Relationships between psychosocial factors and quality of life for adults who stutter

American Journal of Speech-Language Pathology

Volumn 24, Issue 1, 2015, Pages 1-12

  Boyle, Michael P ^a  

^a OKLAHOMA STATE UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; BEHAVIOR; FEMALE; HUMAN; MALE; MIDDLE AGED; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; SELF HELP; SOCIAL ADAPTATION; SOCIAL BEHAVIOR; SOCIAL SUPPORT; STUTTERING; VERY ELDERLY; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; FEMALE; HUMANS; MALE; MIDDLE AGED; POWER (PSYCHOLOGY); QUALITY OF LIFE; SELF-HELP GROUPS; SOCIAL ADJUSTMENT; SOCIAL IDENTIFICATION; SOCIAL SUPPORT; STUTTERING; SURVEYS AND QUESTIONNAIRES; YOUNG ADULT;

EID: 84922351694     PISSN: 10580360     EISSN: None     Source Type: Journal    
DOI: 10.1044/2014_AJSLP-14-0089     Document Type: Article

References (71)

1. American Speech-Language-Hearing Association. (2007). Scope of practice in speech-language pathology. Available from http://www.asha.org/policy
2. Arkkila, E. E., Räsänen, P. P., Roine, R. P., Sintonen, H. H., Saar, V. V., & Vilkman, E. E. (2011). Health-related quality of life of children with specific language impairment aged 8–11. Folia Phoniatrica et Logopaedica, 63, 27–35.
3. Baylor, C. R., Yorkston, K. M., & Eadie, T. L. (2005). The consequences of spasmodic dysphonia on communicationrelated quality of life: A qualitative study of the insider’s experiences. Journal of Communication Disorders, 38, 395–419.
4. Beilby, J. M., Byrnes, M. L., & Yaruss, J. S. (2012). Acceptance and commitment therapy for adults who stutter: Psychosocial adjustment and speech fluency. Journal of Fluency Disorders, 37, 289–299.
5. Beilby, J. M., Byrnes, M. L., & Young, K. N. (2012). The experiences of living with a sibling who stutters: A preliminary study. Journal of Fluency Disorders, 37, 135–148.
6. Blood, G. W. (1995). POWER2: Relapse management with adolescents who stutter. Language, Speech, and Hearing Services in Schools, 26, 169–179.
7. Blumgart, E., Tran, Y., & Craig, A. (2014). Social support and its association with negative affect in adults who stutter. Journal of Fluency Disorders, 40, 83–92.
8. Boyle, M. P. (2011). Mindfulness training in stuttering therapy: A tutorial for speech-language pathologists. Journal of Fluency Disorders, 36, 122–129.
9. Boyle, M. P. (2013a). Assessment of stigma associated with stuttering: Development and evaluation of the Self-Stigma of Stuttering Scale (4S). Journal of Speech, Language, and Hearing Research, 56, 1517–1529.
10. Boyle, M. P. (2013b). Psychological characteristics and perceptions of stuttering of adults who stutter with and without support group experience. Journal of Fluency Disorders, 38, 368–381.
11. Brausch, A. M., & Decker, K. M. (2014). Self-esteem and social support as moderators of depression, body image, and disordered eating for suicidal ideation in adolescents. Journal of Abnormal Child Psychology, 42, 779–789.
12. Bricker-Katz, G., Lincoln, M., & Cumming, S. (2013). Stuttering and work life: An interpretative phenomenological analysis. Journal of Fluency Disorders, 38, 342–355.
13. Bricker-Katz, G., Lincoln, M., & McCabe, P. (2009). A life-time of stuttering: How emotional reactions to stuttering impact activities and participation in older people. Disability and Rehabilitation: An International, Multidisciplinary Journal, 31, 1742–1752.
14. Butler, C. (2013). Identity and stammering: Negotiating hesitation, side-stepping repetition, and sometimes avoiding deviation. Sociology of Health & Illness, 35, 1113–1127.
15. Cohen, J. (1992). A power primer. Psychological Bulletin, 112, 155–159.
16. Cohen, J., & Cohen, P. (1983). Applied multiple regression/correlation analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Erlbaum.
17. Constantino, D. P., Eger, S., & Matthies, M. (2013). Clinical use of self-reports to measure CBT program outcomes. Perspectives on Fluency and Fluency Disorders, 23, 15–20.
18. Corrigan, P. W., Sokol, K. A., & Rüsch, N. (2013). The impact of self-stigma and mutual help programs on the quality of life of people with serious mental illnesses. Community Mental Health Journal, 49, 1–6.
19. Crabtree, J. W., Haslam, S. A., Postmes, T., & Haslam, C. (2010). Mental health support groups, stigma, and self-esteem: Positive and negative implications of group identification. Journal of Social Issues, 66, 553–569.
20. Craig, A. (2010). The association between quality of life and stuttering. Journal of Fluency Disorders, 35, 159–160.
21. Craig, A., Blumgart, E., & Tran, Y. (2009). The impact of stuttering on the quality of life in adults who stutter. Journal of Fluency Disorders, 34, 61–71.
22. Craig, A., Blumgart, E., & Tran, Y. (2011). Resilience and stuttering: Factors that protect people from the adversity of chronic stuttering. Journal of Speech, Language, and Hearing Research, 54, 1485–1496.
23. Craig, A., & Tran, Y. (2014). Trait and social anxiety in adults with chronic stuttering: Conclusions following meta-analysis. Journal of Fluency Disorders, 40, 35–43. doi:10.1016/j.jfludis.2014.01.001
24. Craig, A., Tran, Y., & Craig, M. (2003). Stereotypes towards stuttering for those who have never had direct contact with people who stutter: A randomized and stratified study. Perceptual and Motor Skills, 97, 235–245.
25. Cruice, M., Worrall, L., & Hickson, L. (2010). Health-related quality of life in people with aphasia: Implications for fluency disorders quality of life research. Journal of Fluency Disorders, 35, 173–189.
26. Dahlem, N. W., Zimet, G. D., & Walker, R. R. (1991). The Multidimensional Scale of Perceived Social Support: A confirmation study. Journal of Clinical Psychology, 47, 756–761.
27. Daniels, D. E., Gabel, R. M., & Hughes, S. (2012). Recounting the K–12 school experiences of adults who stutter: A qualitative analysis. Journal of Fluency Disorders, 37, 71–82.
28. Derogatis, L. R. (1994). SCL-90–R. Symptom Checklist-90–R. Administration, Scoring and procedures manual (3rd ed.). Minneapolis, MN: National Computer Systems.
29. de Veer, S., Brouwers, A., Evers, W., & Tomic, W. (2009). A pilot study of the psychological impact of the Mindfulness Based Stress Reduction Program on persons who stutter. Journal of European Psychotherapy, 9, 39–56.
30. Dillman, D. A., Smyth, J. D., & Christian, L. (2009). Internet, mail, and mixed-mode surveys: The tailored design method (3rd ed). Hoboken, NJ: Wiley.
31. Endicott, J., Nee, J., Harrison, W., & Blumenthal, R. (1993). Quality of life enjoyment and satisfaction questionnaire: A new measure. Psychopharmacology Bulletin, 29, 321–326.
32. Fellinger, J., Holzinger, D., Dobner, U., Gerich, J., Lehner, R., Lenz, G., & Goldberg, D. (2005). An innovative and reliable way of measuring health-related quality of life and mental distress in the deaf community. Social Psychiatry and Psychiatric Epidemiology, 40, 245–250.
33. Franic, D. M., & Bothe, A. K. (2008). Psychometric evaluation of condition-specific instruments used to assess healthrelated quality of life, attitudes, and related constructs in stuttering. American Journal of Speech-Language Pathology, 17, 60–80.
34. Ginsberg, A. (2000). Shame, self-consciousness, and locus of control in people who stutter. The Journal of Genetic Psychology, 161, 389–399.
35. Iverach, L., Jones, M., O’Brian, S., Block, S., Lincoln, M., Harrison, E., Onslow, M. (2010). Mood and substance use disorders among adults seeking speech treatment for stuttering. Journal of Speech, Language, and Hearing Research, 53, 1178–1190.
36. Iverach, L., & Rapee, R. M. (2014). Social anxiety disorder and stuttering: Current status and future directions. Journal of Fluency Disorders, 40, 69–82.
37. Jetten, J., Spears, R., & Manstead, A. R. (2001). Similarity as a source of differentiation: The role of group identification. European Journal of Social Psychology, 31, 621–640.
38. Klompass, M., & Ross, E. (2004). Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: Personal accounts of South African individuals. Journal of Fluency Disorders, 29, 275–305.
39. Koedoot, C., Bouwmans, C., Franken, M. C., & Stolk, E. (2011). Quality of life in adults who stutter. Journal of Communication Disorders, 44, 429–443.
40. Kuster, J., Scott, L., Gabel, R., Palasik, S., Donaher, J., & Healey, E. C. (2013, November). Stuttering and suicide: Our experiences and responsibilities. Paper presented to the American Speech-Language-Hearing Association, annual convention, Chicago, IL.
41. Lau, S. R., Beilby, J. M., Byrnes, M. L., & Hennessey, N. W. (2012). Parenting styles and attachment in school-aged children who stutter. Journal of Communication Disorders, 45, 98–110.
42. Lindfors, O., Ojanen, S., Jääskeläinen, T., & Knekt, P. (2014). Social support as a predictor of the outcome of depressive and anxiety disorder in short-term and long-term psychotherapy. Psychiatry Research, 216, 44–51.
43. Livingston, J. D., & Boyd, J. E. (2010). Correlates and consequences of internalized stigma for people living with mental illness: A systematic review and meta-analysis. Social Science & Medicine, 71, 2150–2161.
44. Malecki, C. K., Demaray, M. K., & Elliott, S. N. (2000). The Child and Adolescent Social Support Scale. DeKalb: Northern Illinois University.
45. McAllister, J., Collier, J., & Shepstone, L. (2012). The impact of adolescent stuttering on educational and employment outcomes: Evidence from a birth cohort study. Journal of Fluency Disorders, 37, 106–121.
46. Menzies, R. G., O’Brian, S., Onslow, M., Packman, A., St Clare, T., & Block, S. (2008). An experimental clinical trial of a cognitivebehavior therapy package for chronic stuttering. Journal of Speech, Language, and Hearing Research, 51, 1451–1464.
47. Menzies, R. G., Onslow, M., Packman, A., & O’Brian, S. (2009). Cognitive behavior therapy for adults who stutter: A tutorial for speech-language pathologists. Journal of Fluency Disorders, 34, 187–200.
48. Murphy, W. P., Yaruss, J. S., & Quesal, R. W. (2007). Enhancing treatment for school-age children who stutter. I. Reducing negative reactions through desensitization and cognitive restructuring. Journal of Fluency Disorders, 32, 121–138.
49. Nunnally, J. C. (1978). Psychometric theory. New York, NY: McGraw-Hill.
50. O’Brian, S., Jones, M., Packman, A., Menzies, R., & Onlsow, M. (2011). Stuttering severity and educational attainment. Journal of Fluency Disorders, 36, 86–92.
51. O’Brian, S., Packman, A., & Onslow, M. (2004). Self-rating of stuttering severity as a clinical tool. American Journal of Speech-Language Pathology, 13, 219–226.
52. Petrocelli, J. V. (2003). Hierarchical multiple regression in counseling research: Common problems and possible remedies. Measurement and Evaluation in Counseling and Development, 36, 9–22.
53. Plexico, L. W., Manning, W. H., & Levitt, H. (2009). Coping responses by adults who stutter: Part I. Protecting the self and others. Journal of Fluency Disorders, 34, 87–107.
54. Power, M. J., Champion, L. A., & Aris, S. J. (1988). The development of a measure of social support: The Significant Others (SOS) Scale. British Journal of Clinical Psychology, 27, 349–358.
55. Ramig, P. (1993). The impact self-help groups on persons who stutter: A call for research. Journal of Fluency Disorders, 18, 351–361.
56. Reeves, L. (2007). Are self-help/mutual aid groups and professional intervention mutually exclusive concepts for helping those affected by stuttering? Perspectives on Fluency and Fluency Disorders, 17, 4–8.
57. Rogers, E., Chamberlin, J., Ellison, M., & Crean, T. (1997). A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatric Services, 48, 1042–1047.
58. Rogers, E., Ralph, R. O., & Salzer, M. S. (2010). Validating the Empowerment Scale with a multisite sample of consumers of mental health services. Psychiatric Services, 61, 933–936.
59. Rüsch, N., Lieb, K., Bohus, M., & Corrigan, P. W. (2006). Selfstigma, empowerment, and perceived legitimacy of discrimination among women with mental illness. Psychiatric Services, 57, 399–402.
60. Segal, S. P., Silverman, C., & Temkin, T. (1995). Measuring empowerment in client-run self-help agencies. Community Mental Health Journal, 31, 215–227.
61. Shumaker, S. A., & Brownell, A. (1984). Toward a theory of social support: Closing conceptual gaps. Journal of Social Issues, 40, 11–36.
62. Stevanovic, D. D. (2011). Quality of Life Enjoyment and Satisfaction Questionnaire–short form for quality of life assessments in clinical practice: A psychometric study. Journal of Psychiatric and Mental Health Nursing, 18, 744–750.
63. Strack, K. M., Deal, W. P., & Schulenberg, S. E. (2007). Coercion and empowerment in the treatment of individuals with serious mental illness: A preliminary investigation. Psychological Services, 4(2), 96–106.
64. Tonsing, K., Zimet, G. D., & Tse, S. (2012). Assessing social support among South Asians: The Multidimensional Scale of Perceived Social Support. Asian Journal of Psychiatry, 5, 164–168.
65. Tran, Y., Blumgart, E., & Craig, A. (2011). Subjective distress associated with chronic stuttering. Journal of Fluency Disorders, 36, 17–26.
66. Trichon, M., & Tetnowski, J. (2011). Self-help conferences for people who stutter: A qualitative investigation. Journal of Fluency Disorders, 36, 290–295.
67. Vauth, R., Kleim, B., Wirtz, M., & Corrigan, P. W. (2007). Selfefficacy and empowerment as outcomes of self-stigmatizing and coping in schizophrenia. Psychiatry Research, 150, 71–80.
68. Yaruss, J. S. (2010). Assessing quality of life in stuttering treatment outcomes research. Journal of Fluency Disorders, 35, 190–202.
69. Yaruss, J. S., Quesal, R. W., & Reeves, L. (2007). Self-help and mutual aid groups as an adjunct to stuttering therapy. In E. G. Conture & R. F. Curlee (Eds.), Stuttering and related disorders of fluency (3rd ed., pp. 256–276). New York, NY: Thieme.
70. Yaruss, J. S., Quesal, R. W., Reeves, L., Molt, L. F., Kluetz, B., Caruso, A. J., Lewis, F. (2002). Speech treatment and support group experiences of people who participate in the National Stuttering Association. Journal of Fluency Disorders, 27, 115–134.
71. Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment, 52, 30–41.