Supported Decision Making: Understanding How its Conceptual Link to Legal Capacity is Influencing the Development of Practice

Research and Practice in Intellectual and Developmental Disabilities

Volumn 1, Issue 1, 2014, Pages 34-45

  Browning, Michelle ^a   Bigby, Christine ^a   Douglas, Jacinta ^a  

^a LA TROBE UNIVERSITY   (Australia)

Author keywords

legal capacity; support with decision making and practice; supported decision making

Indexed keywords

EID: 84925334880     PISSN: 23297018     EISSN: 23297026     Source Type: Journal    
DOI: 10.1080/23297018.2014.902726     Document Type: Article

References (41)

1. ACT Disability, Aged and Carer Advocacy Service. (2013). Supported decision making and the NDIS. Retrieved from: http://www.adacas.org.au/decision-support on 22 May 2013.
2. Adult Guardianship and Trusteeship Act. (2008). Retrieved from: http://www.qp.alberta.ca/documents/Acts/A04P2.pdf on 18 March 2013.
3. Advocacy for Inclusion. (2012). Supported decision making, legal capacity and guardianship. Implementing article 12 of the Convention on the Rights of Persons with Disabilities in the Australian Capital Territory. Retrieved from: http://www.advocacyforinclusion.org/publications/supported_decision_making_legal_capacity_and_guardianship2012final.pdf on 10 October 2012.
4. Bach, M., (1998). Securing self-determination: building the agenda in Canada. Retrieved from: http://www.communitylivingbc.ca/what_we_do/innovation/pdf/Securing_the_Agenda_for_Self-Determination.pdf on 18 July 2012.
5. Bach, M., & Kerzner, L., (2010). A new paradigm for protecting autonomy and the right to legal capacity. Prepared for the Law Commission of Ontario, October 2010. Retrieved from: http://www.lco-cdo.org/en/disabilities-call-for-papers-bach-kerzner on 31 July 2012.
6. Bodnar, F., & Coflin, J., (2003). Supported decision making training manual. Saskatoon: Saskatchewan Association for Community Living.
7. Brayley, J., (2009). Supported decision making in Australia. Notes from a presentation to the Victorian Office of the Public Advocate in Melbourne, Australia on 14 December, 2009.
8. CACL Task Force. (1992). Report of the CACL Task Force on Alternatives to Guardianship. August, 1992. Retrieved from: http://www.chrusp.org/media/AA/AG/chrusp-biz/../CACLpaper.doc on 18 July 2012.[not cited]
9. Cannella, H. I., O’Reilly, M. F., & Lancioni, G. E., (2005). Choice and preference assessment research with people with severe to profound developmental disabilities: a review of the literature. Research in Developmental Disabilities, 26, 1–15.
10. Carney, T., (2012). Guardianship, citizenship, & theorizing substitute-decision making law. In I., Doron & A., Soden (Eds.), Beyond elder law: new directions in law and ageing (pp. 1–17). Berlin Heidelburg: Springer Verlag.
11. Carter, B., & Chesterman, J., (2009). Supported decision-making: background and discussion paper. Retrieved from: http://www.publicadvocate.vic.gov.au/file/file/Research/Discussion/2009/0909_Supported_Decision_Making.pdf on 10 October 2012.
12. Chesterman, J., (2010). The review of Victoria's guardianship legislation: state policy development in an age of human rights. Australian Journal of Public Administration, 69(1), 61–65.
13. Commissioner for Human Rights. (2012). Issue Paper: Who Gets to Decide? Right to legal capacity for persons with intellectual and psychosocial disabilities. Strasbourg, 20 February 2012.
14. Dhanda, A., (2007). Legal capacity in the disability rights convention: stranglehold of the past or lodestar for the future? Syracuse Journal International Law and Commerce, 34, 429–462.
15. Dinerstein, R., (2012). Implementing legal capacity under article 12 of the UN convention on the rights of persons with disabilities: the difficult road from guardianship to supported decision-making. Human Rights Brief, 19(2), 8–12.
16. Gooding, P., (2012). Supported decision making: a rights-based disability concept and its implications for mental health law. Psychiatry, Psychology and Law, 20(3), 431–451.
17. Gordon, R. M., (2000). The emergence of assisted (supported) decision-making in the Canadian law of adult guardianship and substitute decision-making. International Journal of Law and Psychiatry, 23(1), 61–77.
18. Gunn, M. J., Wong, J. G., Clare, I. C. H., & Holland, A. J., (1999). Decision-making capacity. Medical Law Review, 7, 269–306.
19. Inclusion Europe. (2008). Position Paper: Key Elements of a System for Supported Decision-Making. Retrieved from: http://inclusion-europe.org/images/stories/documents/PositionPapers/Position_Supported_Decision_Making_EN.pdf on 10 October 2012.
20. Jenkinson, J. C., (1993). Who shall decide? The relevance of theory and research to decision-making by people with an intellectual disability. Disability, Handicap & Society, 8(4), 361–375.
21. Kämpf, A., (2010). Involuntary treatment decisions: using negotiated silence to facilitate change. In B., McSherry & P., Weller (Eds.), Rethinking Rights-Based Mental Health Laws (pp. 129–150). Oxford & Portland: Hart Publishing.
22. Kayess, R., & French, P., (2008). Out of darkness into light? Introducing the convention on the rights of persons with disabilities. Human Rights Law Review, 8(1), 1–34.
23. Kerzner, L., (2011). Paving the way to full realization of the CRPD's rights to legal capacity and supported decision-making: a Canadian perspective. Prepared for In From the Margins: New Foundations for Personhood and Legal Capacity in the 21st Century. University of British Columbia, Canada April 2011.
24. Kohn, N. A., Blumenthal, J. A., & Campbell, A. T., (2013). Supported decision making: a viable alternative to guardianship? Penn State Law Review, 117(4), 1111–1157.
25. McSherry, B., (2012). Legal issues: legal capacity under the convention on the rights of persons with disabilities. Journal of Law and Medicine, 20(1), 22–27.
26. Mental Capacity Act. (2005). Code of Practice. Retrieved from: http://www3.imperial.ac.uk/pls/portallive/docs/1/51771696.PDF on 6 November 2013.
27. Mental Disability Advocacy Centre. n.d. Supported Decision-Making: An Alternative to Guardianship. Retrieved from: http://www.mdac.info/sites/mdac.info/files/English_Supported_Decision-making_An_Alternative_to_Guardianship.pdf on 10 October 2012.
28. New South Wales Legislative Council Standing Committee on Social Issues. (2010). Substitute Decision-Making for People Lacking Capacity. Report no 43. Retrieved from: http://www.parliament.nsw.gov.au/Prod/parlment/committee.nsf/0/e00602d3c8f39ca5ca2576d500184231/$FILE/100225%20SDM%20Final%20Report.pdf on 18 March 2013.
29. Parsons, M. B., Harper, V. N., Jensen, J. M., & Reid, D. H., (1997). Assisting older adults with severe disabilities in expressing leisure preferences: a protocol for determining choice-making skills. Research in Developmental Disabilities, 18(2), 113–126.
30. Power, A., Lord, J. E., & deFranco, A. S. (2013). Active Citizenship and Disability: Implementing the Personalisation of Support. New York: Cambridge University Press.
31. Quinn, G., (2010). Personhood and Legal Capacity Perspectives on the Paradigm Shift of Article 12 CRPD. HPOD Conference Harvard Law School 20 February 2010. Retrieved from: http://www.nuigalway.ie/cdlp/documents/publications/Harvard Legal Capacity gq draft 2.doc on 30 July 2012.
32. Quinn, G., (2011). Rethinking Personhood: New Directions in Legal Capacity Law and Policy or How to Put the “Shift” back into “Paradigm Shift”. Key note address at In From the Margins: New Foundations for Personhood and Legal Capacity in the 21st Century. University of British Columbia Canada April 29 2011. Retrieved from: http://cic.arts.ubc.ca/fileadmin/user_upload/CIC/July_2011/Gerard_Quinn_s_Keynote_-_April_29__2011.pdf on 30 July 2012.
33. Salzman, L., (2010). Rethinking guardianship (again): substituted decision making as a violation of the integration mandate of title II of the Americans with Disabilities Act. Cardozo Legal Studies Research Paper No 282. University of Colorado Law Review, 81, 157–245.
34. Shakespeare, T., (2006). Disability rights and wrongs. Abingdon: Routledge.
35. United Nations Convention of the Rights of Persons with Disabilities. (2006). Retrieved from: http://www.un.org/disabilities/convention/conventionfull.shtml on 31 July 2012.
36. UN Enable. (2006). Chapter Six: From provisions to practice: implementing the convention. Legal capacity and supported decision making. Retrieved from: http://www.un.org/disabilities/default.asp?id = 242 on 9 January 2013.
37. Vela Microboard Association BC. (1997). Published a brochure on microboards. Copy obtained from the Vela Microboard Association website: (http://www.microboard.org/PDF/principles%20and%20functions.pdf on 12 January 2013.
38. Victorian Government Department of Human Services. (2012). Supporting decision making: a guide to supporting people with disabilities to make their own decisions. Retrieved from: http://www.dhs.vic.gov.au/__data/assets/pdf_file/0011/690680/dsd_cis_supporting_decision_making_0212.pdf on 10 October 2012.
39. Victorian Law Reform Commission. (2012). Guardianship Final Report 24. Retrieved from: http://www.lawreform.vic.gov.au/sites/default/files/Guardianship_FinalReport_Full%20text.pdf on 10 October 2012.
40. Wehmeyer, M. L., Agran, M., Hughes, C., Martin, J. E., Mithaug, D. E., & Palmer, S. B., (2007). Promoting self-determination in students with developmental disabilities. New York: Guildford Press.
41. Willner, P., Bailey, R., Parry, R., & Dymond, S., (2010). Evaluation of the ability of people with intellectual disabilities to “weigh up” information in two tests of financial reasoning. Journal of Intellectual Disability Research, 54(4), 380–391.