The evolution of health care advance planning law and policy

Milbank Quarterly

Volumn 88, Issue 2, 2010, Pages 211-239

  Sabatino, Charles P ^a  

^a AMERICAN BAR ASSOCIATION   (United States)

Author keywords

Advance care planning; Advance directives; Living wills; Public policy

Indexed keywords

HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HEALTH CARE POLICY; MEDICAID; MEDICAL DECISION MAKING; MEDICAL PRACTICE; MEDICARE; MEDICOLEGAL ASPECT; PATIENT CARE; PRIMARY HEALTH CARE; PRIORITY JOURNAL; REVIEW;

ADVANCE CARE PLANNING; ADVANCE DIRECTIVES; HISTORY, 20TH CENTURY; HISTORY, 21ST CENTURY; HUMANS; LIVING WILLS; POLICY MAKING; RESUSCITATION ORDERS; TERMINAL CARE; UNITED STATES;

EID: 77953790879     PISSN: 0887378X     EISSN: 14680009     Source Type: Journal    
DOI: 10.1111/j.1468-0009.2010.00596.x     Document Type: Review

References (60)

1. AARP. 2008. AARP Bulletin Poll: "Getting Ready to Go," Executive Summary. Available at http://assets.aarp.org/rgcenter/il/getting- ready.pdf (accessed April 1, 2010).
2. Aging with Dignity. 1998. Revolutionary National Living Will Unveiled: Document Is Legally Valid in 33 States. Press release (on file with author).
3. Aging with Dignity. 2010. Five Wishes. Available at http://www. agingwithdignity.org (accessed April 1, 2010).
4. Blumenauer, E. 2009. My Near Death Panel Experience. New York Times, November 15.
5. Brown University, Center for Gerontology and Health Care Research. 2009. Facts on Dying. Available at http://www.chcr.brown.edu/dying/FACTSONDYING.HTM (accessed April 1, 2010).
6. Center for Practical Bioethics. 1999. Caring Conversations. Available at http://www.practicalbioethics.org/cpb.aspx?pgID=986 (accessed April 1, 2010).
7. Colby, W.H. 2006. Unplugged: Reclaiming Our Right to Die in America.
8. Collins, L.G., S.M. Parks, and L. Winter. 2006. The State of Advance Care Planning: One Decade after SUPPORT. American Journal of Hospital Palliative Care 23 (5 378 384.
9. Commission on Law and Aging. 1998. End-of-Life Care Legislative Trends - 1998, BIFOCAL 19 (2 5 9. Washington, DC: American Bar Association.
10. Commission on Law and Aging. 2000. End-of-Life Care Legal Trends 2000.
11. Commission on Law and Aging. 2005. Lawyer's Tool Kit for Health Care Advance Planning.
12. Commission on Law and Aging. 2009a. Default Surrogate Consent Statutes as of November 2009.
13. Commission on Law and Aging. 2009b. Health Care Power of Attorney and Combined Advance Directive Legislation: Selected Features Compared - December 2009.
14. Coppola, K.M., P.H. Ditto, J.H. Danks, and W.D. Smucker. 2001. Accuracy of Primary Care and Hospital-Based Physicians' Predictions of Elderly Outpatients' Treatment Preferences with and without Advance Directives. Archive of Internal Medicine 161 (3 431 440.
15. Degenholtz, H.B., Y. Rhee, and R.M. Arnold. 2004. Brief Communication: The Relationship between Having a Living Will and Dying in Place. Annals of Internal Medicine 141 (2 113 117.
16. Dessin, C.L. 1996. Acting as Agent under a Financial Durable Power of Attorney: An Unscripted Role. Nebraska Law Review 75 : 574 620.
17. Fagerlin, A., and C.E. Schneider. 2004. Enough: The Failure of the Living Will. Hastings Center Report 34 (2 30 42.
18. Fried, T.R., J. O'Leary, P. Van Ness, and L. Fraenkel. 2007. Inconsistency over Time in the Preferences of Older Persons with Advanced Illness for Life-Sustaining Treatment. Journal of the American Geriatrics Society 55 (7 1007 1014. (Pubitemid 47024626)
19. Georgia Health Decisions. 1998. The Critical Conditions Planning Guide. Available at http://www.georgiahealthdecisions.org/index.php?option=com- content&view=article&id=49&Itemid=56 (accessed April 1, 2010).
20. Gillick, M.R. 1995. A Broader Role for Advance Medical Planning. Annals of Internal Medicine 123 (8 621 624.
21. Glick, H.R. 1991. The Right-to-Die: State Policymaking and the Elderly. Journal of Aging Studies 5 : 283 307.
22. Green, M.J., and B.H. Levi. 2009. Development of an Interactive Computer Program for Advance Care Planning. Health Expectations 12 (1 60 69.
23. Hardin, S.B., and Y.A. Yusufaly. 2004. Difficult End-of-Life Treatment Decisions: Do Other Factors Trump Advance Directives? Archives of Internal Medicine 164 (14 1531 1533.
24. Hawkins, N.A., P.H. Ditto, J.H. Danks, and W.D. Smucker. 2005. Micromanaging Death: Process, Preferences, Values, and Goals in End-of-Life Medical Decision Making. Gerontologist 45 (1 107 117.
25. Hickman, S.E., C.A. Nelson, A.H. Moss, B.J. Hammes, A. Terwilliger, A. Jackson, and S.E. Tolle. 2009. Use of the Physician Orders for Life-Sustaining Treatment (POLST) Paradigm Program in the Hospice Setting. Journal of Palliative Medicine 12 (2 133 141.
26. Hickman, S.E., C.P. Sabatino, A.H. Moss, and J.W. Nester. 2008. The POLST Paradigm to Improve End-of-Life Care: Potential State Legal Barriers to Implementation. Journal of Law, Medicine and Ethics 36 (1 119 140.
27. Hickman, S.E., S.W. Tolle, K. Brummel-Smith, and M.M. Carley. 2004. Use of the Physician Orders for Life-Sustaining Treatment Program in Oregon Nursing Facilities: Beyond Resuscitation Status. Journal of the American Geriatrics Society 52 (9 1424 1429.
28. Hoffmann, D.E., S.I. Zimmerman, and C.J. Tompkins. 1996. The Dangers of Directives or the False Security of Forms. Journal of Law, Medicine and Ethics 24 (1 5 17.
29. IOM (Institute of Medicine), Committee on Care at the End of Life. 1997. Approaching Death: Improving Care at the End of Life, ed. M.J. Field and C.K. Cassel.
30. Iserson, K.V. 1991. Foregoing Prehospital Care: Should Ambulance Staff Always Resuscitate? Journal of Medical Ethics 17 (1 19 24.
31. Karp, N., and E. Wood. 2003. Incapacitated and Alone: Health Care Decision-Making for the Unbefriended Elderly.
32. Koenig, K.L., and G.W. Tamkin. 1993. Do-Not-Resuscitate Orders. Where Are They in the Prehospital Setting? Prehospital Disaster Medicine 8 (1 51 54.
33. Kolarik, R.C., R.M. Arnold, G.S. Fischer, and B.H. Hanusa. 2002. Advance Care Planning. Journal of General Internal Medicine 17 (8 618 624.
34. Kutner, L. 1969. Due Process of Euthanasia: The Living Will, a Proposal. Indiana Law Journal 44 : 539 554.
35. Kwak, J., and W.E. Haley. 2005. Current Research Findings on End-of-Life Decision Making among Racially or Ethnically Diverse Groups. Gerontologist 45 (5 634 641.
36. Larson, E.J., and T.A. Eaton. 1997. The Limits of Advance Directives: A History and Assessment of the Patient Self-Determination Act. Wake Forest Law Review 32 : 249 293.
37. Lo, B., and R. Steinbrook. 2004. Resuscitating Advance Directives. Archives of Internal Medicine 164 (14 1501 1506.
38. Lynn, J. 2004. Sick to Death and Not Going to Take It Anymore! Reforming Health Care for the Last Years of Life.
39. Meisel, A., and K.L. Cerminara. 2010. Decisionmaking Standards for Incompetent Patients. In The Right to Die, 3rd ed.
40. Morrison, R.S., E. Olson, K.R. Mertz, and D.E. Meier. 1995. The Inaccessibility of Advance Directives on Transfer from Ambulatory to Acute Care Settings. Journal of the American Medical Association 274 (6 478 482.
41. Pearlman, R., H. Starks, K. Cain, W. Cole, D. Rosengren, and D. Patrick. 1998. Your Life, Your Choices - Planning for Future Medical Decisions: How to Prepare a Personalized Living Will.
42. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. 1982. Making Health Care Decisions: The Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. Vol. 1.
43. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. 1983. Deciding to Forego Life-Sustaining Treatment.
44. President's Council on Bioethics. 2005. Taking Care: Ethical Caregiving in Our Aging Society. Available at http://bioethics.georgetown.edu/pcbe/reports/ taking-care/ (accessed April 1, 2010).
45. Sabatino, C.P. 1991/1992. Death in the Legislature: Inventing Legal Tools for Autonomy. New York University Review of Law and Social Change 19 (2 309 339.
46. Sabatino, C.P. 1999. Survey of State EMS-DNR Laws and Protocols.
47. Sabatino, C.P. 2005. National Advance Directives: One Attempt to Scale the Barriers. NAELA Journal 1 (1 131 164.
48. Sacramento Healthcare Decisions. 2008. Finding Your Way: Medical Decisions When They Count Most. Available at http://www.chcd.org/what-end- findingyourway.htm (accessed April 1, 2010).
49. Schmidt, T.A., S.E. Hickman, S.W. Tolle, and H.S. Brooks. 2004. The Physician Orders for Life-Sustaining Treatment (POLST) Program: Oregon Emergency Medical Technicians' Practical Experiences and Attitudes. Journal of the American Geriatrics Society 52 (9 1430 1434.
50. Shalowitz, D.I., E. Garrett-Mayer, and D. Wendler. 2006. The Accuracy of Surrogate Decision Makers: A Systematic Review. Archives of Internal Medicine 166 (5 493 497.
51. Teno, J.M., V.A. Casey, L.C. Welch, and S. Edgman-Levitan. 2001. Patient-Focused, Family-Centered End-of-Life Medical Care: Views of the Guidelines and Bereaved Family Members. Journal of Pain and Symptom Management 22 (3 738 751.
52. Teno, J.M., A. Gruneir, Z. Schwartz, A. Nanda, and T. Wetle. 2007. Association between Advance Directives and Quality of End-of-Life Care: A National Study. Journal of the American Geriatrics Society 55 (2 189 194.
53. Teno, J.M., J. Lynn, N. Wenger, R.S. Phillips, D.P. Murphy, A.F. Connors Jr., N. Desbiens, W. Fulkerson, P. Bellamy, and W.A. Knaus. 1997. Advance Directives for Seriously Ill Hospitalized Patients: Effectiveness with the Patient Self-Determination Act and the SUPPORT Intervention. Journal of the American Geriatrics Society 45 (4 500 507.
54. Time. 1975. The Law: A Life in the Balance. November 3. Available at http://www.time.com/time/magazine/article/0,9171,913631,00.html (accessed April 1, 2010).
55. Tolle, S.W., V.P. Tilden, C.A. Nelson, and P.M. Dunn. 1998. A Prospective Study of the Efficacy of the Physician Order Form for Life-Sustaining Treatment. Journal of the American Geriatrics Society 46 (9 1097 1102.
56. Tulsky, J.A. 2005. Beyond Advance Directives: Importance of Communication Skills at the End of Life. Journal of the American Medical Association 294 (3 359 365.
57. Uniform Law Commission. 1993. Uniform Health-Care Decisions Act. Available at http://www.law.upenn.edu/bll/archives/ulc/fnact99/1990s/uhcda93.htm (accessed April 1, 2010).
58. U.S. House of Representatives. 2009. Patient Protection and Affordable Care Act. H.R. 3590 (§1233). 111th Cong., 1st sess.
59. U.S. Senate. 2009. Advance Planning and Compassionate Care Act of 2009. S. 1150, 111th Cong., 1st sess.
60. Wilkinson A., N. Wenger, and L. Shurgarman. 2007. Literature Review on Advance Directives.