Risk and Protective Factors for Retention in HIV Care

AIDS and Behavior

Volumn 18, Issue 8, 2014, Pages 1483-1491

  Waldrop Valverde, Drenna ^a   Guo, Ying ^a   Ownby, Raymond L ^b   Rodriguez, Allan ^c   Jones, Deborah L ^c  

^a EMORY UNIVERSITY   (United States)

^b Nova Southeastern University College of Osteopathic Medicine   (United States)

^c UNIVERSITY OF MIAMI MILLER SCHOOL OF MEDICINE   (United States)

Author keywords

HAND; Health literacy; Neurocognition; Retention in care; Visit adherence

Indexed keywords

ADULT; AMBULATORY CARE; COGNITION DISORDERS; COMPLICATION; CROSS-SECTIONAL STUDY; FEMALE; HEALTH LITERACY; HIV INFECTIONS; HUMAN; INTERPERSONAL COMMUNICATION; MALE; NEUROPSYCHOLOGICAL TEST; PATIENT COMPLIANCE; PHLEBOTOMY; PROTECTION; PSYCHOLOGY; RISK FACTOR; SOCIAL SUPPORT; STATISTICS AND NUMERICAL DATA; UNITED STATES;

ADULT; AMBULATORY CARE; COGNITION DISORDERS; COMMUNICATION; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH LITERACY; HIV INFECTIONS; HUMANS; MALE; NEUROPSYCHOLOGICAL TESTS; OFFICE VISITS; PATIENT COMPLIANCE; PHLEBOTOMY; PROTECTIVE FACTORS; RISK FACTORS; SOCIAL SUPPORT; UNITED STATES;

EID: 84922515459     PISSN: 10907165     EISSN: 15733254     Source Type: Journal    
DOI: 10.1007/s10461-013-0633-7     Document Type: Article

References (70)

1. Marks G, Gardner LI, Craw J, et al. The spectrum of engagement in HIV care: do more than 19 % of HIV-infected persons in the US have undetectable viral load? Clin Infect Dis. 2011;53(11):1168–9 author’s reply 9–70.
2. Vyavaharkar M, Moneyham L, Corwin S, Saunders R, Annang L, Tavakoli A. Relationships between stigma, social support, and depression in HIV-infected African American women living in the rural Southeastern United States. J Assoc Nurses AIDS Care. 2010;21(2):144–52.
3. Mugavero MJ, Lin HY, Allison JJ, et al. Failure to establish HIV care: characterizing the “no show” phenomenon. Clin Infect Dis. 2007;45(1):127–30.
4. Mugavero MJ, Norton WE, Saag MS. Health care system and policy factors influencing engagement in HIV medical care: piecing together the fragments of a fractured health care delivery system. Clin Infect Dis. 2011;52(Suppl 2):S238–46.
5. Ulett KB, Willig JH, Lin HY, et al. The therapeutic implications of timely linkage and early retention in HIV care. AIDS Patient Care STDS. 2009;23(1):41–9.
6. Vanable PA, Carey MP, Blair DC, Littlewood RA. Impact of HIV-related stigma on health behaviors and psychological adjustment among HIV-positive men and women. AIDS Behav. 2006;10(5):473–82.
7. Mugavero MJ, Lin HY, Allison JJ, et al. Racial disparities in HIV virologic failure: do missed visits matter? J Acquir Immune Defic Syndr. 2009;50(1):100–8.
8. Catz SL, McClure JB, Jones GN, Brantley PJ. Predictors of outpatient medical appointment attendance among persons with HIV. AIDS Care. 1999;11(3):361–73.
9. Israelski D, Gore-Felton C, Power R, Wood MJ, Koopman C. Sociodemographic characteristics associated with medical appointment adherence among HIV-seropositive patients seeking treatment in a county outpatient facility. Prev Med. 2001;33(5):470–5.
10. Giordano T, Visnegarwala F, White A, et al. Patients Referred to an urban HIV clinic frequently fail to establish care: factors predicting failure. AIDS Care. 2005;17:773–83.
11. Bodenlos JS, Grothe KB, Whitehead D, Konkle-Parker DJ, Jones GN, Brantley PJ. Attitudes toward health care providers and appointment attendance in HIV/AIDS patients. J Assoc Nurses AIDS Care. 2007;18(3):65–73.
12. Nutbeam D. Evaluating health promotion—progress, problems and solutions. Health Promot Int. 1998;13:27–44.
13. Berkman ND, Dewalt DA, Pignone MP, et al. Literacy and health outcomes. Rockville, MD: RTI-University of North Carolina Evidence Based Practice Center, 2004 January. Report No: 04-E007-2 Contract No: 290-02-0016.
14. Baker D, Gazmararian J, Williams M, Scott T, Parker R, Green D. Functional health literacy and the risk of hospital admission among Medicare managed care enrollees. Am J Public Health. 2002;92(8):1278–83.
15. Davis TC, Arnold C, Berkel HJ, Nandy I, Jackson RH, Glass J. Knowledge and attitude on screening mammography among low-literate, low-income women. Cancer. 1996;78(9):1912–20.
16. Lindau ST, Tomori C, Lyons T, Langseth L, Bennett CL, Garcia P. The association of health literacy with cervical cancer prevention knowledge and health behaviors in a multiethnic cohort of women. Am J Obstet Gynecol. 2002;186(5):938–43.
17. Scott TL, Gazmararian JA, Williams MV, Baker DW. Health literacy and preventive health care use among Medicare enrollees in a managed care organization. Med Care. 2002;40(5):395–404.
18. Weiss BD, Blanchard JS, McGee DL, et al. Illiteracy among Medicaid recipients and its relationship to health care costs. J Health Care Poor Underserved. 1994;5(2):99–111.
19. Heaton RK, Clifford DB, Franklin DR Jr, et al. HIV-associated neurocognitive disorders persist in the era of potent antiretroviral therapy: CHARTER Study. Neurology. 2010;75(23):2087–96.
20. Heaton RK, Franklin DR, Ellis RJ, et al. HIV-associated neurocognitive disorders before and during the era of combination antiretroviral therapy: differences in rates, nature, and predictors. J Neurovirol. 2011;17(1):3–16.
21. Waldrop-Valverde D, Jones DL, Gould F, Kumar M, Ownby RL. Neurocognition, health-related reading literacy, and numeracy in medication management for HIV infection. AIDS Patient Care STDS. 2010;24(8):477–84.
22. Wolf M, Curtis L, Wilson EH, et al. Literacy, Cognitive function, and health: results of the LitCog Study. J Gen Intern Med. 2012;27(10):1300–7.
23. Lee S-YD, Arozullah AM, Cho YI. Health literacy, social support, and health: a research agenda. Soc Sci Med. 2004;58(7):1309–21.
24. Kirsch IS. Adult literacy in America: a first look at the results of the National Adult Literacy Survey: ERIC; 1993.
25. Wolf MS, Davis TC, Osborn CY, Skripkauskas S, Bennett CL, Makoul G. Literacy, self-efficacy, and HIV medication adherence. Patient Educ Couns. 2007;65(2):253–60.
26. Antonucci TC. Social relations. In: Birren JE, Schaie KW, editors. Handbook of the psychology of aging. San Diego: Academic Press; 2001. pp. 53–77.
27. Sherman AM. Social relations and depressive symptoms in older adults with knee osteoarthritis. Soc Sci Med. 2003;56(2):247–57.
28. Cohen CI, Teresi J, Holmes D. Social networks, stress, and physical health: a longitudinal study of an inner-city elderly population. J Gerontol. 1985;40(4):478–86.
29. Adamis D, Ball C. Physical morbidity in elderly psychiatric inpatients: prevalence and possible relations between the major mental disorders and physical illness. Int J Geriatr Psychiatry. 2000;15(3):248–53.
30. House JS, Landis KR, Umberson D. Social relationships and health. Science. 1988;241(4865):540–5.
31. Agwu AL, Fleishman JA, Korthuis PT, et al. Disparities in antiretroviral treatment: a comparison of behaviorally HIV-infected youth and adults in the HIV research network. J Acquir Immune Defic Syndr. 2011;58(1):100–7.
32. Rickwood DJ, Braithwaite VA. Social-psychological factors affecting help-seeking for emotional problems. Soc Sci Med. 1994;39(4):563–72.
33. Ali NS. Prediction of coronary heart disease preventive behaviors in women: a test of the health belief model. Women Health. 2002;35(1):83–96.
34. Wenger GC, Tucker I. Using network variation in practice: identification of support network type. Health Soc Care Community. 2002;10(1):28–35.
35. Levine C, Zuckerman C. The trouble with families: toward an ethic of accommodation. Ann Intern Med. 1999;130(2):148–52.
36. Holahan CJ, Moos RH, Bonin L. Social support, coping, and psychological adjustment: a resource model. New York: Plenum Press; 1997.
37. Pearlin LI. Stress and mental health: a conceptual overview. Cambridge: Cambridge University Press; 1999.
38. Catz SL, Kelly JA, Bogart LM, Benotsch EG, McAuliffe TL. Patterns, correlates, and barriers to medication adherence among persons prescribed new treatments for HIV disease. Health Psychol. 2000;19(2):124–33.
39. Gonzalez JS, Penedo FJ, Antoni MH, et al. Social support, positive states of mind, and HIV treatment adherence in men and women living with HIV/AIDS. Health Psychol. 2004;23(4):413–8.
40. Malcolm SE, Ng JJ, Rosen RK, Stone VE. An examination of HIV/AIDS patients who have excellent adherence to HAART. AIDS Care. 2003;15(2):251–61.
41. Saha S, Arbelaez JJ, Cooper LA. Patient–physician relationships and racial disparities in the quality of health care. Am J Public Health. 2003;93(10):1713–9.
42. Whetten K, Leserman J, Whetten R, et al. Exploring lack of trust in care providers and the government as a barrier to health service use. Am J Public Health. 2006;96(4):716–21.
43. Mallinson RK, Rajabiun S, Coleman S. The provider role in client engagement in HIV care. AIDS Patient Care STDS. 2007;21(S1):S77–84.
44. Flickinger TE, Saha S, Moore RD, Beach MC. Higher quality communication and relationships are associated with improved patient engagement in HIV care. J Acquir Immune Defic Syndr. 2013;63(3):362–6.
45. Jones D, Cook R, Rodriguez A, Waldrop-Valverde D. Personal HIV knowledge, appointment adherence and HIV outcomes. AIDS Behav. 2013;17(1):242–9.
46. Baker DW, Williams MV, Parker RM, Gazmararian JA. Development of a brief test to measure functional health literacy. Patient Educ Couns. 1999;38:33–42.
47. Bakken S, Holzemer WL, Brown MA, et al. Relationships between perception of engagement with health care provider and demographic characteristics, health status, and adherence to therapeutic regimen in persons with HIV/AIDS. AIDS Patient Care STDS. 2000;14(4):189–97.
48. Zich J, Temoshok L. Perceptions of social support in men with AIDS and ARC: relationships with distress and hardiness. J Appl Soc Psych. 1987;17(3):193–215.
49. Partington JE, Leitner RG. Partington’s pathway test. Psychol Serv Bull. 1949;1:9–20.
50. Meyers J, Meyers K. The Meyers scoring system for the Rey Complex figure and the recognition trial: professional manual. Odessa: Psychological Assessment Resources; 1995.
51. DeFillipis N, McCampbell E. Manual for the booklet category test. Odessa: Psychological Assessment Resources; 1991.
52. Wechsler D. Wechsler adult intelligence scale (3rd ed) manual. New York: The Psychological Corporation; 1997.
53. Delis D, Kramer J, Kaplan E, Ober B. California verbal learning test: adult version manual. San Antonio: The Psychological Corporation; 1987.
54. Smith A. Symbol digit modalities test. Los Angeles: Western Psychological Services; 1991.
55. Klove H. Clinical neuropsychology. In: Forster FM, editor. The medical clinics of North America. New York: Saunders; 1963.
56. Miller EN. California computerized assessment package. Los Angeles: Norland Software; 1990.
57. Andresen EM, Malmgren JA, Carter WB, Patrick DL. Screening for depression in well older adults: evaluation of a short form of the CES-D (Center for Epidemiologic Studies Depression Scale). Am J Prev Med. 1994;10(2):77–84.
58. Radloff LS. The CES-D scale. Appl Psychol Meas. 1977;1(3):385–401.
59. McLellan AT, Kushner H, Metzger D, et al. The fifth edition of the addiction severity index. J Subst Abuse Treat. 1992;9(3):199–213.
60. Mugavero MJ, Westfall AO, Zinski A, et al. Measuring retention in HIV care: the elusive gold standard. J Acquir Immune Defic Syndr. 2012;61(5):574–80.
61. Collett D. Modelling binary data. 2nd ed. London: Chapman and Hall; 2002.
62. Engels JM, Diehr P. Imputation of missing longitudinal data: a comparison of methods. J Clin Epidemiol. 2003;56(10):968–76.
63. Waldrop-Valverde D, Jones DL, Weiss S, Kumar M, Metsch L. The effects of low literacy and cognitive impairment on medication adherence in HIV-positive injecting drug users. AIDS Care. 2008;20(10):1202–10.
64. Waldrop-Valverde D, Ownby RL, Wilkie FL, Mack A, Kumar M, Metsch L. Neurocognitive aspects of medication adherence in HIV-positive injecting drug users. AIDS Behav. 2006;10(3):287–97.
65. Ettenhofer ML, Foley J, Castellon SA, Hinkin CH. Reciprocal prediction of medication adherence and neurocognition in HIV/AIDS. Neurology. 2010;74(15):1217–22.
66. Gorman AA, Foley JM, Ettenhofer ML, Hinkin CH, van Gorp WG. Functional consequences of HIV-associated neuropsychological impairment. Neuropsychol Rev. 2009;19(2):186–203.
67. Hinkin CH, Barclay TR, Castellon SA, et al. Drug use and medication adherence among HIV-1 infected individuals. AIDS Behav. 2007;11(2):185–94.
68. Hinkin CH, Castellon SA, Durvasula RS, et al. Medication adherence among HIV + adults: effects of cognitive dysfunction and regimen complexity. Neurology. 2002;59(12):1944–50.
69. Hinkin CH, Hardy DJ, Mason KI, et al. Medication adherence in HIV-infected adults: effect of patient age, cognitive status, and substance abuse. AIDS. 2004;18(Suppl 1):S19–25.
70. Traeger L, O’Cleirigh C, Skeer M, Mayer K, Safren SA. Risk factors for missed HIV primary care visits among men who have sex with men. J Behav Med. 2011;35(5):548–56.