메뉴 건너뛰기




Volumn 26, Issue 4, 2008, Pages 111-133

Formal and informal support needs of young women with BRCA mutations

Author keywords

Breast and ovarian cancer; Genetic testing; Hereditary cancer risk; Psychosocial distress; Social support; Women

Indexed keywords

BRCA1 PROTEIN;

EID: 65749195051     PISSN: 07347332     EISSN: 15407586     Source Type: Journal    
DOI: 10.1080/07347330802359776     Document Type: Article
Times cited : (45)

References (65)
  • 1
    • 0038744296 scopus 로고    scopus 로고
    • Average risks of breast and ovarian cancer associated with BRCA 1 or BRCA 2 mutations detected in case Series unselected for family history: A combined analysis of 22 studies
    • Antoniou, A. C., Pharoah, P. D., Narod, S., Risch, H. A., Eyfjord, J. E., Hopper, J. L., et al. (2003). Average risks of breast and ovarian cancer associated with BRCA 1 or BRCA 2 mutations detected in case Series unselected for family history: A combined analysis of 22 studies. American Journal of Human Genetics, 72(5), 1117-1130.
    • (2003) American Journal of Human Genetics , vol.72 , Issue.5 , pp. 1117-1130
    • Antoniou, A.C.1    Pharoah, P.D.2    Narod, S.3    Risch, H.A.4    Eyfjord, J.E.5    Hopper, J.L.6
  • 2
    • 1342271791 scopus 로고    scopus 로고
    • Qualitative evaluation of medical information processing needs of 60 women choosing ovarian cancer surveillance or prophylactic oophorectomy
    • Babb, E. M., Swisher, H. P., Whelan, A. J., Mutch, D. G., Herzog, T. J., & Radar, J. S. (2002). Qualitative evaluation of medical information processing needs of 60 women choosing ovarian cancer surveillance or prophylactic oophorectomy. Journal of Genetic Counseling, 11(2), 81-96.
    • (2002) Journal of Genetic Counseling , vol.11 , Issue.2 , pp. 81-96
    • Babb, E.M.1    Swisher, H.P.2    Whelan, A.J.3    Mutch, D.G.4    Herzog, T.J.5    Radar, J.S.6
  • 3
    • 0030638686 scopus 로고    scopus 로고
    • Stress and genetic testing for disease risk
    • Baum, A., Friedman, A. L.,& Zakowski, S. G. (1997). Stress and genetic testing for disease risk. Health Psychology, 16(1), 8-19.
    • (1997) Health Psychology , vol.16 , Issue.1 , pp. 8-19
    • Baum, A.1    Friedman, A.L.2    Zakowski, S.G.3
  • 4
    • 33748100520 scopus 로고    scopus 로고
    • Surgical treatment options in young women with breast cancer
    • Black, D., & Smith, B. L. (2005/2006). Surgical treatment options in young women with breast cancer. Breast Diseases, 23, 37-45.
    • (2005) Breast Diseases , vol.23 , pp. 37-45
    • Black, D.1    Smith, B.L.2
  • 6
    • 5644254323 scopus 로고    scopus 로고
    • Effects of individual and family functioning on interest in genetic testing
    • Bowen, D. J., Bourcier, E., Press, N., Lewis, F.M.,& Burke,W. (2004). Effects of individual and family functioning on interest in genetic testing. Community Genetics, 7(1):25-32.
    • (2004) Community Genetics , vol.7 , Issue.1 , pp. 25-32
    • Bowen, D.J.1    Bourcier, E.2    Press, N.3    Lewis, F.M.4    Burke, W.5
  • 8
    • 0032152238 scopus 로고    scopus 로고
    • Psycho-social aspects of breast cancer susceptibility testing: A literature review
    • Bredart, A., Autier, P., Audisio, R. A., & Geragthy, J. (1998). Psycho-social aspects of breast cancer susceptibility testing: A literature review. European Journal of Cancer Care, 7(3), 174-180.
    • (1998) European Journal of Cancer Care , vol.7 , Issue.3 , pp. 174-180
    • Bredart, A.1    Autier, P.2    Audisio, R.A.3    Geragthy, J.4
  • 9
    • 0037983218 scopus 로고    scopus 로고
    • A hereditary disorder in the family and the family life cycle: Huntington's disease as a paradigm
    • Brouwer-DudokdeWit, A. C., Savenije, A., Zoeteweij, M. W., Maat-Kievit, A., & Tibben, A. (2002). A hereditary disorder in the family and the family life cycle: Huntington's disease as a paradigm. Family Process, 41(4), 677-692.
    • (2002) Family Process , vol.41 , Issue.4 , pp. 677-692
    • Brouwer-Dudokdewit, A.C.1    Savenije, A.2    Zoeteweij, M.W.3    Maat-Kievit, A.4    Tibben, A.5
  • 11
    • 33745823842 scopus 로고    scopus 로고
    • Narrative inquiry:Multiple lenses, approaches, voices
    • N. Denzin & Y. Lincoln (Eds.), 3rd ed., Thousand Oaks, CA: Sage
    • Chase, S. (2005). Narrative inquiry:Multiple lenses, approaches, voices. In N. Denzin & Y. Lincoln (Eds.), The handbook of qualitative research (3rd ed., pp. 651-680). Thousand Oaks, CA: Sage.
    • (2005) The Handbook of Qualitative Research , pp. 651-680
    • Chase, S.1
  • 12
    • 70449626044 scopus 로고    scopus 로고
    • June. Oral paper presented at the 9th InternationalMeeting on Psychosocial Aspects of Genetic Testing for Hereditary Cancer. Philadelphia, PA
    • Codori, A. (2005, June). Genetic testing for hereditary colorectal cancer in children: Long-term psychosocial effects. Oral paper presented at the 9th InternationalMeeting on Psychosocial Aspects of Genetic Testing for Hereditary Cancer. Philadelphia, PA.
    • (2005) Genetic Testing for Hereditary Colorectal Cancer in Children: Long-term Psychosocial Effects
    • Codori, A.1
  • 14
    • 0030638330 scopus 로고    scopus 로고
    • Psychological responses to BRCA1 mutation testing: Preliminary findings
    • Croyle, R. T., Smith, K. R., Botkin, J. R., Baty, B., & Nash, J. (1997). Psychological responses to BRCA1 mutation testing: Preliminary findings. Health Psychology, 16(1), 63-72.
    • (1997) Health Psychology , vol.16 , Issue.1 , pp. 63-72
    • Croyle, R.T.1    Smith, K.R.2    Botkin, J.R.3    Baty, B.4    Nash, J.5
  • 17
    • 0035570037 scopus 로고    scopus 로고
    • Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: Findings from a focus group and a needs-assessment survey
    • Di Prospero, L. S., Seminsky, M., Honeyford, J., Doan, B., Franssen, E., Meschino, W., et al. (2001). Psychosocial issues following a positive result of genetic testing for BRCA1 and BRCA2 mutations: Findings from a focus group and a needs-assessment survey. Canadian Medical Association Journal, 164(7), 1005-1009.
    • (2001) Canadian Medical Association Journal , vol.164 , Issue.7 , pp. 1005-1009
    • Di Prospero, L.S.1    Seminsky, M.2    Honeyford, J.3    Doan, B.4    Franssen, E.5    Meschino, W.6
  • 21
    • 70449671514 scopus 로고    scopus 로고
    • June. Oral paper presented at the 9th International Meeting on Psychosocial Aspects of Genetic Testing for Hereditary Cancer. Philadelphia, PA
    • Evans, G. (2005, June). Ovarian suppression in premenupausal women at increased risk of breast cancer: RAZOR trial. Oral paper presented at the 9th International Meeting on Psychosocial Aspects of Genetic Testing for Hereditary Cancer. Philadelphia, PA.
    • (2005) Ovarian Suppression in Premenupausal Women at Increased Risk of Breast Cancer: RAZOR Trial
    • Evans, G.1
  • 22
    • 0034666815 scopus 로고    scopus 로고
    • The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers: Implications for multidisciplinary counseling and for genetic education
    • Evers-Kiebooms, G., Welkenhuysen, M., Claes, A., Decruyenaere, M., & Denayer, L. (2000). The psychological complexity of predictive testing for late onset neurogenetic diseases and hereditary cancers: Implications for multidisciplinary counseling and for genetic education. Social Science and Medicine 51, 831-841.
    • (2000) Social Science and Medicine , vol.51 , pp. 831-841
    • Evers-Kiebooms, G.1    Welkenhuysen, M.2    Claes, A.3    Decruyenaere, M.4    Denayer, L.5
  • 23
    • 0141955975 scopus 로고    scopus 로고
    • A qualitative analysis of social concerns of women with ovarian cancer
    • Ferrell, B. R., Smith, S. L., Ervin, K. S., Itano, J., & Melancon, C. (2003). A qualitative analysis of social concerns of women with ovarian cancer. Psycho-Oncology, 12(7), 647-663.
    • (2003) Psycho-Oncology , vol.12 , Issue.7 , pp. 647-663
    • Ferrell, B.R.1    Smith, S.L.2    Ervin, K.S.3    Itano, J.4    Melancon, C.5
  • 25
    • 0032943027 scopus 로고    scopus 로고
    • Families and the genetic revolution: Implications for primary healthcare, education, and research
    • Feetham, S. L. (1997). Families and the genetic revolution: Implications for primary healthcare, education, and research. Families, Systems & Health, 17(1), 27-43.
    • (1997) Families, Systems & Health , vol.17 , Issue.1 , pp. 27-43
    • Feetham, S.L.1
  • 26
    • 21544456087 scopus 로고    scopus 로고
    • Facilitating family communication about predictive genetic testing: Probands' perceptions
    • Gaff, C. L., Collins, V., Symes, T.,& Halliday, J. (2005). Facilitating family communication about predictive genetic testing: Probands' perceptions. Journal of Genetic Counseling, 14(2), 133-140.
    • (2005) Journal of Genetic Counseling , vol.14 , Issue.2 , pp. 133-140
    • Gaff, C.L.1    Collins, V.2    Symes, T.3    Halliday, J.4
  • 27
    • 3242729153 scopus 로고    scopus 로고
    • On the listening guide: A voice-centered relational method
    • P. M. Camic, J. E. Rhodes, & L. Yardley (Eds.), Washington, DC: American Psychological Association Press
    • Gilligan, C., Spencer, R., Weinberg, K., & Bertsch, T. (2003). On the listening guide: A voice-centered relational method. In P. M. Camic, J. E. Rhodes, & L. Yardley (Eds.), Qualitative research in psychology: Expanding perspectives in methodology and design (pp. 157-172). Washington, DC: American Psychological Association Press.
    • (2003) Qualitative Research in Psychology: Expanding Perspectives in Methodology and Design , pp. 157-172
    • Gilligan, C.1    Spencer, R.2    Weinberg, K.3    Bertsch, T.4
  • 29
    • 18244374810 scopus 로고    scopus 로고
    • All in the family: Evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results
    • Hughes, C., Lerman, C., Schwartz, M., Peshkin, B. N.,Wenzel, L., Narod, S., et al. (2002). All in the family: Evaluation of the process and content of sisters' communication about BRCA1 and BRCA2 genetic test results. American Journal of Medical Genetics, 107(2), 143-150.
    • (2002) American Journal of Medical Genetics , vol.107 , Issue.2 , pp. 143-150
    • Hughes, C.1    Lerman, C.2    Schwartz, M.3    Peshkin, N.4    Wenzel, B.L.5    Narod, S.6
  • 30
    • 33745597609 scopus 로고    scopus 로고
    • "social separation" among women under 40 years of age diagnosed with breast cancer and carrying a BRCA1 or BRCA2 mutation
    • Kenen, R., Ardern-Jones, A., & Eeles, R. (2006). "Social separation" among women under 40 years of age diagnosed with breast cancer and carrying a BRCA1 or BRCA2 mutation. Journal of Genetic Counseling, 15(3), 149-162.
    • (2006) Journal of Genetic Counseling , vol.15 , Issue.3 , pp. 149-162
    • Kenen, R.1    Ardern-Jones, A.2    Eeles, R.3
  • 31
    • 70449650805 scopus 로고    scopus 로고
    • Family environment, social support, and psychological distress of women seeking BRCA1 and BRCA2 genetic mutation testing
    • Keenan, L. A. (2003). Family environment, social support, and psychological distress of women seeking BRCA1 and BRCA2 genetic mutation testing. Dissertation Abstracts International: Section B: The Sciences and Engineering, 63(9-B), 4375.
    • (2003) Dissertation Abstracts International: Section B: The Sciences and Engineering , vol.63 , Issue.9 B , pp. 4375
    • Keenan, L.A.1
  • 33
    • 0037386964 scopus 로고    scopus 로고
    • A social network analysis of communication about hereditary nonpolyposiscolorectal cancer genetic testing and family functioning
    • Koehly, L. M., Peterson, S. K., Watts, B. G., Kempf, K. K., Vernon, S. W., & Gritz, E. R. (2003). A social network analysis of communication about hereditary nonpolyposiscolorectal cancer genetic testing and family functioning. Cancer Epidemiology Biomarkers & Prevention, 12(4), 304-313.
    • (2003) Cancer Epidemiology Biomarkers & Prevention , vol.12 , Issue.4 , pp. 304-313
    • Koehly, L.M.1    Peterson, S.K.2    Watts, B.G.3    Kempf, K.K.4    Vernon, S.W.5    Gritz, E.R.6
  • 34
    • 0002806488 scopus 로고    scopus 로고
    • The family of the cancer patient
    • J.Holland (Ed.), New York: Oxford University Press
    • Lederberg, M. (1998). The family of the cancer patient. In J.Holland (Ed.), Psychooncology. (pp. 981-993), New York: Oxford University Press.
    • (1998) Psychooncology , pp. 981-993
    • Lederberg, M.1
  • 36
    • 0008195461 scopus 로고    scopus 로고
    • A descriptive study of BRCA1 testing and reactions to disclosure of test results
    • Lynch, H. T., Lemon, S. J., Durham, C., Tinley, S. T., Connolly, C., Lynch, J. F., et al. (1997). A descriptive study of BRCA1 testing and reactions to disclosure of test results. Cancer, 79, 2219-2228.
    • (1997) Cancer , vol.79 , pp. 2219-2228
    • Lynch, H.T.1    Lemon, S.J.2    Durham, C.3    Tinley, S.T.4    Connolly, C.5    Lynch, J.F.6
  • 37
    • 9644288112 scopus 로고    scopus 로고
    • Associations between relationship support and psychological reactions of participants and partners to BRCA1 and BRCA2 testing in a clinic-based sample
    • Manne, S., Audrain, J., Schwartz, M., Main, D., Finch, C., & Lerman, C. (2004). Associations between relationship support and psychological reactions of participants and partners to BRCA1 and BRCA2 testing in a clinic-based sample. Annals of Behavioral Medicine, 28(3), 211-225.
    • (2004) Annals of Behavioral Medicine , vol.28 , Issue.3 , pp. 211-225
    • Manne, S.1    Audrain, J.2    Schwartz, M.3    Main, D.4    Finch, C.5    Lerman, C.6
  • 38
    • 17044385774 scopus 로고    scopus 로고
    • Mammary cancer and social interactions: Identifying environments that regulate gene expression throughout the life span
    • McClintock, M., Conzen, S., Gehlert, S., Masi, C. & Olopade, F. (2005). Mammary cancer and social interactions: Identifying environments that regulate gene expression throughout the life span. Journal of Gerontology, 60B(1), 32-41.
    • (2005) Journal of Gerontology , vol.60 B , Issue.1 , pp. 32-41
    • Mc Clintock, M.1    Conzen, S.2    Gehlert, S.3    Masi, C.4    Olopade, F.5
  • 39
    • 16244384475 scopus 로고    scopus 로고
    • A psychotherapy of genetics
    • McDaniel, S. (2005). A psychotherapy of genetics. Family Process, 44(1), 25-44.
    • (2005) Family Process , vol.44 , Issue.1 , pp. 25-44
    • Mc Daniel, S.1
  • 40
    • 54849414723 scopus 로고    scopus 로고
    • "it runs in the family": Family systems concepts and genetically linked disorders
    • S. M. Miller, S. H.McDaniel, J. S. Rolland, & S. L. Feetham (Eds.), New York: Norton
    • McDaniel, S. H., Rolland, J. S., Feetham, S. L., & Miller, S. M. (2006). "It runs in the family": Family systems concepts and genetically linked disorders. In S. M. Miller, S. H.McDaniel, J. S. Rolland, & S. L. Feetham (Eds.), Individuals, families, and the New genetics: Biopsychosocial perspectives (pp. 118-138). New York: Norton.
    • (2006) Individuals, Families, and the New Genetics: Biopsychosocial Perspectives , pp. 118-138
    • Mc Daniel, S.H.1    Rolland, J.S.2    Feetham, S.L.3    Miller, S.M.4
  • 42
    • 29644445236 scopus 로고    scopus 로고
    • Psychological impact of genetic testing for cancer susceptibility: An update of the literature
    • Meiser, B. (2005). Psychological impact of genetic testing for cancer susceptibility: An update of the literature. Psycho-Oncology 14(12), 1060-1074.
    • (2005) Psycho-Oncology , vol.14 , Issue.12 , pp. 1060-1074
    • Meiser, B.1
  • 43
    • 0346502790 scopus 로고    scopus 로고
    • Risk-reducing strategies for breast cancer-Areviewof recent literature
    • Mokbel, K. (2003).Risk-reducing strategies for breast cancer-Areviewof recent literature. International Journal of Fertility & Women Reproduction, 48(6), 274-277.
    • (2003) International Journal of Fertility & Women Reproduction , vol.48 , Issue.6 , pp. 274-277
    • Mokbel, K.1
  • 44
    • 70449638748 scopus 로고    scopus 로고
    • Retrieved February 13, 2008, from
    • National Society of Genetic Counselors. (2006). Fact sheet for the NSGC. Retrieved February 13, 2008, from http://www.nsgc.org/news/mediakit/factsheet. cfm.
    • (2006) Fact Sheet for the NSGC
  • 45
    • 0032013599 scopus 로고    scopus 로고
    • Psychosocial aspects of breast cancer
    • Oktay, J. S. (1998). Psychosocial aspects of breast cancer. Lippincotts Primary Care Practice, 2, 149-159.
    • (1998) Lippincotts Primary Care Practice , vol.2 , pp. 149-159
    • Oktay, J.S.1
  • 48
    • 0141676664 scopus 로고    scopus 로고
    • Psychosocial issues associated with genetic testing for breast and ovarian cancer risk: An integrative review
    • Pasacreta, J. V. (2003). Psychosocial issues associated with genetic testing for breast and ovarian cancer risk: An integrative review. Cancer Investigations, 21(4), 588-623.
    • (2003) Cancer Investigations , vol.21 , Issue.4 , pp. 588-623
    • Pasacreta, J.V.1
  • 51
    • 0032946333 scopus 로고    scopus 로고
    • The genetic self: The human genome project, genetic counseling, and family therapy
    • Peters, J. A., Djurdjinovic, L., & Baker, D. (1997). The genetic self: The human genome project, genetic counseling, and family therapy. Families, Systems & Health 17(1), 5-25.
    • (1997) Families, Systems & Health , vol.17 , Issue.1 , pp. 5-25
    • Peters, J.A.1    Djurdjinovic, L.2    Baker, D.3
  • 52
    • 0037162110 scopus 로고    scopus 로고
    • Prevention and observation of surgical end points study group. Prophylactic oophorectomy in carriers of BRCA1 and BRCA2 mutations
    • Rebbeck, T. R., Lynch, H. T., Neuhausen, S. L., Narod, S. A., et al. (2002). Prevention and observation of surgical end points study group. Prophylactic oophorectomy in carriers of BRCA1 and BRCA2 mutations. New England Journal of Medicine, 346(21), 1616-1622.
    • (2002) New England Journal of Medicine , vol.346 , Issue.21 , pp. 1616-1622
    • Rebbeck, T.R.1    Lynch, H.T.2    Neuhausen, S.L.3    Narod, S.A.4
  • 54
    • 34547863231 scopus 로고    scopus 로고
    • Families and illness
    • S. Gehlert & Arthur, T. (Eds.), Indianapolis, IN: Wiley & Sons
    • Rolland, J. S., & Werner-Lin, A. (2006). Families and illness. In S. Gehlert & Arthur, T. (Eds.), Handbook of health social work (pp. 305-334). Indianapolis, IN: Wiley & Sons.
    • (2006) Handbook of Health Social Work , pp. 305-334
    • Rolland, J.S.1    Werner-Lin, A.2
  • 55
    • 19344372847 scopus 로고    scopus 로고
    • Data management and analysis methods
    • N. Denzin & Y. Lincoln, (Eds.), Newbury Park: CA: Sage
    • Ryan, G. W., & Bernard, H. R. (2003). Data management and analysis methods. In N. Denzin & Y. Lincoln, (Eds.), Collecting and interpreting qualitative materials (pp. 259-309). Newbury Park: CA: Sage.
    • (2003) Collecting and Interpreting Qualitative Materials , pp. 259-309
    • Ryan, G.W.1    Bernard, H.R.2
  • 57
    • 0030910022 scopus 로고    scopus 로고
    • The risk of cancer associated with specific mutations in BRCA1 and BRCA2 among Ashkenazi Jews
    • Struewing, J. P., Hartage, P., & Wacholder, S. (1997). The risk of cancer associated with specific mutations in BRCA1 and BRCA2 among Ashkenazi Jews. New England Journal of Medicine, 336(20), 1401-1408.
    • (1997) New England Journal of Medicine , vol.336 , Issue.20 , pp. 1401-1408
    • Struewing, J.P.1    Hartage, P.2    Wacholder, S.3
  • 58
  • 60
    • 33751436702 scopus 로고    scopus 로고
    • Comparison of individuals opting for BRCA1/2 or HNPCC genetic susceptibility testing with regard to coping, illness perceptions, illness experiences, family system characteristics and hereditary cancer distress
    • van Oostrom, I., Meijers-Heijboer, H., Duivenvoorden, H. J., Brocker-Vriends, A. H., van Asperen, C. J., Sijmons, R. H., et al. (2007). Comparison of individuals opting for BRCA1/2 or HNPCC genetic susceptibility testing with regard to coping, illness perceptions, illness experiences, family system characteristics and hereditary cancer distress. Patient Education and Counseling, 65(1), 58-68.
    • (2007) Patient Education and Counseling , vol.65 , Issue.1 , pp. 58-68
    • Van Oostrom, I.1    Meijers-Heijboer, H.2    Duivenvoorden, H.J.3    Brocker-Vriends, A.H.4    Van Asperen, C.J.5    Sijmons, R.H.6
  • 63
    • 34547877597 scopus 로고    scopus 로고
    • Danger zones: Risk perceptions of young women from families with hereditary breast and ovarian cancer
    • Werner-Lin, A. (2007). Danger zones: Risk perceptions of young women from families with hereditary breast and ovarian cancer. Family Process, 46(3), 335-349.
    • (2007) Family Process , vol.46 , Issue.3 , pp. 335-349
    • Werner-Lin, A.1
  • 64
    • 61449477523 scopus 로고    scopus 로고
    • Beating the biological clock: The compressed family life cycle of young women with BRCA gene alterations
    • in press
    • Werner-Lin, A. (2008, in press). Beating the biological clock: The compressed family life cycle of young women with BRCA gene alterations. Social Work in Health Care.
    • (2008) Social Work in Health Care
    • Werner-Lin, A.1
  • 65
    • 0042319126 scopus 로고    scopus 로고
    • Effects of spouses on distress experienced by BRCA1 mutation carriers over time
    • Wylie, J. E., Smith, K. R.,& Botkin, J. R. (2003). Effects of spouses on distress experienced by BRCA1 mutation carriers over time. American Journal of Medical Genetics, 119(1), 35-44.
    • (2003) American Journal of Medical Genetics , vol.119 , Issue.1 , pp. 35-44
    • Wylie, J.E.1    Smith, K.R.2    Botkin, J.R.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.