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Volumn 127, Issue 4, 2011, Pages

The process of end-of-life decision-making in pediatrics: A national survey in the Netherlands

Author keywords

Death and dying; End of life decision making; Pediatric

Indexed keywords

ARTICLE; CHILD DEATH; CONFLICT; CROSS-SECTIONAL STUDY; END OF LIFE DECISION MAKING; FEMALE; HEALTH CARE MANAGEMENT; HUMAN; MALE; MEDICAL DECISION MAKING; NETHERLANDS; PARENTAL ATTITUDE; PARENTAL CONSENT; PEDIATRICIAN; PHYSICIAN ATTITUDE; PRIORITY JOURNAL; TERMINAL CARE;

EID: 79953313838     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2010-2591     Document Type: Article
Times cited : (49)

References (44)
  • 1
    • 34347166213 scopus 로고
    • Some numbers regarding the death of children under the age of one year in the Netherlands
    • in Dutch
    • Methorst HW. Some numbers regarding the death of children under the age of one year in the Netherlands [in Dutch]. De Economist. 1909;665-684
    • (1909) De Economist , pp. 665-684
    • Methorst, H.W.1
  • 2
    • 79953295102 scopus 로고    scopus 로고
    • Available at: Accessed January 12, 2010
    • CBS.CBSStatline. 2010. Available at: www.cbs.nl/en-GB/menu/cijfers/ recente-cijfers/default.htm. Accessed January 12, 2010
    • (2010) CBSStatline
  • 4
    • 79953295102 scopus 로고    scopus 로고
    • Available at: Accessed January 12, 2010
    • CBS.CBSStatline. 2010. Available at: www.cbs.nl/en-GB/menu/cijfers/ recente-cijfers/default.htm. Accessed January 12, 2010
    • (2010) CBSStatline
  • 5
    • 14744270067 scopus 로고    scopus 로고
    • The Groningen protocol - Euthanasia in severely ill newborns
    • DOI 10.1056/NEJMp058026
    • Verhagen E, Sauer PJ. The Groningen protocol: euthanasia in severely ill newborns. N Engl J Med. 2005;352(10):959-962 (Pubitemid 40349495)
    • (2005) New England Journal of Medicine , vol.352 , Issue.10 , pp. 959-962
    • Verhagen, E.1    Sauer, P.J.J.2
  • 6
    • 33644746015 scopus 로고    scopus 로고
    • The Groningen protocol: Another perspective
    • DOI 10.1136/jme.2005.012476
    • Jotkowitz AB, Glick S. The Groningen protocol: another perspective. J Med Ethics. 2006;32(3):157-158 (Pubitemid 43338120)
    • (2006) Journal of Medical Ethics , vol.32 , Issue.3 , pp. 157-158
    • Jotkowitz, A.B.1    Glick, S.2
  • 7
    • 41149169601 scopus 로고    scopus 로고
    • Paediatric ethics: A repudiation of the Groningen protocol
    • Kodish E. Paediatric ethics: a repudiation of the Groningen protocol. Lancet. 2008;371(9616):892-893
    • (2008) Lancet , vol.371 , Issue.9616 , pp. 892-893
    • Kodish, E.1
  • 8
    • 0031929452 scopus 로고    scopus 로고
    • The role of parents in end-of-life decisions in neonatology: Physicians' views and practices
    • DOI 10.1542/peds.101.3.413
    • van der Heide A, van der Maas PJ, van der Wal G, Kollée LA, de Leeuw R, Holl RA. The role of parents in end-of-life decisions in neonatology: physicians' views and practices. Pediatrics. 1998;101(3 pt 1):413-418 (Pubitemid 28136415)
    • (1998) Pediatrics , vol.101 , Issue.3 I , pp. 413-418
    • Van Der, H.A.1    Van Der, M.P.J.2    Van Der, W.G.3    Kollee, L.A.A.4    De Leeuw, R.5    Holl, R.A.6
  • 9
    • 67649623231 scopus 로고    scopus 로고
    • Conflicts about end-of-life decisions in NICUs in the Netherlands
    • Available at
    • Verhagen AA, de Vos M, Dorscheidt JH, Engels B, Hubben JH, Sauer PJ. Conflicts about end-of-life decisions in NICUs in the Netherlands. Pediatrics. 2009;124(1). Available at: www.pediatrics.org/cgi/content/full/124/1/e112
    • (2009) Pediatrics , vol.124 , Issue.1
    • Verhagen, A.A.1    De Vos, M.2    Dorscheidt, J.H.3    Engels, B.4    Hubben, J.H.5    Sauer, P.J.6
  • 11
    • 0028387205 scopus 로고
    • Guidelines on foregoing life-sustaining medical treatment
    • American Academy of Pediatrics, Committee on Bioethics
    • American Academy of Pediatrics, Committee on Bioethics. Guidelines on foregoing life-sustaining medical treatment. Pediatrics. 1994;93(3):532-536
    • (1994) Pediatrics , vol.93 , Issue.3 , pp. 532-536
  • 12
    • 1642317568 scopus 로고    scopus 로고
    • Treatment decisions regarding infants, children and adolescents
    • Canadian Paediatric Society
    • Canadian Paediatric Society. Treatment decisions regarding infants, children and adolescents. Paediatr Child Health. 2004;9(2):99-114
    • (2004) Paediatr Child Health , vol.9 , Issue.2 , pp. 99-114
  • 13
    • 26444530979 scopus 로고    scopus 로고
    • Limitations et arrêts de traitements actifs en réanimation pédiatrique: Recommandations du GFRUP
    • DOI 10.1016/j.arcped.2005.04.085, PII S0929693X05003374
    • Hubert P, Canoui P, Cremer R, Leclerc F. Withholding or withdrawing life saving treatment in pediatric intensive care unit: GFRUP guidelines [in French]. Arch Pediatr. 2005;12(10):1501-1508 (Pubitemid 41431519)
    • (2005) Archives de Pediatrie , vol.12 , Issue.10 , pp. 1501-1508
    • Hubert, P.1    Canoui, P.2    Cremer, R.3    Leclerc, F.4
  • 14
    • 32544441402 scopus 로고    scopus 로고
    • On the difficulty of neurosurgical end of life decisions
    • DOI 10.1136/jme.2005.011767
    • Schaller C, Kessler M. On the difficulty of neurosurgical end of life decisions. J Med Ethics. 2006;32(2):65-69 (Pubitemid 43230574)
    • (2006) Journal of Medical Ethics , vol.32 , Issue.2 , pp. 65-69
    • Schaller, C.1    Kessler, M.2
  • 17
    • 0033018476 scopus 로고    scopus 로고
    • Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model
    • DOI 10.1016/S0277-9536(99)00145-8, PII S0277953699001458
    • Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999;49(5):651-661 (Pubitemid 29314682)
    • (1999) Social Science and Medicine , vol.49 , Issue.5 , pp. 651-661
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 18
    • 44049093606 scopus 로고    scopus 로고
    • Forgoing life-sustaining or death-prolonging therapy in the pediatric ICU
    • Devictor D, Latour JM, Tissieres P. Forgoing life-sustaining or death-prolonging therapy in the pediatric ICU. Pediatr Clin North Am. 2008;55(3):791-804, xiii
    • (2008) Pediatr Clin North Am , vol.55 , Issue.3
    • Devictor, D.1    Latour, J.M.2    Tissieres, P.3
  • 19
    • 53349173721 scopus 로고    scopus 로고
    • End-oflife decisions in pediatric intensive care: Recommendations of the Italian Society of Neonatal and Pediatric Anesthesia and Intensive Care (SARNePI)
    • Giannini A, Messeri A, Aprile A, et al. End-oflife decisions in pediatric intensive care: recommendations of the Italian Society of Neonatal and Pediatric Anesthesia and Intensive Care (SARNePI). Paediatr Anaesth. 2008;18(11):1089-1095
    • (2008) Paediatr Anaesth , vol.18 , Issue.11 , pp. 1089-1095
    • Giannini, A.1    Messeri, A.2    Aprile, A.3
  • 20
    • 35148895425 scopus 로고    scopus 로고
    • Shared decision making in the medical encounter: Are we all talking about the same thing?
    • DOI 10.1177/0272989X07306779
    • Moumjid N, Gafni A, Brémond A, Carrère MO. Shared decision making in the medical encounter: are we all talking about the same thing? Med Decis Making. 2007;27(5):539-546 (Pubitemid 47547595)
    • (2007) Medical Decision Making , vol.27 , Issue.5 , pp. 539-546
    • Moumjid, N.1    Gafni, A.2    Bremond, A.3    Carrere, M.-O.4
  • 21
    • 20444407991 scopus 로고    scopus 로고
    • Withdrawing and withholding life-sustaining therapies are not the same
    • DOI 10.1186/cc3487
    • Levin PD, Sprung CL. Withdrawing and withholding life-sustaining therapies are not the same. Crit Care. 2005;9(3):230-232 (Pubitemid 40796791)
    • (2005) Critical Care , vol.9 , Issue.3 , pp. 230-232
    • Levin, P.D.1    Sprung, C.L.2
  • 23
    • 33744786236 scopus 로고    scopus 로고
    • When staff and parents disagree: Decision making for a baby with trisomy 13
    • Siegel LB. When staff and parents disagree: decision making for a baby with trisomy 13. Mt Sinai J Med. 2006;73(3):590-591 (Pubitemid 43834192)
    • (2006) Mount Sinai Journal of Medicine , vol.73 , Issue.3 , pp. 590-591
    • Siegel, L.B.1
  • 24
    • 0035060393 scopus 로고    scopus 로고
    • End-of-life decision making by adolescents, parents, and healthcare providers in pediatric oncology: Research to evidence-based practice guidelines
    • Hinds PS, Oakes L, Furman W, et al. End-oflife decision making by adolescents, parents, and healthcare providers in pediatric oncology: research to evidence-based practice guidelines. Cancer Nurs. 2001;24(2):122-134 (Pubitemid 32268297)
    • (2001) Cancer Nursing , vol.24 , Issue.2 , pp. 122-134
    • Hinds, P.S.1    Oakes, L.2    Furman, W.3    Quargnenti, A.4    Olson, M.S.5    Foppiano, P.6    Srivastava, D.K.7
  • 25
    • 24944444232 scopus 로고    scopus 로고
    • Life support decisions for extremely premature infants: Report of a pilot study
    • DOI 10.1016/j.pedn.2005.03.006, PII S0882596305000497
    • Kavanaugh K, Savage T, Kilpatrick S, Kimura R, Hershberger P. Life support decisions for extremely premature infants: report of a pilot study. J Pediatr Nurs. 2005;20(5):347-359 (Pubitemid 41330922)
    • (2005) Journal of Pediatric Nursing , vol.20 , Issue.5 , pp. 347-359
    • Kavanaugh, K.1    Savage, T.2    Kilpatrick, S.3    Kimura, R.4    Hershberger, P.5
  • 26
    • 0035036480 scopus 로고    scopus 로고
    • Deciding on treatment limitation for neonates: The parents' perspective
    • McHaffie HE, Lyon AJ, Hume R. Deciding on treatment limitation for neonates: the parents' perspective. Eur J Pediatr. 2001; 160(6):339-344 (Pubitemid 32449144)
    • (2001) European Journal of Pediatrics , vol.160 , Issue.6 , pp. 339-344
    • McHaffie, H.E.1    Lyon, A.J.2    Hume, R.3
  • 27
    • 0347512082 scopus 로고    scopus 로고
    • End-oflife decision-making and satisfaction with care: Parental perspectives
    • Meert KL, Thurston CS, Sarnaik AP. End-oflife decision-making and satisfaction with care: parental perspectives. Pediatr Crit Care Med. 2000;1(2):179-185
    • (2000) Pediatr Crit Care Med , vol.1 , Issue.2 , pp. 179-185
    • Meert, K.L.1    Thurston, C.S.2    Sarnaik, A.P.3
  • 28
    • 33644834786 scopus 로고    scopus 로고
    • Decision making in pediatric oncology: Who should take the lead? The decisional priority in pediatric oncology model
    • DOI 10.1200/JCO.2005.01.8390
    • Whitney SN, Ethier AM, FrugÉ E, Berg S, McCullough LB, Hockenberry M. Decision making in pediatric oncology: who should take the lead? The decisional priority in pediatric oncology model. J Clin Oncol. 2006;24(1):160-165 (Pubitemid 46630508)
    • (2006) Journal of Clinical Oncology , vol.24 , Issue.1 , pp. 160-165
    • Whitney, S.N.1    Ethier, A.M.2    Fruge, E.3    Berg, S.4    McCullough, L.B.5    Hockenberry, M.6
  • 29
    • 0042308701 scopus 로고    scopus 로고
    • "Inappropriate" treatment near the end of life: Conflict between religious convictions and clinical judgment
    • DOI 10.1001/archinte.163.14.1645
    • Brett AS, Jersild P. "Inappropriate" treatment near the end of life: conflict between religious convictions and clinical judgment. Arch Intern Med. 2003;163(14):1645-1649 (Pubitemid 36898951)
    • (2003) Archives of Internal Medicine , vol.163 , Issue.14 , pp. 1645-1649
    • Brett, A.S.1    Jersild, P.2
  • 30
    • 33744796792 scopus 로고    scopus 로고
    • Understanding, avoiding, and resolving end-of-life conflicts in the NICU
    • Kopelman AE. Understanding, avoiding, and resolving end-of-life conflicts in the NICU. Mt Sinai J Med. 2006;73(3):580-586 (Pubitemid 43834190)
    • (2006) Mount Sinai Journal of Medicine , vol.73 , Issue.3 , pp. 580-586
    • Kopelman, A.E.1
  • 31
    • 79953331386 scopus 로고    scopus 로고
    • To keep alive or let die: Parental experiences with ventilatory decisions for their critically ill children
    • Carnevale FA, Troini R, Rennick J, Davis M, Alexander E. To keep alive or let die: parental experiences with ventilatory decisions for their critically ill children. Pediatric Intensive Care Nursing. 2005;6(2):12-15
    • (2005) Pediatric Intensive Care Nursing , vol.6 , Issue.2 , pp. 12-15
    • Carnevale, F.A.1    Troini, R.2    Rennick, J.3    Davis, M.4    Alexander, E.5
  • 32
    • 0036204158 scopus 로고    scopus 로고
    • Do not resuscitate orders and ethical decisions in a neonatal intensive care unit in a Muslim community
    • da Costa DE, Ghazal H, Al Khusaiby S. Do not resuscitate orders and ethical decisions in a neonatal intensive care unit in a Muslim community. Arch Dis Child Fetal Neonatal Ed. 2002;86(2):F115-F119
    • (2002) Arch Dis Child Fetal Neonatal Ed , vol.86 , Issue.2
    • De Costa, D.1    Ghazal, H.2    Al Khusaiby, S.3
  • 33
    • 0035142192 scopus 로고    scopus 로고
    • Families looking back: One year after discussion of withdrawal or withholding of life-sustaining support
    • Abbott KH, Sago JG, Breen CM, Abernethy AP, Tulsky JA. Families looking back: one year after discussion of withdrawal or withholding of life-sustaining support. Crit Care Med. 2001;29(1):197-201 (Pubitemid 32125798)
    • (2001) Critical Care Medicine , vol.29 , Issue.1 , pp. 197-201
    • Abbott, K.H.1    Sago, J.G.2    Breen, C.M.3    Abernethy, A.P.4    Tulsky, J.A.5
  • 35
    • 5144226589 scopus 로고    scopus 로고
    • Forgoing life-sustaining treatments in children: A comparison between northern and southern European pediatric intensive care units
    • Devictor DJ, Nguyen DT. Forgoing life-sustaining treatments in children: a comparison between northern and southern European pediatric intensive care units. Pediatr Crit Care Med. 2004;5(3):211-215
    • (2004) Pediatr Crit Care Med , vol.5 , Issue.3 , pp. 211-215
    • Devictor, D.J.1    Nguyen, D.T.2
  • 37
    • 0035094377 scopus 로고    scopus 로고
    • Decision making in extreme situations involving children: Withholding or withdrawal of life supporting treatment in paediatric care. Statement of the ethics working group of the Confederation of the European Specialists of Paediatrics (CESP)
    • Kurz R. Decision making in extreme situations involving children: withholding or withdrawal of life supporting treatment in paediatric care. Statement of the ethics working group of the Confederation of the European Specialists of Paediatrics (CESP). Eur J Pediatr. 2001;160(4):214-216 (Pubitemid 32250000)
    • (2001) European Journal of Pediatrics , vol.160 , Issue.4 , pp. 214-216
    • Kurz, R.1
  • 39
    • 70049118753 scopus 로고    scopus 로고
    • Withholding and withdrawing life-sustaining treatment in children
    • Wellesley H, Jenkins IA. Withholding and withdrawing life-sustaining treatment in children. Paediatr Anaesth. 2009;19(10):972-978
    • (2009) Paediatr Anaesth , vol.19 , Issue.10 , pp. 972-978
    • Wellesley, H.1    Jenkins, I.A.2
  • 40
    • 0033849321 scopus 로고    scopus 로고
    • End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment
    • Burns JP, Mitchell C, Outwater KM, et al. End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment. Crit Care Med. 2000;28(8):3060-3066
    • (2000) Crit Care Med , vol.28 , Issue.8 , pp. 3060-3066
    • Burns, J.P.1    Mitchell, C.2    Outwater, K.M.3
  • 41
    • 65549149060 scopus 로고    scopus 로고
    • Medical end-of-life decisions: Experiences and attitudes of Belgian pediatric intensive care nurses
    • Inghelbrecht E, Bilsen J, Pereth H, Ramet J, Deliens L. Medical end-of-life decisions: experiences and attitudes of Belgian pediatric intensive care nurses. Am J Crit Care. 2009;18(2):160-168
    • (2009) Am J Crit Care , vol.18 , Issue.2 , pp. 160-168
    • Inghelbrecht, E.1    Bilsen, J.2    Pereth, H.3    Ramet, J.4    Deliens, L.5
  • 42
    • 14644407174 scopus 로고    scopus 로고
    • Deaths in a neonatal intensive care unit: A 10-year perspective
    • Hagen CM, Hansen TW. Deaths in a neonatal intensive care unit: a 10-year perspective. Pediatr Crit Care Med. 2004;5(5):463-468
    • (2004) Pediatr Crit Care Med , vol.5 , Issue.5 , pp. 463-468
    • Hagen, C.M.1    Hansen, T.W.2
  • 43
    • 0035072460 scopus 로고    scopus 로고
    • Deciding for imperilled newborns: Medical authority or parenal autonomy?
    • DOI 10.1136/jme.27.2.104
    • McHaffie HE, Laing IA, Parker M, McMillan J. Deciding for imperilled newborns: medical authority or parental autonomy? J Med Ethics. 2001;27(2):104-109 (Pubitemid 32294061)
    • (2001) Journal of Medical Ethics , vol.27 , Issue.2 , pp. 104-109
    • McHaffie, H.E.1    Laing, I.A.2    Parker, M.3    McMillan, J.4
  • 44
    • 33645022811 scopus 로고    scopus 로고
    • Improving the quality of end-of-life care in the pediatric intensive care unit: Parents' priorities and recommendations
    • DOI 10.1542/peds.2005-0144
    • Meyer EC, Ritholz MD, Burns JP, Truog RD. Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations. Pediatrics. 2006;117(3):649-657 (Pubitemid 46063205)
    • (2006) Pediatrics , vol.117 , Issue.3 , pp. 649-657
    • Meyer, E.C.1    Ritholz, M.D.2    Burns, J.P.3    Truog, R.D.4


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