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Volumn 34, Issue 4, 2015, Pages 446-452

The parents' ability to attend to the "voice of their child" with incurable cancer during the palliative phase

Author keywords

Child participation; Decision making; Parenting; Pediatric oncology; Pediatric palliative care

Indexed keywords

ADULT; ARTICLE; BONE TUMOR; CANCER PALLIATIVE THERAPY; CHILD PARENT RELATION; CHILDHOOD CANCER; CLINICAL ARTICLE; FEMALE; GERM CELL TUMOR; HUMAN; INTERVIEW; KIDNEY TUMOR; LEUKEMIA; LIVER CELL CARCINOMA; LYMPHOMA; MALE; MEDULLOBLASTOMA; MIDDLE AGED; MULTICENTER STUDY; NEUROBLASTOMA; PARENTAL ATTITUDE; PERCEPTION; QUALITATIVE RESEARCH; SOFT TISSUE SARCOMA; THEMATIC ANALYSIS; ADOLESCENT; CHILD; CHRONIC DISEASE; CLINICAL TRIAL; INFANT; INTERPERSONAL COMMUNICATION; NEOPLASMS; PALLIATIVE THERAPY; PARENT; PRESCHOOL CHILD; PROCEDURES; PSYCHOLOGIC TEST; PSYCHOLOGY; YOUNG ADULT;

EID: 84926346179     PISSN: 02786133     EISSN: 19307810     Source Type: Journal    
DOI: 10.1037/hea0000166     Document Type: Article
Times cited : (33)

References (34)
  • 1
    • 0028959392 scopus 로고
    • Informed consent, parental permission, and assent in pediatric practice.
    • AAP Committee on Bioethics. (1995). Informed consent, parental permission, and assent in pediatric practice. Pediatrics, 95, 314-317..
    • (1995) Pediatrics , vol.95 , pp. 314-317
  • 2
    • 38849151137 scopus 로고    scopus 로고
    • Integration of palliative care practices into the ongoing care of children with cancer: Individualized care planning and coordination.
    • Baker, J. N., Hinds, P. S., Spunt, S. L., Barfield, R. C., Allen, C., Powell, B. C.,... Kane, J. R. (2008). Integration of palliative care practices into the ongoing care of children with cancer: Individualized care planning and coordination. Pediatric Clinics of North America, 55, 223-250, xii. http://dx.doi.org/10.1016/j.pcl.2007.10.011.
    • (2008) Pediatric Clinics of North America , vol.55
    • Baker, J.N.1    Hinds, P.S.2    Spunt, S.L.3    Barfield, R.C.4    Allen, C.5    Powell, B.C.6    Kane, J.R.7
  • 3
    • 77956168548 scopus 로고    scopus 로고
    • "I want to live, until I don't want to live anymore": Involving children with life-threatening and life-shortening illnesses in decision making about care and treatment.
    • Bluebond-Langner, M., Belasco, J. B., & DeMesquita Wander, M. (2010). "I want to live, until I don't want to live anymore": Involving children with life-threatening and life-shortening illnesses in decision making about care and treatment. The Nursing Clinics of North America, 45, 329-343. http://dx.doi.org/10.1016/j.cnur.2010.03.004.
    • (2010) The Nursing Clinics of North America , vol.45 , pp. 329-343
    • Bluebond-Langner, M.1    Belasco, J.B.2    DeMesquita Wander, M.3
  • 4
    • 34347259963 scopus 로고    scopus 로고
    • Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed.
    • Bluebond-Langner, M., Belasco, J. B., Goldman, A., & Belasco, C. (2007). Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed. Journal of Clinical Oncology, 25, 2414-2419. http://dx.doi.org/10.1200/JCO.2006.08.7759.
    • (2007) Journal of Clinical Oncology , vol.25 , pp. 2414-2419
    • Bluebond-Langner, M.1    Belasco, J.B.2    Goldman, A.3    Belasco, C.4
  • 8
    • 34249734220 scopus 로고    scopus 로고
    • IMPaCCT: Standards for paediatric palliative care.
    • EAPC Task Force. (2007). IMPaCCT: Standards for paediatric palliative care. European Journal of Palliative Care, 14, 109-114..
    • (2007) European Journal of Palliative Care , vol.14 , pp. 109-114
  • 9
    • 44449144552 scopus 로고    scopus 로고
    • Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.
    • Hechler, T., Blankenburg, M., Friedrichsdorf, S. J., Garske, D., Hübner, B., Menke, A.,... Zernikow, B. (2008). Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer. Klinische Padiatrie, 220, 166-174. http://dx.doi.org/10.1055/s-2008-1065347.
    • (2008) Klinische Padiatrie , vol.220 , pp. 166-174
    • Hechler, T.1    Blankenburg, M.2    Friedrichsdorf, S.J.3    Garske, D.4    Hübner, B.5    Menke, A.6    Zernikow, B.7
  • 10
    • 0035155498 scopus 로고    scopus 로고
    • Attitudes and practices among pediatric oncologists regarding end-of-life care: Results of the 1998 American Society of Clinical Oncology survey.
    • Hilden, J. M., Emanuel, E. J., Fairclough, D. L., Link, M. P., Foley, K. M., Clarridge, B. C.,... Mayer, R. J. (2001). Attitudes and practices among pediatric oncologists regarding end-of-life care: Results of the 1998 American Society of Clinical Oncology survey. Journal of Clinical Oncology, 19, 205-212..
    • (2001) Journal of Clinical Oncology , vol.19 , pp. 205-212
    • Hilden, J.M.1    Emanuel, E.J.2    Fairclough, D.L.3    Link, M.P.4    Foley, K.M.5    Clarridge, B.C.6    Mayer, R.J.7
  • 12
    • 0031252546 scopus 로고    scopus 로고
    • Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer.
    • Hinds, P. S., Oakes, L., Furman, W., Foppiano, P., Olson, M. S., Quargnenti, A.,... Strong, C. (1997). Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer. Oncology Nursing Forum, 24, 1523-1528..
    • (1997) Oncology Nursing Forum , vol.24 , pp. 1523-1528
    • Hinds, P.S.1    Oakes, L.2    Furman, W.3    Foppiano, P.4    Olson, M.S.5    Quargnenti, A.6    Strong, C.7
  • 13
    • 0035060393 scopus 로고    scopus 로고
    • End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology:Research to evidence-based practice guidelines.
    • Hinds, P. S., Oakes, L., Furman, W., Quargnenti, A., Olson, M. S., Foppiano, P., & Srivastava, D. K. (2001). End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology:Research to evidence-based practice guidelines. Cancer Nursing, 24, 122-134. http://dx.doi.org/10.1097/00002820-200104000-00007.
    • (2001) Cancer Nursing , vol.24 , pp. 122-134
    • Hinds, P.S.1    Oakes, L.2    Furman, W.3    Quargnenti, A.4    Olson, M.S.5    Foppiano, P.6    Srivastava, D.K.7
  • 14
    • 73349097271 scopus 로고    scopus 로고
    • "Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children.
    • Hinds, P. S., Oakes, L. L., Hicks, J., Powell, B., Srivastava, D. K., Spunt, S. L.,... Furman, W. L. (2009). "Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children. Journal of Clinical Oncology, 27, 5979-5985. http://dx.doi.org/10.1200/JCO.2008.20.0204.
    • (2009) Journal of Clinical Oncology , vol.27 , pp. 5979-5985
    • Hinds, P.S.1    Oakes, L.L.2    Hicks, J.3    Powell, B.4    Srivastava, D.K.5    Spunt, S.L.6    Furman, W.L.7
  • 17
    • 79959826801 scopus 로고    scopus 로고
    • Being a parent of a child with cancer throughout the end-of-life course.
    • Kars, M. C., Grypdonck, M. H., & van Delden, J. J. (2011). Being a parent of a child with cancer throughout the end-of-life course. Oncology Nursing Forum, 38, E260-E271. http://dx.doi.org/10.1188/11.ONF .E260-E271.
    • (2011) Oncology Nursing Forum , vol.38 , pp. E260-E271
    • Kars, M.C.1    Grypdonck, M.H.2    van Delden, J.J.3
  • 18
    • 34548095100 scopus 로고    scopus 로고
    • Using the Best Interests Standard to decide whether to test children for untreatable, late-onset genetic diseases.
    • Kopelman, L. M. (2007). Using the Best Interests Standard to decide whether to test children for untreatable, late-onset genetic diseases. The Journal of Medicine and Philosophy, 32, 375-394. http://dx.doi.org/10.1080/03605310701515252.
    • (2007) The Journal of Medicine and Philosophy , vol.32 , pp. 375-394
    • Kopelman, L.M.1
  • 20
    • 84893236256 scopus 로고    scopus 로고
    • Communicating about prognosis: Ethical responsibilities of pediatricians and parents.
    • Mack, J. W., & Joffe, S. (2014). Communicating about prognosis: Ethical responsibilities of pediatricians and parents. Pediatrics, 133 (Suppl. 1), S24-S30. http://dx.doi.org/10.1542/peds.2013-3608E.
    • (2014) Pediatrics , vol.133 , pp. S24-S30
    • Mack, J.W.1    Joffe, S.2
  • 22
    • 56349120248 scopus 로고    scopus 로고
    • A review of children's decision-making competence in health care.
    • Mårtenson, E. K., & Fägerskiöld, A. M. (2008). A review of children's decision-making competence in health care. Journal of Clinical Nursing, 17, 3131-3141. http://dx.doi.org/10.1111/j.1365-2702.2006.01920.x.
    • (2008) Journal of Clinical Nursing , vol.17 , pp. 3131-3141
    • Mårtenson, E.K.1    Fägerskiöld, A.M.2
  • 23
    • 0003346599 scopus 로고    scopus 로고
    • Verification strategies for establishing reliability and validity in qualitative research
    • Retrieved from
    • Morse, J. M., Barrett, M., Mayan, M., Olson, K., & Spiers, J. (2002). Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods, 1. Retrieved from www.ualberta .ca/~iiqm/backissues/1_2Final/html/morse.html
    • (2002) International Journal of Qualitative Methods , pp. 1
    • Morse, J.M.1    Barrett, M.2    Mayan, M.3    Olson, K.4    Spiers, J.5
  • 25
    • 0037398734 scopus 로고    scopus 로고
    • Valid informed consent and participative decision-making in children with cancer and their parents: A report of the SIOP Working Committee on psychosocial issues in pediatric oncology.
    • Spinetta, J. J., Masera, G., Jankovic, M., Oppenheim, D., Martins, A. G., Ben Arush, M. W.,... Eden, T., & the SIOP Working Committee on psychosocial issues in pediatric oncology. (2003). Valid informed consent and participative decision-making in children with cancer and their parents: A report of the SIOP Working Committee on psychosocial issues in pediatric oncology. Medical and Pediatric Oncology, 40, 244-246. http://dx.doi.org/10.1002/mpo.10262.
    • (2003) Medical and Pediatric Oncology , vol.40 , pp. 244-246
    • Spinetta, J.J.1    Masera, G.2    Jankovic, M.3    Oppenheim, D.4    Martins, A.G.5    Ben Arush, M.W.6    Eden, T.7
  • 26
    • 84868302396 scopus 로고    scopus 로고
    • Making the right decision for my child with cancer: The parental imperative.
    • Stewart, J. L., Pyke-Grimm, K. A., & Kelly, K. P. (2012). Making the right decision for my child with cancer: The parental imperative. Cancer Nursing, 35, 419-428. http://dx.doi.org/10.1097/NCC.0b013e3182431071.
    • (2012) Cancer Nursing , vol.35 , pp. 419-428
    • Stewart, J.L.1    Pyke-Grimm, K.A.2    Kelly, K.P.3
  • 29
    • 0034194463 scopus 로고    scopus 로고
    • "Let mum have her say": Turntaking in doctor-parent-child communication.
    • Tates, K., & Meeuwesen, L. (2000). "Let mum have her say": Turntaking in doctor-parent-child communication. Patient Education and Counseling, 40, 151-162. http://dx.doi.org/10.1016/S0738-3991(99)00075-0.
    • (2000) Patient Education and Counseling , vol.40 , pp. 151-162
    • Tates, K.1    Meeuwesen, L.2
  • 31
    • 33645989485 scopus 로고    scopus 로고
    • The importance of being there: Perspectives of social support by adolescents with cancer.
    • Woodgate, R. L. (2006). The importance of being there: Perspectives of social support by adolescents with cancer. Journal of Pediatric Oncology Nursing, 23, 122-134. http://dx.doi.org/10.1177/104345 4206287396.
    • (2006) Journal of Pediatric Oncology Nursing , vol.23 , pp. 122-134
    • Woodgate, R.L.1
  • 32
    • 0037425831 scopus 로고    scopus 로고
    • Managing communication with young people who have a potentially life threatening chronic illness: Qualitative study of patients and parents.
    • Young, B., Dixon-Woods, M., Windridge, K. C., & Heney, D. (2003). Managing communication with young people who have a potentially life threatening chronic illness: Qualitative study of patients and parents. BMJ: British Medical Journal, 326, 305. http://dx.doi.org/10.1136/bmj .326.7384.305.
    • (2003) BMJ: British Medical Journal , vol.326 , pp. 305
    • Young, B.1    Dixon-Woods, M.2    Windridge, K.C.3    Heney, D.4
  • 33
    • 79951862328 scopus 로고    scopus 로고
    • Communicating with child patients in pediatric oncology consultations: A vignette study on child patients', parents', and survivors' communication preferences.
    • Zwaanswijk, M., Tates, K., van Dulmen, S., Hoogerbrugge, P. M., Kamps, W. A., Beishuizen, A., & Bensing, J. M. (2011). Communicating with child patients in pediatric oncology consultations: A vignette study on child patients', parents', and survivors' communication preferences. Psycho-Oncology, 20, 269-277. http://dx.doi.org/10.1002/pon.1721.
    • (2011) Psycho-Oncology , vol.20 , pp. 269-277
    • Zwaanswijk, M.1    Tates, K.2    van Dulmen, S.3    Hoogerbrugge, P.M.4    Kamps, W.A.5    Beishuizen, A.6    Bensing, J.M.7
  • 34
    • 38349183323 scopus 로고    scopus 로고
    • Young patients', parents', and survivors' communication preferences in paediatric oncology: Results of online focus groups
    • Zwaanswijk, M., Tates, K., van Dulmen, S., Hoogerbrugge, P. M., Kamps, W. A., & Bensing, J. M. (2007). Young patients', parents', and survivors' communication preferences in paediatric oncology: Results of online focus groups. BMC Pediatrics, 7, 35. http://dx.doi.org/10.1186/1471-2431-7-35
    • (2007) BMC Pediatrics , vol.7 , pp. 35
    • Zwaanswijk, M.1    Tates, K.2    van Dulmen, S.3    Hoogerbrugge, P.M.4    Kamps, W.A.5    Bensing, J.M.6


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