-
1
-
-
85171237690
-
recommendation regarding the need for collaboration
-
Document #102. Available at: Accessed January 14
-
National Hemophilia Foundation. Medical and Scientific Advisory Council (MASAC) recommendation regarding the need for collaboration. Document #102. Available at: http://www.hemophilia.org/NHFWeb/MainPgs/MainNHF.aspx?menuid=57%26contentid=307. Accessed January 14, 2014.
-
(2014)
-
-
-
2
-
-
34547757915
-
Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia
-
Manco-Johnson MJ, Abshire TC, Shapiro AD et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535-44.
-
(2007)
N Engl J Med
, vol.357
, pp. 535-544
-
-
Manco-Johnson, M.J.1
Abshire, T.C.2
Shapiro, A.D.3
-
3
-
-
0026635406
-
Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B
-
Nilsson IM, Berntorp E, Lofqvist T, Pettersson H. Twenty-five years' experience of prophylactic treatment in severe haemophilia A and B. J Intern Med 1992; 232: 25-32.
-
(1992)
J Intern Med
, vol.232
, pp. 25-32
-
-
Nilsson, I.M.1
Berntorp, E.2
Lofqvist, T.3
Pettersson, H.4
-
4
-
-
0029664769
-
The impact of prophylactic treatment on children with severe haemophilia
-
Liesner RJ, Khair K, Hann IM. The impact of prophylactic treatment on children with severe haemophilia. Br J Haematol 1996; 92: 973-8.
-
(1996)
Br J Haematol
, vol.92
, pp. 973-978
-
-
Liesner, R.J.1
Khair, K.2
Hann, I.M.3
-
6
-
-
0026676575
-
Long-term therapy and on-demand treatment of children and adolescents with severe haemophilia A: 12 years of experience
-
Brackmann HH, Eickhoff HJ, Oldenburg J, Hammerstein U. Long-term therapy and on-demand treatment of children and adolescents with severe haemophilia A: 12 years of experience. Haemostasis 1992; 22: 251-8.
-
(1992)
Haemostasis
, vol.22
, pp. 251-258
-
-
Brackmann, H.H.1
Eickhoff, H.J.2
Oldenburg, J.3
Hammerstein, U.4
-
7
-
-
73049092113
-
Efficacy and safety of secondary prophylactic vs. on-demand sucrose-formulated recombinant factor VIII treatment in adults with severe hemophilia A: results from a 13-month crossover study
-
Collins P, Faradji A, Morfini M, Enriquez MM, Schwartz L. Efficacy and safety of secondary prophylactic vs. on-demand sucrose-formulated recombinant factor VIII treatment in adults with severe hemophilia A: results from a 13-month crossover study. J Thromb Haemost 2010; 8: 83-9.
-
(2010)
J Thromb Haemost
, vol.8
, pp. 83-89
-
-
Collins, P.1
Faradji, A.2
Morfini, M.3
Enriquez, M.M.4
Schwartz, L.5
-
8
-
-
0042411064
-
Consensus perspectives on prophylactic therapy for haemophilia: summary statement
-
Berntorp E, Astermark J, Bjorkman S et al. Consensus perspectives on prophylactic therapy for haemophilia: summary statement. Haemophilia 2003; 9: 1-4.
-
(2003)
Haemophilia
, vol.9
, pp. 1-4
-
-
Berntorp, E.1
Astermark, J.2
Bjorkman, S.3
-
10
-
-
85171235067
-
-
recommendations concerning prophylaxis (regular administration of clotting factor concentrate to prevent bleeding). Document #179. Available at: . Accessed January 14, 2014.
-
National Hemophilia Foundation. Medical and Scientific Advisory Council (MASAC) recommendations concerning prophylaxis (regular administration of clotting factor concentrate to prevent bleeding). Document #179. Available at: http://www.hemophilia.org/NHFWeb/Resource/StaticPages/menu0/menu5/menu57/masac179.pdf. Accessed January 14, 2014.
-
-
-
-
12
-
-
0032865763
-
Second Workshop of the European Paediatric Network for Haemophilia Management, 17-19 September 1998 in Vitznau/Switzerland
-
Ljung R. Second Workshop of the European Paediatric Network for Haemophilia Management, 17-19 September 1998 in Vitznau/Switzerland. Haemophilia 1999; 5: 286-91.
-
(1999)
Haemophilia
, vol.5
, pp. 286-291
-
-
Ljung, R.1
-
13
-
-
0028004222
-
A longitudinal study of orthopaedic outcomes for severe factor-VIII-deficient haemophiliacs. The Orthopaedic Outcome Study Group
-
Aledort LM, Haschmeyer RH, Pettersson H. A longitudinal study of orthopaedic outcomes for severe factor-VIII-deficient haemophiliacs. The Orthopaedic Outcome Study Group. J Intern Med 1994; 236: 391-9.
-
(1994)
J Intern Med
, vol.236
, pp. 391-399
-
-
Aledort, L.M.1
Haschmeyer, R.H.2
Pettersson, H.3
-
14
-
-
73949144595
-
Assessment of the progression of haemophilic arthropathy in children
-
Pergantou H, Platokouki H, Matsinos G et al. Assessment of the progression of haemophilic arthropathy in children. Haemophilia 2009; 16: 124-9.
-
(2009)
Haemophilia
, vol.16
, pp. 124-129
-
-
Pergantou, H.1
Platokouki, H.2
Matsinos, G.3
-
15
-
-
69949098269
-
Comparison of radiography, CT and MR imaging in detection of arthropathies in patients with haemophilia
-
Yu W, Lin Q, Guermazi A et al. Comparison of radiography, CT and MR imaging in detection of arthropathies in patients with haemophilia. Haemophilia 2009; 15: 1090-6.
-
(2009)
Haemophilia
, vol.15
, pp. 1090-1096
-
-
Yu, W.1
Lin, Q.2
Guermazi, A.3
-
16
-
-
0037274106
-
Value of magnetic resonance imaging for the diagnosis and follow-up of haemophilic arthropathy
-
Dobon M, Lucia JF, Aguilar C et al. Value of magnetic resonance imaging for the diagnosis and follow-up of haemophilic arthropathy. Haemophilia 2003; 9: 76-85.
-
(2003)
Haemophilia
, vol.9
, pp. 76-85
-
-
Dobon, M.1
Lucia, J.F.2
Aguilar, C.3
-
17
-
-
84860320096
-
Identification and long-term observation of early joint damage by magnetic resonance imaging in clinically asymptomatic joints in patients with haemophilia A or B despite prophylaxis
-
Olivieri M, Kurnik K, Pfluger T, Bidlingmaier C. Identification and long-term observation of early joint damage by magnetic resonance imaging in clinically asymptomatic joints in patients with haemophilia A or B despite prophylaxis. Haemophilia 2012; 18: 369-74.
-
(2012)
Haemophilia
, vol.18
, pp. 369-374
-
-
Olivieri, M.1
Kurnik, K.2
Pfluger, T.3
Bidlingmaier, C.4
-
18
-
-
20144387788
-
MRI scores of ankle joints in children with haemophilia-comparison with clinical data
-
Lundin B, Ljung R, Pettersson H. MRI scores of ankle joints in children with haemophilia-comparison with clinical data. Haemophilia 2005; 11: 116-22.
-
(2005)
Haemophilia
, vol.11
, pp. 116-122
-
-
Lundin, B.1
Ljung, R.2
Pettersson, H.3
-
19
-
-
4043152825
-
A new magnetic resonance imaging scoring method for assessment of haemophilic arthropathy
-
Lundin B, Pettersson H, Ljung R. A new magnetic resonance imaging scoring method for assessment of haemophilic arthropathy. Haemophilia 2004; 10: 383-9.
-
(2004)
Haemophilia
, vol.10
, pp. 383-389
-
-
Lundin, B.1
Pettersson, H.2
Ljung, R.3
-
20
-
-
44249090657
-
Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG)
-
Feldman BM, Funk S, Lundin B et al. Musculoskeletal measurement tools from the International Prophylaxis Study Group (IPSG). Haemophilia 2008; 14(Suppl 3): 162-9.
-
(2008)
Haemophilia
, vol.14
, pp. 162-169
-
-
Feldman, B.M.1
Funk, S.2
Lundin, B.3
-
21
-
-
84857979431
-
Correlation between musculoskeletal function and radiological joint scores in haemophilia A adolescents
-
Hassan TH, Badr MA, El-Gerby KM. Correlation between musculoskeletal function and radiological joint scores in haemophilia A adolescents. Haemophilia 2011; 17: 920-5.
-
(2011)
Haemophilia
, vol.17
, pp. 920-925
-
-
Hassan, T.H.1
Badr, M.A.2
El-Gerby, K.M.3
-
22
-
-
84857973289
-
Magnetic resonance imaging in teenagers and young adults with limited haemophilic arthropathy: baseline results from a prospective study
-
Den Uijl IE, De Schepper AMA, Camerlinck M, Grobbee DE, Fischer K. Magnetic resonance imaging in teenagers and young adults with limited haemophilic arthropathy: baseline results from a prospective study. Haemophilia 2011; 17: 926-30.
-
(2011)
Haemophilia
, vol.17
, pp. 926-930
-
-
Den Uijl, I.E.1
De Schepper, A.M.A.2
Camerlinck, M.3
Grobbee, D.E.4
Fischer, K.5
-
23
-
-
19844368262
-
Compatible scales for progressive and additive MRI assessments of haemophilic arthropathy
-
Lundin B, Babyn P, Doria AS et al. Compatible scales for progressive and additive MRI assessments of haemophilic arthropathy. Haemophilia 2005; 11: 109-15.
-
(2005)
Haemophilia
, vol.11
, pp. 109-115
-
-
Lundin, B.1
Babyn, P.2
Doria, A.S.3
-
24
-
-
84868204988
-
An MRI scale for assessment of haemophilic arthropathy from the International Prophylaxis Study Group
-
Lundin B, Manco-Johnson ML, Ignas DM et al. An MRI scale for assessment of haemophilic arthropathy from the International Prophylaxis Study Group. Haemophilia 2012; 18: 962-70.
-
(2012)
Haemophilia
, vol.18
, pp. 962-970
-
-
Lundin, B.1
Manco-Johnson, M.L.2
Ignas, D.M.3
-
25
-
-
34447268447
-
Long-term major joint outcomes in young adults with haemophilia: interim data from the HGDS
-
Su Y, Wong WY, Lail A, Donfield SM, Konzal S, Gomperts E. Long-term major joint outcomes in young adults with haemophilia: interim data from the HGDS. Haemophilia 2007; 13: 387-90.
-
(2007)
Haemophilia
, vol.13
, pp. 387-390
-
-
Su, Y.1
Wong, W.Y.2
Lail, A.3
Donfield, S.M.4
Konzal, S.5
Gomperts, E.6
-
26
-
-
0036207230
-
Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients
-
Royal S, Schramm W, Berntorp E et al. Quality-of-life differences between prophylactic and on-demand factor replacement therapy in European haemophilia patients. Haemophilia 2002; 8: 44-50.
-
(2002)
Haemophilia
, vol.8
, pp. 44-50
-
-
Royal, S.1
Schramm, W.2
Berntorp, E.3
-
27
-
-
84883798278
-
Randomized, controlled, parallel-group trial of routine prophylaxis vs. on-demand treatment with sucrose-formulated recombinant factor VIII in adults with severe hemophilia A (SPINART) [published correction appears in J Thromb Haemost. 2014;12: 119-122.]
-
Manco-Johnson MJ, Kempton CL, Reding MT et al. Randomized, controlled, parallel-group trial of routine prophylaxis vs. on-demand treatment with sucrose-formulated recombinant factor VIII in adults with severe hemophilia A (SPINART) [published correction appears in J Thromb Haemost. 2014;12: 119-122.]. J Thromb Haemost 2013; 11: 1119-27.
-
(2013)
J Thromb Haemost
, vol.11
, pp. 1119-1127
-
-
Manco-Johnson, M.J.1
Kempton, C.L.2
Reding, M.T.3
-
28
-
-
84857572936
-
A randomized comparison of two prophylaxis regimens and a paired comparison of on-demand and prophylaxis treatments in hemophilia A management
-
Valentino LA, Mamonov V, Hellmann A et al. A randomized comparison of two prophylaxis regimens and a paired comparison of on-demand and prophylaxis treatments in hemophilia A management. J Thromb Haemost 2012; 10: 359-67.
-
(2012)
J Thromb Haemost
, vol.10
, pp. 359-367
-
-
Valentino, L.A.1
Mamonov, V.2
Hellmann, A.3
-
29
-
-
0027989593
-
Results of secondary prophylaxis in children with severe hemophilia
-
Manco-Johnson MJ, Nuss R, Geraghty S, Funk S, Kilcoyne R. Results of secondary prophylaxis in children with severe hemophilia. Am J Hematol 1994; 47: 113-7.
-
(1994)
Am J Hematol
, vol.47
, pp. 113-117
-
-
Manco-Johnson, M.J.1
Nuss, R.2
Geraghty, S.3
Funk, S.4
Kilcoyne, R.5
-
30
-
-
1542315035
-
Effects of secondary prophylaxis in hemophilia children with frequent hemarthrosis
-
Cohen A, White E, Bernstein C et al. Effects of secondary prophylaxis in hemophilia children with frequent hemarthrosis. Transfusion (Paris) 1997; 37: 534-5.
-
(1997)
Transfusion (Paris)
, vol.37
, pp. 534-535
-
-
Cohen, A.1
White, E.2
Bernstein, C.3
-
31
-
-
84871073400
-
Magnetic resonance imaging and joint outcomes in boys with severe hemophilia a treated with tailored primary prophylaxis in Canada
-
Kraft J, Blanchette V, Babyn P et al. Magnetic resonance imaging and joint outcomes in boys with severe hemophilia a treated with tailored primary prophylaxis in Canada. J Thromb Haemost 2012; 10: 2494-502.
-
(2012)
J Thromb Haemost
, vol.10
, pp. 2494-2502
-
-
Kraft, J.1
Blanchette, V.2
Babyn, P.3
-
32
-
-
80052026835
-
Joint health and functional ability in children with haemophilia who receive intensive replacement therapy
-
Groen W, van der Net J, Bos K et al. Joint health and functional ability in children with haemophilia who receive intensive replacement therapy. Haemophilia 2011; 17: 783-90.
-
(2011)
Haemophilia
, vol.17
, pp. 783-790
-
-
Groen, W.1
van der Net, J.2
Bos, K.3
-
33
-
-
69549114635
-
Need for prophylactic treatment in adult haemophilia A patients
-
Siegmund B, Richter H, Pollmann H. Need for prophylactic treatment in adult haemophilia A patients. Transfus Med Hemother 2009; 36: 283-8.
-
(2009)
Transfus Med Hemother
, vol.36
, pp. 283-288
-
-
Siegmund, B.1
Richter, H.2
Pollmann, H.3
-
34
-
-
69949085125
-
Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices
-
Walsh CE, Valentino LA. Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices. Haemophilia 2009; 15: 1014-21.
-
(2009)
Haemophilia
, vol.15
, pp. 1014-1021
-
-
Walsh, C.E.1
Valentino, L.A.2
-
35
-
-
0031774371
-
Assessing the effectiveness and cost-effectiveness of prophylaxis against bleeding in patients with severe haemophilia and severe von Willebrand's disease
-
Miners AH, Sabin CA, Tolley KH, Lee CA. Assessing the effectiveness and cost-effectiveness of prophylaxis against bleeding in patients with severe haemophilia and severe von Willebrand's disease. J Intern Med 1998; 244: 515-22.
-
(1998)
J Intern Med
, vol.244
, pp. 515-522
-
-
Miners, A.H.1
Sabin, C.A.2
Tolley, K.H.3
Lee, C.A.4
-
36
-
-
51249107088
-
Effects of secondary prophylaxis started in adolescent and adult haemophiliacs
-
Tagliaferri A, Franchini M, Coppola A et al. Effects of secondary prophylaxis started in adolescent and adult haemophiliacs. Haemophilia 2008; 14: 945-51.
-
(2008)
Haemophilia
, vol.14
, pp. 945-951
-
-
Tagliaferri, A.1
Franchini, M.2
Coppola, A.3
|