"Surviving is not the same as living": Cancer and Sobrevivencia in Puerto Rico

Social Science and Medicine

Volumn 132, Issue , 2015, Pages 20-29

  Dyer, Karen E ^a,b  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

^b VIRGINIA COMMONWEALTH UNIVERSITY   (United States)

Author keywords

Cancer; Dominant discourses; Ethnography; Puerto Rico; Survivorship

Indexed keywords

ADVOCACY; CANCER; CULTURE; IDENTITY CONSTRUCTION; SURVIVAL;

ADULT; ARTICLE; BREAST CANCER; CANCER SURVIVAL; COPING BEHAVIOR; CULTURAL VALUE; EMOTION; ETHNOGRAPHY; FAMILY LIFE; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT ATTITUDE; PUERTO RICO; QUALITY OF LIFE; RELIGION; SURVIVOR; UNITED STATES; AGED; CULTURAL ANTHROPOLOGY; ETHNOLOGY; LIFE EVENT; MIDDLE AGED; NEOPLASM; PSYCHOLOGY; SOCIOECONOMICS;

PUERTO RICO;

ADULT; AGED; ANTHROPOLOGY, CULTURAL; EMOTIONS; FEMALE; HUMANS; LIFE CHANGE EVENTS; MALE; MIDDLE AGED; NEOPLASMS; PUERTO RICO; SOCIOECONOMIC FACTORS; SURVIVORS;

EID: 84924785485     PISSN: 02779536     EISSN: 18735347     Source Type: Journal    
DOI: 10.1016/j.socscimed.2015.02.033     Document Type: Article

References (57)

1. Aziz N.M., Rowland J.H. Trends and advances in cancer survivorship research challenge and opportunity. Semin. Radiat. Oncol. 2003, 13(3):248-266.
2. Balshem M. Cancer in the Community: Class and Medical Authority 1993, Smithsonian Institution Press, Washington.
3. Bell K. Remaking the self: trauma, teachable moments, and the biopolitics of cancer survivorship. Cult. Med. Psychiatry 2012, 36:584-600.
4. Bell K. The breast-cancer-ization of cancer survivorship: implications for experiences of the disease. Soc. Sci. Med. 2014, 110:56-63.
5. Bell K., Ristovski-Slijepcevic S. Cancer survivorship: why labels matter. J.Clin. Oncol. 2013, 31(4):409-411.
6. Bernard H.R., Ryan G.W. Analyzing Qualitative Data: Systematic Approaches 2006, SAGE, Thousand Oaks.
7. Bourgois P. In Search of Respect: Selling Crack in El Barrio 2002, Cambridge University Press, Cambridge.
8. Briggs L. Reproducing Empire: Race, Sex, Science, and U.S. Imperialism in Puerto Rico 2002, University of California Press, Berkeley.
9. Buki L., Garces D.M., Hinstrosa M.C., Kogan L., Carillo I.Y., French B. Latina breast cancer survivors' lived experiences: diagnosis, treatment and beyond. Cult. Divers. Ethn. Minor. Psychol. 2008, 14(2):163-167.
10. Cabán P. Redefining Puerto Rico's political status. Colonial Dilemma: Critical Perspectives on Contemporary Puerto Rico 1993, 19-40. South End Press, Boston, MA. E. Melendez, E. Melendez (Eds.).
11. Chavez L.R. Wasting away in Neoliberal-ville: Mexican immigrant women's views of cervical cancer, social inequality, and gender relations. Confronting Cancer: Metaphors, Advocacy and Anthropology 2008, 147-164. SAR Press, Santa Fe. J. McMullin, D. Weiner (Eds.).
12. Chavez L.R., et al. Structure and meaning in models of breast and cervical cancer risk factors. Med. Anthropol. Q. 1995, 9(1):40-74.
13. Coreil J., Corvin J., Nupp R., Dyer K., Noble C. Ethnicity and cultural models of recovery from breast cancer. Ethn. Health 2012, 17(3):291-307.
14. Corvin J., Coreil J., Nupp R., Dyer K. Ethnic differences in cultural models of breast cancer support groups. Int. J. Self Help Self Care 2013, 7(2):193-215.
15. Coreil J., Wilke J., Pintado I. Cultural models of illness and recovery in breast cancer support groups. Qual. Health Res. 2004, 14(7):905-923.
16. Deimling G.T., Bowman K.F., Wagner L.J. Cancer survivorship and identity among long-term survivors. Cancer Investig. 2007, 25:758-765.
17. DiGiacomo S.M., Sumalla E.C. Del escencialismo biológico a la experiencia encarnada: El cancer como aprendizaje. Iglesia Viva 2012, 252(Oct-Dec):37-56.
18. Dyer K. Suffering in local worlds: oncological discourses, cancer, and infertility in Puerto Rico. Anthropologies of Cancer in Transnational Worlds 2015, Routledge, London. H. Mathews, N. Burke, E. Kampriani (Eds.).
19. Ehrenreich B. Bright-sided: How the Relentless Promotion of Positive Thinking Has Undermined America 2009, Metropolitan Books, New York.
20. Ehrenreich B. Welcome to Cancerland: a Mammogram Leads to a Cult of Pink Kitsch November, 2001, 43-53. Harper's Bazaar.
21. Erwin D. The witness project: narratives that shape the cancer experience for African American women. Confronting Cancer: Metaphors, Advocacy and Anthropology 2008, 125-146. SAR Press, Santa Fe. J. McMullin, D. Weiner (Eds.).
22. Frank A. Survivorship as craft and conviction: reflections on research in progress. Qual. Health Res. 2003, 13(2):247-255.
23. Frank A. The Wounded Storyteller 1997, University of Chicago Press, Chicago.
24. Glaser B.G., Strauss A. The Discovery of Grounded Theory: Strategies for Qualitative Research 1967, Aldine Press, New York.
25. Gray R.E., Doan D.E. Heroic self-healing and cancer. J.Palliat. Care 1990, 6(1):32-41.
26. Grosfoguel R. The political economy of Puerto Rico in the twentieth century and Puerto Rican post-national strategies. Colonial Subjects: Puerto Ricans in a Global Perspective 2003, 43-77. University of California Press, Berkeley, CA. R. Grosfoguel (Ed.).
27. Hunt L.M. Moral reasoning and the meaning of cancer. Med. Anthropol. Q. 1998, 12(3):298-318.
28. Jain S.L. Malignant: How Cancer Becomes Us 2013, UC Press, Berkeley.
29. Jones B., Volker D., Vinajeras Y., Butros L., Fitchpatrick C., Rossetto K. The meaning of surviving cancer for Latino adolescents and emerging young adults. Cancer Nurs. 2010, 33(1):74-81.
30. Kaiser K. The meaning of the survivor identity for women with breast cancer. Soc. Sci. Med. 2008, 67:79-87.
31. Khan N.F., Rose P., Evans J. Defining cancer survivorship: a more transparent approach is needed. J.Cancer Surviv. 2012, 6:33-36.
32. Khan N.F., Harrison S., Rose P.W., Ward A., Evans J. Interpretation and acceptance of the term 'cancer survivor': a UK-based qualitative study. Eur. J. Cancer Care 2012, 21:177-186.
33. King S. Pink Ribbons, Inc 2006, UM Press, Minneapolis.
34. Lee S.C. Notes from White Flint: identity, ambiguity, and disparities in cancer. Confronting Cancer: Metaphors, Advocacy, and Anthropology 2008, 165-186. SAR Press, Santa Fe. J. McMullin, D. Weiner (Eds.).
35. Little M., Jordens C.F.C., Sayers E.-J. Survivorship and discourses of identity. Psycho-Oncology 2002, 11:170-178.
36. Lopez I. Matters of Choice: Puerto Rican Women's Struggle for Reproductive Freedom 2008, Rutgers University Press, New Brunswick, NJ.
37. Martinez R.G., Chavez L.R., Hubbell F.A. Purity and passion: risk and morality in Latina immigrants' and physicians' beliefs about cervical cancer. Med. Anthropol. 1997, 17(4):337-362.
38. Mathews H. Cancer support groups and advocacy: one size doesn't fit all. Confronting Cancer: Metaphors, Advocacy and Anthropology 2008, 43-62. SAR Press, Santa Fe. J. McMullin, D. Weiner (Eds.).
39. Mathews H.F. Negotiating cultural consensus in a breast cancer self-help group. Med. Anthropol. Q. 2000, 14(3):394-413.
40. McMullin J. Experiencing diagnosis: views from Latina cervical cancer patients. Confronting Cancer: Metaphors, Advocacy, and Anthropology 2008, 63-82. SAR Press, Santa Fe. J. McMullin, D. Weiner (Eds.).
41. Confronting Cancer: Metaphors, Advocacy, and Anthropology 2008, SAR Press, Santa Fe. J. McMullin, D. Weiner (Eds.).
42. Morris Bronwyn, et al. Adopting a survivor identity after cancer in a peer support context. J.Cancer Surviv. 2014, 8:427-436.
43. Mullan F. Seasons of survival: reflections of a physician with cancer. N.Engl. J. Med. 1985, 313(4):270-274.
44. National Cancer Institute (NCI) Examination of Survivorship Care Planning Efficacy and Impact [R01 RFP PA-12-275] 2015, Available at:, (accessed 02.02.15.). http://grants.nih.gov/grants/guide/pa-files/PA-12-275.html.
45. National Coalition for Cancer Survivorship (NCCS) About the Organization 2015, Available at:, (accessed 28.01.15.). http://www.canceradvocacy.org.
46. National Comprehensive Cancer Network (NCCN) NCCN Clinical Practice Guidelines in Oncology: Survivorship [Version 2.2014] 2014, Available at:, (accessed 02.02.15.). http://www.nccn.org/professionals/physician_gls/f_guidelines.asp.
47. Park C., Zlateva I., Blank T. Self-identity after cancer: "Survivor," "victim," "patient," and "person with cancer.". J.Gen. Intern. Med. 2009, 24(Suppl.2):430-435.
48. Rivera Ramos E. The Legal Construction of Identity: the Judicial and Social Legacy of American Colonialism in Puerto Rico 2001, American Psychological Association, Washington, DC.
49. Rose N., Novas C. Biological citizenship. Global Assemblages: Technology, Politics, and Ethics as Anthropological Problems 2005, 439-463. Blackwell, Malden. A. Ong, S. Colliers (Eds.).
50. Segal J. Cancer experience and its narration: an accidental study. Literature Med. 2012, 30(2):292-318.
51. Sinding C., Gray R. Active aging-spunky survivorship? Discourses and experiences of the years beyond breast cancer. J.Aging Stud. 2005, 19:147-161.
52. Stoller P. Stranger in the Village of the Sick 2004, Beacon Press, Boston.
53. Stoller P. Remissioning life, reconfiguring anthropology. Confronting Cancer: Metaphors, Advocacy, and Anthropology 2008, 27-42. SAR Press, Santa Fe. J. McMullin, D. Weiner (Eds.).
54. Strauss A., Corbin J. Basics of Qualitative Research: Grounded Theory Procedures and Techniques 1990, SAGE, Thousand Oaks.
55. Tomich P.L., Helgeson V.S. Is finding something good in the bad always good? Benefit finding among women with breast cancer. Health Psychol. 2004, 23:16-23.
56. Turner V. The Ritual Process: Structure and Anti-structure 1969, Cornell University Press, Ithaca, NY.
57. U.S.Census Bureau Poverty: 2000 to 2012 - American Community Survey Briefs 2013, Available at:, (accessed 15.08.14.). http://www.census.gov/prod/2013pubs/acsbr12-01.pdf.