migraine prophylactic drugs work via ion channels. Med Hypotheses 2005;65:114-22.
43. Mair FS, May C, O'Donnell C, et al. Factors that promote or inhibit the implementation of e-health systems: an explanatory systematic review. Bull World Health Organ 2012;90:357-64.
44. May CR, Mair F, Finch T, et al. Development of a theory of implementation and integration: normalization process theory. Implement Sci 2009;4:29.
45. Watson R, Parr JR, Joyce C, et al. Models of transitional care for young people with complex health needs: a scoping review. Child Care Health Dev 2011;37:780-91.