Use of a computer program for advance care planning with african american participants

Journal of the National Medical Association

Volumn 107, Issue 1, 2015, Pages 26-32

  Markham, Sarah A ^a   Levi, Benjamin H ^a   Green, Michael J ^a   Schubart, Jane R ^a  

^a PENN STATE COLLEGE OF MEDICINE   (United States)

Author keywords

Advance care planning; Advance directive; Computer program; Decision support

Indexed keywords

ADULT; AFRICAN AMERICAN; ARTICLE; CLINICAL ARTICLE; COMPUTER PROGRAM; FEMALE; FOLLOW UP; HUMAN; INTERVIEW; MALE; MIDDLE AGED; PATIENT CARE; PATIENT SATISFACTION; PILOT STUDY; PRIORITY JOURNAL;

EID: 84924988147     PISSN: 00279684     EISSN: 19434693     Source Type: Journal    
DOI: 10.1016/S0027-9684(15)30006-7     Document Type: Article

References (48)

1. Singer PA, Martin DK, Kelner M. Quality end-of-life care: patients' perspectives. JAMA. 1999;281:163-168.
2. HickmanSE, Hammes BJ, Moss AH, TolleSW. Hope forthefuture: Achieving the original intent of advance directives. Hastings Cent Rep. 2005;Spec No:S26-30.
3. Winzelberg GS, Hanson LC, Tulsky JA. Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families. J Am Geriatr Soc. 2005:53:1046-1050.
4. Hawkins NA, Ditto PH, Danks JH, Smucker WD. Micromanaging death: process preferences, values, and goals in end-of-life medical decision making. Gerontologist. 2005;45:107-117.
5. Forrow L. The green eggs and ham phenomena. Hastings Cent Rep. 1994;24(6):S29-32.
6. Sabatino CP. The evolution of health care advance planning law and policy. Milbank Q. 2010;88:211-239.
7. Wenger NS, Shugarman LR, Wilkinson A. Advance directives and advance care planning: report to Congress. Office of Disability, Aging and Long-Term Care Policy, U. S. Department of Health and Human Services, 2008. http://aspe.hhs.gov/ daltcp/reports/2008/adcongrpt.htm
8. Wilkinson A, Wenger NS, Shugarman LR. Literature review on advance directives. U. S. Department of Health and Human Services, 2007. http://aspe.hhs.gov/daltcp/reports/2007/ advdirlr.htm
9. Holloway RG, Benesch CG, Burgin WS, Zentner JB. Prognosis and decision making in severe stroke. JAMA. 2005;294:725-733.
10. Tulsky JA. Beyond advance directives: importance of communication skills at the end of life. JAMA. 2005;294:359-365.
11. Hahn ME. MSJAMA. Advance directives and patient-physician communication. JAMA. 2003:289:96.
12. Ramsaroop SD, Reid MC, Adelman RD. Completing an advance directive in the primary care setting: what do we need forsuccess? J Am Geriatr Soc. 2007;55:277-283.
13. Barnato AE, Anthony DL, Skinner J, Gallagher PM, Fisher ES. Racial and ethnic differences in preferences for end-of-life treatment. J Gen Intern Med. 2009;24:695-701.
14. Ott BB. Views of African American nursing home residents about living wills. Geriatr Nurs. 2008;29:117-124.
15. Bullock K. Promoting advance directives among African Americans: A faith-based model. J Palliat Med. 2006;9:183-195.
16. Smith AK, McCarthy EP, Paulk E, et al. Racial and ethnic differences in advance care planning among patients with cancer: impact of terminal illness acknowledgment, religiousness, and treatment preferences. J Clin Oncol. 2008;26:4131-4137.
17. Waters CM. Understanding and supporting African Americans' perspectives of end-of-life care planning and decision making. Qual Health Res. 2001;11:385-398.
18. Resnick HE, Hickman S, Foster GL. Documentation of advance directives among home health and hospice patients: United States, 2007. Am J Hosp Palliat Care. 2011 May 15. [Epub ahead of print]
19. Johnson KS, Kuchibhatla M, Tulsky JA. What explains racial differences in the use of advance directives and attitudes toward hospice care? J Am Geriatr Soc. 2008;56:1953-1958.
20. Carr D. Racial differences in end-of-life planning: why don't Blacks and Latinos prepare for the inevitable? Omega (Westport). 2011;63:1-20.
21. Pollack KM, Morhaim D, Williams M.A..The public's perspectives on advance directives: implications for state legislative and regulatory policy. Health Policy. 2010:96:57-63.
22. Gerst K, Burr JA. Planning for end-of-life care: black-white differences in the completion of advance directives. Res Aging. April ll,2008,doi: 10.1177/0164027508316618.
23. Emmett CP, Dobbs D, Williams S, Daaleman TP. "Peace with my maker": voices of seriously ill African American elders regarding advance care planning. Qual Inq. 2011;17:119-125.
24. Levi B, H., Green MJ, Heverley S. Simulated end-of-life decision making: Accuracy of a decision aid for advance care planning. J Clin Ethics. 2011; in press.
25. Green MJ, Levi BH. Teaching advance care planning to medical students with a computer-based decision aid. J Cancer Educ. 2011;26:82-91.
26. Levi BH, Dellasega C, Whitehead M, Green MJ. What influences individuals to engage in advance care planning? Am J Hosp Palliat Care. 2010;27:306-312.
27. Levi BH, Green MJ. Too soon to give up: re-examining the value of advance directives. Am J Bioeth. 2010;10:3-22.
28. Green MJ, Levi BH. Development of an interactive computer program for advance care planning. Health Expect. 2009;12:60-69.
29. Wilkinson GS. WRAT-3: Wide Range Achievement Test Administration Manual. Lutz, FL: Wide Range, Inc.; 1993.
30. Folstein MF, Folstein SE, McHugh PR. "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12:189-198.
31. Beck AT, Steer RA. Internal consistencies of the original and revised Beck Depression Inventory. J Clin Psychol. 1984:40:13651367.
32. Pellino T, Tluczek A, Collins M, et al. Increasing self-efficacy through empowerment: preoperative education for orthopaedic patients. Orthop Nurs. 1998;17:48-51, 54-49.
33. Herth K. Fostering hope in terminally-ill people. J Adv Nurs. 1990;15:1250-1259.
34. Herth K. Abbreviated instrument to measure hope: development and psychometric evaluation. J Adv Nurs. 1992;17:1251-1259.
35. BeckAT. BeckHopelessnessScale. Boston, M.A.: Harcourt; 1988.
36. Dowd ET. Review of the Beck Hoplessness Scale. In: Kramer JJ, Conoley JC, (eds.). Eleventh Mental Measurement Yearbook. Lincoln, NE: Buros Institute of Mental Measurements; 1992:81-82.
37. Owen SV. Review of the Beck Hopelessness Scale. In: Kramer JJ, Conoley JC, (eds.). Eleventh Mental Measurement Yearbook. Lincoln, NE: Buros Institute of Mental Measurements; 1992:82-83.
38. O'Connor AM. Validation of a decisional conflict scale. Med Decis Making. 1995;15:25-30.
39. Holmes-Rovner M, Kroll J, Schmitt N, et al. Patient satisfaction with health care decisions: The satisfaction with decision scale. Med Decis Making. 1996;16:58-64.
40. Sehgal A, Galbraith A, Chesney M, Schoenfeld P, Charles G, Lo B. How strictly do dialysis patients want their advance directives followed? JAMA. 1992;267:59-63.
41. Silveira MJ, Kim SY, Langa KM. Advance directives and outcomes of surrogate decision making before death. N Engl J Med. 2010;362:1211-1218.
42. Degner LF, Kristjanson LJ, Bowman D, et al. Information needs and decisional preferences in women with breast cancer. JAMA. 1997;277:1485-1492.
43. Pruchno RA, Lemay EP, Jr., Feild L, Levinsky NG. Predictors of patient treatment preferences and spouse substituted judgments: The case of dialysis continuation. Med Decis Making. 2006;26:112-121.
44. Ditto PH, Jacobson JA, Smucker WD, Danks JH, Fagerlin A. Context changes choices: A prospective study of the effects of hospitalization on life-sustaining treatment preferences. Med Decis Making. 2006;26:313-322.
45. Farsides B, Dunlop RJ. Is there such a thing as a life not worth living? BMJ. 2001;322:1481-1483.
46. Bevan JL, Pecchioni LL. Understanding the impact of family caregiver cancer literacy on patient health outcomes. Patient Educ Couns. 2008:71:356-364.
47. Meeker M.A., Jezewski M.A.. A voice for the dying. Clin Nurs Res. 2004;13:326-342.
48. Steinhauser KE, Christakis NA, Clipp EC, et al. Preparing for the end of life: preferences of patients, families, physicians, and other care providers. J Pain Symptom Manage. 2001;22:727-737.