Quality of life in adults who stutter

Journal of Communication Disorders

Volumn 44, Issue 4, 2011, Pages 429-443

  Koedoot, Caroline ^a,b   Bouwmans, Clazien ^a   Franken, Marie Christine ^b   Stolk, Elly ^a  

^a ERASMUS UNIVERSITY ROTTERDAM   (Netherlands)

^b SOPHIA CHILDREN S HOSPITAL   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ANXIETY; ARTICLE; COGNITION; CONTROLLED STUDY; COPING BEHAVIOR; DAILY LIFE ACTIVITY; DEPRESSION; DISEASE SEVERITY; EMOTION; FEMALE; FUNCTIONAL ASSESSMENT; FUNCTIONAL STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; MENTAL TASK; PAIN; QUALITY OF LIFE; SPEECH; SPEECH THERAPY; STUTTERING;

ACTIVITIES OF DAILY LIVING; ADAPTATION, PSYCHOLOGICAL; ADULT; FEMALE; HUMANS; MALE; PSYCHOLOGICAL TESTS; QUALITY OF LIFE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; STUTTERING;

EID: 79960302598     PISSN: 00219924     EISSN: 18737994     Source Type: Journal    
DOI: 10.1016/j.jcomdis.2011.02.002     Document Type: Article

References (49)

1. Andrade C.R., Sassi F.C., Juste F.S., Ercolin B. Quality of life of individuals with persistent developmental stuttering. Pro-Fono: Revista De Atualizacao Cientifica 2008, 20(4):219-224.
2. Bloodstein O., Bernstein-Ratner N. A handbook on stuttering 2008, Thompson Delmar Learning, Boston, MA.
3. Bramlett R.E., Bothe A.K., Franic D.M. Using preference-based measures to assess quality of life in stuttering. Journal of Speech, Language and Hearing Research 2006, 49(2):381-394.
4. Brazier J., Ratcliffe J., Tsuchiya A., Salomon J. Measuring and valuing health benefits for economic evaluation 2007, Oxford University Press, Oxford.
5. Brazier J., Roberts J., Deverill M. The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics 2002, 21(2):271-292.
6. Busschbach J.J.V., Rikken B., Grobbee D.E., De Charro F.T., Wit J.M. Quality of life in short adults. Hormone Research 1998, 49:32-38.
7. Cohen J. Statistical power analysis for the behavioral sciences 1988, Lawrence Erlbaum, Hillsdale, NJ. 2nd ed.
8. Coons S.J., Rao S., Keininger D.L., Hays R.D. A comparative review of generic quality-of-life instruments. PharmacoEconomics 2000, 17(1):13-35.
9. Craig A. The association between quality of life and stuttering. Journal of Fluency Disorders 2010, 35(3):159-160.
10. Craig A., Blumgart E., Tran Y. The impact of stuttering on the quality of life in adults who stutter. Journal of Fluency Disorders 2009, 34(2):61-71.
11. Crichton-Smith I. Communicating in the real world: Accounts from people who stammer. Journal of Fluency Disorders 2002, 27(4):333-352.
12. Cruice M., Worrall L., Hickson L. Health-related quality of life in people with aphasia: Implications for fluency disorders quality of life research. Journal of Fluency Disorders 2010, 35(3):173-189.
13. De Ridder D., Geenen R., Kuijer R., van Middendorp H. Psychological adjustment to chronic disease. Lancet 2008, 372(9634):246-255.
14. De Ridder D., van Heck G.L. Coping inventory for stressful situations. CISS handleiding 2004, Swets & Zeitlinger/Harcourt, Lisse.
15. Doctor J.N., Bleichrodt H., Lin H.J. Health utility bias: A systematic review and meta-analytic evaluation. Medical Decision Making: An International Journal of the Society for Medical Decision Making 2008, 30:58-67.
16. Dolan P. Modeling valuations for the EuroQol health states. Medical Care 1997, 35:1095-1108.
17. Dolan P. Stuttering into happiness. Oxford dysfluency conference 2008.
18. Drummond M.F., Sculpher M.J., Torrance G.W., O'Brien B.J., Stoddart G.L. Methods for the economic evaluation of health care programmes 2005, Oxford University Press, Oxford.
19. EuroQol Group EQ-5D user guide. Basic information on how to use EQ-5Ds 2009, EuroQol Group, Rotterdam, Available at. http://www.euroqol.org/.
20. Feeny D., Furlong W., Torrance G.W., Goldsmith C.H., Zhu Z., DePauw S., et al. Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Medical Care 2002, 40(2):113-128.
21. Franic D.M., Bothe A.K. Psychometric evaluation of condition-specific instruments used to assess health-related quality of life, attitudes, and related constructs in stuttering. American Journal of Speech-Language Pathology 2008, 17(1):60-80.
22. Guyatt G.H., Naylor C.D., Juniper E., Heyland D.K., Jaeschke R., Cook D.J. Users' guides to the medical literature. XII. how to use articles about health-related quality of life. Evidence-based medicine working group. JAMA: The Journal of the American Medical Association 1997, 277(15):1232-1237.
23. Guyatt G.H., Veldhuyzen Van Zanten S.J., Feeny D.H., Patrick D.L. Measuring quality of life in clinical trials: A taxonomy and review. CMAJ: Canadian Medical Association Journal 1989, 140(12):1441-1448.
24. Hayhow R., Cray A.M., Enderby P. Stammering and therapy views of people who stammer. Journal of Fluency Disorders 2002, 27(1):1-16.
25. Huinck W., Rietveld T. The validity of a simple outcome measure to assess stuttering therapy. Folia Phoniatrica et Logopaedica 2007, 59(2):91-99.
26. Ingham J.C. Evidence-based treatment of stuttering: I. Definition and application. Journal of Fluency Disorders 2003, 28(3):197-206.
27. Klein J.F., Hood S.B. The impact of stuttering on employment opportunities and job performance. Journal of Fluency Disorders 2004, 29(4):255-273.
28. Klompas M., Ross E. Life experiences of people who stutter, and the perceived impact of stuttering on quality of life: Personal accounts of South African individuals. Journal of Fluency Disorders 2004, 29(4):275-305.
29. Koedoot C., Bouwmans C., Franken M.C.J.P., Stolk E.A. Psychometric evaluation of the Dutch translation of the Overall Assessment of the Speaker's Experience of Stuttering for adults (OASES-A-D). Journal of Fluency Disorders 2011, 10.1016/j.jfludis.2011.03.002.
30. Kopec J.A, Willison K.D. A comparative review of four preference-weighted measures of health-related quality of life. Journal of Clinical Epidemiology 2003, 56(4):317-325.
31. Kraaimaat F.W., Vanryckeghem M., Van Dam-Baggen R. Stuttering and social anxiety. Journal of Fluency Disorders 2002, 27(4):319-330.
32. Lamers L.M., Bouwmans C.A., van Straten A., Donker M.C., Hakkaart L. Comparison of EQ-5D and SF-6D utilities in mental health patients. Health Economics 2006, 15(11):1229-1236.
33. Lazarus R.S. Coping theory and research: Past, present, and future. Psychosomatic Medicine 1993, 55:234-1234.
34. Lazarus R.S., Folkman S. Stress, appraisal, and coping 1984, Springer Publishing Company, New York, NY.
35. Macdonald G., Leary M.R. Why does social exclusion hurt? The relationship between social and physical pain. Psychological Bulletin 2005, 131(2):202-223.
36. McCabe C., Brazier J., Gilks P., Tsuchiya A., Roberts J., O'Hagan A., et al. Using rank data to estimate health state utility models. Journal of Health Economics 2006, 25(3):418-431.
37. Menzies R.G., Onslow M., Packman A., O'Brian S. Cognitive behavior therapy for adults who stutter: A tutorial for speech-language pathologists. Journal of Fluency Disorders 2009, 34(3):187-200.
38. Messenger M., Onslow M., Packman A., Menzies R. Social anxiety in stuttering: Measuring negative social expectancies. Journal of Fluency Disorders 2004, 29(3):201-212.
39. O'Brian S., Packman A., Onslow M. Self-rating of stuttering severity as a clinical tool. American Journal of Speech and Language Pathology 2004, 13(3):219-226.
40. Oostenbrink R., Moll H.A., Essink-Bot M.L. The EQ-5D and the health utilities index for permanent sequelae after meningitis: A head-to-head comparison. Journal of Clinical Epidemiology 2002, 55(8):791-799.
41. Parker J.D.A., Endler N.S. Coping with coping assessment: A critical review. European Journal of Personality 1992, 6:321-1321.
42. Plexico L.W., Manning W.H., Levitt H. Coping responses by adults who stutter: Part I. Protecting the self and others. Journal of Fluency Disorders 2009, 34(2):87-107.
43. Plexico L., Manning W.H., Levitt H. Coping responses by adults who stutter: Part II. Approaching the problem and achieving agency. Journal of Fluency Disorders 2009, 34(2):108-126.
44. Schneier F.R., Wexler K.B., Liebowitz M.R. Social phobia and stuttering. American Journal of Psychiatry 1997, 154(1):131.
45. Torrance G.W., Furlong W., Feeny D. Health utility estimation. Expert Review of Pharmacoeconomics & Outcomes Research 2002, 2(2):99-108.
46. Vanryckeghem M., Brutten G.J., Uddin N., Van Borsel J. A comparative investigation of the speech-associated coping responses reported by adults who do and do not stutter. Journal of Fluency Disorders 2004, 29(3):237-250.
47. Wilson I.B., Cleary P.D. Linking clinical variables with health-related quality of life. A conceptual model of patient outcomes. JAMA: The Journal of the American Medical Association 1995, 273(1):59-65.
48. Yaruss J.S. Assessing quality of life in stuttering treatment outcomes research. Journal of Fluency Disorders 2010, 35(3):190-202.
49. Yaruss J.S., Quesal R.W. Overall assessment of the speaker's experience of stuttering (OASES): Documenting multiple outcomes in stuttering treatment. Journal of Fluency Disorders 2006, 31(2):90-115.