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3
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Epidemiology of multimorbidity and implications for healthcare, research, and medical education: A crosssectional study
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Barnett, K.1
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Noncardiovascular co-morbidity in elderly patients with heart failure outnumbers cardiovascular co-morbidity
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Cumulative complexity: A functional, patient-centered model of patient complexity can improve research and practice
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This article provides a detailed review of the concept of treatment burden and its relationship to other factors that will affect patient experience
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Shippee ND Shah ND May CR, et al. Cumulative complexity: a functional, patient-centered model of patient complexity can improve research and practice. J Clin Epidemiol 2012;65:1041-1051. This article provides a detailed review of the concept of treatment burden and its relationship to other factors that will affect patient experience.
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Shippee, N.D.1
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Understanding patients' experiences of treatment burden in chronic heart failure using normalization process theory
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This article provides a detailed taxonomy of treatment burden in heart failure
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Gallacher K, May CR, Montori VM, Mair FS. Understanding patients' experiences of treatment burden in chronic heart failure using normalization process theory. Ann Fam Med 2011;9:235-243. This article provides a detailed taxonomy of treatment burden in heart failure.
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Gallacher, K.1
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A qualitative descriptive study of the work of adherence to a chronic heart failure regimen: Patient and physician perspectives
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Granger BB, Sandelowski M, Tahshjain H, et al. A qualitative descriptive study of the work of adherence to a chronic heart failure regimen: patient and physician perspectives. J Cardiovasc Nurs 2009;24:308-315.
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Granger, B.B.1
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Building a measurement framework of burden of treatment in complex patients with chronic conditions: A qualitative study
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Eton DT, Ramalho-de Oliveira D, Egginton JS, et al. Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study. Patient Relat Outcome Measures 2012;3:39-49.
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Eton, D.T.1
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Egginton, J.S.3
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Development and description of measurement properties of an instrument to assess treatment burden among patients with multiple chronic conditions
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Tran VT, Montori VM, Eton DT, et al. Development and description of measurement properties of an instrument to assess treatment burden among patients with multiple chronic conditions. BMC Med 2012;10:68.
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Overwhelmed patients: A videographic analysis of how patients and clinicians articulate and address treatment burden during clinical encounters
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Bohlen K, Scoville E, Shippee ND et al. Overwhelmed patients: a videographic analysis of how patients and clinicians articulate and address treatment burden during clinical encounters. Diabetes Care 2012;35:47-49.
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Retheorizing the clinical encounter: Normalization processes and the corporate ecologies of care
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Scambler G.;Scambler, S. Routledge , London
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May C. Retheorizing the Clinical Encounter: Normalization Processes and the Corporate Ecologies of Care. In Assaults on the Lifeworld: New Directions in the Sociology of Chronic and Disabling Conditions. Scambler G.;Scambler, S. Routledge , London 2010.
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May, C.1
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12
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Implementing, embedding and integrating practices: An outline of Normalization Process Theory
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May C, Finch T. Implementing, embedding and integrating practices: an outline of Normalization Process Theory. Sociology 2009;43:535-554.
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Sociology
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May, C.1
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Qualitative systematic reviews of treatment burden in stroke, heart failure and diabetes: Methodological challenges and solutions
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Gallacher K, Jani B, Morrison D, et al. Qualitative systematic reviews of treatment burden in stroke, heart failure and diabetes: methodological challenges and solutions. BMC Medical Research Methodology. ISSN 1471- 2288 (In Press)
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BMC Medical Research Methodology. ISSN 1471-2288
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Gallacher, K.1
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15
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Living with an unfixable heart: A qualitative study exploring the experience of living with advanced heart failure
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Ryan M, Farrelly M. Living with an unfixable heart: a qualitative study exploring the experience of living with advanced heart failure. Eur J Cardiovasc Nurs 2009;8:223-231.
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Ryan, M.1
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A qualitative study of the psychological experience of patients during and after mechanical cardiac support
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Hallas C, Banner NR, Wray J. A qualitative study of the psychological experience of patients during and after mechanical cardiac support. J Cardiovasc Nurs 2009;24:31-39.
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Brannstrom M, Ekman I, Norberg A, et al. Living with severe chronic heart failure in palliative advanced home care. Eur J Cardiovasc Nurs 2006;5:295-302.
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Addressing 'the elephant on the table': Barriers to end of life care conversations in heart failure - A literature review and narrative synthesis
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This article is very relevant as it highlights a key aspect of treatment burden - lack of coherence - experienced by patients. It also highlights key points for intervention
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Momen NC Barclay SIG. Addressing 'the elephant on the table': barriers to end of life care conversations in heart failure - a literature review and narrative synthesis. Curr Opin Support Palliat Care 2011;5:312-316. This article is very relevant as it highlights a key aspect of treatment burden - lack of coherence - experienced by patients. It also highlights key points for intervention.
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Curr Opin Support Palliat Care
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Momen, N.C.1
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35
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Preferences of people with advanced heart failure-A structured narrative literature review to inform decision making in the palliative care setting
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This article highlights the need to tailor care to patient wishes which complements the findings of this review well
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Dev S, Abernethy AP, Rogers JG, O'Connor CM. Preferences of people with advanced heart failure-A structured narrative literature review to inform decision making in the palliative care setting. Am Heart J 2012;164:313-319. This article highlights the need to tailor care to patient wishes which complements the findings of this review well.
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Am Heart J
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Dev, S.1
Abernethy, A.P.2
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Palliative care in advanced heart failure: An international review of the perspectives of recipients and health professionals on care provision
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Barclay S, Momen N, Case-Upton S, et al. End-of-life care conversations with heart failure patients: a systematic literature review and narrative synthesis. Br J Gen Pract 2011;61:e49-e62.
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