Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study

Patient

Volumn 8, Issue 1, 2015, Pages 65-73

  Doyle, Maya ^a,b  

^a QUINNIPIAC UNIVERSITY   (United States)

^b CHILDREN S HOSPITAL AT MONTEFIORE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ADULTHOOD; ARTICLE; CLINICAL ARTICLE; CYSTINOSIS; DISABILITY; EMOTION; FATHER; FEMALE; GROUNDED THEORY; HEALTH STATUS; HUMAN; INFORMATION PROCESSING; INTERVIEW; MALE; MOTHER; PARENT; PATIENT COMFORT; PEER GROUP; PERSONAL EXPERIENCE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; RARE DISEASE; SIBLING; SOCIAL ASPECT; TEACHER; TRANSITION TO ADULT CARE; TRUST; ADOLESCENT; DAILY LIFE ACTIVITY; PSYCHOLOGY; SOCIAL SUPPORT; UNITED STATES; YOUNG ADULT;

ACTIVITIES OF DAILY LIVING; ADOLESCENT; ADULT; CYSTINOSIS; FEMALE; FOCUS GROUPS; HUMANS; INTERVIEWS AS TOPIC; MALE; MENTORS; PARENTS; PEER GROUP; QUALITATIVE RESEARCH; RARE DISEASES; SOCIAL SUPPORT; UNITED STATES; YOUNG ADULT;

EID: 84922125965     PISSN: 11781653     EISSN: 11781661     Source Type: Journal    
DOI: 10.1007/s40271-014-0085-9     Document Type: Article

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