Access to Specialty Medical Care for Children with Mental Retardation, Autism, and Other Special Health Care Needs

Mental Retardation

Volumn 41, Issue 5, 2003, Pages

  Krauss, Marty Wyngaarden ^a   Gulley, Stephen ^a   Sciegaj, Mark ^b   Wells, Nora ^c  

^a BRANDEIS UNIVERSITY   (United States)

^b LASELL COLLEGE   (United States)

^c Fam Voices Fed Children Spec N   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUTISM; CHILD CARE; CONTROLLED STUDY; HEALTH CARE NEED; HEALTH CARE UTILIZATION; HEALTH SERVICE; HEALTH STATUS; HEALTH SURVEY; HUMAN; INSURANCE; MEDICAID; MEDICAL CARE; MEDICAL EDUCATION; MEDICAL SPECIALIST; MENTAL DEFICIENCY; PARENT; PATIENT REFERRAL; RISK FACTOR; SCHOOL CHILD; ADOLESCENT; CHILD; ECONOMICS; EPIDEMIOLOGY; FEMALE; HANDICAPPED CHILD; HEALTH CARE DELIVERY; MALE; MEDICINE; ORGANIZATION AND MANAGEMENT;

ADOLESCENT; AUTISTIC DISORDER; CHILD; DISABLED CHILDREN; FEMALE; HEALTH CARE SURVEYS; HEALTH SERVICES ACCESSIBILITY; HUMANS; INSURANCE COVERAGE; MALE; MEDICAID; MENTAL RETARDATION; PUBLIC SECTOR; SPECIALTIES, MEDICAL;

EID: 0142120348     PISSN: 00476765     EISSN: None     Source Type: Journal    
DOI: 10.1352/0047-6765(2003)41<329:atsmcf>2.0.co;2     Document Type: Article

References (28)

1. Aday, L. A., Lee, E. S., Spears, B., Chung, C. W., Yourself, A., & Bloom, B. (1993). Health insurance and utilization of medical care for children with special health care needs. Medical Care, 31, 1013-1026.
2. Cooley, W., & McAllister, J. (2001). Building a medical home: Improvement strategies in primary care for children with special health care needs. Lebanon, NH: Center for Medical Home Improvement. (Available online from www.medicalhome-improvement.org)
3. Delong, G., Poulsbo, S. E., & Beatty, P. W. (2002). The organization and financing of health services for persons with disabilities. The Milbank Quarterly, 80, 261-301.
4. Ferris, T. G. G., Perrin, J. M., Manganello, J. A., Chang, Y., Causino, N., & Blumenthal, D. (2001). Switching to gatekeeping: Changes in expenditures and utilization for children. Pediatrics, 108, 283-290.
5. Fox, H. B., McManus, M. A., Almeida, R. A., & Lesser, C. (1997). Medicaid managed care policies affecting children with disabilities: 1995 and 1996. Health Care Financing Review, 18, 23-36.
6. Fox, H. B., Wicks, L. B., & Newacheck, P. W. (1993). Health maintenance organizations and children with special health care needs: A suitable match? American Journal of Diseases in Children, 147, 546-552.
7. Gray, D. E., & Holden, W. J. (1992). Psycho-social well-being among the parents of children with autism. Australia and New Zealand Journal of Developmental Disabilities, 18, 83-93.
8. Horwitz, S. M., Kerker, B. D., Owens, P. L., & Zigler, E. (2001). The health status and needs of individuals with mental retardation. New Haven: Yale University.
9. Horwitz, S. M., & Stein, R. (1990). Health maintenance organizations vs. indemnity insurance for children with chronic illness: Trading gaps in coverage. American Journal of Diseases in Children, 144, 581-586.
10. Ireys, H. T., Grason, H. A., & Guyer, B. (1996). Assuring quality of care for children with special needs in managed care organizations: Roles for pediatricians. Pediatrics, 98, 178-185.
11. Karp, N. (1996). Individualized wrap-around services for children with emotional, behavioral, and mental disorders. In G. H. Singer, L. E. Powers, & A. L. Olson (Eds.), Redefining family support: Innovations in public-private partnerships (pp. 291-310). Baltimore: Brookes.
12. Kasari, C., Freeman, S., & Paparella, T. (2000). Early intervention in autism: Joint attention and symbolic play. In L Glidden (Ed.), International review of research in mental retardation: Autism (Vol. 23, pp. 208-238). San Diego: Academic Press.
13. Kohler, F. W. (1999). Examining the services received by young children with autism and their families: A survey of parent responses. Focus on Autism and Other Developmental Disabilities, 14, 150-158.
14. Krauss, M. W., Gulley, S., Leiter, V., Minihan, P., & Sciegaj, M. (2000). The family partners project: Report on a national survey of the health care experiences of families of children with special health care needs. Waltham, MA: Brandeis University.
15. Krauss, M. W., Wells, N., Gulley, S., & Anderson, B. (2001). Navigating systems of care: Results from a national survey of families of children with special health care needs. Children's Services: Social Policy, Research, and Practice, 4, 165-188.
16. Kuhlthau, K., Walker, D. K., Perrin, J. M., Bauman, L., Gortmaker, S. L., Newacheck, P. W., & Stein, R. E. K. (1998). Assessing managed care for children with chronic conditions. Health Affairs, 17, 42-52.
17. Leiter, V., Krauss, M. W., Anderson, B., & Wells, N. (in press). The consequences of caring: Impacts of mothering a child with special needs. Journal of Family Issues.
18. McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., Perrin, J. M., Shonkoff, J. P., & Strickland, B. (1998). A new definition of children with special health care needs. Pediatrics, 102, 137-140.
19. National Research Council. (2001). Educating children with autism. Committee on Educational Interventions for Children With Autism. Division of Behavioral and Social Sciences and Education. Washington, DC: National Academy Press.
20. Newacheck, P., Hung, Y. Y., Marchi, K. S., Hughes, D. C., Pitter, C., & Stoddard, J. (2001). The impact of managed care on children's access, satisfaction, use, and quality of care. Health Services Research, 36, 315-334.
21. Newacheck, P., McManus, M., Fox, H. B., Hung, Y., & Halfen, N. (2000). Access to health care for children with special health care needs. Pediatrics, 105, 760-766.
22. Newacheck, P., Stoddard, J., & Halfon, N. (1994). Children with chronic illness and Medicaid managed care. Pediatrics, 93, 497-500.
23. Newacheck, P. W., Strickland, B., Shonkoff, J. P., Perrin, J. M., McPherson, M., McManus, M., Lauver, C., Fox, H., & Arango, P. (1998). An epidemiologic profile of children with special health care needs. Pediatrics, 102, 117-123.
24. Office of the Surgeon General. (2002). Closing the gap: A national blueprint to improve the health of persons with mental retardation: A report of the Surgeon General's Conference on Health Disparities and Mental Retardation. Rockville, MD: U.S. Department of Health and Human Services. (Available online from www.surgeongeneral. gov/topics/mentalretardation)
25. Perrin, J. M. (2002). Health services research for children with disabilities. The Milbank Quarterly, 80, 303-324.
26. Rogers, S. J. (2000). Diagnosis of autism before age three. In L Glidden (Ed.), International review of research in mental retardation: Autism (Vol. 23, pp. 1-32). San Diego: Academic Press.
27. Seltzer, M. M., Krauss, M. W., Orsmond, G., & Vestal, C. (2000). Families of adolescents and adults with autism: Uncharted territory. In L. Glidden (Ed.), International review of research in mental retardation: Autism (Vol. 23, pp. 267-294). San Diego: Academic Press.
28. Simpson, L., & Fraser, I. (1999). Children and managed care: What research can, can't and should tell us about impact. Medical Care Research and Review, 56, 13-36.