The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders

Journal of Autism and Developmental Disorders

Volumn 45, Issue 3, 2015, Pages 636-644

  Cheak Zamora, Nancy C ^a   Farmer, Janet E ^a  

^a UNIVERSITY OF MISSOURI   (United States)

Author keywords

Autism spectrum disorder; Delivery of health care; Medical home; Unmet needs

Indexed keywords

ARTICLE; AUTISM; CHILD; CHILD CARE; FAMILY CENTERED CARE; FEMALE; HEALTH CARE ACCESS; HEALTH CARE NEED; HEALTH IMPACT ASSESSMENT; HEALTH SERVICE; HOME CARE; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PRIORITY JOURNAL; ADOLESCENT; CHILD HEALTH CARE; EPIDEMIOLOGY; HEALTH CARE DELIVERY; HEALTH SURVEY; INFANT; NEWBORN; PATIENT CARE; PRESCHOOL CHILD; STATISTICAL MODEL; STATISTICS AND NUMERICAL DATA; UNITED STATES;

ADOLESCENT; CHILD; CHILD DEVELOPMENT DISORDERS, PERVASIVE; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; FEMALE; HEALTH SERVICES ACCESSIBILITY; HEALTH SERVICES NEEDS AND DEMAND; HEALTH SURVEYS; HUMANS; INFANT; INFANT, NEWBORN; LOGISTIC MODELS; MALE; PATIENT-CENTERED CARE; UNITED STATES;

EID: 84923650256     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-014-2218-3     Document Type: Article

References (32)

1. Bitterman, A., Daley, T. C., Misra, S., Carlson, E., & Markowitz, J. (2008). A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction. Journal of Autism and Developmental Disorders,38, 1509–1517.
2. Blumberg, S. J., Welch, E. M., Chowdhury, S. R., Upchurch, H. L., Parker, E. K., & Skalland, B. J. (2008). Design and operation of the National Survey of Children with Special Health Care Needs, 2005–2006. Vital and health statistics Ser 1, Programs and collection procedures, pp 1–188.
3. Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs. Archives of Pediatrics and Adolescent Medicine,161, 399–404.
4. CDC. (2012). Prevalence of autism spectrum disorders–Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR Surveill Summary,61, 1–19.
5. Child and Adolescent Health Measurement Initiative (2009a). Measuring medical home for children and youth A resource manual for child health program leaders, researchers and analysts (pp 1–55). Oregon Health and Science University.
6. Child and Adolescent Health Measurement Initiative (2009b). Measuring medical home for children and youth. A resource manual for child health program leaders, researchers and analysts.http://www.childhealthdata.org/docs/medical-home/mhmanual_withappendices-updated-12-7-10-pdf.
7. Child and Adolescent Health Measurement Initiative (2012) National profile of children with special health care needs and autism spectrum disorders: Key findings from the 2009/10 NS-CSHCN & 2007 NSCH. Data Resource Center.
8. Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal,16, 1081–1091. doi:10.1007/s10995-011-0833-6.
9. Cidav, Z., Lawer, L., Marcus, S. C., & Mandell, D. S. (2013). Age-related variation in health service use and associated expenditures among children with autism. Journal of Autism and Developmental Disorders,43, 924–931. doi:10.1007/s10803-012-1637-2.
10. Cohen, E., et al. (2011). Children with medical complexity: An emerging population for clinical and research initiatives. Pediatrics,127, 529–538. doi:10.1542/peds.2010-0910.
11. Coury, D., Jones, N. E., Klatka, K., Winklosky, B., & Perrin, J. M. (2009). Healthcare for children with autism: The Autism Treatment Network. Current Opinion in Pediatrics,21, 828–832. doi:10.1097/MOP.0b013e328331eaaa.
12. Farmer, J., Clark, M., Drewel, E., Swenson, T., & Ge, B. (2011). Consultative care coordination through the medical home for CSHCN: A randomized controlled trial. Maternal and Child Health Journal,15, 1110–1118. doi:10.1007/s10995-010-0658-8.
13. Farmer, J. E., et al. (2013). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal,. doi:10.1007/s10995-013-1292-z.
14. Fisher, E. S. (2008). Building a medical neighborhood for the medical home. The New England Journal of Medicine,359, 1202–1205. doi:10.1056/NEJMp0806233.
15. Golnik, A., Scal, P., Wey, A., & Gaillard, P. (2012). Autism-specific primary care medical home intervention. Journal of Autism and Developmental Disorders,42, 1087–1093. doi:10.1007/s10803-011-1351-5.
16. Graubard, B. I., & Korn, E. L. (1996). Survey inference for subpopulations. American Journal of Epidemiology,144, 102–106.
17. Gurney, J. G., McPheeters, M. L., & Davis, M. M. (2006). Parental report of health conditions and health care use among children with and without autism. Archives of Pediatrics,160, 825–830.
18. Harel, Y., et al. (1994). The effects of recall on estimating annual nonfatal injury rates for children and adolescents. American Journal of Public Health,84, 599–605.
19. Health Resources and Services Administration, Maternal and Child Health Bureau, Conducted by the National Center for Health Statistics, Centers for Disease Control and Prevention (2011). 2009–2010 National Survey of Children with Special Health Care Needs. http://www.cdc.gov/nchs/data/slaits/NS_CSHCN_Questionnaire_09_10.pdf.
20. Homer, C. J., et al. (2008). A review of the evidence for the medical home for children with special health care needs. Pediatrics,122, e922–e937.
21. Howlin, P. (2005). Outcomes in autism spectrum disorders. In: Volkmar, F.R., Paul, R., Klin, A., & Cohen, D. (eds) Handbook of autism and pervasive developmental disorders. (Vol. 1, 3rd edn., pp 201–220). Hoboken, NJ: Wiley
22. Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005 2006. Pediatrics,122, e1149–e1158.
23. Krauss, M. W., Gulley, S., Sciegaj, M., & Wells, N. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation,41, 329–339.
24. McGrath, R. J., Laflamme, D. J., Schwartz, A. P., Stransky, M., & Moeschler, J. B. (2009). Access to genetic counseling for children with autism, down syndrome, and intellectual disabilities. Pediatrics,124(Suppl 4), S443–S449.
25. Medicaid, C. f. M. (2012). CHIP eligibility standards. In. http://medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Childrens-Health-Insurance-Program-CHIP/CHIP-Eligibility-Standards-.html. Accessed July 26 2013.
26. Montes, G., Halterman, J. S., & Magyar, C. I. (2009). Access to and satisfaction with school and community health services for US children with ASD. Pediatrics,124(Suppl 4), S407–S413. doi:10.1542/peds.2009-1255L.
27. Noble, D. J., & Casalino, L. P. (2013). Can accountable care organizations improve population health? Should they try? JAMA, The Journal of the American Medical Association,309, 1119–1120. doi:10.1001/jama.2013.592.
28. Odom, S., Collet-Klingenberg, L., Rogers, S. J., & Hatton, D. D. (2010). Evidence-based practices in interventions for children and youth with autism spectrum disorders. Preventing School Failure: Alternative Education for Children and Youth,54, 275–282.
29. Pediatrics, A. A. o. (2013). National Center for Medical Home Implementation: Autism information. In. http://www.medicalhomeinfo.org/about/cocwd/autism.aspx. Accessed August 6 2013.
30. Ruble, L. A., Heflinger, C. A., Renfrew, J. W., & Saunders, R. C. (2005). Access and service use by children with autism spectrum disorders in medicaid managed care. Journal of Autism and Developmental Disorders,35, 3–13.
31. Sheldrick, R. C., & Perrin, E. C. (2010). Medical home services for children with behavioral health conditions. Journal of Developmental and Behavioral Pediatrics,31, 92–99.
32. Taylor, E., Lake, T., Nysenbaum, J., Peterson, G., & Meyers, D. (2011). Coordinating care in the medical neighborhood: Critical components and available mechanisms. White paper AHRQ publication.